Re: Question...ok, several questions

[Guest guest]

So very sorry to hear your mom is having such an awful time. I will pray for

her and you.

Karima

Question...ok, several questions

Hi everyone,

I've been waiting to post until I had my thoughts together. My mom was

suppose to have a pelvic exoneration done this month. But yet another surgeon

came

along and clipped that very thin thread we were hanging by...again. Seems

like everytime someone things of something they might be able to do, its not

workable.

What I was wondering, is I hear all these great stories of people with stage

IV and stage III that go into remission and live many years. Does anyone out

there know of someone who was UNABLE to have their tumor removed? My moms is

rectal cancer, since they did not remove it they only removed one lymph node

from the groin because it was the size of a golf ball and it was positive for

cancer. So far they haven't seen anything in her liver. This last set of

surgeons explained her tumor as frozen into the pelvic bone, and thats why its

not

removable because she would never heal, they would have to hack away so much

pelvic bone, ect. they tumor is very large and takes up alot of the entire

pelvic area.

She's still having alot of pain but right now they are increasing her

oxcontin (spelling?) to try to find a good dose.

I guess I just wish I could find someone who has gone through something

similar so we have a clue whats going on. Onc dr says we just keep going with

what

they are doing, the chemo. The surgeons originally thought 6 months at best

and its been 8.

Any comments are greatly welcome.

Thanks for listening to my rant.

[Guest guest]

So very sorry to hear your mom is having such an awful time. I will pray for

her and you.

Karima

Question...ok, several questions

Hi everyone,

I've been waiting to post until I had my thoughts together. My mom was

suppose to have a pelvic exoneration done this month. But yet another surgeon

came

along and clipped that very thin thread we were hanging by...again. Seems

like everytime someone things of something they might be able to do, its not

workable.

What I was wondering, is I hear all these great stories of people with stage

IV and stage III that go into remission and live many years. Does anyone out

there know of someone who was UNABLE to have their tumor removed? My moms is

rectal cancer, since they did not remove it they only removed one lymph node

from the groin because it was the size of a golf ball and it was positive for

cancer. So far they haven't seen anything in her liver. This last set of

surgeons explained her tumor as frozen into the pelvic bone, and thats why its

not

removable because she would never heal, they would have to hack away so much

pelvic bone, ect. they tumor is very large and takes up alot of the entire

pelvic area.

She's still having alot of pain but right now they are increasing her

oxcontin (spelling?) to try to find a good dose.

I guess I just wish I could find someone who has gone through something

similar so we have a clue whats going on. Onc dr says we just keep going with

what

they are doing, the chemo. The surgeons originally thought 6 months at best

and its been 8.

Any comments are greatly welcome.

Thanks for listening to my rant.

[Guest guest]

So very sorry to hear your mom is having such an awful time. I will pray for

her and you.

Karima

Question...ok, several questions

Hi everyone,

I've been waiting to post until I had my thoughts together. My mom was

suppose to have a pelvic exoneration done this month. But yet another surgeon

came

along and clipped that very thin thread we were hanging by...again. Seems

like everytime someone things of something they might be able to do, its not

workable.

What I was wondering, is I hear all these great stories of people with stage

IV and stage III that go into remission and live many years. Does anyone out

there know of someone who was UNABLE to have their tumor removed? My moms is

rectal cancer, since they did not remove it they only removed one lymph node

from the groin because it was the size of a golf ball and it was positive for

cancer. So far they haven't seen anything in her liver. This last set of

surgeons explained her tumor as frozen into the pelvic bone, and thats why its

not

removable because she would never heal, they would have to hack away so much

pelvic bone, ect. they tumor is very large and takes up alot of the entire

pelvic area.

She's still having alot of pain but right now they are increasing her

oxcontin (spelling?) to try to find a good dose.

I guess I just wish I could find someone who has gone through something

similar so we have a clue whats going on. Onc dr says we just keep going with

what

they are doing, the chemo. The surgeons originally thought 6 months at best

and its been 8.

