Re: Pink

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Sorry about that Joyce The lady sitting in the back is Dopher. The guy in yellow is Rhamas husband Steve. and Rhamaset the meeting up for us. They are on the care givers site.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Peggy who is the man in the yellow shirt? who is the lady sitting down in the bathing suit in the back? Thanks. Pink Joyce IPF 3/06  Pennsylvania Donate Life Listed 1/09 inactive 4/09 www.transplantfund.org--- Subject: Re: Beth / LeanneTo: Breathe-Support Date: Thursday, April 16, 2009, 6:56 PM I think so toooo. I can not believe I only have a couple pictures from Orlando. I have some head shots of some but only a couple by the pool. They are kinda far away. but here is the best one. <Orlando group.jpg>Love & Prayers, Peggy Florida,  IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet,  when our wings have trouble remembering how to fly."  <pastedGraphic.tiff> What a great way to celebrate your birthday!  Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy To: Breathe-Support Sent: Thursday, April 16, 2009 5:46:12 PMSubject:  Re: JaneHi Jane, Oct 16th is what we are talking about for my birthday. I too think the leaves should be changing about then but who knows with the crazy weather these days. I am just waiting to see what everybody else wants to do.  I just know that we need talk time.  Love & Prayers, Peggy Florida,  IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet,  when our wings have trouble remembering how to fly."  <1.4091115843> Hi to everyone!  I just wanted to jump and say hello and to tell everyone that I am finally getting better.  I have been strugling with bronchitis at least six weeks.  I read that Barbara & have also been under the weather, too along with Z. and Peggy.  Any body else?  I sure hope not.  , I can certainly understand why you get sick when you come to Georgia. The pollen here is so bad and it has been the worse ever this year.  Sorry you got a whiff of it.  I also now remember that Caro is sick from a weekend with the grandkids, who were sick.  That is hard I know.  You want to see them, but who knows what germs they carry.  Washing hands, etc.  doesn't always seem to get it.  Peggy, are you talking about the weekend of October 16th or September 16th?  Chattanooga would be great,  The place we stayed is still there.  We could also mingle at Rock City.  Forget Ruby Falls--that is too much exertion.  I would probably have to climb those steps again.  Of course, the most important activity that we will be involved in is talking and sitting and eating and talking, etc.  Alos taking pictures.  I would be more than happy to contact them again in Chattanooga.  Other attractions there are:  the Tennessee Aquarium.Toodles!Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> > >> > > ,> > > Just wanted to say hi and ask how you are doing. Hope all is well with you and your family. How have you been feeling?> > >  > > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >> >>

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Pink, The drawback to using Vaseline is the tubing gets hard on the nose pieces. Sher just posted that and I had been wondering what was happening with my soft hoses.. But there are times I am so dry I use Vaseline. It is so soothing. Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. I was afraid to use vasiline, but my doc said it's ok to usethe Ayr saline gel just wasn't strong enough in the winter timePink Joyce (IPF 3/06)  IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09www.transplantfund.org--- On Sat, 5/30/09, Sher Bauman <bofus (AT) wbcable (DOT) net> wrote:From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: Sjogren's questionTo: Breathe-Support Date: Saturday, May 30, 2009, 4:08 PMPeggy....  my doc told me...waaaay back that petroleum has something in it that can deteriorate the tubing. Of course I'm sure that matters as to how much and how often.Hope you are doing well.I feel as you do about our ML. Part sad (for me) and happy for her that her journey is completed. I talked to her the day before yesterday so we were 'all caught up'.  In fact, she said, "I'm not afraid of dying"...DAMNIT!   I hate this disease but it's brought joy to me too by knowing so many wonderful souls here on the board.MamaSher; 70,  IPF 3-06, OR.   NasturtiumsDon't fret about tomorrow, God is already there!� Sjogren's questionBarbara,�I have Lupus and Sjogrens.� I use Biotin toothpaste, mouthwash and gum and also use Optiva.� My dentist has a mantra that I try to follow.� SIP - SWISH - SWALLOW.� For us it is not enough just to drink we have to wet the entire inside of our mouths.� I keep a sports bottle of cold water on my headboard and every time I get up to go to the bathroom I make sure to SSS several times.� If you haven't already, get a sonicare.� I have already lost teeth because of my Sjogrens.� Mainly because it took them soooooooooooooooooo oo long to figure it out.� Have you had the litmus test in your eyes yet?� That's a dandy.� The doc sticks a piece of paper under your bottom eyelid then leave it 5 minutes.� YUCKY!� Mine was bone dry.� We are discussing doing tubes to help with tear migration but then the IPF thing kind of caught us off guard so that has been put on the back burner.� My hardest thing with Sjogrens if having to give up soda pop.� I AM A PEPPER!� With Sjogrens it is way more important to brush AT LEAST 3 times a day if not more, floss, brush your cheeks, tongue and gums.� And most of all make sure the last thing in your mouth before bed is water.� And just a warning, I have woke up before and it felt like my throat was stuck together.� I just had to drink a little water to get things right but I know the first time it scared the bejonkers out or me.� Hope this helped.�Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09,� IdahoI have noticed that there are a number of people on this forum who have Sjogren's Syndrome, as do I. My rheumy told me to use Biotin toothpaste and Biotin mouthwash, as well as Optiva (for the dry eyes). Lately, I have been waking several times during the night, because my mouth feels like the Sahara, and I need to sip some water before I can go back to sleep. This morning, as a little test, I tried to stick a tissue to my tongue (I know - a little wierd). There was absolutely NO saliva at all. I'm wondering if anyone on the forum has a similar problem, and if anyone has successfully tried some other treatment for dry mouth, and if so what it is.�B