Re: Hi all - welcome Ray and other news

[Guest guest]

Kathleen

No one referred to your brothers deaths as gloom and doom. i know its a

very emotional issue to you but you've entirely off base in that regard.

The post which apparently bothers you was the start of an entirely

different thread and not a response to anything you'd posted. It was to

Ray, not to you, not in response to you.

I will say the same thing....we're not all about doom and gloom. But, in

saying that I'm not talking in any way about your post or your brothers'

deaths. We've all lost friends on the forum.

's post was a follow up to mine which was an answer to

Sher's.....none of it was in anyway related to your post.

>

>

> From: lbsmith789@sbcgloba l.net>

> Subject: Hi all - welcome Ray and other news

> To: Breathe-Support@ yahoogroups. com

> Date: Tuesday, March 10, 2009, 10:02 PM

>

>

>

>

> Welcome to the Air family Ray. We aren't all about doom and gloom here

because obviously some of us need to discuss our derrieres and what

position we were in to check our expiration stamps. I personally prefer

bending over, crooking my head backwards and just looking up. Nah, just

teasing. I haven't been able to do that for simply years!�

>

> Seriously, welcome to our world. Sorry you had to be here but this is

a good place to be amongst your peers. No foolin. Did I mention I'm in

Texas and we have a tendency to tell tall tales out here? OH! The

Rattlesnake Roundup is in Sweetwater this weekend if anybody is

interested. Bruce? Wally? No? Oh well.

>

> Good news today. Saw pulmo guy and he had nothin but love for the way

my chest x-ray looked. The PFT's were good and my lungs sounded clear

and I made it thru the winter without a flareup. So yeah!!! I told him

the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

connective. Definitely something of the connective tissue nature. He is

treating me with Plaquenil and I do feel better. We're just going with

that as long as it works. I don't care what disease he wants to call it.

And Doc was pleased so we're all good out here in West Texas

tonight. Except for the rattlesnake thing.

>

> S, Lubbock, TX

> NSIP w/PF 12/2006 et al

>

[Guest guest]

I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray

looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray

looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray

looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

   Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me. From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

   Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me. From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Kathleen, Peggy and Sher, I was extremely offended by Bruce when I first joined this group. He wasn't even responding to me but it was how he responded to someone else in an insensitive way. I felt his response to Kathleen today had the same flavor. I am sorry Kathleen.. He lit into me with a vengeance when I responded on the board after asking Beth if I could speak to her about my feelings privately and she responded to assure me that anything I had feelings about could be openly addressed on board. Bruce has some good information but also has outburst should anyone respond to anything he says with less than 100% agreement. After I followed Beth's direction and he lit into me two more times she responded that he was not in the united nations...therefore lacked tact. I am sincere in my feelings and feel there has been a coolness to me over that incident. Some of these people have been here a long time and are used to

each other; it can be hurtful to new comers.

I sometimes think people respond in off color ways but I blow them off as whatever...I think you are extremely knowledgeable and what is happening in your family is tragic. I am truly sorry. I feel totally helpless to only say that I recognize your painful feelings and fears and can only offer my thoughts and prayers.

Sometimes in our situations we do have quick tempers and the insensitive may see us as being unreasonable asses but of all people we should know, we should be the ones to understand that we are floating between denial, rage and acceptance...some days I am as pissed off as hell about everyone and everything, it can be about some particular thing or a build up of everything we are going through piling up. Some of us are going to respond to certain situations and ignore others...I guess after all that is how families are including this air family. So for me, you are very welcome to be here and it is obvious you have much knowledge to contribute. I am a person that others may say lacks humor but that is me.

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

To: Breathe-Support Sent: Wednesday, March 11, 2009 10:51:05 AMSubject: Re: Hi all - welcome Ray and other news

I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray

looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Jack, you are a light on this board and if it were not for your kindness I would have probably not continued. I speak my truth and perhaps in my current situation I do wear my feelings on my sleeve. That is where I am and right now it is in tears out of gratitude to you. I felt a distinct chill of exclusion from some of the prominent old timers on site. I gave my gloomy pulmo visit results from three visits and got two superficial non feeling comments. I am reading these days for feeling people where I can respond in a feeling and sincere manner. It's the old golden rule thing about doing unto others as you would have them do unto you. I guess I am simple minded and concrete but I feel comfortable in my position. I guess I haven't had enough fun in my life.

