Re: Re: Hi all - welcome Ray and other news

[Guest guest]

thanks bruce

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 3:36 PM

PinkI fear pain.....it' s sort of simple. I don't like it and don't want it.As to fearing dying more than death or one stage more than another, Iread what Lou rights and imagine myself with , two catsinstead of a dog, morphine, as a companion in the evening.For me, thinking ahead, planning it out in my mind, thinking that eventhe worse isn't so awful, all helps me. I have seen many here furtheralong than I am and seen how they dealt with it and I have suchincredible mentors from them.But, the big thing is that I don't call it dying.....I think of beingdead as a single instantaneous moment, but every second until then I'malive. I'm closer to death each day, but everyone is. But, I'm living.And, so much of what I've learned here is how to live with the disease.I live differently today than I did yesterday and will live differentlytomorrow. But, its all life and

I'll make each day as good as I can.I'll have bad days, but then I'll just try to rally the next.I enjoy knowing people from all around the world too and each of youbring me a different perspective. So, I'm happy for you Phillie fanswhen they win and so happy when you guys had the Pennsylvania or generalarea get together.>>> From: lbsmith789@sbcgloba l.net>> Subject: Hi all - welcome Ray and other news> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 10, 2009, 10:02 PM>>>>> Welcome to the Air family Ray. We aren't all about doom and gloom herebecause obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't

been able to do that for simply years!>> Seriously, welcome to our world. Sorry you had to be here but this isa good place to be amongst your peers. No foolin. Did I mention I'm inTexas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested.. Bruce? Wally? No? Oh well.>> Good news today. Saw pulmo guy and he had nothin but love for the waymy chest x-ray looked. The PFT's were good and my lungs sounded clearand I made it thru the winter without a flareup. So yeah!!! I told himthe rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in

West Texastonight. Except for the rattlesnake thing.>> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

did you ever see circus olay??? i know it's not spelled correctly

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 1:03 AM

You did nothing wrong. As to the position, there are some double andtriple jointed contortionists who can do some pretty amazing things. Iam the exact opposite as I'm not at all limber or flexible.> >> > S.... wonderful good news. Good news makes us all feel better!> >> > MamaSher; 70, IPF 3-06, OR.> > Nasturtiums> > Don't fret about tomorrow, God is already there!> >> > Hi all - welcome Ray and other news> >> >> > Welcome to the Air family Ray. We aren't all about doom and gloomhere because obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for

simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis a good place to be amongst your peers. No foolin. Did I mention I'min Texas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway my chest x-ray looked. The PFT's were good and my lungs soundedclear and I made it thru the winter without a flareup. So yeah!!! I toldhim the rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West

Texastonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

did you ever see circus olay??? i know it's not spelled correctly

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 1:03 AM

You did nothing wrong. As to the position, there are some double andtriple jointed contortionists who can do some pretty amazing things. Iam the exact opposite as I'm not at all limber or flexible.> >> > S.... wonderful good news. Good news makes us all feel better!> >> > MamaSher; 70, IPF 3-06, OR.> > Nasturtiums> > Don't fret about tomorrow, God is already there!> >> > Hi all - welcome Ray and other news> >> >> > Welcome to the Air family Ray. We aren't all about doom and gloomhere because obviously some of us need to discuss our derrieres and whatposition we were in to check our expiration stamps. I personally preferbending over, crooking my head backwards and just looking up. Nah, justteasing. I haven't been able to do that for

simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis a good place to be amongst your peers. No foolin. Did I mention I'min Texas and we have a tendency to tell tall tales out here? OH! TheRattlesnake Roundup is in Sweetwater this weekend if anybody isinterested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway my chest x-ray looked. The PFT's were good and my lungs soundedclear and I made it thru the winter without a flareup. So yeah!!! I toldhim the rheumatologist has decided I have RA, Sjogren's,lupus or mixedconnective. Definitely something of the connective tissue nature. He istreating me with Plaquenil and I do feel better. We're just going withthat as long as it works. I don't care what disease he wants to call it.And Doc was pleased so we're all good out here in West

Texastonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

lol your pulling our legs right, How to you round up a rattlesnake?

