Re: first visit to pulmo guy (Newby)

[Guest guest]

Kay,

My name is Sunny and I also have Lupus and Granulated (ground glass) nodules in my lungs. Mine have progressed over the last two years. My pulmo guy said they were nothing to worry about two years ago but I have yet to see him since my last high resolution CT. I got the results from the lab myself. Sorry I haven't figured out how to sign like every one does but I am 51.IPF.09, WA

From: Beverly Romich

Sent: Wednesday, March 25, 2009 7:36 AM

To: Breathe-Support

Subject: Fw: first visit to pulmo guy (Newby)

please scroll down my message is near the boyyom of this page sorryKay R.52.ipf.09,PA

----- Forwarded Message ----To: Breathe-Support Sent: Wednesday, March 25, 2009 10:21:19 AMSubject: first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09,PA

[Guest guest]

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09,PA

[Guest guest]

Oh yes, I remember now sunny....

Do you have Outlook Express for your mail? I can help with this if you do but don't know about others.

I remember we talked about this before too.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09,PA

[Guest guest]

Kay

glad you went to a pulmonary doc

sorry about the results

your family needs to get some literature about this disease

my kids researched it on the computer as soon as they were told about the disease

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 10:21 AM

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09,PA

[Guest guest]

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Joyce,

Only one Pickell and no pickle at all. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, March 25, 2009 7:56:39 PMSubject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Joyce,

Only one Pickell and no pickle at all. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, March 25, 2009 7:56:39 PMSubject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Joyce,

Only one Pickell and no pickle at all. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, March 25, 2009 7:56:39 PMSubject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

no sweetie i'm kay i use my middle name ( beverly ) is my first name ,sunny is also a newby sorry for the confusion.. Kay R.52.ipf.09,PA

To: Breathe-Support Sent: Wednesday, March 25, 2009 2:29:46 PMSubject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

no sweetie i'm kay i use my middle name ( beverly ) is my first name ,sunny is also a newby sorry for the confusion.. Kay R.52.ipf.09,PA

To: Breathe-Support Sent: Wednesday, March 25, 2009 2:29:46 PMSubject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

no sweetie i'm kay i use my middle name ( beverly ) is my first name ,sunny is also a newby sorry for the confusion.. Kay R.52.ipf.09,PA

To: Breathe-Support Sent: Wednesday, March 25, 2009 2:29:46 PMSubject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

thank you for the note. my family can't accept the diagnois, i guess it has not sunk in yet. I have googled everthing for them.I guess time will help them. Kay R.52.ipf.09,PA

To: Breathe-Support Sent: Wednesday, March 25, 2009 7:35:58 PMSubject: Re: first visit to pulmo guy (Newby)

Kay

glad you went to a pulmonary doc

sorry about the results

your family needs to get some literature about this disease

my kids researched it on the computer as soon as they were told about the disease

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 10:21 AM

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09,PA

[Guest guest]

Hi Kay - welcome.

I also have been diagnosed with RA and the jury is still out on the lupus. My

rheumatologist is treating me for it anyway. The RA is serum-negative meaning

it won't show up on the tests. Those of us with auto-immune stuff are special

in that way. I don't care what he calls it and aren't worried about continuing

to test for stuff that may never show up as long as he treats aggressively like

he is doing.

I was DX with NSIP w/PF in Dec, 2006, and lots of other things as well since

then. Something hurts all the time. I developed Type II diabetes and then

rapidly developed neuropathy in my feet even though the diabetes is well

controlled. My body just hates itself.

Good luck with your journey. It is scary but it is sort of like juggling.

Start with 2 balls and move on to 3, then 4. Life is like that now. It is

manageable but it has to be managed every day.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

> Kay,

>

> My name is Sunny and I also have Lupus and Granulated (ground glass) nodules

in my lungs. Mine have progressed over the last two years. My pulmo guy said

they were nothing to worry about two years ago but I have yet to see him since

my last high resolution CT. I got the results from the lab myself. Sorry I

haven't figured out how to sign like every one does but I am 51.IPF.09, WA

>

>

> From: Beverly Romich

> Sent: Wednesday, March 25, 2009 7:36 AM

> To: Breathe-Support

> Subject: Fw: first visit to pulmo guy (Newby)

>

>

> please scroll down my message is near the boyyom of this page sorry

> Kay R.52.ipf.09,PA

>

>

>

>

> ----- Forwarded Message ----

> From: Beverly Romich

> To: Breathe-Support

> Sent: Wednesday, March 25, 2009 10:21:19 AM

> Subject: first visit to pulmo guy (Newby)

>

>

>

>

>

> Hi everyone , I went to see my pulmon guy ( first visit

) he showed me the ct scan of my lungs and said I have that crushed glass haze ,

and honeycombing in the lower part of my lungs.

