Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Adrienne, Penn does not have a PF group...I know nothing about Temple. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Adrienne Bishop wrote: I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Adrienne, Penn does not have a PF group...I know nothing about Temple. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Adrienne Bishop wrote: I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 > > I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? > Thank you > Temple has a meeting almost every month I went to my 1st one in March. The are on 4th Tuesday from 2:30pm to 4:00pm classroom C&D. The next on 6/23/09 will have Fox talking on the Gift of life. Also " organ donation, procuremnet, regulations " will be presented. I know of no offical contact but Gwendolan B. Vance at vancegb@... could help with questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Hi Joyce, Thanks for the information. Do you know if the group is specifically for people who have been recently diagnosed with IPF or just transplant members.? I do live in Philly. Adrienne From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>Subject: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups.. comDate: Sunday, May 31, 2009, 2:47 PM I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Adrienne, You'll find that in person support groups specifically for those of us with pulmonary fibrosis are few and far between. I live a stones throw from Duke which has one of the premier interstitial lung disease programs in the US and there is no pf support group in this area. Very often there are more generalized groups like Better Breathers but the vast majority of the folks that belong have emphysema or COPD. It means the discussions have virtually nothing to do with me and I just end up feeling even more isolated and misunderstood. I hope you find something. There are a bunch of you in the general Philly area, maybe a lunch is in order?! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, June 1, 2009 5:20:14 PMSubject: Re: Re: Support Groups at Penn or Temple Lung Center Thanks Luke, I went to a group at Temple back in September or October which was to meet quarterly, but was told the funding was discontinued. Is the group you are referring to for IPF folks or any breathing problem? Adrienne From: Luke J. Nester <ljnester (AT) yahoo (DOT) com>Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. comDate: Monday, June 1, 2009, 1:20 AM >> I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person?> Thank you>Temple has a meeting almost every month I went to my 1st one in March.The are on 4th Tuesday from 2:30pm to 4:00pm classroom C & D.The next on 6/23/09 will have Fox talking on the Gift of life.Also "organ donation, procuremnet, regulations" will be presented.I know of no offical contact but Gwendolan B. Vance at vancegb (AT) tuhs (DOT) temple.edu could help with questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Adrienne, You'll find that in person support groups specifically for those of us with pulmonary fibrosis are few and far between. I live a stones throw from Duke which has one of the premier interstitial lung disease programs in the US and there is no pf support group in this area. Very often there are more generalized groups like Better Breathers but the vast majority of the folks that belong have emphysema or COPD. It means the discussions have virtually nothing to do with me and I just end up feeling even more isolated and misunderstood. I hope you find something. There are a bunch of you in the general Philly area, maybe a lunch is in order?! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, June 1, 2009 5:20:14 PMSubject: Re: Re: Support Groups at Penn or Temple Lung Center Thanks Luke, I went to a group at Temple back in September or October which was to meet quarterly, but was told the funding was discontinued. Is the group you are referring to for IPF folks or any breathing problem? Adrienne From: Luke J. Nester <ljnester (AT) yahoo (DOT) com>Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. comDate: Monday, June 1, 2009, 1:20 AM >> I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person?> Thank you>Temple has a meeting almost every month I went to my 1st one in March.The are on 4th Tuesday from 2:30pm to 4:00pm classroom C & D.The next on 6/23/09 will have Fox talking on the Gift of life.Also "organ donation, procuremnet, regulations" will be presented.I know of no offical contact but Gwendolan B. Vance at vancegb (AT) tuhs (DOT) temple.edu could help with questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 I too went to a better breather's club, but, I got the impression that the pespiratory tharapest didn't know what PF was, so, I'll give it one more try. ken o. To: Breathe-Support Sent: Monday, June 1, 2009 2:40:57 PMSubject: Re: Re: Support Groups at Penn or Temple Lung Center Adrienne, You'll find that in person support groups specifically for those of us with pulmonary fibrosis are few and far between. I live a stones throw from Duke which has one of the premier interstitial lung disease programs in the US and there is no pf support group in this area. Very often there are more generalized groups like Better Breathers but the vast majority of the folks that belong have emphysema or COPD. It means the discussions have virtually nothing to do with me and I just end up feeling even more isolated and misunderstood. I hope you find something. There are a bunch of you in the general Philly area, maybe a lunch is in order?! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, June 1, 2009 5:20:14 PMSubject: Re: Re: Support Groups at Penn or Temple Lung Center Thanks Luke, I went to a group at Temple back in September or October which was to meet quarterly, but was told the funding was discontinued. Is the group you are referring to for IPF folks or any breathing problem? Adrienne From: Luke J. Nester <ljnester (AT) yahoo (DOT) com>Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. comDate: Monday, June 1, 2009, 1:20 AM >> I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person?> Thank you>Temple has a meeting almost every month I went to my 1st one in March.The are on 4th Tuesday from 2:30pm to 4:00pm classroom C & D.The next on 6/23/09 will have Fox talking on the Gift of life.Also "organ donation, procuremnet, regulations" will be presented.I know of no offical contact but Gwendolan B. Vance at vancegb (AT) tuhs (DOT) temple.edu could help with questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 I wish there was a way to find out who in our areas might have PF. Doctors, hospitals, or therapy places aren't allowed to say because of privacy laws, but just through the nine weeks I spent in pulmonary therapy in town, I became aware of two others right there. So there must be more. Finding them and establishing our own support/lunch group would be nice, if only to call each other and see how the other is doing. Bill IPF 10/08 N. of town, PA We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 I agree, it's time for another luncheon or dinner or brunch Spoke to Patti Sunday nite she doesn't remember how to get into this site Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support Date: Monday, June 1, 2009, 11:30 PM Adrienne, Where in Philadelphia? I've lived in the Philadelphia my entire life (except for 1965-1966)I now live in Blue Bell...right outside the city. I grew up in West Oak Lane, My husband Mike is from Oxford Circle!Do you go to Penn or Temple for Lung" pulmodudes?"What high school? Girls High 1961 for me!Sorry I'm being nosy...just that you are another Philly girl..there is Joyce Rosenberg and Patti Friend( She's now in Cherry Hill)but that's really Philly too! I lived there for 8 years.We will have to meet...put faces to names.Yo...Pink Joyce and Patti chime in here!!! Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Adrienne Bishop wrote: Hi Joyce, Thanks for the information. Do you know if the group is specifically for people who have been recently diagnosed with IPF or just transplant members.? I do live in Philly. Adrienne From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>Subject: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. . comDate: Sunday, May 31, 2009, 2:47 PM I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 st mary has a group -- better breathers -- i went a few times but of course most members are copd-- for more info on that group call Hartman or (i forget her last name) both are respiratory therapists at St i did go there for pulmonary rehab and it was an excellent program they even asked a man who has ipf to come so I could meet him after the second time i met him, he got his transplant did your doc give you a prescription for a pulmonary rehab program? Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support Date: Monday, June 1, 2009, 5:20 PM Thanks Luke, I went to a group at Temple back in September or October which was to meet quarterly, but was told the funding was discontinued. Is the group you are referring to for IPF folks or any breathing problem? Adrienne From: Luke J. Nester <ljnester (AT) yahoo (DOT) com>Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. comDate: Monday, June 1, 2009, 1:20 AM >> I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person?> Thank you>Temple has a meeting almost every month I went to my 1st one in March.The are on 4th Tuesday from 2:30pm to 4:00pm classroom C & D.The next on 6/23/09 will have Fox talking on the Gift of life.Also "organ donation, procuremnet, regulations" will be presented.I know of no offical contact but Gwendolan B. Vance at vancegb (AT) tuhs (DOT) temple.edu could help with questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Thanks Beth i just cut and pasted what you wrote and sent it to patti in my other email hope she can figure it out Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support Date: Tuesday, June 2, 2009, 8:34 AM Joyce, I just approved Patti's membership under a new email address so she should be back on today. Her old one was still there and appeared to be working so I'm not sure what the problem was but whatever it was she should be able to log in without difficulty now. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, June 2, 2009 8:25:12 AMSubject: Re: Support Groups at Penn or Temple Lung Center I agree, it's time for another luncheon or dinner or brunch Spoke to Patti Sunday nite she doesn't remember how to get into this site Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>Subject: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. . comDate: Sunday, May 31, 2009, 2:47 PM I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Bill i am trying to think of what is between town, Langhorne, Blue Bell, Cherry Hill and Philly -- some place in the middle where we could meet -- Montgomeryville? off of 309? King of Prussia? off of the turnpike? any other suggestions? Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support Date: Tuesday, June 2, 2009, 9:11 AM I wish there was a way to find out who in our areas might have PF. Doctors, hospitals, or therapy places aren't allowed to say because of privacy laws, but just through the nine weeks I spent in pulmonary therapy in town, I became aware of two others right there. So there must be more. Finding them and establishing our own support/lunch group would be nice, if only to call each other and see how the other is doing. Bill IPF 10/08 N. of town, PA We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Adrienne we need to find other people in this area with this disease and form our own support group just curious, are you a college age student going to Temple or an adult who has returned to college? Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support Date: Tuesday, June 2, 2009, 10:03 PM Hi , I live in the West Mt. Airy section of Philly and go to Temple. I have lived here all my life other than my college years. I have many friends who went to Girls High School, but I went to the other GHS (Germantown High School). It is a shame that there are not more support groups for IPF. Maybe if we complain enough there will be more. Take care!! From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>Subject: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. . comDate: Sunday, May 31, 2009, 2:47 PM I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Joyce, That is kind of you to think I might be a college student. It takes me back. I've been out of school for many many years. When I mentioned Temple I meant Temple's Lung Center. From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>Subject: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. . comDate: Sunday, May 31, 2009, 2:47 PM I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 I had a feeling it was one of the pre existing hospitals with a name and ownership change Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support Date: Wednesday, June 3, 2009, 11:38 AM Joyce, You really are younger than me!!!I graduated Temple in 65!!!I got my MA in 1972 from Glassboro ( now Rowen) during and after Adam and Andi were born.and we lived in Cherry Hill at the time.The Reading team from Temple ( Marjorie et all had moved fromTemple to Glassboro)Montgomery Hospital is now part of theEinstein/Jefferson network and is Norristown. Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Joyce T Rosenberg wrote: Penn just upped the transplant age limit to 70 where is Montgomery Hospital? that's a new one to me Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>Subject: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. . comDate: Sunday, May 31, 2009, 2:47 PM I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 > > > > I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? > > Thank you > > > Temple has a meeting almost every month I went to my 1st one in March. > The are on 4th Tuesday from 2:30pm to 4:00pm classroom C&D. > The next on 6/23/09 will have Fox talking on the Gift of life. > Also " organ donation, procuremnet, regulations " will be presented. > I know of no offical contact but Gwendolan B. Vance at vancegb (AT) tuhs (DOT) temple.edu could help with questions. > I think it is a lung transplant support group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 > > > > I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? > > Thank you > > > Temple has a meeting almost every month I went to my 1st one in March. > The are on 4th Tuesday from 2:30pm to 4:00pm classroom C&D. > The next on 6/23/09 will have Fox talking on the Gift of life. > Also " organ donation, procuremnet, regulations " will be presented. > I know of no offical contact but Gwendolan B. Vance at vancegb (AT) tuhs (DOT) temple.edu could help with questions. > I think it is a lung transplant support group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Patti glad to see you posting again Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support Date: Wednesday, June 3, 2009, 10:45 PM Heh, not too bad an idea.. so i