Re: Re: Hi all - welcome Ray and other news

[Guest guest]

,

My son and I will be attending the Sweetwater rattlesnake round-up. Ah, the scent of rattlesnakes wafting on the air, just doesn't get any better anywhere. Hardy har har.

It is always a good show. For those who've never been. Well the Sweetwater rattlesnake round-up is the largest in the world. On top of the handling of rattlesnakes, milking of rattlesnakes, skinning of rattlesnakes and ultimately eating of rattlesnakes. There are many vendors there to take your hard earned dollars hostage. Pretty good gun show as well. It's is pretty much a redneck gathering. So therefore, many rednecks from up and down the social scale attend the event. I'll try and get you folks as picture of the Miss Sweetwater Rattlesnake Round-Up beauty queen.

Wally

NSIP, 10/06

west Texas

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Tuesday, March 10, 2009, 9:47 PM

Snakes are bad. Just plain bad. You make me happy I had girls! About the worse they ever did was pick up a horny toad (yes I know that's illegal out here). We all lived.> > Welcome to the Air family Ray. We aren't all about doom and gloom > here because obviously some of us need to discuss our derrieres and > what position we were in to check our expiration stamps. I personally > prefer bending over, crooking my head backwards and just looking up. > Nah, just teasing. I haven't been able to do that for simply years!> > Seriously, welcome to our world. Sorry you had to be here but this is > a good place to be amongst your peers. No foolin. Did I mention I'm > in Texas and we have a tendency to tell tall tales out here? OH! The > Rattlesnake Roundup is in Sweetwater this weekend if anybody is > interested. Bruce? Wally? No? Oh well.>

> Good news today. Saw pulmo guy and he had nothin but love for the way > my chest x-ray looked. The PFT's were good and my lungs sounded clear > and I made it thru the winter without a flareup. So yeah!!! I told > him the rheumatologist has decided I have RA, Sjogren's,lupus or > mixed connective. Definitely something of the connective tissue > nature. He is treating me with Plaquenil and I do feel better. We're > just going with that as long as it works. I don't care what disease > he wants to call it. And Doc was pleased so we're all good > out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Bruce... maybe she didn't 'get it'...the joke about not having an expiration date stamped on our fannies........?

Can't imagine what offended her.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> To: Breathe-Support > Date: Tuesday, March 10, 2009, 10:02 PM>>>>>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Here he goes again telling you you are off base. DAMN IT, THEY WERE YOUR FEELINGS! It has taken a lot of communication to try to help everyone see where the other is coming from...understanding is the desired outcome, not blame and accusations.

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

To: Breathe-Support Sent: Wednesday, March 11, 2009 10:36:44 AMSubject: Re: Hi all - welcome Ray and other news

KathleenNo one referred to your brothers deaths as gloom and doom. i know its avery emotional issue to you but you've entirely off base in that regard.The post which apparently bothers you was the start of an entirelydifferent thread and not a response to anything you'd posted. It was toRay, not to you, not in response to you.I will say the same thing....we' re not all about doom and gloom. But, insaying that I'm not talking in any way about your post or your brothers'deaths. We've all lost friends on the forum.'s post was a follow up to mine which was an answer toSher's.....none of it was in anyway related to your post.>>> From: lbsmith789@sbcgloba l.net>> Subject: Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!�>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we

have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Thank you I see now I was oversensitive. I like plain speaking, and people who hold their ground, and expect the same from you. From your posts I sensed you were kind and generous, and now I know you are.

Subject: Re: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Wednesday, March 11, 2009, 9:07 PM

Here he goes again telling you you are off base. DAMN IT, THEY WERE YOUR FEELINGS! It has taken a lot of communication to try to help everyone see where the other is coming from...understandin g is the desired outcome, not blame and accusations.

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:36:44 AMSubject: Re: Hi all - welcome Ray and other news

KathleenNo one referred to your brothers deaths as gloom and doom. i know its avery emotional issue to you but you've entirely off base in that regard.The post which apparently bothers you was the start of an entirelydifferent thread and not a response to anything you'd posted. It was toRay, not to you, not in response to you.I will say the same thing....we' re not all about doom and gloom. But, insaying that I'm not talking in any way about your post or your brothers'deaths. We've all lost friends on the forum.'s post was a follow up to mine which was an answer toSher's.....none of it was in anyway related to your post.>>> From: lbsmith789@sbcgloba l.net>> Subject: Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!�>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be

amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et

al>

[Guest guest]

Thank you I see now I was oversensitive. I like plain speaking, and people who hold their ground, and expect the same from you. From your posts I sensed you were kind and generous, and now I know you are.