>

> He had my ct scan that was done 5 years ago. And said it

doesn't show anything on that ct scan. So this is probably occured in the last

five years. He did a complete exam and must have talked to me for a hour. I was

so afraid.

>

> He ordered a high resolution cat scan and PFT's with

blood gases, also a noctural o2 for overnight study. He also sent me for blood

work to check for rumatoid arthritis and lupus.

> Does anyone on this board have lupus???

>

> He also talked about a lung biopsy. Has anyone every

hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he

sends alot of patient to see him for a second opnion.

>

> I thank god for all of you to talk to..My family thinks

this is something a pill can cure. Please write back

>

> Kay R.52.ipf.09,PA

>

[Guest guest]

and Sher says, "Huh"?

I can hardly keep first names straight let alone last names. Funny.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

and Sher says, "Huh"?

I can hardly keep first names straight let alone last names. Funny.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

ok, thanks Kay.

I guess I got confused between the Beverly and the Kay and thought we had two Kays.

Good Grief...I'll catch up.... lol

I think I remembered to greet and welcome you already.

Get some brochures for Leanne (post her name in the subject line) and request she mail you some. Pass them out to your family.

It's hard for families. I'm sure yours is scared like many of ours. Give them time and keep talking to them...maybe get your mom or someone to go to the dr. with you.

Reassure them you are not going to die next week! Peggy says we have no expiration date stamped on our fannies...

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Sher

But there is only one Sher.

Names do tend to start lumping together and I often have to read back to

recall exactly the history, status, and diagnosis of the person posting.

That's where the search function on the web page is so handy.

>

> From: rpickel1@... rpickel1@...

> Subject: Re: first visit to pulmo guy

(Newby)

> To: Breathe-Support

> Date: Wednesday, March 25, 2009, 3:53 PM

>

>

> Sher,

>

> I live in Rathdrum Idaho. We just moved here a few months

ago and I still forget that it is Idaho not Washington. We just moved

20 miles and kazam whole new state. I think we have talked before. We

get down to Vancouver quite a bit and we talked about maybe meeting up

at a Sheri's. Can someone please tell me how to do the signature thing?

>

> Sunny, IPF, 09, OR (not WA)

>

>

> From: Sher Bauman

> Sent: Wednesday, March 25, 2009 11:29 AM

> To: Breathe-Support@ yahoogroups. com

> Subject: Re: first visit to pulmo guy

(Newby)

>

>

> OK now, Beverly is Sunny. Oh please use one name...the

confusion with so many newbies makes my brain freeze. ;o]

> Where in WA do you live?

> I'm south of Ptld OR.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> first visit to pulmo guy

(Newby)

>

>

>

>

>

> Hi everyone , I went to see my

pulmon guy ( first visit ) he showed me the ct scan of my lungs and said

I have that crushed glass haze , and honeycombing in the lower part of

my lungs.

>

> He had my ct scan that was done 5

years ago. And said it doesn't show anything on that ct scan. So this

is probably occured in the last five years. He did a complete exam and

must have talked to me for a hour. I was so afraid.

>

> He ordered a high resolution cat scan

and PFT's with blood gases, also a noctural o2 for overnight study. He

also sent me for blood work to check for rumatoid arthritis and lupus.

> Does anyone on this board have lupus???

>

> He also talked about a lung biopsy.

Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He

said this guy is good and he sends alot of patient to see him for a

second opnion.

>

> I thank god for all of you to talk

to..My family thinks this is something a pill can cure. Please write

back

>

> Kay R.52.ipf.09, PA

>

[Guest guest]

Sher

But there is only one Sher.

Names do tend to start lumping together and I often have to read back to

recall exactly the history, status, and diagnosis of the person posting.

