Update: Re:call from pulmo dude's office

[Guest guest]

Tomorrow is Thursday and I'm seeing the pulmo dude.

> > >

> > >

> > > .....

> > >

> > > Do you have an oximeter to keep track of your own oxygen levels? That

was

> > > a big help to me in seeing when, where, why and how far my O2 levels were

> > > dropping. I've gotten pretty much attached to the tube and I wonder if

> > > sometimes it's more psychological than anything else. When I'm not doing

> > > much, the level is fine, but even walking up a flight of stairs here, it

can

> > > drop quickly unacceptable levels. So I just leave it in and trip over it

> > > frequently, get it snagged on stuff, and pull my ears and nose off from

time

> > > to time. Oh, and I've slept in a recliner for a couple of years now. I

do

> > > miss my bed, though. I just bought a backrest thing from tone,

> > > taller that others, with a headrest, and I may be able to use that in

bed. I

> > > was supposed to have my first interview with the transplant docs at U. of

PA

> > > Thursday but my car has to go into the shop. grrr

> > >

> > > Bill IPF 10/08

> > > Slatington, PA

> > >

> > > **************Recession-proof vacation ideas. Find free things to do in

> > > the U.S.

> > >

(http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntus\

trav00000002)

> > >

> >

>

[Guest guest]

Hi Nan...one thing we learn here on the board is to always take a 'list' of questions you want to ask a doc.

Getting and using a cpap is a fairly easy process...I've had mine for about 4 years.

One thing, in hindsight I wish I would have done, is ask the tech who explains how to use the cpap mask, to put it together for me. Right then and there. I had an awful time figuring/remembering what he said to get the darn thing together...it came in pieces.

Sometimes the cpap/mask arrive by mail & sometimes the one he is demonstrating will go home with you.

I use the blue gel mask that covers the nose only but there is a 'full face mask' as well. Your decision as to what is most comfortable and tolerable and necessary per doc.

It takes awhile to get adjusted to the mask and the 'sound' of air from the cpap. Although the new ones are very different from mine I think so my info. may not apply but at least it's some input for you.

Good luck!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Update: Re:call from pulmo dude's office

Tomorrow is Thursday and I'm seeing the pulmo dude. > > >> > > > > > .....> > > > > > Do you have an oximeter to keep track of your own oxygen levels? That was > > > a big help to me in seeing when, where, why and how far my O2 levels were > > > dropping. I've gotten pretty much attached to the tube and I wonder if > > > sometimes it's more psychological than anything else. When I'm not doing > > > much, the level is fine, but even walking up a flight of stairs here, it can > > > drop quickly unacceptable levels. So I just leave it in and trip over it > > > frequently, get it snagged on stuff, and pull my ears and nose off from time > > > to time. Oh, and I've slept in a recliner for a couple of years now. I do > > > miss my bed, though. I just bought a backrest thing from tone, > > > taller that others, with a headrest, and I may be able to use that in bed. I > > > was supposed to have my first interview with the transplant docs at U. of PA > > > Thursday but my car has to go into the shop. grrr> > > > > > Bill IPF 10/08> > > Slatington, PA> > > > > > **************Recession-proof vacation ideas. Find free things to do in > > > the U.S. > > > (http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntustrav00000002)> > >> >>

[Guest guest]

Hi Nan...one thing we learn here on the board is to always take a 'list' of questions you want to ask a doc.

Getting and using a cpap is a fairly easy process...I've had mine for about 4 years.

One thing, in hindsight I wish I would have done, is ask the tech who explains how to use the cpap mask, to put it together for me. Right then and there. I had an awful time figuring/remembering what he said to get the darn thing together...it came in pieces.

Sometimes the cpap/mask arrive by mail & sometimes the one he is demonstrating will go home with you.

I use the blue gel mask that covers the nose only but there is a 'full face mask' as well. Your decision as to what is most comfortable and tolerable and necessary per doc.

It takes awhile to get adjusted to the mask and the 'sound' of air from the cpap. Although the new ones are very different from mine I think so my info. may not apply but at least it's some input for you.

Good luck!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Update: Re:call from pulmo dude's office

Tomorrow is Thursday and I'm seeing the pulmo dude. > > >> > > > > > .....> > > > > > Do you have an oximeter to keep track of your own oxygen levels? That was > > > a big help to me in seeing when, where, why and how far my O2 levels were > > > dropping. I've gotten pretty much attached to the tube and I wonder if > > > sometimes it's more psychological than anything else. When I'm not doing > > > much, the level is fine, but even walking up a flight of stairs here, it can > > > drop quickly unacceptable levels. So I just leave it in and trip over it > > > frequently, get it snagged on stuff, and pull my ears and nose off from time > > > to time. Oh, and I've slept in a recliner for a couple of years now. I do > > > miss my bed, though. I just bought a backrest thing from tone, > > > taller that others, with a headrest, and I may be able to use that in bed. I > > > was supposed to have my first interview with the transplant docs at U. of PA > > > Thursday but my car has to go into the shop. grrr> > > > > > Bill IPF 10/08> > > Slatington, PA> > > > > > **************Recession-proof vacation ideas. Find free things to do in > > > the U.S. > > > (http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntustrav00000002)> > >> >>