Subject: Re: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Wednesday, March 11, 2009, 9:07 PM

Here he goes again telling you you are off base. DAMN IT, THEY WERE YOUR FEELINGS! It has taken a lot of communication to try to help everyone see where the other is coming from...understandin g is the desired outcome, not blame and accusations.

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:36:44 AMSubject: Re: Hi all - welcome Ray and other news

KathleenNo one referred to your brothers deaths as gloom and doom. i know its avery emotional issue to you but you've entirely off base in that regard.The post which apparently bothers you was the start of an entirelydifferent thread and not a response to anything you'd posted. It was toRay, not to you, not in response to you.I will say the same thing....we' re not all about doom and gloom. But, insaying that I'm not talking in any way about your post or your brothers'deaths. We've all lost friends on the forum.'s post was a follow up to mine which was an answer toSher's.....none of it was in anyway related to your post.>>> From: lbsmith789@sbcgloba l.net>> Subject: Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!�>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be

amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et

al>

[Guest guest]

Dear , I am so sorry for causing this commotion. I am all for the sky, love, laughter, and dancing. Please forgive me. Kathy Seweryn IPF 02/15/09

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 1:07 AM

Bruce I don't think there is enough Ben-Gay in the world to get me to bend all the way over, much less crook around.And snakes are still bad.> > >> > > S.... wonderful good news. Good news makes us all feel better!> > >> > > MamaSher; 70, IPF 3-06, OR.> > > Nasturtiums> > > Don't fret

about tomorrow, God is already there!> > >> > > Hi all - welcome Ray and other news> > >> > >> > > Welcome to the Air family Ray. We aren't all about doom and gloom> here because obviously some of us need to discuss our derrieres and what> position we were in to check our expiration stamps. I personally prefer> bending over, crooking my head backwards and just looking up. Nah, just> teasing. I haven't been able to do that for simply years!> > >> > >

Seriously, welcome to our world. Sorry you had to be here but this> is a good place to be amongst your peers. No foolin. Did I mention I'm> in Texas and we have a tendency to tell tall tales out here? OH! The> Rattlesnake Roundup is in Sweetwater this weekend if anybody is> interested. Bruce? Wally? No? Oh well.> > >> > > Good news today. Saw pulmo guy and he had nothin but love for the> way my chest x-ray looked. The PFT's were good and my lungs sounded> clear and I made it thru the winter without a flareup. So yeah!!! I told> him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed> connective. Definitely something of the connective tissue nature. He is> treating me with Plaquenil and I do feel better. We're just going with> that as long as it works. I don't care what disease he wants to call it.> And Doc was pleased so we're

all good out here in West Texas> tonight. Except for the rattlesnake thing.> > >> > > S, Lubbock, TX> > > NSIP w/PF 12/2006 et al> > >> >>

[Guest guest]

Dear , I am so sorry for causing this commotion. I am all for the sky, love, laughter, and dancing. Please forgive me. Kathy Seweryn IPF 02/15/09

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 1:07 AM

Bruce I don't think there is enough Ben-Gay in the world to get me to bend all the way over, much less crook around.And snakes are still bad.> > >> > > S.... wonderful good news. Good news makes us all feel better!> > >> > > MamaSher; 70, IPF 3-06, OR.> > > Nasturtiums> > > Don't fret

about tomorrow, God is already there!> > >> > > Hi all - welcome Ray and other news> > >> > >> > > Welcome to the Air family Ray. We aren't all about doom and gloom> here because obviously some of us need to discuss our derrieres and what> position we were in to check our expiration stamps. I personally prefer> bending over, crooking my head backwards and just looking up. Nah, just> teasing. I haven't been able to do that for simply years!> > >> > >