Any comments are greatly welcome.

Thanks for listening to my rant.

[Guest guest]

In a message dated 7/14/2005 10:51:10 PM Eastern Standard Time,

sftfemme@... writes:

Hi everyone,

I've been waiting to post until I had my thoughts together. My mom was

suppose to have a pelvic exoneration done this month. But yet another

surgeon came

along and clipped that very thin thread we were hanging by...again. Seems

like everytime someone things of something they might be able to do, its not

workable.

What I was wondering, is I hear all these great stories of people with stage

IV and stage III that go into remission and live many years. Does anyone

out

there know of someone who was UNABLE to have their tumor removed? My moms

is

rectal cancer, since they did not remove it they only removed one lymph node

from the groin because it was the size of a golf ball and it was positive

for

cancer. So far they haven't seen anything in her liver. This last set of

surgeons explained her tumor as frozen into the pelvic bone, and thats why

its not

removable because she would never heal, they would have to hack away so much

pelvic bone, ect. they tumor is very large and takes up alot of the entire

pelvic area.

She's still having alot of pain but right now they are increasing her

oxcontin (spelling?) to try to find a good dose.

I guess I just wish I could find someone who has gone through something

similar so we have a clue whats going on. Onc dr says we just keep going

with what

they are doing, the chemo. The surgeons originally thought 6 months at best

and its been 8.

Any comments are greatly welcome.

Thanks for listening to my rant.

I don't know anything about this, but maybe someone else will have some

information links to send you to read up on the matter. I just feel sooo bad

that your Mom has to suffer with this pain and you have to watch her suffer. I

truly wish there was something I could do to help you through your pain.

Tell Mom we all said to keep fighting. Have they taken any scans to see if the

chemo is shrinking the tumor or keeping it under control in any way??

We have a similar situation in that the doctors can't seem to agree on a

plan of action for Glenn to get him out of his pain, more from the fluid

buildup

than the actual cancer. It's very scary and unsettling!!

You just go ahead and " rant " anyway you like. I know from experience that

it's most difficult to watch someone you love deeply to be in such constant

pain and suffering and not be able to help. CANCER SUCKS!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

Colon resection 6/03 removing 9 in. of colon including cancerous tumore and

3 of 22 removed lymph nodes were also cancerous.

Infection set in at surgical site...Open wound for 2 months, chemo for 8

months

Mets to Liver found 4/04, inoperable; one tumor too close to artery and vein

Chemo infiltration to chest 8/04 with severe side effects including severe

pain and muscle damage (permanent??)

10/04 Severe lower ab pain unable to eat, colon shut down, hospitalization

w/morphine 8 days. Sent home with basically no diagnosis. Possibly the cancer

causing the pain.

Ascites (Fluid build-up) and Paracentesis (draining) on a regular weekly

basis

11/09/04 on 5FU/Leu/Oxaliplatin/Avastin " cocktails " 46 hr. infusions

Mid Dec. 04 - CT. Scan shows largest tumor on liver has reduced 1/3,

remaining 11 tumors stable; no growth. Chemo is working...Yippee!!

02/05 Continued bi-wkly Ascites and Paracentesis may mean chemo no longer

working.

Emergency CT. Scan performed. Tumors are reducing in size, some as much as

half!!! Chemo is working!!!

Found a blot clot in the vein going in to the liver!!! Waiting for MRI so

GI Dr. can decide to treat with meds or surgery. Onc. now believes the blood

clot is reason for the continuing Ascites.

March 04...Lovamax shots nightly to dissolve the clot and open the portal

vein going in to the liver, hoping the liver will function more normally.

Still not sure if blood clot or tumor. Why? No answers.

ICU hospitalization twice..total of 9 days out of 14 for varices bleeding in

the esophogus. No chemo now for 6 wks. Drs., Liver specialists, and GI

specialists working on a plan. Ascites is doing more damage than chemo to

Glenn's

body. Have to " take a chance " (Drs. words) and do the shunt surgery and

very SOON!!