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, March 11, 2009, 11:14 AM

WallyI somehow would have figured..... as for me, I'll stay far away in safetyhere. I don't play with snakes or guns. I don't even throw candy. I canonly imagine the talent competition for Miss Snake Charmer. As bad as Ithink this event sounds, I'm sure its much worse in person.....sorry, acity boy here. Not wild west.> >> > Welcome to the Air family Ray. We aren't all about doom and gloom> > here because obviously some of us need to discuss our derrieres and> > what position we were in to check our expiration stamps. Ipersonally> > prefer bending over, crooking my head backwards and just looking up.> > Nah, just teasing. I haven't been able to do that for simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis> > a good place to be amongst your peers. No foolin. Did I mention I'm> > in Texas and we

have a tendency to tell tall tales out here? OH! The> > Rattlesnake Roundup is in Sweetwater this weekend if anybody is> > interested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway> > my chest x-ray looked. The PFT's were good and my lungs soundedclear> > and I made it thru the winter without a flareup. So yeah!!! I told> > him the rheumatologist has decided I have RA, Sjogren's,lupus or> > mixed connective. Definitely something of the connective tissue> > nature. He is treating me with Plaquenil and I do feel better. We're> > just going with that as long as it works. I don't care what disease> > he wants to call it. And Doc was pleased so we're all good> > out here in West Texas tonight. Except for the rattlesnake thing.> >> > S, Lubbock,

TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

Kathleen,

You git a rope in order to round up rattlesnakes. Heck ain't you never seen a round up on tv???? LOL. Actually it is an annual harvest of ol' mister no shoulders. The ultimate result being the collection of venom to be used in the medical field in order to treat snake bite victims. They are also using the venom for potential medical treatments.

Wally

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, March 11, 2009, 11:14 AM

WallyI somehow would have figured..... as for me, I'll stay far away in safetyhere. I don't play with snakes or guns. I don't even throw candy. I canonly imagine the talent competition for Miss Snake Charmer. As bad as Ithink this event sounds, I'm sure its much worse in person.....sorry, acity boy here. Not wild west.> >> > Welcome to the Air family Ray. We aren't all about doom and gloom> > here because obviously some of us need to discuss our derrieres and> > what position we were in to check our expiration stamps. Ipersonally> > prefer bending over, crooking my head backwards and just looking up.> > Nah, just teasing. I haven't been able to do that for simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis> > a good place to be amongst your peers. No foolin. Did I mention I'm> > in Texas and we have a tendency to tell tall tales out here? OH! The> > Rattlesnake Roundup is in Sweetwater

this weekend if anybody is> > interested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway> > my chest x-ray looked. The PFT's were good and my lungs soundedclear> > and I made it thru the winter without a flareup. So yeah!!! I told> > him the rheumatologist has decided I have RA, Sjogren's,lupus or> > mixed connective. Definitely something of the connective tissue> > nature. He is treating me with Plaquenil and I do feel better. We're> > just going with that as long as it works. I don't care what disease> > he wants to call it. And Doc was pleased so we're all good> > out here in West Texas tonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al>

>>

[Guest guest]

thanks for the correct spelling

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 8:59 PM

PinkCirque du SoleilYes, I have seen several of their shows. I'm sure many of them could doit. Some incredible performers. Honestly, looking at some of the movesof gymnasts and performers in shows like Cirque, my back hurts justwatching them bend so far over.> > >> > > S.... wonderful good news. Good news makes us all feelbetter!> > >> > > MamaSher; 70, IPF 3-06, OR.> > > Nasturtiums> > > Don't fret about tomorrow, God is already there!> > >> > > Hi all - welcome Ray and other news> > >> > >> > > Welcome to the Air family Ray. We aren't all about doom and gloom> here because obviously some of us need to discuss our derrieres andwhat> position we were in to check our expiration stamps. I

personallyprefer> bending over, crooking my head backwards and just looking up. Nah,just> teasing. I haven't been able to do that for simply years!> > >> > > Seriously, welcome to our world. Sorry you had to be here but this> is a good place to be amongst your peers. No foolin. Did I mention I'm> in Texas and we have a tendency to tell tall tales out here? OH! The> Rattlesnake Roundup is in Sweetwater this weekend if anybody is> interested. Bruce? Wally? No? Oh well.> > >> > > Good news today. Saw pulmo guy and he had nothin but love for the> way my chest x-ray looked. The PFT's were good and my lungs sounded> clear and I made it thru the winter without a flareup. So yeah!!! Itold> him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed> connective. Definitely something of the connective tissue nature.