That's where the search function on the web page is so handy.

>

> From: rpickel1@... rpickel1@...

> Subject: Re: first visit to pulmo guy

(Newby)

> To: Breathe-Support

> Date: Wednesday, March 25, 2009, 3:53 PM

>

>

> Sher,

>

> I live in Rathdrum Idaho. We just moved here a few months

ago and I still forget that it is Idaho not Washington. We just moved

20 miles and kazam whole new state. I think we have talked before. We

get down to Vancouver quite a bit and we talked about maybe meeting up

at a Sheri's. Can someone please tell me how to do the signature thing?

>

> Sunny, IPF, 09, OR (not WA)

>

>

> From: Sher Bauman

> Sent: Wednesday, March 25, 2009 11:29 AM

> To: Breathe-Support@ yahoogroups. com

> Subject: Re: first visit to pulmo guy

(Newby)

>

>

> OK now, Beverly is Sunny. Oh please use one name...the

confusion with so many newbies makes my brain freeze. ;o]

> Where in WA do you live?

> I'm south of Ptld OR.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> first visit to pulmo guy

(Newby)

>

>

>

>

>

> Hi everyone , I went to see my

pulmon guy ( first visit ) he showed me the ct scan of my lungs and said

I have that crushed glass haze , and honeycombing in the lower part of

my lungs.

>

> He had my ct scan that was done 5

years ago. And said it doesn't show anything on that ct scan. So this

is probably occured in the last five years. He did a complete exam and

must have talked to me for a hour. I was so afraid.

>

> He ordered a high resolution cat scan

and PFT's with blood gases, also a noctural o2 for overnight study. He

also sent me for blood work to check for rumatoid arthritis and lupus.

> Does anyone on this board have lupus???

>

> He also talked about a lung biopsy.

Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He

said this guy is good and he sends alot of patient to see him for a

second opnion.

>

> I thank god for all of you to talk

to..My family thinks this is something a pill can cure. Please write

back

>

> Kay R.52.ipf.09, PA

>

[Guest guest]

Sher,

It's Pickel and I am a Sunny Pickel no matter what my body decides to do. When they first said Lupus 4 years ago I knew I was in a pickel. Then they said Sjogrens and diabetes and I realized I was in a Jar of Pickels. Then came arthritis and loss of bone density and too many tests and meds to list. I knew I had fallen in to the pickel barrel. After 4 gastric bleeding ulcers, Barrett's Disease, neck fusion and now IPF I realize I am and will always be in a pickel but hopefully I will be a sweet gerkin til the end. I keep complaining to anyone who will listen (until their ears bleed) that they have scooped out all my parts inside that I can live without but I didn't drop one pound. Surely all that stuff must weigh something. But thanks to the IPF I have started dropping weight like crazy. I have been on Prednisone for years and that makes it hard to get or keep off weight so I guess there is a "sunny" side to having IPF. Sorry so Punny today but it's March 29th (supposedly Spring) and the Idaho panhandle looks like the north pole. I am determined to keep my spirits from sagging (unlike other parts of me). Have a blessed day and remember to laugh!

Sunny IPF 09 Idaho

From: Joyce T Rosenberg

Sent: Wednesday, March 25, 2009 4:56 PM

To: Breathe-Support

Subject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Sher,

It's Pickel and I am a Sunny Pickel no matter what my body decides to do. When they first said Lupus 4 years ago I knew I was in a pickel. Then they said Sjogrens and diabetes and I realized I was in a Jar of Pickels. Then came arthritis and loss of bone density and too many tests and meds to list. I knew I had fallen in to the pickel barrel. After 4 gastric bleeding ulcers, Barrett's Disease, neck fusion and now IPF I realize I am and will always be in a pickel but hopefully I will be a sweet gerkin til the end. I keep complaining to anyone who will listen (until their ears bleed) that they have scooped out all my parts inside that I can live without but I didn't drop one pound. Surely all that stuff must weigh something. But thanks to the IPF I have started dropping weight like crazy. I have been on Prednisone for years and that makes it hard to get or keep off weight so I guess there is a "sunny" side to having IPF. Sorry so Punny today but it's March 29th (supposedly Spring) and the Idaho panhandle looks like the north pole. I am determined to keep my spirits from sagging (unlike other parts of me). Have a blessed day and remember to laugh!