Seriously, welcome to our world. Sorry you had to be here but this> is a good place to be amongst your peers. No foolin. Did I mention I'm> in Texas and we have a tendency to tell tall tales out here? OH! The> Rattlesnake Roundup is in Sweetwater this weekend if anybody is> interested. Bruce? Wally? No? Oh well.> > >> > > Good news today. Saw pulmo guy and he had nothin but love for the> way my chest x-ray looked. The PFT's were good and my lungs sounded> clear and I made it thru the winter without a flareup. So yeah!!! I told> him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed> connective. Definitely something of the connective tissue nature. He is> treating me with Plaquenil and I do feel better. We're just going with> that as long as it works. I don't care what disease he wants to call it.> And Doc was pleased so we're

all good out here in West Texas> tonight. Except for the rattlesnake thing.> > >> > > S, Lubbock, TX> > > NSIP w/PF 12/2006 et al> > >> >>

[Guest guest]

Dear , I am so sorry for causing this commotion. I am all for the sky, love, laughter, and dancing. Please forgive me. Kathy Seweryn IPF 02/15/09

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 1:07 AM

Bruce I don't think there is enough Ben-Gay in the world to get me to bend all the way over, much less crook around.And snakes are still bad.> > >> > > S.... wonderful good news. Good news makes us all feel better!> > >> > > MamaSher; 70, IPF 3-06, OR.> > > Nasturtiums> > > Don't fret

about tomorrow, God is already there!> > >> > > Hi all - welcome Ray and other news> > >> > >> > > Welcome to the Air family Ray. We aren't all about doom and gloom> here because obviously some of us need to discuss our derrieres and what> position we were in to check our expiration stamps. I personally prefer> bending over, crooking my head backwards and just looking up. Nah, just> teasing. I haven't been able to do that for simply years!> > >> > >

Seriously, welcome to our world. Sorry you had to be here but this> is a good place to be amongst your peers. No foolin. Did I mention I'm> in Texas and we have a tendency to tell tall tales out here? OH! The> Rattlesnake Roundup is in Sweetwater this weekend if anybody is> interested. Bruce? Wally? No? Oh well.> > >> > > Good news today. Saw pulmo guy and he had nothin but love for the> way my chest x-ray looked. The PFT's were good and my lungs sounded> clear and I made it thru the winter without a flareup. So yeah!!! I told> him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed> connective. Definitely something of the connective tissue nature. He is> treating me with Plaquenil and I do feel better. We're just going with> that as long as it works. I don't care what disease he wants to call it.> And Doc was pleased so we're

all good out here in West Texas> tonight. Except for the rattlesnake thing.> > >> > > S, Lubbock, TX> > > NSIP w/PF 12/2006 et al> > >> >>

[Guest guest]

Margaret... I feel badly when any of our members are unhappy with our board.

But this isn't about the board, it's about personalities and I'm choosing not to get further involved.

We have had occasional flare-ups and a couple of them ended up confusing and hurtful as this one will if we all jump in.

You and I have had extensive personal conversations privately and I hope I have not offended you.

I care and I have my own opinions but I need to stay out of the flare simply because I need to stay out of the flare.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!�>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

S... you didn't upset 'everybody'...

Kathleen misunderstood and Margaret expressed her hurt feelings that had nothing to do with Kathleen.

I thought what you said was funny but I know the joke of no expiration date on fannies. It's referred too so often I would think newbies would know too.

We know it was meant to be in fun because you just SAID SO and we 'old-timers' knew so when you wrote it.

This board would not be the quality it is without the 'old-timers'...yeah, even brother Bruce. Especially BB. He is a storehouse of information for us all.

Kids 'fight' in any family....

Again, glad you got good news!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

I have to agree with you, Sher. I don't want to get involved, either, and I think the whole thing should be ended before it goes any further. However, Margaret, I think you comment about Bruce was totally uncalled for. He is one of the best parts of this group. He always has and always will help anyone. I am sad that you are so unhappy with the group. I would not have made it through this last year and half without everyone here and would not want to be anywhere else. I love you guys!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, March 12, 2009 10:56:08 AMSubject: Re: Re: Hi all - welcome Ray and other news

Margaret... I feel badly when any of our members are unhappy with our board.

But this isn't about the board, it's about personalities and I'm choosing not to get further involved.

We have had occasional flare-ups and a couple of them ended up confusing and hurtful as this one will if we all jump in.

You and I have had extensive personal conversations privately and I hope I have not offended you.