" Chemo Vacation " to build up Glenn's body for whatever!!!

Liver Spec. does not agree with GI Dr. re: shunt surgery...now what??

TRYING TO KICK BUTT with this darn disease!!!

[Guest guest]

In a message dated 7/14/2005 10:51:10 PM Eastern Standard Time,

sftfemme@... writes:

Hi everyone,

I've been waiting to post until I had my thoughts together. My mom was

suppose to have a pelvic exoneration done this month. But yet another

surgeon came

along and clipped that very thin thread we were hanging by...again. Seems

like everytime someone things of something they might be able to do, its not

workable.

What I was wondering, is I hear all these great stories of people with stage

IV and stage III that go into remission and live many years. Does anyone

out

there know of someone who was UNABLE to have their tumor removed? My moms

is

rectal cancer, since they did not remove it they only removed one lymph node

from the groin because it was the size of a golf ball and it was positive

for

cancer. So far they haven't seen anything in her liver. This last set of

surgeons explained her tumor as frozen into the pelvic bone, and thats why

its not

removable because she would never heal, they would have to hack away so much

pelvic bone, ect. they tumor is very large and takes up alot of the entire

pelvic area.

She's still having alot of pain but right now they are increasing her

oxcontin (spelling?) to try to find a good dose.

I guess I just wish I could find someone who has gone through something

similar so we have a clue whats going on. Onc dr says we just keep going

with what

they are doing, the chemo. The surgeons originally thought 6 months at best

and its been 8.

Any comments are greatly welcome.

Thanks for listening to my rant.

I don't know anything about this, but maybe someone else will have some

information links to send you to read up on the matter. I just feel sooo bad

that your Mom has to suffer with this pain and you have to watch her suffer. I

truly wish there was something I could do to help you through your pain.

Tell Mom we all said to keep fighting. Have they taken any scans to see if the

chemo is shrinking the tumor or keeping it under control in any way??

We have a similar situation in that the doctors can't seem to agree on a

plan of action for Glenn to get him out of his pain, more from the fluid

buildup

than the actual cancer. It's very scary and unsettling!!

You just go ahead and " rant " anyway you like. I know from experience that

it's most difficult to watch someone you love deeply to be in such constant

pain and suffering and not be able to help. CANCER SUCKS!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

Colon resection 6/03 removing 9 in. of colon including cancerous tumore and

3 of 22 removed lymph nodes were also cancerous.

Infection set in at surgical site...Open wound for 2 months, chemo for 8

months

Mets to Liver found 4/04, inoperable; one tumor too close to artery and vein

Chemo infiltration to chest 8/04 with severe side effects including severe

pain and muscle damage (permanent??)

10/04 Severe lower ab pain unable to eat, colon shut down, hospitalization

w/morphine 8 days. Sent home with basically no diagnosis. Possibly the cancer

causing the pain.

Ascites (Fluid build-up) and Paracentesis (draining) on a regular weekly

basis

11/09/04 on 5FU/Leu/Oxaliplatin/Avastin " cocktails " 46 hr. infusions

Mid Dec. 04 - CT. Scan shows largest tumor on liver has reduced 1/3,

remaining 11 tumors stable; no growth. Chemo is working...Yippee!!

02/05 Continued bi-wkly Ascites and Paracentesis may mean chemo no longer

working.

Emergency CT. Scan performed. Tumors are reducing in size, some as much as

half!!! Chemo is working!!!

Found a blot clot in the vein going in to the liver!!! Waiting for MRI so

GI Dr. can decide to treat with meds or surgery. Onc. now believes the blood

clot is reason for the continuing Ascites.

March 04...Lovamax shots nightly to dissolve the clot and open the portal

vein going in to the liver, hoping the liver will function more normally.

Still not sure if blood clot or tumor. Why? No answers.

