Re: first visit to pulmo guy (Newby)

[Guest guest]

Hi Sunny - I'm living in that pickel jar with you. Chin up, toes forward.

Let's keep marching on.

S, Lubbock, TX

NSIP w/PF 12/2006, et al

>

> From: rpickel1@...

> Subject: Re: first visit to pulmo guy (Newby)

> To: Breathe-Support

> Date: Wednesday, March 25, 2009, 3:53 PM

>

>

> Sher,

>

> I live in Rathdrum Idaho. We just moved here a few months ago and I

still forget that it is Idaho not Washington. We just moved 20 miles and kazam

whole new state. I think we have talked before. We get down to Vancouver quite

a bit and we talked about maybe meeting up at a Sheri's. Can someone please

tell me how to do the signature thing?

>

> Sunny, IPF, 09, OR (not WA)

>

>

> From: Sher Bauman

> Sent: Wednesday, March 25, 2009 11:29 AM

> To: Breathe-Support@ yahoogroups. com

> Subject: Re: first visit to pulmo guy (Newby)

>

>

> OK now, Beverly is Sunny. Oh please use one name...the confusion with

so many newbies makes my brain freeze. ;o]

> Where in WA do you live?

> I'm south of Ptld OR.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> first visit to pulmo guy (Newby)

>

>

>

>

>

> Hi everyone , I went to see my pulmon guy (

first visit ) he showed me the ct scan of my lungs and said I have that crushed

glass haze , and honeycombing in the lower part of my lungs.

>

> He had my ct scan that was done 5 years ago.

And said it doesn't show anything on that ct scan. So this is probably occured

in the last five years. He did a complete exam and must have talked to me for a

hour. I was so afraid.

>

> He ordered a high resolution cat scan and PFT's

with blood gases, also a noctural o2 for overnight study. He also sent me for

blood work to check for rumatoid arthritis and lupus.

> Does anyone on this board have lupus???

>

> He also talked about a lung biopsy. Has

anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy

is good and he sends alot of patient to see him for a second opnion.

>

> I thank god for all of you to talk to..My

family thinks this is something a pill can cure. Please write back

>

> Kay R.52.ipf.09, PA

>

[Guest guest]

Hi Jack,

Yep, I am working my way through the alphabet with diseases! Now if I can think of one with an X or Z I would almost be there. But, I am truly blessed in this life. I have a husband who loves me, cooks, cleans, does laundry, shopping, everything. I have 3 adult daughters and 2 sons. Together they have 6 kids and one on the way. A boy at last! We have a wonderful church body and I am involved in many bible studies with women who all suffer from some kind of handicap. We may be very poor when it comes to the green paper but in all the ways that matter we are very rich indeed. And as in any situation, many hands make the work light and I have many caring hands to hold mine. BUT best of all I know that someday I am going to have a new body (Angelina Jolis' I hope) and all the pain, sickness, stress and fatigue will be over. Come quickly Lord Jesus! My illness' have allowed me to witness to many people and hopefully show them that it is possible to get through anything with God's help. Don't get me wrong, there are days when I don't get out of bed and feel exceptionally sorry for myself but they are few and far between. Luckily there are many people who call and don't hesitate to put their foot in my backside to get me back on track. God bless you as well.

Sunny IPF, 09, Idaho

From: Jack Marshall

Sent: Sunday, March 29, 2009 2:30 PM

To: Breathe-Support

Subject: Re: first visit to pulmo guy (Newby)

OMG, Sunny. I had no idea you had so many diseases, and yet I've not heard you complain much, if at all. You are surely brave to carry such a heavy burden. God bless you. Jack79/IPF - UIP/dx06/05 Maine

From: "rpickel1 (AT) msn (DOT) com" <rpickel1 (AT) msn (DOT) com>To: Breathe-Support Sent: Sunday, March 29, 2009 3:44:37 PMSubject: Re: first visit to pulmo guy (Newby)

Sher,

It's Pickel and I am a Sunny Pickel no matter what my body decides to do. When they first said Lupus 4 years ago I knew I was in a pickel. Then they said Sjogrens and diabetes and I realized I was in a Jar of Pickels. Then came arthritis and loss of bone density and too many tests and meds to list. I knew I had fallen in to the pickel barrel. After 4 gastric bleeding ulcers, Barrett's Disease, neck fusion and now IPF I realize I am and will always be in a pickel but hopefully I will be a sweet gerkin til the end. I keep complaining to anyone who will listen (until their ears bleed) that they have scooped out all my parts inside that I can live without but I didn't drop one pound. Surely all that stuff must weigh something. But thanks to the IPF I have started dropping weight like crazy. I have been on Prednisone for years and that makes it hard to get or keep off weight so I guess there is a "sunny" side to having IPF. Sorry so Punny today but it's March 29th (supposedly Spring) and the Idaho panhandle looks like the north pole. I am determined to keep my spirits from sagging (unlike other parts of me). Have a blessed day and remember to laugh!