Sunny IPF 09 Idaho

From: Joyce T Rosenberg

Sent: Wednesday, March 25, 2009 4:56 PM

To: Breathe-Support

Subject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

We each have many plates we juggle don't we...

I think I could have leakage out both feet and still not lose weight. Diet, no diet, exercise...none. I stay within a 10# up or down.

I don't care anymore. I try to be careful but I'm not weight obsessed anymore.

Spring is slow here for us too. Think I'll buy some daffodils at the store!

Take care.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

OMG, Sunny. I had no idea you had so many diseases, and yet I've not heard you complain much, if at all. You are surely brave to carry such a heavy burden. God bless you. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Sunday, March 29, 2009 3:44:37 PMSubject: Re: first visit to pulmo guy (Newby)

Sher,

It's Pickel and I am a Sunny Pickel no matter what my body decides to do. When they first said Lupus 4 years ago I knew I was in a pickel. Then they said Sjogrens and diabetes and I realized I was in a Jar of Pickels. Then came arthritis and loss of bone density and too many tests and meds to list. I knew I had fallen in to the pickel barrel. After 4 gastric bleeding ulcers, Barrett's Disease, neck fusion and now IPF I realize I am and will always be in a pickel but hopefully I will be a sweet gerkin til the end. I keep complaining to anyone who will listen (until their ears bleed) that they have scooped out all my parts inside that I can live without but I didn't drop one pound. Surely all that stuff must weigh something. But thanks to the IPF I have started dropping weight like crazy. I have been on Prednisone for years and that makes it hard to get or keep off weight so

I guess there is a "sunny" side to having IPF. Sorry so Punny today but it's March 29th (supposedly Spring) and the Idaho panhandle looks like the north pole. I am determined to keep my spirits from sagging (unlike other parts of me). Have a blessed day and remember to laugh!

Sunny IPF 09 Idaho

From: Joyce T Rosenberg

Sent: Wednesday, March 25, 2009 4:56 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support@ yahoogroups. comDate: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Hi Sunny - I'm living in that pickel jar with you. Chin up, toes forward.

Let's keep marching on.

S, Lubbock, TX

NSIP w/PF 12/2006, et al

>

> From: rpickel1@...

> Subject: Re: first visit to pulmo guy (Newby)

> To: Breathe-Support

> Date: Wednesday, March 25, 2009, 3:53 PM

>

>

> Sher,

>

> I live in Rathdrum Idaho. We just moved here a few months ago and I

still forget that it is Idaho not Washington. We just moved 20 miles and kazam

whole new state. I think we have talked before. We get down to Vancouver quite

a bit and we talked about maybe meeting up at a Sheri's. Can someone please

tell me how to do the signature thing?

>

> Sunny, IPF, 09, OR (not WA)

>

>

> From: Sher Bauman

> Sent: Wednesday, March 25, 2009 11:29 AM

> To: Breathe-Support@ yahoogroups. com

> Subject: Re: first visit to pulmo guy (Newby)

>

>

> OK now, Beverly is Sunny. Oh please use one name...the confusion with

so many newbies makes my brain freeze. ;o]

> Where in WA do you live?

> I'm south of Ptld OR.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> first visit to pulmo guy (Newby)

>

>

>

>

>

> Hi everyone , I went to see my pulmon guy (

first visit ) he showed me the ct scan of my lungs and said I have that crushed

glass haze , and honeycombing in the lower part of my lungs.

>

> He had my ct scan that was done 5 years ago.

And said it doesn't show anything on that ct scan. So this is probably occured

in the last five years. He did a complete exam and must have talked to me for a

hour. I was so afraid.

>

> He ordered a high resolution cat scan and PFT's

with blood gases, also a noctural o2 for overnight study. He also sent me for

blood work to check for rumatoid arthritis and lupus.

> Does anyone on this board have lupus???

>

> He also talked about a lung biopsy. Has

anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy

is good and he sends alot of patient to see him for a second opnion.

>

> I thank god for all of you to talk to..My

family thinks this is something a pill can cure. Please write back

>

> Kay R.52.ipf.09, PA

>