ICU hospitalization twice..total of 9 days out of 14 for varices bleeding in

the esophogus. No chemo now for 6 wks. Drs., Liver specialists, and GI

specialists working on a plan. Ascites is doing more damage than chemo to

Glenn's

body. Have to " take a chance " (Drs. words) and do the shunt surgery and

very SOON!!

" Chemo Vacation " to build up Glenn's body for whatever!!!

Liver Spec. does not agree with GI Dr. re: shunt surgery...now what??

TRYING TO KICK BUTT with this darn disease!!!

[Guest guest]

Right now she is on oxal, avastin, 5 fu and god knows what else. and it

seems to be keeping it from growing and spreading. Yea, cancer does suck. I

hate

seeing her in pain and she hates being so depend on us. She's a fighter

though so we will hope for the best and take whats given.

Thanks,

[Guest guest]

Right now she is on oxal, avastin, 5 fu and god knows what else. and it

seems to be keeping it from growing and spreading. Yea, cancer does suck. I

hate

seeing her in pain and she hates being so depend on us. She's a fighter

though so we will hope for the best and take whats given.

Thanks,

[Guest guest]

Right now she is on oxal, avastin, 5 fu and god knows what else. and it

seems to be keeping it from growing and spreading. Yea, cancer does suck. I

hate

seeing her in pain and she hates being so depend on us. She's a fighter

though so we will hope for the best and take whats given.

Thanks,

[Guest guest]

Jolene,

No they said surgery will not ever be an option. The cancer will not be able

to be removed. She had radiation to begin with (with chemo) and because of

all the damage from that and the damage from the tumor its self they said she

would never heal and it would probably kill her. The thought of them leaving

it, just seems so wrong but I understand what their saying.

[Guest guest]

Jolene,

No they said surgery will not ever be an option. The cancer will not be able

to be removed. She had radiation to begin with (with chemo) and because of

all the damage from that and the damage from the tumor its self they said she

would never heal and it would probably kill her. The thought of them leaving

it, just seems so wrong but I understand what their saying.

[Guest guest]

Jolene,

No they said surgery will not ever be an option. The cancer will not be able

to be removed. She had radiation to begin with (with chemo) and because of

all the damage from that and the damage from the tumor its self they said she

would never heal and it would probably kill her. The thought of them leaving

it, just seems so wrong but I understand what their saying.

[Guest guest]

Ranting is okay especially when you are up against the wall... I tried

to do a google on

pelvic exoneration and didn't come up with much info at all.

Sorry the doc nixed that idea.

They make her condition sound so ominous. ... sounds similar to my

husband's situation as well.

When they finally realized he had cancer, it had eaten into (from his

groin) his right leg bone (where is attaches to him).

What he had was non-hodgkins lymphoma and back then 97-99 not easily

curable...

I assume they are hoping the chemo will shrink everything down to a

manageable size... so that surgery might be an option

later on. You are definitely faced with some choices and I will continue

to pray for your mom and the family. Miracles do happen... God Bless and

Big hugs JOlene

>

[Guest guest]

Ranting is okay especially when you are up against the wall... I tried

to do a google on

pelvic exoneration and didn't come up with much info at all.

Sorry the doc nixed that idea.

They make her condition sound so ominous. ... sounds similar to my

husband's situation as well.

When they finally realized he had cancer, it had eaten into (from his

groin) his right leg bone (where is attaches to him).

What he had was non-hodgkins lymphoma and back then 97-99 not easily

curable...

I assume they are hoping the chemo will shrink everything down to a

manageable size... so that surgery might be an option

later on. You are definitely faced with some choices and I will continue

to pray for your mom and the family. Miracles do happen... God Bless and

Big hugs JOlene

>

[Guest guest]

Ranting is okay especially when you are up against the wall... I tried

to do a google on

pelvic exoneration and didn't come up with much info at all.

Sorry the doc nixed that idea.

They make her condition sound so ominous. ... sounds similar to my

husband's situation as well.