Heis> treating me with Plaquenil and I do feel better. We're just going with> that as long as it works. I don't care what disease he wants to callit.> And Doc was pleased so we're all good out here in West Texas> tonight. Except for the rattlesnake thing.> > >> > > S, Lubbock, TX> > > NSIP w/PF 12/2006 et al> > >> >>

[Guest guest]

After watching three people I love die, I think I will avoid doctors and tests. It is not like they can do anything.. I don't need to know the progression. I am not going to spend my life in Doctor's offices and hospitals. Keep me out of pain, and when I need oxygen I am breaking a 22 year sobriety with Makers Mark or Knob Creek bourban. . I feel your pain over your father. Twenty years later I still miss my mother. My poor father has lost two sons in two years, and now me. Now that man has courage. I do so love and respect him.

I also wake at night with night fevers, and I understand cranky.

Fri, 3/13/09, wrote:

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Friday, March 13, 2009, 12:37 AM

Kathleen - Love, laughter and dancing. Rest assured we all support you and your family as you find your way. Loss of any kind is always terribly hard. I lost my dad 2 years ago and still find myself talking to him, thinking I need to call him and tell him some trivial thing. I know he is watching out for me and so will the people you love, watch out for you. God bless..What we go through is different every day, depending on where we are. Tomorrow is tomorrow. Nobody has all the answers but there is love here. I can recite almost word for word what my VATS showed, looked up all the big words, asked lots of questions, and still have to deal with it as it comes. I once asked my doctor about something that was going on. I told him I was trying to figure out what normal is now. He told me there is absolutely nothing normal about this disease. Kind of sums it up.BTW - I think I even posted a picture of my favorite dancing shoes in photos at one

time. I gave them away a couple of months ago to a lovely young girl who will make them sparkle with life.I bounce in and out, mostly at night, on occasion. I tend to be full of nonsense, except when I'm cranky. Pax. S, Lubbock, TXNSIP w/PF 12/2006 et al> > > >> > > > S.... wonderful good news. Good news makes us all feel better!> > > >> > > > MamaSher; 70, IPF 3-06, OR.> > > > Nasturtiums> > > > Don't fret about tomorrow, God is already

there!> > > >> > > > Hi all - welcome Ray and other news> > > >> > > >> > > > Welcome to the Air family Ray. We aren't all about doom and gloom> > here because obviously some of us need to discuss our derrieres and what> > position we were in to check our expiration stamps. I personally prefer> > bending over, crooking my head backwards and just looking up. Nah, just> > teasing. I haven't been able to do that for simply years!> > > >> > > > Seriously, welcome to our world. Sorry you had to be here but this> > is a good place to be amongst your peers. No

foolin. Did I mention I'm> > in Texas and we have a tendency to tell tall tales out here? OH! The> > Rattlesnake Roundup is in Sweetwater this weekend if anybody is> > interested. Bruce? Wally? No? Oh well.> > > >> > > > Good news today. Saw pulmo guy and he had nothin but love for the> > way my chest x-ray looked. The PFT's were good and my lungs sounded> > clear and I made it thru the winter without a flareup. So yeah!!! I told> > him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed> > connective. Definitely something of the connective tissue nature. He is> > treating me with Plaquenil and I do feel better. We're just going with> > that as long as it works. I don't care what disease he wants to call it.> > And Doc was pleased so we're all good out here in West Texas> > tonight. Except

for the rattlesnake thing.> > > >> > > > S, Lubbock, TX> > > > NSIP w/PF 12/2006 et al> > > >> > >> >>

[Guest guest]

Wally , you have given me a few chuckles imaging a rattlesnake roundup, thank you Kathy Seweryn IPF 02/15/09

