Re: Testing at U. of Penn

[Guest guest]

Hi Bill, I am glad to hear things are moving for you..........I grew up in

Quakertown, went ot high school in toen and then lived in coopersburg for

many years after I was married. Do you know those areas?.Now we live in Florida

and I am on the TX list at Shands in Gainesville......the 3 day testing is not

bad................just very busy. Good Luck to you.

Kathy...fl

Pf..4/07

Wtg for the " call "

>

> Hey, group..... Back from yet another day of interviewing at the Univ. of

> PA Lung Center, and it went well. So all the talking is over and now

> they'll schedule the famous three-day tests, probably in July. The doc

thinks

> I'm probably still a little too healthy for a transplant but when it's time,

> the tests would over and done with. They sent home a brown half-gallon jug

> I think to make kool aid in. I hate Philadelphia traffic. Took the

> wrong exit and saw parts of Philly I never wanted to see.

>

> Bill IPF Oct. 08

> N.E. PA

> **************We found the real ‘Hotel California’ and the ‘Seinfeld’

> diner. What will you find? Explore WhereItsAt.com.

>

(http://www.whereitsat.com/#/music/all-spots/355/47.796964/-66.374711/2/Youve-Fo\

und-Where-Its-At?ncid=eml

> cntnew00000007)

>

[Guest guest]

Bill

who is your transplant doc?

mine is Ahya

my testing was in July also

if it is on monday and tuesday july 13 and 15, we might be able to meet

monday is the lung transplant support group

tuesday is my appt with Dr Ahya

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Testing at U. of PennTo: Breathe-Support Date: Friday, May 29, 2009, 7:06 AM

Hey, group..... Back from yet another day of interviewing at the Univ. of PA Lung Center, and it went well. So all the talking is over and now they'll schedule the famous three-day tests, probably in July. The doc thinks I'm probably still a little too healthy for a transplant but when it's time, the tests would over and done with. They sent home a brown half-gallon jug I think to make kool aid in. I hate Philadelphia traffic. Took the wrong exit and saw parts of Philly I never wanted to see.

Bill IPF Oct. 08

N.E. PA

We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com.

[Guest guest]

Kathy

i lived in town for 1 year -- 1968/69

liked living there

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Testing at U. of PennTo: Breathe-Support Date: Friday, May 29, 2009, 8:58 AM

Hi Bill, I am glad to hear things are moving for you......... .I grew up in Quakertown, went ot high school in toen and then lived in coopersburg for many years after I was married. Do you know those areas?.Now we live in Florida and I am on the TX list at Shands in Gainesville. .....the 3 day testing is not bad......... .......just very busy. Good Luck to you.Kathy...flPf..4/07Wtg for the "call">> Hey, group..... Back from yet another day of interviewing at the Univ. of > PA Lung Center, and it went well. So all the talking is over and now > they'll schedule the famous three-day tests, probably in July. The doc thinks > I'm probably still a little too

healthy for a transplant but when it's time, > the tests would over and done with. They sent home a brown half-gallon jug > I think to make kool aid in. I hate Philadelphia traffic. Took the > wrong exit and saw parts of Philly I never wanted to see.> > Bill IPF Oct. 08> N.E. PA> ************ **We found the real ‘Hotel California’ and the ‘Seinfeld’ > diner. What will you find? Explore WhereItsAt.com. > (http://www.whereits at.com/#/ music/all- spots/355/ 47.796964/ -66.374711/ 2/Youve-Found- Where-Its- At?ncid=eml> cntnew00000007)>

[Guest guest]

Kathy

i lived in town for 1 year -- 1968/69

liked living there

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Testing at U. of PennTo: Breathe-Support Date: Friday, May 29, 2009, 8:58 AM

Hi Bill, I am glad to hear things are moving for you......... .I grew up in Quakertown, went ot high school in toen and then lived in coopersburg for many years after I was married. Do you know those areas?.Now we live in Florida and I am on the TX list at Shands in Gainesville. .....the 3 day testing is not bad......... .......just very busy. Good Luck to you.Kathy...flPf..4/07Wtg for the "call">> Hey, group..... Back from yet another day of interviewing at the Univ. of > PA Lung Center, and it went well. So all the talking is over and now > they'll schedule the famous three-day tests, probably in July. The doc thinks > I'm probably still a little too

healthy for a transplant but when it's time, > the tests would over and done with. They sent home a brown half-gallon jug > I think to make kool aid in. I hate Philadelphia traffic. Took the > wrong exit and saw parts of Philly I never wanted to see.> > Bill IPF Oct. 08> N.E. PA> ************ **We found the real ‘Hotel California’ and the ‘Seinfeld’ > diner. What will you find? Explore WhereItsAt.com. > (http://www.whereits at.com/#/ music/all- spots/355/ 47.796964/ -66.374711/ 2/Youve-Found- Where-Its- At?ncid=eml> cntnew00000007)>