When they finally realized he had cancer, it had eaten into (from his

groin) his right leg bone (where is attaches to him).

What he had was non-hodgkins lymphoma and back then 97-99 not easily

curable...

I assume they are hoping the chemo will shrink everything down to a

manageable size... so that surgery might be an option

later on. You are definitely faced with some choices and I will continue

to pray for your mom and the family. Miracles do happen... God Bless and

Big hugs JOlene

>

[Guest guest]

Where is she being treated? What hospital and by what doctors?

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Like to help CCNetwork? Go shopping!

That's right, go head and buy something for yourself -- a new CD, the latest

bestseller, essentials like toothpaste or vitamins, even a computer. But first

join www.iGive.com/CCNetwork . Every time you shop at one of the over 500

name-brand stores in the Mall at iGive.com, we'll receive a donation of up to

26% of each purchase you make, at no cost to you.

Remember, donating to CCNetwork won't cost you a thing. But we'll miss out on a

lot of extra dough, if you don't join. So visit www.iGive.com/CCNetwork now.

Membership is free and your privacy is guaranteed.

Click here to join: http://www.iGive.com/CCNetwork

Re: Question...ok, several questions

Jolene,

No they said surgery will not ever be an option. The cancer will not be able

to be removed. She had radiation to begin with (with chemo) and because of

all the damage from that and the damage from the tumor its self they said she

would never heal and it would probably kill her. The thought of them leaving

it, just seems so wrong but I understand what their saying.

[Guest guest]

Where is she being treated? What hospital and by what doctors?

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Like to help CCNetwork? Go shopping!

That's right, go head and buy something for yourself -- a new CD, the latest

bestseller, essentials like toothpaste or vitamins, even a computer. But first

join www.iGive.com/CCNetwork . Every time you shop at one of the over 500

name-brand stores in the Mall at iGive.com, we'll receive a donation of up to

26% of each purchase you make, at no cost to you.

Remember, donating to CCNetwork won't cost you a thing. But we'll miss out on a

lot of extra dough, if you don't join. So visit www.iGive.com/CCNetwork now.

Membership is free and your privacy is guaranteed.

Click here to join: http://www.iGive.com/CCNetwork

Re: Question...ok, several questions

Jolene,

No they said surgery will not ever be an option. The cancer will not be able

to be removed. She had radiation to begin with (with chemo) and because of

all the damage from that and the damage from the tumor its self they said she

would never heal and it would probably kill her. The thought of them leaving

it, just seems so wrong but I understand what their saying.

[Guest guest]

I have stage 4 with mets to liver and lungs. My primary tumor in my

rectum was/is inoperable. The chemo managed to keep it from causing

problems. I am lucky I have no pain and I understand when the tumor is

in the bone it is quite painful. Has she tried acupuncture for pain?

It is supposed to be great for pain. Good luck.

[Guest guest]

We are in Wichita Ks and her doctor is Dr. Dahkil with the cancer center of

kansas.

Re: Question...ok, several questions

Where is she being treated? What hospital and by what doctors?

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Like to help CCNetwork? Go shopping!

That's right, go head and buy something for yourself -- a new CD, the latest

bestseller, essentials like toothpaste or vitamins, even a computer. But first

join www.iGive.com/CCNetwork . Every time you shop at one of the over 500

name-brand stores in the Mall at iGive.com, we'll receive a donation of up to

26% of each purchase you make, at no cost to you.

Remember, donating to CCNetwork won't cost you a thing. But we'll miss out on a

lot of extra dough, if you don't join. So visit www.iGive.com/CCNetwork now.

Membership is free and your privacy is guaranteed.

Click here to join: http://www.iGive.com/CCNetwork

Re: Question...ok, several questions

Jolene,

No they said surgery will not ever be an option. The cancer will not be able

to be removed. She had radiation to begin with (with chemo) and because of

all the damage from that and the damage from the tumor its self they said she

would never heal and it would probably kill her. The thought of them leaving

it, just seems so wrong but I understand what their saying.