call from pulmo dude's office

[Guest guest]

I'm not sure how I feel about this. I did an overnight oximetry study on the

7th. The pulmo dude's nurse called while I was out today and left a message. She

said that he just got the results of the test. He says that, at this time, he

doesn't feel that I need O2 at night any longer. I think I need to talk to him

about this. I did the test sleeping in my recliner chair. It makes it easier to

breathe. I think if I had slept in my bed, I would've had different results.

I went and had the 6 minute walk test today. A little over 4 minutes into it, my

SAT was 88. I had to sit for a minute, then when I finshed the 6 minutes, it was

at 90.

I start pulmo rehab on the 26th. The girl said that most likely, pulmo dude will

have me start w/o O2 and add it if I drop down.

My next visit w/ him isn't until October. But, I think I'm going to call and see

about getting in sooner. I hate to have to look for a new pulmo dude considering

this one is new. But, it seems as though he's got a pretty relaxed attitude

about my treatment. So, we'll see. I'll post again after I speak to him.

[Guest guest]

.....

Do you have an oximeter to keep track of your own oxygen levels? That was a big help to me in seeing when, where, why and how far my O2 levels were dropping. I've gotten pretty much attached to the tube and I wonder if sometimes it's more psychological than anything else. When I'm not doing much, the level is fine, but even walking up a flight of stairs here, it can drop quickly unacceptable levels. So I just leave it in and trip over it frequently, get it snagged on stuff, and pull my ears and nose off from time to time. Oh, and I've slept in a recliner for a couple of years now. I do miss my bed, though. I just bought a backrest thing from tone, taller that others, with a headrest, and I may be able to use that in bed. I was supposed to have my first interview with the transplant docs at U. of PA Thursday but my car has to go into the shop. grrr

Bill IPF 10/08

Slatington, PA Recession-proof vacation ideas. Find free things to do in the U.S.

[Guest guest]

.....

Do you have an oximeter to keep track of your own oxygen levels? That was a big help to me in seeing when, where, why and how far my O2 levels were dropping. I've gotten pretty much attached to the tube and I wonder if sometimes it's more psychological than anything else. When I'm not doing much, the level is fine, but even walking up a flight of stairs here, it can drop quickly unacceptable levels. So I just leave it in and trip over it frequently, get it snagged on stuff, and pull my ears and nose off from time to time. Oh, and I've slept in a recliner for a couple of years now. I do miss my bed, though. I just bought a backrest thing from tone, taller that others, with a headrest, and I may be able to use that in bed. I was supposed to have my first interview with the transplant docs at U. of PA Thursday but my car has to go into the shop. grrr

Bill IPF 10/08

Slatington, PA Recession-proof vacation ideas. Find free things to do in the U.S.

[Guest guest]

Hi Bill,

Yes, thanks for an angel on the board, I have an oximeter now. I've been

charting my SATS for a few days. So far, it drops whenever I exert myself. I'll

be calling pulmo dude's office in a bit. The O2 company called this morning to

set up a time to pick up my concentrater. I want to talk to the doc first

though. Before I give up the concentrater.

Nan 49, MASS

listed started in '82

PF added in '08

>

>

> .....

>

> Do you have an oximeter to keep track of your own oxygen levels? That was

> a big help to me in seeing when, where, why and how far my O2 levels were

> dropping. I've gotten pretty much attached to the tube and I wonder if

> sometimes it's more psychological than anything else. When I'm not doing

> much, the level is fine, but even walking up a flight of stairs here, it can

> drop quickly unacceptable levels. So I just leave it in and trip over it

> frequently, get it snagged on stuff, and pull my ears and nose off from time

> to time. Oh, and I've slept in a recliner for a couple of years now. I do

> miss my bed, though. I just bought a backrest thing from tone,

> taller that others, with a headrest, and I may be able to use that in bed. I

> was supposed to have my first interview with the transplant docs at U. of PA

> Thursday but my car has to go into the shop. grrr

>

> Bill IPF 10/08

> Slatington, PA

>

> **************Recession-proof vacation ideas. Find free things to do in

> the U.S.

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