[Guest guest]

Bill congrats on getting this far, keep going and before long you'll have a new birthday.. I understand the traffic thing.. one reason we moved from Tampa to here was traffic.I would get so frustrated. I didn't want to leave the house.Best of everything along this journey. Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. Hey, group..... Back from yet another day of interviewing at the Univ. of PA Lung Center, and it went well.  So all the talking is over and now they'll schedule the famous three-day tests, probably in July.  The doc thinks I'm probably still a little too healthy for a transplant but when it's time, the tests would over and done with. They sent home a brown half-gallon jug I think to make kool aid in.   I hate Philadelphia traffic.  Took the wrong exit and saw parts of Philly I never wanted to see. Bill  IPF  Oct. 08N.E. PAWe found the real 'Hotel California' and the 'Seinfeld' diner. What will you find?Explore WhereItsAt.com.

[Guest guest]

Bill congrats on getting this far, keep going and before long you'll have a new birthday.. I understand the traffic thing.. one reason we moved from Tampa to here was traffic.I would get so frustrated. I didn't want to leave the house.Best of everything along this journey. Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. Hey, group..... Back from yet another day of interviewing at the Univ. of PA Lung Center, and it went well.  So all the talking is over and now they'll schedule the famous three-day tests, probably in July.  The doc thinks I'm probably still a little too healthy for a transplant but when it's time, the tests would over and done with. They sent home a brown half-gallon jug I think to make kool aid in.   I hate Philadelphia traffic.  Took the wrong exit and saw parts of Philly I never wanted to see. Bill  IPF  Oct. 08N.E. PAWe found the real 'Hotel California' and the 'Seinfeld' diner. What will you find?Explore WhereItsAt.com.

[Guest guest]

Can someone explain what the three day test is? Re: Testing at U. of PennBill congrats on getting this far, keep going and before long you'll have a new birthday..

I understand the traffic thing.. one reason we moved from Tampa to here was traffic.

I would get so frustrated. I didn't want to leave the house.

Best of everything along this journey.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

Hey, group..... Back from yet another day of interviewing at the Univ. of PA Lung Center, and it went well. So all the talking is over and now they'll schedule the famous three-day tests, probably in July. The doc thinks I'm probably still a little too healthy for a transplant but when it's time, the tests would over and done with. They sent home a brown half-gallon jug I think to make kool aid in. I hate Philadelphia traffic. Took the wrong exit and saw parts of Philly I never wanted to see.

Bill IPF Oct. 08

N.E. PA

We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find?Explore WhereItsAt.com.

[Guest guest]

Embarq customer

don't know who you are

are you going to Penn?

3 day eval is the assessment at Penn to determine if a person is a candidate for a lung transplant

i was dx in March 2006, my eval was in July 2006

it is a 3 day outpatient evaluation

day 1 -- started off with blood tests, lots of tubes drawn

then all sorts of other tests, various radiolographical tests; tb, etc tests; i think the ABG and PFT's were done that afternoon

day 2 -- don't remember which tests were done in am, then in pm there were 4 meetings with social worker, financial coordinator, dietician, and explainer of transplant process

day 3 -- cardiac cath

i have the details written down, this is how i remember it

was not bad at all

then the transplant team meets after all of the results are in

patient meets about 4 to 6 weeks later for follow up appt

gist of my follow up was that my lungs at the time were too healthy for a transplant (we knew that prior to eval) and that I would be a candidate down the road

this eval also determines if someone is not a candidate down the road

the bright side was that on day 1, i met all of these recently transplanted people who were very happy with their transplants and i saw the light at the end of the tunnel

the scariest part for me was the cardiac cath, but that was not bad at all,

however, no one warned me about lying flat on my back for several hours after the cardiac cath,

for me that was the worst part of the entire eval -- lying flat on my back for several hours

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Testing at U. of PennTo: Breathe-Support Cc: Breathe-Support Date: Saturday, May 30, 2009, 8:58 AM

Can someone explain what the three day test is? Re: Testing at U. of PennBill congrats on getting this far, keep going and before long you'll have a new birthday.. I understand the traffic thing.. one reason we moved from Tampa to here was traffic.

I would get so frustrated. I didn't want to leave the house.

Best of everything along this journey.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

On May 29, 2009, at 7:06 AM, Paradis3 (AT) aol (DOT) com wrote:

Hey, group..... Back from yet another day of interviewing at the Univ. of PA Lung Center, and it went well. So all the talking is over and now they'll schedule the famous three-day tests, probably in July. The doc thinks I'm probably still a little too healthy for a transplant but when it's time, the tests would over and done with. They sent home a brown half-gallon jug I think to make kool aid in. I hate Philadelphia traffic. Took the wrong exit and saw parts of Philly I never wanted to see.

Bill IPF Oct. 08

N.E. PA

We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find?Explore WhereItsAt.com.