I care and I have my own opinions but I need to stay out of the flare simply because I need to stay out of the flare.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!�>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if

anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

I think my grandson could check his stamp on his butt!! We were watching GUTS on Nickolodeon one day and they had this kid who put himself through a coat hanger. My grandson was 9 at the time. He is nearly 5 feet tall and weighs 64 pounds, skinny as a rail. He wanted to try it, so he got a coat hanger, started at his head, and fit his entire body through it!! I laughed so hard I cried!! We thought it was so funny!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, March 12, 2009 11:31:43 AMSubject: Re: Re: Hi all - welcome Ray and other news

S... you didn't upset 'everybody'. ..

Kathleen misunderstood and Margaret expressed her hurt feelings that had nothing to do with Kathleen.

I thought what you said was funny but I know the joke of no expiration date on fannies. It's referred too so often I would think newbies would know too.

We know it was meant to be in fun because you just SAID SO and we 'old-timers' knew so when you wrote it.

This board would not be the quality it is without the 'old-timers' ...yeah, even brother Bruce. Especially BB. He is a storehouse of information for us all.

Kids 'fight' in any family....

Again, glad you got good news!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin

but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Caro...hope this day brings a little sunshine with it for you.

Any update on your medical?

Have you had a chance to talk to Brent?

In my opinion, you're a good mom not to toss him aside. I knew if I had tossed my son aside when I found out he had AIDS I would alienate him completely. We're always moms first aren't we.

Hugs to you.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!�>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Yes, we are and I wouldn't have it any other way. I am really looking forward to him getting transferred to the state prison because it is a lot closer to my house and maybe I can go visit him more often. He is still my baby boy even though he is 22 and I worry to death about him.

As for me, I got a call this morning from my GYN office telling me I have an appointment on Monday morning. I thought they had canceled that one. Maybe she is waiting until then to tell me when she is sending me to the oncologist. I wish they would hurry up. Dr. deAndrade told me yesterday to give them a day or 2 to call me with the appointment, but I am just NOT A PATIENT PERSON!!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, March 12, 2009 2:12:55 PMSubject: Re: Re: Hi all - welcome Ray and other news

Caro...hope this day brings a little sunshine with it for you.

Any update on your medical?

Have you had a chance to talk to Brent?

In my opinion, you're a good mom not to toss him aside. I knew if I had tossed my son aside when I found out he had AIDS I would alienate him completely. We're always moms first aren't we.

Hugs to you.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!�>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if

anybody isinterested. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Thank you, Bruce. I try to be a loving mom and being one, I won't turn my back on him for a second. I am still hopeful they caught it earlier enough to get on medication and he will have years of a good life ahead. I of all people know how it feels when you are cursed with a terminal illness, as we all do here. You guys are totally the best!! Hugs to everyone!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, March 12, 2009 2:40:27 PMSubject: Re: Hi all - welcome Ray and other news

CaroWhen it comes to those things i don't think any of us are patient. Idon't think most doctors really grasp how difficult the periods ofwaiting are.As to a son, I am not a parent and can't fully imagine what its like tostruggle and fear for your son. But, I do know you are a loving mom andall any parents can do is their best. There is no magic formula toparenting at any age. All one can do is follow their own heart andinstinct.> >> >> > From: lbsmith789@sbcgloba l.net>> > Subject: Hi all - welcome Ray and other news> > To: Breathe-Support@ yahoogroups. com> > Date: Tuesday, March 10, 2009, 10:02 PM> >> >> > Welcome to the Air family Ray. We aren't all about doom and gloomhere> because

obviously some of us need to discuss our derrieres and what> position we were in to check our expiration stamps. I personallyprefer> bending over, crooking my head backwards and just looking up. Nah,just> teasing. I haven't been able to do that for simply years!�> >> > Seriously, welcome to our world. Sorry you had to be here but thisis> a good place to be amongst your peers. No foolin. Did I mention I'm in> Texas and we have a tendency to tell tall tales out here? OH! The> Rattlesnake Roundup is in Sweetwater this weekend if anybody is> interested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway> my chest x-ray looked. The PFT's were good and my lungs sounded clear> and I made it thru the winter without a flareup. So yeah!!! I told him> the rheumatologist has decided I

have RA, Sjogren's,lupus or mixed> connective. Definitely something of the connective tissue nature. Heis> treating me with Plaquenil and I do feel better. We're just going with> that as long as it works. I don't care what disease he wants to callit.> And Doc was pleased so we're all good out here in West Texas> tonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

Caro...boy, talk about a twist or two.... It's hard to imagine him going through a hanger!

