Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 Maybe doc meant the finger oximeter would be unreliable for a 24 hr.test .That requires a bit different thingy. Sunny, the majority of the board will no doubt agree with MB here...consider what she says... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Hi Sher Sorry to hear you have been so sick. I did notice that you hadn't been posting and I mentioned it to my wife, but we have had my son, DIL, and 2 grandkids (2 & 5 yrs. old), with us for the last 12 days and I haven't been on the computer other that 10 minutes, 3 different days. My butt is dragging trying to be involved in the activities and I do feel very tired all the time----only three more days and they will be going back to Olympia, Wa. My last visit to the Dr. (April 6th) I did my PFTs and everything is exactly the same except for my DLCO---it has dropped from 55% down to 49%. In the last 10 months it has dropped from 68% to 49%, so needless to say it is starting to make me nervous. What has been going on with you? You have usually been the "rock" of the group? Hope everything is OK and we can contribute it to the weather? I did hear you talking about going to the U of W medical hospital for an evaluation? I just talked to my Dr about checking at the U of W for a transplant evaluation, so I may go there also, but I don't know when. Tell Rich hi and hopefully I will be making the trip up to Washington again and I can meet up with you guys again. Hope you get better and back to posting!!!!! !!!! G. UIP/ IPF 5/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Good for you, Sunny. Thank God that you went to the ER. I have to learn to stand up for myself too. As far as I can tell my pulmo doctor is doing the right thins except maybe for the Prednisone. I am going to have some questions for him about that when I see him Thursday. His name is Dr. Puruckherr and he is at Holy Family in case you are interested. I have to tell you the same thing that I told Theresa. You are so Lucky to have a husband like . It's a lonely feeling having an illness like this and no husband. Beverley Update after pulmo doc - hate to even call him a doctor Hi Everyone, Just got home from pulmo dude. Refused to let me do 24 hour oximeter! My O2 at night is dropping to 83% so will go on night oxygen. So anyway I don't have IPF any more. Now it's just PF because they found out why my lungs are scarring so badly and why I can't breathe. I have Chronic Aspiration Neuritis (spell incorrectly I am sure). I am aspirating so much stomach contents that it is and has been scarring my lungs badly that's why I am down to 40% capacity. Pulmo doc says there are only two treatments: Raglan (which I am extremely allergic too) or surgery. He has referred me to gastro guy for surgery which in his words "is very intense". Anyone ever had or know anyone who has had this type of surgery. My gastro dude isn't back until Monday and I really want to know if they are going through my abdomen. or throat or where? I am so upset. How can there be only one drug to treat this? There are a hundred to treat everything else. Normal stain of stomach oil in lungs is about 55. Mine was 142. Doc says without the surgery my lungs will continue to deteriorate and I will get worse and worse. Said the pain in my chest is esophageal spasm and it hurts like a very bad word but there is nothing he can do about it. That's gastro guy's department. Believe it or not pulmo doc said "I just diagnose this I don't treat it." Go see gastro guy and come back to me in 2 months. & *^ & **** & ^^%^ & **!!!!! And that's how I feel about all of it. Sunny, PF '09 & whatever else could possibly be wrong with the human body, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Good for you, Sunny. Thank God that you went to the ER. I have to learn to stand up for myself too. As far as I can tell my pulmo doctor is doing the right thins except maybe for the Prednisone. I am going to have some questions for him about that when I see him Thursday. His name is Dr. Puruckherr and he is at Holy Family in case you are interested. I have to tell you the same thing that I told Theresa. You are so Lucky to have a husband like . It's a lonely feeling having an illness like this and no husband. Beverley Update after pulmo doc - hate to even call him a doctor Hi Everyone, Just got home from pulmo dude. Refused to let me do 24 hour oximeter! My O2 at night is dropping to 83% so will go on night oxygen. So anyway I don't have IPF any more. Now it's just PF because they found out why my lungs are scarring so badly and why I can't breathe. I have Chronic Aspiration Neuritis (spell incorrectly I am sure). I am aspirating so much stomach contents that it is and has been scarring my lungs badly that's why I am down to 40% capacity. Pulmo doc says there are only two treatments: Raglan (which I am extremely allergic too) or surgery. He has referred me to gastro guy for surgery which in his words "is very intense". Anyone ever had or know anyone who has had this type of surgery. My gastro dude isn't back until Monday and I really want to know if they are going through my abdomen. or throat or where? I am so upset. How can there be only one drug to treat this? There are a hundred to treat everything else. Normal stain of stomach oil in lungs is about 55. Mine was 142. Doc says without the surgery my lungs will continue to deteriorate and I will get worse and worse. Said the pain in my chest is esophageal spasm and it hurts like a very bad word but there is nothing he can do about it. That's gastro guy's department. Believe it or not pulmo doc said "I just diagnose this I don't treat it." Go see gastro guy and come back to me in 2 months. & *^ & **** & ^^%^ & **!!!!! And that's how I feel about all of it. Sunny, PF '09 & whatever else could possibly be wrong with the human body, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Good for you, Sunny. Thank God that you went to the ER. I have to learn to stand up for myself too. As far as I can tell my pulmo doctor is doing the right thins except maybe for the Prednisone. I am going to have some questions for him about that when I see him Thursday. His name is Dr. Puruckherr and he is at Holy Family in case you are interested. I have to tell you the same thing that I told Theresa. You are so Lucky to have a husband like . It's a lonely feeling having an illness like this and no husband. Beverley Update after pulmo doc - hate to even call him a doctor Hi Everyone, Just got home from pulmo dude. Refused to let me do 24 hour oximeter! My O2 at night is dropping to 83% so will go on night oxygen. So anyway I don't have IPF any more. Now it's just PF because they found out why my lungs are scarring so badly and why I can't breathe. I have Chronic Aspiration Neuritis (spell incorrectly I am sure). I am aspirating so much stomach contents that it is and has been scarring my lungs badly that's why I am down to 40% capacity. Pulmo doc says there are only two treatments: Raglan (which I am extremely allergic too) or surgery. He has referred me to gastro guy for surgery which in his words "is very intense". Anyone ever had or know anyone who has had this type of surgery. My gastro dude isn't back until Monday and I really want to know if they are going through my abdomen. or throat or where? I am so upset. How can there be only one drug to treat this? There are a hundred to treat everything else. Normal stain of stomach oil in lungs is about 55. Mine was 142. Doc says without the surgery my lungs will continue to deteriorate and I will get worse and worse. Said the pain in my chest is esophageal spasm and it hurts like a very bad word but there is nothing he can do about it. That's gastro guy's department. Believe it or not pulmo doc said "I just diagnose this I don't treat it." Go see gastro guy and come back to me in 2 months. & *^ & **** & ^^%^ & **!!!!! And that's how I feel about all of it. Sunny, PF '09 & whatever else could possibly be wrong with the human body, Idaho Quote Link to comment Share on other sites More sharing options...
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