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, March 11, 2009, 11:14 AM

WallyI somehow would have figured..... as for me, I'll stay far away in safetyhere. I don't play with snakes or guns. I don't even throw candy. I canonly imagine the talent competition for Miss Snake Charmer. As bad as Ithink this event sounds, I'm sure its much worse in person.....sorry, acity boy here. Not wild west.> >> > Welcome to the Air family Ray. We aren't all about doom and gloom> > here because obviously some of us need to discuss our derrieres and> > what position we were in to check our expiration stamps. Ipersonally> > prefer bending over, crooking my head backwards and just looking up.> > Nah, just teasing. I haven't been able to do that for simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis> > a good place to be amongst your peers. No foolin. Did I mention I'm> > in Texas and we have a tendency to tell tall tales out here? OH! The> > Rattlesnake Roundup is in Sweetwater

this weekend if anybody is> > interested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway> > my chest x-ray looked. The PFT's were good and my lungs soundedclear> > and I made it thru the winter without a flareup. So yeah!!! I told> > him the rheumatologist has decided I have RA, Sjogren's,lupus or> > mixed connective. Definitely something of the connective tissue> > nature. He is treating me with Plaquenil and I do feel better. We're> > just going with that as long as it works. I don't care what disease> > he wants to call it. And Doc was pleased so we're all good> > out here in West Texas tonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al>

>>

[Guest guest]

Wally , you have given me a few chuckles imaging a rattlesnake roundup, thank you Kathy Seweryn IPF 02/15/09

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, March 11, 2009, 11:14 AM

WallyI somehow would have figured..... as for me, I'll stay far away in safetyhere. I don't play with snakes or guns. I don't even throw candy. I canonly imagine the talent competition for Miss Snake Charmer. As bad as Ithink this event sounds, I'm sure its much worse in person.....sorry, acity boy here. Not wild west.> >> > Welcome to the Air family Ray. We aren't all about doom and gloom> > here because obviously some of us need to discuss our derrieres and> > what position we were in to check our expiration stamps. Ipersonally> > prefer bending over, crooking my head backwards and just looking up.> > Nah, just teasing. I haven't been able to do that for simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis> > a good place to be amongst your peers. No foolin. Did I mention I'm> > in Texas and we have a tendency to tell tall tales out here? OH! The> > Rattlesnake Roundup is in Sweetwater

this weekend if anybody is> > interested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway> > my chest x-ray looked. The PFT's were good and my lungs soundedclear> > and I made it thru the winter without a flareup. So yeah!!! I told> > him the rheumatologist has decided I have RA, Sjogren's,lupus or> > mixed connective. Definitely something of the connective tissue> > nature. He is treating me with Plaquenil and I do feel better. We're> > just going with that as long as it works. I don't care what disease> > he wants to call it. And Doc was pleased so we're all good> > out here in West Texas tonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al>

>>

[Guest guest]

kind of reminds me of the cat roundup commersial i've seen on tv.

ken o.

To: Breathe-Support Sent: Friday, March 13, 2009 6:36:28 AMSubject: Re: Re: Hi all - welcome Ray and other news

Wally , you have given me a few chuckles imaging a rattlesnake roundup, thank you Kathy Seweryn IPF 02/15/09

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, March 11, 2009, 11:14 AM

WallyI somehow would have figured..... as for me, I'll stay far away in safetyhere. I don't play with snakes or guns. I don't even throw candy. I canonly imagine the talent competition for Miss Snake Charmer. As bad as Ithink this event sounds, I'm sure its much worse in person.....sorry, acity boy here. Not wild west.> >> > Welcome to the Air family Ray. We aren't all about doom and gloom> > here because obviously some of us need to discuss our derrieres and> > what position we were in to check our expiration stamps. Ipersonally> > prefer bending over, crooking my head backwards and just looking up.> > Nah, just teasing. I haven't been able to do that for simply years!> >> > Seriously, welcome to our world. Sorry you had to be here but thisis> > a good place to be amongst your peers. No foolin. Did I mention I'm> > in Texas and we have a tendency to tell tall tales out here? OH! The> > Rattlesnake Roundup is in Sweetwater

this weekend if anybody is> > interested. Bruce? Wally? No? Oh well.> >> > Good news today. Saw pulmo guy and he had nothin but love for theway> > my chest x-ray looked. The PFT's were good and my lungs soundedclear> > and I made it thru the winter without a flareup. So yeah!!! I told> > him the rheumatologist has decided I have RA, Sjogren's,lupus or> > mixed connective. Definitely something of the connective tissue> > nature. He is treating me with Plaquenil and I do feel better. We're> > just going with that as long as it works. I don't care what disease> > he wants to call it. And Doc was pleased so we're all good> > out here in West Texas tonight. Except for the rattlesnake thing.> >> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al>

>>