.... A person can only be so patient...especially about something so important as these tests pending.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

In a way it's freeing knowing I will die sooner than later. I live so much more intensely. I am grateful for each breath, and the smell of the air. I notice it little things now, and let the big problems slide. now.

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 3:36 PM

PinkI fear pain.....it' s sort of simple. I don't like it and don't want it.As to fearing dying more than death or one stage more than another, Iread what Lou rights and imagine myself with , two catsinstead of a dog, morphine, as a companion in the evening.For me, thinking ahead, planning it out in my mind, thinking that eventhe worse isn't so awful, all helps me. I have seen many here furtheralong than I am and seen how they dealt with it and I have suchincredible mentors from them.But, the big thing is that I don't call it dying.....I think of beingdead as a single instantaneous moment, but every second until then I'malive. I'm closer to death each day, but everyone is. But, I'm living.And, so much of what I've learned here is how to live with the disease.I live differently today than I did yesterday and will live differentlytomorrow. But, its all life and

I'll make each day as good as I can.I'll have bad days, but then I'll just try to rally the next.I enjoy knowing people from all around the world too and each of youbring me a different perspective. So, I'm happy for you Phillie fanswhen they win and so happy when you guys had the Pennsylvania or generalarea get together.>>> From: lbsmith789@sbcgloba l.net>> Subject: Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our

derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for simply years!>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested.. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with

Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Yeah, I know, it kinda sucks!! I have come to realize though if nothing else through all of this that any day that I wake up whether I feel good or bad or waiting on results or whatever gets thrown at me, at least I woke up and that makes it a good day!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, March 12, 2009 4:23:12 PMSubject: Re: Re: Hi all - welcome Ray and other news

Caro...boy, talk about a twist or two.... It's hard to imagine him going through a hanger!

.... A person can only be so patient...especiall y about something so important as these tests pending.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin

but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Yeah, I know, it kinda sucks!! I have come to realize though if nothing else through all of this that any day that I wake up whether I feel good or bad or waiting on results or whatever gets thrown at me, at least I woke up and that makes it a good day!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, March 12, 2009 4:23:12 PMSubject: Re: Re: Hi all - welcome Ray and other news

Caro...boy, talk about a twist or two.... It's hard to imagine him going through a hanger!

.... A person can only be so patient...especiall y about something so important as these tests pending.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin

but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Yeah, I know, it kinda sucks!! I have come to realize though if nothing else through all of this that any day that I wake up whether I feel good or bad or waiting on results or whatever gets thrown at me, at least I woke up and that makes it a good day!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, March 12, 2009 4:23:12 PMSubject: Re: Re: Hi all - welcome Ray and other news

Caro...boy, talk about a twist or two.... It's hard to imagine him going through a hanger!

.... A person can only be so patient...especiall y about something so important as these tests pending.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin

but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Caro

don't you wish you had it on film??? lol

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 3:10 PM

I think my grandson could check his stamp on his butt!! We were watching GUTS on Nickolodeon one day and they had this kid who put himself through a coat hanger. My grandson was 9 at the time. He is nearly 5 feet tall and weighs 64 pounds, skinny as a rail. He wanted to try it, so he got a coat hanger, started at his head, and fit his entire body through it!! I laughed so hard I cried!! We thought it was so funny!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 12, 2009 11:31:43 AMSubject: Re: Re: Hi all - welcome Ray and other news

S... you didn't upset 'everybody'. ..

Kathleen misunderstood and Margaret expressed her hurt feelings that had nothing to do with Kathleen.

I thought what you said was funny but I know the joke of no expiration date on fannies. It's referred too so often I would think newbies would know too.

We know it was meant to be in fun because you just SAID SO and we 'old-timers' knew so when you wrote it.

This board would not be the quality it is without the 'old-timers' ...yeah, even brother Bruce. Especially BB. He is a storehouse of information for us all.

Kids 'fight' in any family....