Sunny IPF 09 Idaho

From: Joyce T Rosenberg

Sent: Wednesday, March 25, 2009 4:56 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support@ yahoogroups. comDate: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Sunny

Well, you may well have Xerostomia as many here do. There are so many

forms of Zoonoses that is always possible too if you're in contact with

animals a lot.

Just wanted to give you an X and Z since you couldn't think of one.

>

> From: rpickel1 (AT) msn (DOT) com rpickel1 (AT) msn (DOT) com>

> Subject: Re: first visit to pulmo guy

(Newby)

> To: Breathe-Support@ yahoogroups. com

> Date: Wednesday, March 25, 2009, 3:53 PM

>

>

> Sher,

>

> I live in Rathdrum Idaho. We just moved here a few months ago

and I still forget that it is Idaho not Washington. We just moved 20

miles and kazam whole new state. I think we have talked before. We get

down to Vancouver quite a bit and we talked about maybe meeting up at a

Sheri's. Can someone please tell me how to do the signature thing?

>

> Sunny, IPF, 09, OR (not WA)

>

>

> From: Sher Bauman

> Sent: Wednesday, March 25, 2009 11:29 AM

> To: Breathe-Support@ yahoogroups. com

> Subject: Re: first visit to pulmo guy

(Newby)

>

>

> OK now, Beverly is Sunny. Oh please use one name...the

confusion with so many newbies makes my brain freeze. ;o]

> Where in WA do you live?

> I'm south of Ptld OR.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> first visit to pulmo guy (Newby)

>

>

>

>

>

> Hi everyone , I went to see my pulmon

guy ( first visit ) he showed me the ct scan of my lungs and said I have

that crushed glass haze , and honeycombing in the lower part of my

lungs.

>

> He had my ct scan that was done 5

years ago. And said it doesn't show anything on that ct scan. So this

is probably occured in the last five years. He did a complete exam and

must have talked to me for a hour. I was so afraid.

>

> He ordered a high resolution cat scan

and PFT's with blood gases, also a noctural o2 for overnight study. He

also sent me for blood work to check for rumatoid arthritis and lupus.

> Does anyone on this board have lupus???

>

> He also talked about a lung biopsy.

Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He

said this guy is good and he sends alot of patient to see him for a

second opnion.

>

> I thank god for all of you to talk

to..My family thinks this is something a pill can cure. Please write

back

>

> Kay R.52.ipf.09, PA

>

[Guest guest]

Sunny

Well, you may well have Xerostomia as many here do. There are so many

forms of Zoonoses that is always possible too if you're in contact with

animals a lot.

Just wanted to give you an X and Z since you couldn't think of one.

>

> From: rpickel1 (AT) msn (DOT) com rpickel1 (AT) msn (DOT) com>

> Subject: Re: first visit to pulmo guy

(Newby)

> To: Breathe-Support@ yahoogroups. com

> Date: Wednesday, March 25, 2009, 3:53 PM

>

>

> Sher,

>

> I live in Rathdrum Idaho. We just moved here a few months ago

and I still forget that it is Idaho not Washington. We just moved 20

miles and kazam whole new state. I think we have talked before. We get

down to Vancouver quite a bit and we talked about maybe meeting up at a

Sheri's. Can someone please tell me how to do the signature thing?

>

> Sunny, IPF, 09, OR (not WA)

>

>

> From: Sher Bauman

> Sent: Wednesday, March 25, 2009 11:29 AM

> To: Breathe-Support@ yahoogroups. com

> Subject: Re: first visit to pulmo guy

(Newby)

>

>

> OK now, Beverly is Sunny. Oh please use one name...the

confusion with so many newbies makes my brain freeze. ;o]

> Where in WA do you live?

> I'm south of Ptld OR.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> first visit to pulmo guy (Newby)

>

>

>

>

>

> Hi everyone , I went to see my pulmon

guy ( first visit ) he showed me the ct scan of my lungs and said I have

that crushed glass haze , and honeycombing in the lower part of my

lungs.

>

> He had my ct scan that was done 5

years ago. And said it doesn't show anything on that ct scan. So this

is probably occured in the last five years. He did a complete exam and

must have talked to me for a hour. I was so afraid.

