Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 The news could have been worse and yes the good part is the possibility it is not cancer. I am just scared of surgery after all the infection stuff the last time but hopefully it will not happen again. This is nothing compared to what some on this list have gone through so I should and do feel lucky. Just wish my age and other health problems were a bit better. Hil Re: Home for now What terrible news after a lousy five days. I wish there were something that could be done to get you colon back to normal. Those kinds of days in the hospital can sap your energy and your positive spirit. Don't let it get you down. There is the possibility that it's not cancer, but just scar tissue. At least that's something positive to think about. Best wishes; -joe- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 ingrid is absolutely on target i can only ditto everything she said. sorry for the lower case, hollding the for irs, karima Re: Home for now Hil, Sounds like they put you through an ordeal. And of course your stay was basically to prove to the doctors what you knew all along. That is dumb on their part. I can relate to the problem of letting the gas come back out. Must of been very painful for you. And more then likely still causing you discomfort. I am so sorry you are going to have to go through surgery again. But maybe then they can get things somewhat back to normal for you. You never know they just might!!!! So do not give up hope. It might happen. It is better then that if it is cancer they remove it. And if it is scar tissue that gets removed too since it can cause more problems down the road. It happened to me!!! The surgery can only help. I am so sorry you have to have it. I feel for you. I am sending up extra Prayers for you!!!! Please try to focuss on the good of this. I know you are worried and scared it might be cancer. But if it is they can get it out!!! Just keep us posted on how you are feeling. Best to YOU!!!! Ingrid > > Well I got home last night about 7 PM from my little procedure on Tuesday:) I was going to rest a short time and read the email but seems I woke at 5 this morning. As you know a hospital is no place to get any sleep. Just losing one day I can't seem to get my mind together. I am a little sore and tender which I expected. Otherwise I am just a nervous wreck and scared. Do I have cancer again? I don't know! > Tuesday was just a in and out thing but I ended up staying until 7 last night. Next time I will pack a bag and be prepared. First off was going in to try to do a balloon stretch on my striture and then put a ultrasound up there to see if could get a biopsy of mass that is showing. That was day 5 of liquids and half doses of MOM trying to clean out. Now I think they finally see why I can't take a laxative. The striture is so tiny they say it is a miracle I can even go to the bathroom. To tight to stretch but found out to late before putting the gas in my colon to see up there. Normally the gas would come out but of course mine could not so I looked and felt like a balloon. Rushed to x ray few times to be sure they had not perforated the colon and had to stay so they were sure with those tubes I hate trying to let the gas out. Then yesterday would not let me leave until surgeon talked to me. He did not get there until 6 PM. That was day 6 on liquid but then said I had to eat meal before I could leave and they had not ordered my supper so got the daughters to go to cafateria and get me a sandwich so I could eat and come home:) There plan was I for me to just stay for surgery but surgeon agreed I could come home and get a couple things done first. One Dr had even said he would bring a computer up for me to use:) They have to think I am a nut case but got to take care of my Ebay and internet business as people just don't understand when they order and don't get it. > Did see gastro, oncologist and surgeon so was not wasted trip. One told daughters sure it was cancer. Oncologist said after talking to gastro and surgeon by the shape of the mass they are not sure if scar tissue or cancer but has to come out before it gets in my bone and have no choice but to do something to open striture up or may close completely at any time. I take it from what the surgeon said it will just be another resect and start over again. I see him next Wed and we will start my cleaning out proceess for surgery as they really believe me now that I can't handle a laxative and why. I just figured after a balloon stretch I would eventually get back to normal bathroom again but surgeon informed me taking more out which he will have to do is going to leave me in same situation of just being able to go little at time so guess rest of my life will be living clost to bathroom. Yes the girls said they would buy me a kitty litter box:) I also assume ever eating a salad again is out. > > Hil > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 ingrid is absolutely on target i can only ditto everything she said. sorry for the lower case, hollding the for irs, karima Re: Home for now Hil, Sounds like they put you through an ordeal. And of course your stay was basically to prove to the doctors what you knew all along. That is dumb on their part. I can relate to the problem of letting the gas come back out. Must of been very painful for you. And more then likely still causing you discomfort. I am so sorry you are going to have to go through surgery again. But maybe then they can get things somewhat back to normal for you. You never know they just might!!!! So do not give up hope. It might happen. It is better then that if it is cancer they remove it. And if it is scar tissue that gets removed too since it can cause more problems down the road. It happened to me!!! The surgery can only help. I am so sorry you have to have it. I feel for you. I am sending up extra Prayers for you!!!! Please try to focuss on the good of this. I know you are worried and scared it might be cancer. But if it is they can get it out!!! Just keep us posted on how you are feeling. Best to YOU!!!! Ingrid > > Well I got home last night about 