Again, glad you got good news!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter

without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Caro

don't you wish you had it on film??? lol

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 3:10 PM

I think my grandson could check his stamp on his butt!! We were watching GUTS on Nickolodeon one day and they had this kid who put himself through a coat hanger. My grandson was 9 at the time. He is nearly 5 feet tall and weighs 64 pounds, skinny as a rail. He wanted to try it, so he got a coat hanger, started at his head, and fit his entire body through it!! I laughed so hard I cried!! We thought it was so funny!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 12, 2009 11:31:43 AMSubject: Re: Re: Hi all - welcome Ray and other news

S... you didn't upset 'everybody'. ..

Kathleen misunderstood and Margaret expressed her hurt feelings that had nothing to do with Kathleen.

I thought what you said was funny but I know the joke of no expiration date on fannies. It's referred too so often I would think newbies would know too.

We know it was meant to be in fun because you just SAID SO and we 'old-timers' knew so when you wrote it.

This board would not be the quality it is without the 'old-timers' ...yeah, even brother Bruce. Especially BB. He is a storehouse of information for us all.

Kids 'fight' in any family....

Again, glad you got good news!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter

without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Yes!!!

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 6:39 PM

Yeah, I know, it kinda sucks!! I have come to realize though if nothing else through all of this that any day that I wake up whether I feel good or bad or waiting on results or whatever gets thrown at me, at least I woke up and that makes it a good day!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 12, 2009 4:23:12 PMSubject: Re: Re: Hi all - welcome Ray and other news

Caro...boy, talk about a twist or two.... It's hard to imagine him going through a hanger!

.... A person can only be so patient...especiall y about something so important as these tests pending.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi all - welcome Ray and other news> > > Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! > > Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.> > Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter

without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

I learned on Monday that reptiles may have samonella on their skin. so be sure to wash your hands thoroughly if you touch one

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Wednesday, March 11, 2009, 11:14 AM

WallyI somehow would have figured..... as for me, I'll stay far away in safetyhere. I don't play with snakes or guns. I don't even throw candy. I canonly imagine the talent competition for Miss Snake Charmer. As bad as Ithink this event sounds, I'm sure its much worse in person.....sorry, acity boy here. Not wild west.> >> > Welcome to the Air family Ray. We aren't all about doom and gloom> > here because obviously some of us need to discuss our derrieres and> > what position we were in to check our expiration stamps. Ipersonally> > prefer bending over, crooking my head backwards and just looking up.> > Nah, just teasing. I haven't been able to do that for simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis> > a good place to be amongst your peers. No foolin. Did I mention I'm> > in Texas and we have a tendency to tell tall tales out here? OH! The> > Rattlesnake Roundup is in Sweetwater this weekend if anybody is> > interested. Bruce? Wally?

No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway> > my chest x-ray looked. The PFT's were good and my lungs soundedclear> > and I made it thru the winter without a flareup. So yeah!!! I told> > him the rheumatologist has decided I have RA, Sjogren's,lupus or> > mixed connective. Definitely something of the connective tissue> > nature. He is treating me with Plaquenil and I do feel better. We're> > just going with that as long as it works. I don't care what disease> > he wants to call it. And Doc was pleased so we're all good> > out here in West Texas tonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

thanks bruce

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 3:36 PM

PinkI fear pain.....it' s sort of simple. I don't like it and don't want it.As to fearing dying more than death or one stage more than another, Iread what Lou rights and imagine myself with , two catsinstead of a dog, morphine, as a companion in the evening.For me, thinking ahead, planning it out in my mind, thinking that eventhe worse isn't so awful, all helps me. I have seen many here furtheralong than I am and seen how they dealt with it and I have suchincredible mentors from them.But, the big thing is that I don't call it dying.....I think of beingdead as a single instantaneous moment, but every second until then I'malive. I'm closer to death each day, but everyone is. But, I'm living.And, so much of what I've learned here is how to live with the disease.I live differently today than I did yesterday and will live differentlytomorrow. But, its all life and

I'll make each day as good as I can.I'll have bad days, but then I'll just try to rally the next.I enjoy knowing people from all around the world too and each of youbring me a different perspective. So, I'm happy for you Phillie fanswhen they win and so happy when you guys had the Pennsylvania or generalarea get together.>>> From: lbsmith789@sbcgloba l.net>> Subject: Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't

been able to do that for simply years!>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested.. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in

West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>