Margaret

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

To: Breathe-Support Sent: Wednesday, March 11, 2009 9:41:54 AMSubject: Re: Hi all - welcome Ray and other news

What's this one-way tolerance all about? Jack79/IPF - UIP/dx06/05 Maine

From: kathleen seweryn <kathleen_seweryn@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:38:30 AMSubject: Re: Hi all - welcome Ray and other news

Sorry I didn't realize only one way was tolerated. I'll leave. Sorry to have bothered you all. Kathy Seweryn

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Jack, you are a light on this board and if it were not for your kindness I would have probably not continued. I speak my truth and perhaps in my current situation I do wear my feelings on my sleeve. That is where I am and right now it is in tears out of gratitude to you. I felt a distinct chill of exclusion from some of the prominent old timers on site. I gave my gloomy pulmo visit results from three visits and got two superficial non feeling comments. I am reading these days for feeling people where I can respond in a feeling and sincere manner. It's the old golden rule thing about doing unto others as you would have them do unto you. I guess I am simple minded and concrete but I feel comfortable in my position. I guess I haven't had enough fun in my life.

Margaret

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

To: Breathe-Support Sent: Wednesday, March 11, 2009 9:41:54 AMSubject: Re: Hi all - welcome Ray and other news

What's this one-way tolerance all about? Jack79/IPF - UIP/dx06/05 Maine

From: kathleen seweryn <kathleen_seweryn@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:38:30 AMSubject: Re: Hi all - welcome Ray and other news

Sorry I didn't realize only one way was tolerated. I'll leave. Sorry to have bothered you all. Kathy Seweryn

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Margaret

As you well know, I will not get into defending your personal attack in

public. As to the specific statements regarding today, I was and will

defend in stating that she made no statements directed in an ugly

manner toward anyone. She never has, didn't, and never will.

>

>

> From: lbsmith789@sbcgloba l.net>

> Subject: Hi all - welcome Ray and other news

> To: Breathe-Support@ yahoogroups. com

> Date: Tuesday, March 10, 2009, 10:02 PM

>

>

> Welcome to the Air family Ray. We aren't all about doom and gloom here

because obviously some of us need to discuss our derrieres and what

position we were in to check our expiration stamps. I personally prefer

bending over, crooking my head backwards and just looking up. Nah, just

teasing. I haven't been able to do that for simply years!�

>

> Seriously, welcome to our world. Sorry you had to be here but this is

a good place to be amongst your peers. No foolin. Did I mention I'm in

Texas and we have a tendency to tell tall tales out here? OH! The

Rattlesnake Roundup is in Sweetwater this weekend if anybody is

interested. Bruce? Wally? No? Oh well.

>

> Good news today. Saw pulmo guy and he had nothin but love for the way

my chest x-ray looked. The PFT's were good and my lungs sounded clear

and I made it thru the winter without a flareup. So yeah!!! I told him

the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

connective. Definitely something of the connective tissue nature. He is

treating me with Plaquenil and I do feel better. We're just going with

that as long as it works. I don't care what disease he wants to call it.

And Doc was pleased so we're all good out here in West Texas

tonight. Except for the rattlesnake thing.

>

> S, Lubbock, TX

> NSIP w/PF 12/2006 et al

>

[Guest guest]

Thanks Sher!

Gosh I don't know what I said that upset everybody so much but many apologies.

I don't know that the physical position I described for checking butt-stamped

expiration dates is even possible. Even for small children or teenagers.

Nonetheless, it was all meant to be in fun. Didn't mean to run anybody off.

>

> S.... wonderful good news. Good news makes us all feel better!

>

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> Hi all - welcome Ray and other news

>

>

> Welcome to the Air family Ray. We aren't all about doom and gloom here

because obviously some of us need to discuss our derrieres and what position we

were in to check our expiration stamps. I personally prefer bending over,

crooking my head backwards and just looking up. Nah, just teasing. I haven't

been able to do that for simply years!

>

> Seriously, welcome to our world. Sorry you had to be here but this is a good

place to be amongst your peers. No foolin. Did I mention I'm in Texas and we

have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in

Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.