7 PM from my little procedure on Tuesday:) I was going to rest a short time and read the email but seems I woke at 5 this morning. As you know a hospital is no place to get any sleep. Just losing one day I can't seem to get my mind together. I am a little sore and tender which I expected. Otherwise I am just a nervous wreck and scared. Do I have cancer again? I don't know! > Tuesday was just a in and out thing but I ended up staying until 7 last night. Next time I will pack a bag and be prepared. First off was going in to try to do a balloon stretch on my striture and then put a ultrasound up there to see if could get a biopsy of mass that is showing. That was day 5 of liquids and half doses of MOM trying to clean out. Now I think they finally see why I can't take a laxative. The striture is so tiny they say it is a miracle I can even go to the bathroom. To tight to stretch but found out to late before putting the gas in my colon to see up there. Normally the gas would come out but of course mine could not so I looked and felt like a balloon. Rushed to x ray few times to be sure they had not perforated the colon and had to stay so they were sure with those tubes I hate trying to let the gas out. Then yesterday would not let me leave until surgeon talked to me. He did not get there until 6 PM. That was day 6 on liquid but then said I had to eat meal before I could leave and they had not ordered my supper so got the daughters to go to cafateria and get me a sandwich so I could eat and come home:) There plan was I for me to just stay for surgery but surgeon agreed I could come home and get a couple things done first. One Dr had even said he would bring a computer up for me to use:) They have to think I am a nut case but got to take care of my Ebay and internet business as people just don't understand when they order and don't get it. > Did see gastro, oncologist and surgeon so was not wasted trip. One told daughters sure it was cancer. Oncologist said after talking to gastro and surgeon by the shape of the mass they are not sure if scar tissue or cancer but has to come out before it gets in my bone and have no choice but to do something to open striture up or may close completely at any time. I take it from what the surgeon said it will just be another resect and start over again. I see him next Wed and we will start my cleaning out proceess for surgery as they really believe me now that I can't handle a laxative and why. I just figured after a balloon stretch I would eventually get back to normal bathroom again but surgeon informed me taking more out which he will have to do is going to leave me in same situation of just being able to go little at time so guess rest of my life will be living clost to bathroom. Yes the girls said they would buy me a kitty litter box:) I also assume ever eating a salad again is out. > > Hil > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 This is what my EX SURGEON was notified of over a year ago and they told me well as long as you can go to bathroom its ok. Every time I mentioned it he either ignored me or told me balloon stretch would not work they just close back up. Now I am told if it had been done before it got tighter it may have worked and I would not be going through surgery to get this biopsy. Actually this group don't mess around. I was suppose to call surgeon tomorrow for appt as he is only in office on Wed and Fri. They called me this afternoon that I am to see him next Wed. My old surgeon had me wait two months after cancer was found to do the surgery but I know I will be in surgery as soon as they can get me cleaned out after I see him. I mean he did want to do it today:) This surgeon did his internship and residency at Hopkins which I have great respect for. He now practices at the University of Rochester and Wilmont Cancer Center which is there. I feel I have made a much better choice this time. Hil Re: Home for now Hil, Sounds like they put you through an ordeal. And of course your stay was basically to prove to the doctors what you knew all along. That is dumb on their part. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 This is what my EX SURGEON was notified of over a year ago and they told me well as long as you can go to bathroom its ok. Every time I mentioned it he either ignored me or told me balloon stretch would not work they just close back up. Now I am told if it had been done before it got tighter it may have worked and I would not be going through surgery to get this biopsy. Actually this group don't mess around. I was suppose to call surgeon tomorrow for appt as he is only in office on Wed and Fri. They called me this afternoon that I am to see him next Wed. My old surgeon had me wait two months after cancer was found to do the surgery but I know I will be in surgery as soon as they can get me cleaned out after I see him. I mean he did want to do it today:) This surgeon did his internship and residency at Hopkins which I have great respect for. He now practices at the University of Rochester and Wilmont Cancer Center which is there. I feel I have made a much better choice this time. Hil Re: Home for now Hil, Sounds like they put you through an ordeal. And of course your stay was basically to prove to the doctors what you knew all along. That is dumb on their part. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 And that is what counts, that you are comfortable with what you have chosen. Always thinking and praying for you. Karima Re: Home for now Hil, Sounds like they put you through an ordeal. And of course your stay was basically to prove to the doctors what you knew all along. That is dumb on their part. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 And that is what counts, that you are comfortable with what you have chosen. Always thinking and praying for you. Karima Re: Home for now Hil, Sounds like they put you through an ordeal. And of course your stay was basically to prove to the doctors what you knew all along. That is dumb on their part. Quote Link to comment Share on other sites More sharing options...
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