finally found my way home.. computer even the other day giving me trouble. well, don't forget us meeting for lunch, dinner on a weekend just let me know when and where.. talk later . have temple and all my docs; cardiologist, thoracic surgeon, lung (my Friend ha ha) and then social worker and nutritionist. long afternoon and i appear to continue to hold fluid.. just what i need more weight to carry around. Patti ipf 7/06, PH 2/07,raynauds '99, scleroderma From: Adrienne Bishop <eggie5909 (AT) yahoo (DOT) com>Subject: Support Groups at Penn or Temple Lung CenterTo: Breathe-Support@ yahoogroups. . comDate: Sunday, May 31, 2009, 2:47 PM I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Beth, thank you, needed that , LOL i would take normal weight so i stop hearing i need to be " leaner " .. Believe it or not no to the renal function.. I was told also that i can throw a lung clot at any time was i aware. Told her no as what i have learned about IPF has been on line and this GROUP.. I agree with you. this makes no sense to me.. took me off norvasc again thnking that it is again.. but i asked the cardiologist wouldn't the swelling be continual and not sporadic.. appears to be weather related and now i find K low . so don't know if there is a correlation. I think i will bring the nephrologist up to Nugent as i have been on max doses for past two months of doxycycline and zyvox so. may be.. thanks again. > > > From: Adrienne Bishop > Subject: Support Groups at Penn or Temple Lung Center > To: Breathe-Support@ yahoogroups. . com > Date: Sunday, May 31, 2009, 2:47 PM > > >  I was curious if anyone knows if Penn or Temple has any support groups that meet on any type of regular basis (i.e. Monthly, Quarterly)? And if so is there a contact person? > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 -I was told " that sometimes it is more of a cosmetic issue " .. LOL my breathing changes and my weight changes before i even think to look at my feet..also, it shows up in my abdomen.. so i am not getting it.. i know with me what it isnt and it is even what is called dependent edema when your feet are down all day.. i am sleeping and wake up with it and it just increases... Also, watching sodium intake and processed food.. shame i just love food for the old taste i remember and the fact it is comfort at times.. lol..Guess we stuck... patti -- In Breathe-Support , Zion wrote: > > *Patti*, I can't take Lasix...too much sulfa in that drug for me!!! > They have ruled out heart and kidney function..so now what? > > > Z 65, fibriotic NSIP/05/PA > > > And “mild†PH/10/07 and Reynaud’s too!! > > No, NSIP was not self-inflicted…I never smoked! > > Potter, reader,carousel lover and MomMom to Darah and Sara > > “*I’m gonna be iron like a lion in Zion†Bob Marley* > > *Vinca Minor-periwinkle is my flower* > > > > > > > > > > Patti Friend wrote: > > > > > > Hi , the edema started when i first went to Florida last May. > > very severe. In Feb. occurred where i gained 10 pounds overnight, > > wheezing,shortness of breath increased and both feet quite swollen.. > > they admitted me do major work up thinking they were going to have to > > put me on active list; they thought Pulm. HTN worsened, had increased > > jugular vein distention. No clots, etc. So increased lasix to 80mg > > daily. then my Primary doc saw me as temple thought Norvasc was > > causing issue so stopped that. so my primary increased me to 80 in am > > and 40 in afternoon. Now this started on Monday. NO wheezing but > > productive cough.. Cardiologist says heart good it is my lung.. No one > > has a clear understanding why this is happened. Back on Norvasc > > (didn't change anything when stopped) and still with 120mg lasix > > daily. probably going to need to do bumex or zaroxyln in between. See > > temple docs today.. Me i think humidity just goes into my feet and > > actually i get abdominal swelling also.. so . i do watch sodium > > intake, stay away from processed food as much as possible. sorry for > > being so long winded.. Good to hear from you will be happy when we > > get together.. my computer at home won't let me send all the time > > laptop.. need to get my reg. PC running.. > > > > Funny i was going to throw this out to anyone who can tell me about > > what can be otherwise causing the water gain. even happens just when > > sleeping... Patti, ipf7/06,raynauds '91, scleroderma, Pulm HTN 2'07 > > > > > >>>>>> > >>>>>> > >>>>>> From: Adrienne Bishop > >>>>>> Subject: Support Groups > >>>>>> at Penn or Temple Lung Center > >>>>>> To: Breathe-Support@ yahoogroups. . com > >>>>>> Date: Sunday, May 31, 2009, 2:47 PM > >>>>>> > >>>>>> I was curious if anyone knows if Penn or > >>>>>> Temple has any support groups that meet > >>>>>> on any type of regular basis (i.e. > >>>>>> Monthly, Quarterly)? And if so is there > >>>>>> a contact person? > >>>>>> Thank you > >>>>>> > >>>>>> > >>>>>> > >>>>>> > >>>>> > >>> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
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