>

> Good news today. Saw pulmo guy and he had nothin but love for the way my

chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it

thru the winter without a flareup. So yeah!!! I told him the rheumatologist has

decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of

the connective tissue nature. He is treating me with Plaquenil and I do feel

better. We're just going with that as long as it works. I don't care what

disease he wants to call it. And Doc was pleased so we're all good out

here in West Texas tonight. Except for the rattlesnake thing.

>

> S, Lubbock, TX

> NSIP w/PF 12/2006 et al

>

[Guest guest]

You did nothing wrong. As to the position, there are some double and

triple jointed contortionists who can do some pretty amazing things. I

am the exact opposite as I'm not at all limber or flexible.

> >

> > S.... wonderful good news. Good news makes us all feel better!

> >

> > MamaSher; 70, IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > Hi all - welcome Ray and other news

> >

> >

> > Welcome to the Air family Ray. We aren't all about doom and gloom

here because obviously some of us need to discuss our derrieres and what

position we were in to check our expiration stamps. I personally prefer

bending over, crooking my head backwards and just looking up. Nah, just

teasing. I haven't been able to do that for simply years!

> >

> > Seriously, welcome to our world. Sorry you had to be here but this

is a good place to be amongst your peers. No foolin. Did I mention I'm

in Texas and we have a tendency to tell tall tales out here? OH! The

Rattlesnake Roundup is in Sweetwater this weekend if anybody is

interested. Bruce? Wally? No? Oh well.

> >

> > Good news today. Saw pulmo guy and he had nothin but love for the

way my chest x-ray looked. The PFT's were good and my lungs sounded

clear and I made it thru the winter without a flareup. So yeah!!! I told

him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

connective. Definitely something of the connective tissue nature. He is

treating me with Plaquenil and I do feel better. We're just going with

that as long as it works. I don't care what disease he wants to call it.

And Doc was pleased so we're all good out here in West Texas

tonight. Except for the rattlesnake thing.

> >

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

You did nothing wrong. As to the position, there are some double and

triple jointed contortionists who can do some pretty amazing things. I

am the exact opposite as I'm not at all limber or flexible.

> >

> > S.... wonderful good news. Good news makes us all feel better!

> >

> > MamaSher; 70, IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > Hi all - welcome Ray and other news

> >

> >

> > Welcome to the Air family Ray. We aren't all about doom and gloom

here because obviously some of us need to discuss our derrieres and what

position we were in to check our expiration stamps. I personally prefer

bending over, crooking my head backwards and just looking up. Nah, just

teasing. I haven't been able to do that for simply years!

> >

> > Seriously, welcome to our world. Sorry you had to be here but this

is a good place to be amongst your peers. No foolin. Did I mention I'm

in Texas and we have a tendency to tell tall tales out here? OH! The

Rattlesnake Roundup is in Sweetwater this weekend if anybody is

interested. Bruce? Wally? No? Oh well.

> >

> > Good news today. Saw pulmo guy and he had nothin but love for the

way my chest x-ray looked. The PFT's were good and my lungs sounded

clear and I made it thru the winter without a flareup. So yeah!!! I told

him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

connective. Definitely something of the connective tissue nature. He is

treating me with Plaquenil and I do feel better. We're just going with

that as long as it works. I don't care what disease he wants to call it.

And Doc was pleased so we're all good out here in West Texas

tonight. Except for the rattlesnake thing.

> >

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

Bruce I don't think there is enough Ben-Gay in the world to get me to bend all

the way over, much less crook around.

And snakes are still bad.

> > >

> > > S.... wonderful good news. Good news makes us all feel better!

> > >

> > > MamaSher; 70, IPF 3-06, OR.

> > > Nasturtiums

> > > Don't fret about tomorrow, God is already there!

> > >

> > > Hi all - welcome Ray and other news

> > >

> > >

> > > Welcome to the Air family Ray. We aren't all about doom and gloom

> here because obviously some of us need to discuss our derrieres and what

> position we were in to check our expiration stamps. I personally prefer

> bending over, crooking my head backwards and just looking up. Nah, just

> teasing. I haven't been able to do that for simply years!

> > >

> > > Seriously, welcome to our world. Sorry you had to be here but this

> is a good place to be amongst your peers. No foolin. Did I mention I'm

> in Texas and we have a tendency to tell tall tales out here? OH! The

> Rattlesnake Roundup is in Sweetwater this weekend if anybody is

> interested. Bruce? Wally? No? Oh well.

> > >

> > > Good news today. Saw pulmo guy and he had nothin but love for the

> way my chest x-ray looked. The PFT's were good and my lungs sounded

> clear and I made it thru the winter without a flareup. So yeah!!! I told

> him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

> connective. Definitely something of the connective tissue nature. He is

> treating me with Plaquenil and I do feel better. We're just going with

> that as long as it works. I don't care what disease he wants to call it.

> And Doc was pleased so we're all good out here in West Texas

> tonight. Except for the rattlesnake thing.

> > >

> > > S, Lubbock, TX

> > > NSIP w/PF 12/2006 et al

> > >

> >

>

[Guest guest]

Margaret,

I think we can put this misunderstanding behind us. Kathleen understands now that 's post had nothing whatsoever to do with the loss of her family members.

I would appreciate the issue being dropped. Thank you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, March 11, 2009 8:56:15 PMSubject: Re: Hi all - welcome Ray and other news

Kathleen, Peggy and Sher, I was extremely offended by Bruce when I first joined this group. He wasn't even responding to me but it was how he responded to someone else in an insensitive way. I felt his response to Kathleen today had the same flavor. I am sorry Kathleen.. He lit into me with a vengeance when I responded on the board after asking Beth if I could speak to her about my feelings privately and she responded to assure me that anything I had feelings about could be openly addressed on board. Bruce has some good information but also has outburst should anyone respond to anything he says with less than 100% agreement. After I followed Beth's direction and he lit into me two more times she responded that he was not in the united nations...therefore lacked tact. I am sincere in my feelings and feel there has been a coolness to me over that incident. Some of these people have been here a long time and are used to

each other; it can be hurtful to new comers.

I sometimes think people respond in off color ways but I blow them off as whatever...I think you are extremely knowledgeable and what is happening in your family is tragic. I am truly sorry. I feel totally helpless to only say that I recognize your painful feelings and fears and can only offer my thoughts and prayers.

Sometimes in our situations we do have quick tempers and the insensitive may see us as being unreasonable asses but of all people we should know, we should be the ones to understand that we are floating between denial, rage and acceptance.. .some days I am as pissed off as hell about everyone and everything, it can be about some particular thing or a build up of everything we are going through piling up. Some of us are going to respond to certain situations and ignore others...I guess after all that is how families are including this air family. So for me, you are very welcome to be here and it is obvious you have much knowledge to contribute. I am a person that others may say lacks humor but that is me.

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

From: kathleen seweryn <kathleen_seweryn@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:51:05 AMSubject: Re: Hi all - welcome Ray and other news

I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA,

Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Margaret,

I think we can put this misunderstanding behind us. Kathleen understands now that 's post had nothing whatsoever to do with the loss of her family members.

I would appreciate the issue being dropped. Thank you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, March 11, 2009 8:56:15 PMSubject: Re: Hi all - welcome Ray and other news

Kathleen, Peggy and Sher, I was extremely offended by Bruce when I first joined this group. He wasn't even responding to me but it was how he responded to someone else in an insensitive way. I felt his response to Kathleen today had the same flavor. I am sorry Kathleen.. He lit into me with a vengeance when I responded on the board after asking Beth if I could speak to her about my feelings privately and she responded to assure me that anything I had feelings about could be openly addressed on board. Bruce has some good information but also has outburst should anyone respond to anything he says with less than 100% agreement. After I followed Beth's direction and he lit into me two more times she responded that he was not in the united nations...therefore lacked tact. I am sincere in my feelings and feel there has been a coolness to me over that incident. Some of these people have been here a long time and are used to

each other; it can be hurtful to new comers.

I sometimes think people respond in off color ways but I blow them off as whatever...I think you are extremely knowledgeable and what is happening in your family is tragic. I am truly sorry. I feel totally helpless to only say that I recognize your painful feelings and fears and can only offer my thoughts and prayers.

Sometimes in our situations we do have quick tempers and the insensitive may see us as being unreasonable asses but of all people we should know, we should be the ones to understand that we are floating between denial, rage and acceptance.. .some days I am as pissed off as hell about everyone and everything, it can be about some particular thing or a build up of everything we are going through piling up. Some of us are going to respond to certain situations and ignore others...I guess after all that is how families are including this air family. So for me, you are very welcome to be here and it is obvious you have much knowledge to contribute. I am a person that others may say lacks humor but that is me.

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

From: kathleen seweryn <kathleen_seweryn@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:51:05 AMSubject: Re: Hi all - welcome Ray and other news

I have what my lover refers to as a quick temper and a sharp tongue. I'm sorry to cause such a commotion. If you can't make an ass of yourself at least once a day, what's the sense. Forgive me.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years!�Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA,

Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

When I saw your results my heart felt for you.. Sometimes I just don't know to respond so I evade it. Do we talk about our fear of pain or Death on this forum, or do we just give encouragement with love and humor? About the fun, I feel you can never have too much.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

When I saw your results my heart felt for you.. Sometimes I just don't know to respond so I evade it. Do we talk about our fear of pain or Death on this forum, or do we just give encouragement with love and humor? About the fun, I feel you can never have too much.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Thank you, Margaret. Kindness is something my parents taught me by their actions. Although we were well below the poverty line and sometimes our meals were scanty, they always found enough to share with others who had even less than ourselves. I like to help people, but I never think of it in terms of kindness but as a responsibility to my fellow humans. Besides, it makes me feel good. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Wednesday, March 11, 2009 9:33:39 PMSubject: Re: Hi all - welcome Ray and other news

Jack, you are a light on this board and if it were not for your kindness I would have probably not continued. I speak my truth and perhaps in my current situation I do wear my feelings on my sleeve. That is where I am and right now it is in tears out of gratitude to you. I felt a distinct chill of exclusion from some of the prominent old timers on site. I gave my gloomy pulmo visit results from three visits and got two superficial non feeling comments. I am reading these days for feeling people where I can respond in a feeling and sincere manner. It's the old golden rule thing about doing unto others as you would have them do unto you. I guess I am simple minded and concrete but I feel comfortable in my position. I guess I haven't had enough fun in my life.

Margaret

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

From: Jack Marshall <mrshlljck (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 9:41:54 AMSubject: Re: Hi all - welcome Ray and other news

What's this one-way tolerance all about? Jack79/IPF - UIP/dx06/05 Maine

From: kathleen seweryn <kathleen_seweryn@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:38:30 AMSubject: Re: Hi all - welcome Ray and other news

Sorry I didn't realize only one way was tolerated. I'll leave. Sorry to have bothered you all. Kathy Seweryn

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Thank you, Margaret. Kindness is something my parents taught me by their actions. Although we were well below the poverty line and sometimes our meals were scanty, they always found enough to share with others who had even less than ourselves. I like to help people, but I never think of it in terms of kindness but as a responsibility to my fellow humans. Besides, it makes me feel good. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Wednesday, March 11, 2009 9:33:39 PMSubject: Re: Hi all - welcome Ray and other news

Jack, you are a light on this board and if it were not for your kindness I would have probably not continued. I speak my truth and perhaps in my current situation I do wear my feelings on my sleeve. That is where I am and right now it is in tears out of gratitude to you. I felt a distinct chill of exclusion from some of the prominent old timers on site. I gave my gloomy pulmo visit results from three visits and got two superficial non feeling comments. I am reading these days for feeling people where I can respond in a feeling and sincere manner. It's the old golden rule thing about doing unto others as you would have them do unto you. I guess I am simple minded and concrete but I feel comfortable in my position. I guess I haven't had enough fun in my life.

Margaret

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

From: Jack Marshall <mrshlljck (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 9:41:54 AMSubject: Re: Hi all - welcome Ray and other news

What's this one-way tolerance all about? Jack79/IPF - UIP/dx06/05 Maine

From: kathleen seweryn <kathleen_seweryn@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:38:30 AMSubject: Re: Hi all - welcome Ray and other news

Sorry I didn't realize only one way was tolerated. I'll leave. Sorry to have bothered you all. Kathy Seweryn

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Thank you, Margaret. Kindness is something my parents taught me by their actions. Although we were well below the poverty line and sometimes our meals were scanty, they always found enough to share with others who had even less than ourselves. I like to help people, but I never think of it in terms of kindness but as a responsibility to my fellow humans. Besides, it makes me feel good. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Wednesday, March 11, 2009 9:33:39 PMSubject: Re: Hi all - welcome Ray and other news

Jack, you are a light on this board and if it were not for your kindness I would have probably not continued. I speak my truth and perhaps in my current situation I do wear my feelings on my sleeve. That is where I am and right now it is in tears out of gratitude to you. I felt a distinct chill of exclusion from some of the prominent old timers on site. I gave my gloomy pulmo visit results from three visits and got two superficial non feeling comments. I am reading these days for feeling people where I can respond in a feeling and sincere manner. It's the old golden rule thing about doing unto others as you would have them do unto you. I guess I am simple minded and concrete but I feel comfortable in my position. I guess I haven't had enough fun in my life.

Margaret

Margaret 62 Anchorage, Alaska

Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08

I enjoy traveling, photography, gardening, sewing, home decorating,

playing with my toys & classical music

aka Grammie Goose

From: Jack Marshall <mrshlljck (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 9:41:54 AMSubject: Re: Hi all - welcome Ray and other news

What's this one-way tolerance all about? Jack79/IPF - UIP/dx06/05 Maine

From: kathleen seweryn <kathleen_seweryn@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 10:38:30 AMSubject: Re: Hi all - welcome Ray and other news

Sorry I didn't realize only one way was tolerated. I'll leave. Sorry to have bothered you all. Kathy Seweryn

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

when i first joined a couple of years ago, i brought up the subject of fearing dying more than death

some of the discussions were really depressing

glad we don't discuss it anymore

but it is a real issue

when uncomfortable with a subject, instead of reading it, i delete it

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Hi all - welcome Ray and other newsTo: Breathe-Support Date: Thursday, March 12, 2009, 8:19 AM

When I saw your results my heart felt for you.. Sometimes I just don't know to respond so I evade it. Do we talk about our fear of pain or Death on this forum, or do we just give encouragement with love and humor? About the fun, I feel you can never have too much.

From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM

Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective.

Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al

[Guest guest]

Pink

I fear pain.....it's sort of simple. I don't like it and don't want it.

As to fearing dying more than death or one stage more than another, I

read what Lou rights and imagine myself with , two cats

instead of a dog, morphine, as a companion in the evening.

For me, thinking ahead, planning it out in my mind, thinking that even

the worse isn't so awful, all helps me. I have seen many here further

along than I am and seen how they dealt with it and I have such

incredible mentors from them.

But, the big thing is that I don't call it dying.....I think of being

dead as a single instantaneous moment, but every second until then I'm

alive. I'm closer to death each day, but everyone is. But, I'm living.

And, so much of what I've learned here is how to live with the disease.

I live differently today than I did yesterday and will live differently

tomorrow. But, its all life and I'll make each day as good as I can.

I'll have bad days, but then I'll just try to rally the next.

I enjoy knowing people from all around the world too and each of you

bring me a different perspective. So, I'm happy for you Phillie fans

when they win and so happy when you guys had the Pennsylvania or general

area get together.

>

>

> From: lbsmith789@sbcgloba l.net>

> Subject: Hi all - welcome Ray and other news

> To: Breathe-Support@ yahoogroups. com

> Date: Tuesday, March 10, 2009, 10:02 PM

>

>

>

>

> Welcome to the Air family Ray. We aren't all about doom and gloom here

because obviously some of us need to discuss our derrieres and what

position we were in to check our expiration stamps. I personally prefer

bending over, crooking my head backwards and just looking up. Nah, just

teasing. I haven't been able to do that for simply years!

>

> Seriously, welcome to our world. Sorry you had to be here but this is

a good place to be amongst your peers. No foolin. Did I mention I'm in

Texas and we have a tendency to tell tall tales out here? OH! The

Rattlesnake Roundup is in Sweetwater this weekend if anybody is

interested.. Bruce? Wally? No? Oh well.

>

> Good news today. Saw pulmo guy and he had nothin but love for the way

my chest x-ray looked. The PFT's were good and my lungs sounded clear

and I made it thru the winter without a flareup. So yeah!!! I told him

the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

connective. Definitely something of the connective tissue nature. He is

treating me with Plaquenil and I do feel better. We're just going with

that as long as it works. I don't care what disease he wants to call it.

And Doc was pleased so we're all good out here in West Texas

tonight. Except for the rattlesnake thing.

>

> S, Lubbock, TX

> NSIP w/PF 12/2006 et al

>

[Guest guest]

Caro

When it comes to those things i don't think any of us are patient. I

don't think most doctors really grasp how difficult the periods of

waiting are.

As to a son, I am not a parent and can't fully imagine what its like to

struggle and fear for your son. But, I do know you are a loving mom and

all any parents can do is their best. There is no magic formula to

parenting at any age. All one can do is follow their own heart and

instinct.

> >

> >

> > From: lbsmith789@sbcgloba l.net>

> > Subject: Hi all - welcome Ray and other news

> > To: Breathe-Support@ yahoogroups. com

> > Date: Tuesday, March 10, 2009, 10:02 PM

> >

> >

> > Welcome to the Air family Ray. We aren't all about doom and gloom

here

> because obviously some of us need to discuss our derrieres and what

> position we were in to check our expiration stamps. I personally

prefer

> bending over, crooking my head backwards and just looking up. Nah,

just

> teasing. I haven't been able to do that for simply years!�

> >

> > Seriously, welcome to our world. Sorry you had to be here but this

is

> a good place to be amongst your peers. No foolin. Did I mention I'm in

> Texas and we have a tendency to tell tall tales out here? OH! The

> Rattlesnake Roundup is in Sweetwater this weekend if anybody is

> interested. Bruce? Wally? No? Oh well.

> >

> > Good news today. Saw pulmo guy and he had nothin but love for the

way

> my chest x-ray looked. The PFT's were good and my lungs sounded clear

> and I made it thru the winter without a flareup. So yeah!!! I told him

> the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

> connective. Definitely something of the connective tissue nature. He

is

> treating me with Plaquenil and I do feel better. We're just going with

> that as long as it works. I don't care what disease he wants to call

it.

> And Doc was pleased so we're all good out here in West Texas

> tonight. Except for the rattlesnake thing.

> >

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

Caro

When it comes to those things i don't think any of us are patient. I

don't think most doctors really grasp how difficult the periods of

waiting are.

As to a son, I am not a parent and can't fully imagine what its like to

struggle and fear for your son. But, I do know you are a loving mom and

all any parents can do is their best. There is no magic formula to

parenting at any age. All one can do is follow their own heart and

instinct.

> >

> >

> > From: lbsmith789@sbcgloba l.net>

> > Subject: Hi all - welcome Ray and other news

> > To: Breathe-Support@ yahoogroups. com

> > Date: Tuesday, March 10, 2009, 10:02 PM

> >

> >

> > Welcome to the Air family Ray. We aren't all about doom and gloom

here

> because obviously some of us need to discuss our derrieres and what

> position we were in to check our expiration stamps. I personally

prefer

> bending over, crooking my head backwards and just looking up. Nah,

just

> teasing. I haven't been able to do that for simply years!�

> >

> > Seriously, welcome to our world. Sorry you had to be here but this

is

> a good place to be amongst your peers. No foolin. Did I mention I'm in

> Texas and we have a tendency to tell tall tales out here? OH! The

> Rattlesnake Roundup is in Sweetwater this weekend if anybody is

> interested. Bruce? Wally? No? Oh well.

> >

> > Good news today. Saw pulmo guy and he had nothin but love for the

way

> my chest x-ray looked. The PFT's were good and my lungs sounded clear

> and I made it thru the winter without a flareup. So yeah!!! I told him

> the rheumatologist has decided I have RA, Sjogren's,lupus or mixed

> connective. Definitely something of the connective tissue nature. He

is

> treating me with Plaquenil and I do feel better. We're just going with

> that as long as it works. I don't care what disease he wants to call

it.

> And Doc was pleased so we're all good out here in West Texas

> tonight. Except for the rattlesnake thing.

> >

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>