Update: Re:call from pulmo dude's office

[Guest guest]

I spoke to the pulmo dude's nurse. I told her I was concerned about losing my

concentrater. I also mentioned getting the oximeter and what my SATS have been

since. I also told her that I want to talk to him about going on either CPAP or

BiPAP. So, she checked my record and it seems the old pulmo dude never sent

results from the 2 sleep studies I had last year. So, I had to track down those

records and I'm seeing the doc on Thurs.

I'd like it if everyone can send me questions I should be asking him. I always

feel like my time w/ him is so limited. He's very patient as far as answering my

questions. But, I always seem to forget exactly what questions I should be

asking.

Thanks all,

Nan 49, MASS

list started in '82

PF added in '08

> >

> >

> > .....

> >

> > Do you have an oximeter to keep track of your own oxygen levels? That was

> > a big help to me in seeing when, where, why and how far my O2 levels were

> > dropping. I've gotten pretty much attached to the tube and I wonder if

> > sometimes it's more psychological than anything else. When I'm not doing

> > much, the level is fine, but even walking up a flight of stairs here, it

can

> > drop quickly unacceptable levels. So I just leave it in and trip over it

> > frequently, get it snagged on stuff, and pull my ears and nose off from

time

> > to time. Oh, and I've slept in a recliner for a couple of years now. I do

> > miss my bed, though. I just bought a backrest thing from tone,

> > taller that others, with a headrest, and I may be able to use that in bed.

I

> > was supposed to have my first interview with the transplant docs at U. of

PA

> > Thursday but my car has to go into the shop. grrr

> >

> > Bill IPF 10/08

> > Slatington, PA

> >

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>