>

> He ordered a high resolution cat scan

and PFT's with blood gases, also a noctural o2 for overnight study. He

also sent me for blood work to check for rumatoid arthritis and lupus.

> Does anyone on this board have lupus???

>

> He also talked about a lung biopsy.

Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He

said this guy is good and he sends alot of patient to see him for a

second opnion.

>

> I thank god for all of you to talk

to..My family thinks this is something a pill can cure. Please write

back

>

> Kay R.52.ipf.09, PA

>

[Guest guest]

Sunny

i loved the way you described yourself -- glad you have a sense of humor about everything

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Sunday, March 29, 2009, 3:44 PM

Sher,

It's Pickel and I am a Sunny Pickel no matter what my body decides to do. When they first said Lupus 4 years ago I knew I was in a pickel. Then they said Sjogrens and diabetes and I realized I was in a Jar of Pickels. Then came arthritis and loss of bone density and too many tests and meds to list. I knew I had fallen in to the pickel barrel. After 4 gastric bleeding ulcers, Barrett's Disease, neck fusion and now IPF I realize I am and will always be in a pickel but hopefully I will be a sweet gerkin til the end. I keep complaining to anyone who will listen (until their ears bleed) that they have scooped out all my parts inside that I can live without but I didn't drop one pound. Surely all that stuff must weigh something. But thanks to the IPF I have started dropping weight like crazy. I have been on Prednisone for years and that makes it hard to get or keep off weight so

I guess there is a "sunny" side to having IPF. Sorry so Punny today but it's March 29th (supposedly Spring) and the Idaho panhandle looks like the north pole. I am determined to keep my spirits from sagging (unlike other parts of me). Have a blessed day and remember to laugh!

Sunny IPF 09 Idaho

From: Joyce T Rosenberg

Sent: Wednesday, March 25, 2009 4:56 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support@ yahoogroups. comDate: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

[Guest guest]

Oh, thank you so much! Now I have the X and Z. Although I may hurt my husband if he agrees I have a Zoonose.

Sunny, IPF 09, Idaho

From: Joyce T Rosenberg

Sent: Monday, March 30, 2009 5:45 PM

To: Breathe-Support

Subject: Re: first visit to pulmo guy (Newby)

Sunny

i loved the way you described yourself -- glad you have a sense of humor about everything

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support Date: Sunday, March 29, 2009, 3:44 PM

Sher,

It's Pickel and I am a Sunny Pickel no matter what my body decides to do. When they first said Lupus 4 years ago I knew I was in a pickel. Then they said Sjogrens and diabetes and I realized I was in a Jar of Pickels. Then came arthritis and loss of bone density and too many tests and meds to list. I knew I had fallen in to the pickel barrel. After 4 gastric bleeding ulcers, Barrett's Disease, neck fusion and now IPF I realize I am and will always be in a pickel but hopefully I will be a sweet gerkin til the end. I keep complaining to anyone who will listen (until their ears bleed) that they have scooped out all my parts inside that I can live without but I didn't drop one pound. Surely all that stuff must weigh something. But thanks to the IPF I have started dropping weight like crazy. I have been on Prednisone for years and that makes it hard to get or keep off weight so I guess there is a "sunny" side to having IPF. Sorry so Punny today but it's March 29th (supposedly Spring) and the Idaho panhandle looks like the north pole. I am determined to keep my spirits from sagging (unlike other parts of me). Have a blessed day and remember to laugh!

Sunny IPF 09 Idaho

From: Joyce T Rosenberg

Sent: Wednesday, March 25, 2009 4:56 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

Sher

I think there are two people with Pickle in their ID's

But one only posted a coupld of times

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: first visit to pulmo guy (Newby)To: Breathe-Support@ yahoogroups. comDate: Wednesday, March 25, 2009, 3:53 PM

Sher,

I live in Rathdrum Idaho. We just moved here a few months ago and I still forget that it is Idaho not Washington. We just moved 20 miles and kazam whole new state. I think we have talked before. We get down to Vancouver quite a bit and we talked about maybe meeting up at a Sheri's. Can someone please tell me how to do the signature thing?

Sunny, IPF, 09, OR (not WA)

From: Sher Bauman

Sent: Wednesday, March 25, 2009 11:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: first visit to pulmo guy (Newby)

OK now, Beverly is Sunny. Oh please use one name...the confusion with so many newbies makes my brain freeze. ;o]

Where in WA do you live?

I'm south of Ptld OR.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA