Update: Re:call from pulmo dude's office

[Guest guest]

I spoke to the pulmo dude's nurse. I told her I was concerned about losing my

concentrater. I also mentioned getting the oximeter and what my SATS have been

since. I also told her that I want to talk to him about going on either CPAP or

BiPAP. So, she checked my record and it seems the old pulmo dude never sent

results from the 2 sleep studies I had last year. So, I had to track down those

records and I'm seeing the doc on Thurs.

I'd like it if everyone can send me questions I should be asking him. I always

feel like my time w/ him is so limited. He's very patient as far as answering my

questions. But, I always seem to forget exactly what questions I should be

asking.

Thanks all,

Nan 49, MASS

list started in '82

PF added in '08

> >

> >

> > .....

> >

> > Do you have an oximeter to keep track of your own oxygen levels? That was

> > a big help to me in seeing when, where, why and how far my O2 levels were

> > dropping. I've gotten pretty much attached to the tube and I wonder if

> > sometimes it's more psychological than anything else. When I'm not doing

> > much, the level is fine, but even walking up a flight of stairs here, it

can

> > drop quickly unacceptable levels. So I just leave it in and trip over it

> > frequently, get it snagged on stuff, and pull my ears and nose off from

time

> > to time. Oh, and I've slept in a recliner for a couple of years now. I do

> > miss my bed, though. I just bought a backrest thing from tone,

> > taller that others, with a headrest, and I may be able to use that in bed.

I

> > was supposed to have my first interview with the transplant docs at U. of

PA

> > Thursday but my car has to go into the shop. grrr

> >

> > Bill IPF 10/08

> > Slatington, PA

> >

> > **************Recession-proof vacation ideas. Find free things to do in

> > the U.S.

> >

(http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntus\

trav00000002)

> >

>

[Guest guest]

if your doc wants to test your o2 SATs in his office, do it without O2, that way he will see them drop

if they don't drop while just walking, try talking and walking

if that doesn't work, go up a flight of stairs, that should do it

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Update: Re:call from pulmo dude's officeTo: Breathe-Support Date: Tuesday, May 19, 2009, 5:07 PM

I spoke to the pulmo dude's nurse. I told her I was concerned about losing my concentrater. I also mentioned getting the oximeter and what my SATS have been since. I also told her that I want to talk to him about going on either CPAP or BiPAP. So, she checked my record and it seems the old pulmo dude never sent results from the 2 sleep studies I had last year. So, I had to track down those records and I'm seeing the doc on Thurs. I'd like it if everyone can send me questions I should be asking him. I always feel like my time w/ him is so limited. He's very patient as far as answering my questions. But, I always seem to forget exactly what questions I should be asking. Thanks all,Nan 49, MASSlist started in '82PF added in '08> >> > > > .....> > > > Do you have an oximeter to keep track of your own oxygen levels? That was > > a big help to me in seeing

when, where, why and how far my O2 levels were > > dropping. I've gotten pretty much attached to the tube and I wonder if > > sometimes it's more psychological than anything else. When I'm not doing > > much, the level is fine, but even walking up a flight of stairs here, it can > > drop quickly unacceptable levels. So I just leave it in and trip over it > > frequently, get it snagged on stuff, and pull my ears and nose off from time > > to time. Oh, and I've slept in a recliner for a couple of years now. I do > > miss my bed, though. I just bought a backrest thing from tone, > > taller that others, with a headrest, and I may be able to use that in bed. I > > was supposed to have my first interview with the transplant docs at U. of PA > > Thursday but my car has to go into the shop. grrr> > > > Bill IPF 10/08> >

Slatington, PA> > > > ************ **Recession- proof vacation ideas. Find free things to do in > > the U.S. > > (http://travel. aol.com/travel- ideas/domestic/ national- tourism-week? ncid=emlcntustra v00000002)> >>

[Guest guest]

if your doc wants to test your o2 SATs in his office, do it without O2, that way he will see them drop

if they don't drop while just walking, try talking and walking

if that doesn't work, go up a flight of stairs, that should do it

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Update: Re:call from pulmo dude's officeTo: Breathe-Support Date: Tuesday, May 19, 2009, 5:07 PM

I spoke to the pulmo dude's nurse. I told her I was concerned about losing my concentrater. I also mentioned getting the oximeter and what my SATS have been since. I also told her that I want to talk to him about going on either CPAP or BiPAP. So, she checked my record and it seems the old pulmo dude never sent results from the 2 sleep studies I had last year. So, I had to track down those records and I'm seeing the doc on Thurs. I'd like it if everyone can send me questions I should be asking him. I always feel like my time w/ him is so limited. He's very patient as far as answering my questions. But, I always seem to forget exactly what questions I should be asking. Thanks all,Nan 49, MASSlist started in '82PF added in '08> >> > > > .....> > > > Do you have an oximeter to keep track of your own oxygen levels? That was > > a big help to me in seeing

when, where, why and how far my O2 levels were > > dropping. I've gotten pretty much attached to the tube and I wonder if > > sometimes it's more psychological than anything else. When I'm not doing > > much, the level is fine, but even walking up a flight of stairs here, it can > > drop quickly unacceptable levels. So I just leave it in and trip over it > > frequently, get it snagged on stuff, and pull my ears and nose off from time > > to time. Oh, and I've slept in a recliner for a couple of years now. I do > > miss my bed, though. I just bought a backrest thing from tone, > > taller that others, with a headrest, and I may be able to use that in bed. I > > was supposed to have my first interview with the transplant docs at U. of PA > > Thursday but my car has to go into the shop. grrr> > > > Bill IPF 10/08> >

Slatington, PA> > > > ************ **Recession- proof vacation ideas. Find free things to do in > > the U.S. > > (http://travel. aol.com/travel- ideas/domestic/ national- tourism-week? ncid=emlcntustra v00000002)> >>