Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Yes Bruce...transition doesn't seem near as dreary and scary with ML taking the lead! I will never forget her. Now I really understand what it means when life hands you lemons...make lemonade. Even if it is laced with morphine. May we be as lucky. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML Peggy/SherIt's just great to see her enjoying these days. I'm sure Earl has to beless stressed too. I certainly look in my future and when I reach herstage want to find as much joy as she is. I'm so happy she got such agreat hospice aide as .>> Hi Group, I forgot to post that ML called yesterday and what a joy to> talk to her and hear her spirit just so strong and feisty.> She is weak but her voice was strong yesterday. She is content and> happy. says Hello to all.>> Gotta LOVE that one.. SWEET SWEET.>>> Love & Prayers, Peggy> Florida, IPF/UIP 2004>> "I believe that friends are quiet angels who lift us to our feet,> when our wings have trouble remembering how to fly.">>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Yes Bruce...transition doesn't seem near as dreary and scary with ML taking the lead! I will never forget her. Now I really understand what it means when life hands you lemons...make lemonade. Even if it is laced with morphine. May we be as lucky. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML Peggy/SherIt's just great to see her enjoying these days. I'm sure Earl has to beless stressed too. I certainly look in my future and when I reach herstage want to find as much joy as she is. I'm so happy she got such agreat hospice aide as .>> Hi Group, I forgot to post that ML called yesterday and what a joy to> talk to her and hear her spirit just so strong and feisty.> She is weak but her voice was strong yesterday. She is content and> happy. says Hello to all.>> Gotta LOVE that one.. SWEET SWEET.>>> Love & Prayers, Peggy> Florida, IPF/UIP 2004>> "I believe that friends are quiet angels who lift us to our feet,> when our wings have trouble remembering how to fly.">>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Yes Bruce, there is also Vicky. Her circumstances seem to be very different however. First she is at death's door and then she up, moving (literally) and feeling good. Then after a few months she is down again, calls in hospice and then after awhile has hospice only for her meds. We email each other and right now she seems to be 'ok' again. She has stopped/reading posting the board so collectively we don't know how she is all the time. Her ups are not consistent and her downs are not consistent so I really don't know where she is in her progression. I would think the highs and the lows would be most tiring for her. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML SherAnd Vicky is another one leading us so beautifully down that path. Theirbeauty and grace in dealing with their situations is quite helpful to meas I think ahead.> >> > Hi Group, I forgot to post that ML called yesterday and what a joyto> > talk to her and hear her spirit just so strong and feisty.> > She is weak but her voice was strong yesterday. She is content and> > happy. says Hello to all.> >> > Gotta LOVE that one.. SWEET SWEET.> >> >> > Love & Prayers, Peggy> > Florida, IPF/UIP 2004> >> > "I believe that friends are quiet angels who lift us to our feet,> > when our wings have trouble remembering how to fly."> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Yes Bruce, there is also Vicky. Her circumstances seem to be very different however. First she is at death's door and then she up, moving (literally) and feeling good. Then after a few months she is down again, calls in hospice and then after awhile has hospice only for her meds. We email each other and right now she seems to be 'ok' again. She has stopped/reading posting the board so collectively we don't know how she is all the time. Her ups are not consistent and her downs are not consistent so I really don't know where she is in her progression. I would think the highs and the lows would be most tiring for her. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML SherAnd Vicky is another one leading us so beautifully down that path. Theirbeauty and grace in dealing with their situations is quite helpful to meas I think ahead.> >> > Hi Group, I forgot to post that ML called yesterday and what a joyto> > talk to her and hear her spirit just so strong and feisty.> > She is weak but her voice was strong yesterday. She is content and> > happy. says Hello to all.> >> > Gotta LOVE that one.. SWEET SWEET.> >> >> > Love & Prayers, Peggy> > Florida, IPF/UIP 2004> >> > "I believe that friends are quiet angels who lift us to our feet,> > when our wings have trouble remembering how to fly."> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Bruce...your knowledge not only empowers you but the rest of us as well because you share what you know. You are truly a storehouse of information! I'm still not feeling real well. In fact I'm going to crawl in my bed and watch TV. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Bruce...your knowledge not only empowers you but the rest of us as well because you share what you know. You are truly a storehouse of information! I'm still not feeling real well. In fact I'm going to crawl in my bed and watch TV. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Sher, remember NO breaking the RULES #1 no getting sick ! Whatsa mattaTake Care of YOU.. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Bruce...your knowledge not only empowers you but the rest of us as well because you share what you know.You are truly a storehouse of information!I'm still not feeling real well. In fact I'm going to crawl in my bed and watch TV. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: MLSherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Bruce... I always ask about Rosebud...and tell her if she gets tired of her Rosebud comes back to gramma. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML SherWell, I hope you talk to her occasionally. You should have Marly bringher to visit next time you see her.> > > > >> > > > > Hi Group, I forgot to post that ML called yesterday and what a> joy> > > to> > > > > talk to her and hear her spirit just so strong and feisty.> > > > > She is weak but her voice was strong yesterday. She is content> and> > > > > happy. says Hello to all.> > > > >> > > > > Gotta LOVE that one.. SWEET SWEET.> > > > >> > > > >> > > > > Love & Prayers, Peggy> > > > > Florida, IPF/UIP 2004> > > > >> > > > > "I believe that friends are quiet angels who lift us to our> feet,> > > > > when our wings have trouble remembering how to fly."> > > > >> > > > >> > > > > > > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Sher, I do hope you are feeling better soon. You describe exactly my crud.. my cough gets pretty intense. my noseis always wet. Isn't it just the pits to have to drag all the 02 junk and tissue, it is hard to wipe ya nose while pulling the cart and one arm full of "STUFF".  I am just waiting for Friday the 13th to get here.. What a LUCKY DAY..  We'll be posting pictures ASAP... Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus....Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that!Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever...The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well.Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago...I'm in limbo...waiting to get better or worse.Thanks for caring.    MamaSher; 70, IPF 3-06, OR.   NasturtiumsDon't fret about tomorrow, God is already there!� Re: MLSherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009  I'll sure be watching for the pictures! I know you will have a great time. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 sher i haven't been feeling quite right for a few days either. but not as long as you. i seem to be coughing more and get that funny feeling in the top of my chest. cough is still dry nose always runs, so i bought it a pair of sneakers, lol wonder if reducing prednisone is the cause but whenever i check my SAT, it is in the upper 90's even though i have that funny feeling in my chest and feel like i can't talk should really contact the doc Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Re: MLTo: Breathe-Support Date: Tuesday, March 10, 2009, 12:04 PM  Peggy... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus.... Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that! Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever... The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well. Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago... I'm in limbo...waiting to get better or worse. Thanks for caring. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Pink...maybe you are like me. Not sick enough to be down and not well enough to be up. I said I'm in limbo, waiting to get better or worse. BUT. I did see the Dr. so get thee to your Dr sooner than later. We can't judge our symptoms by some else. Go and come back and tell me what I have. LOL. ;oD MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML PinkOk you typed the magic words, "Should really contact the doc", now DOIT. Please......pretty please.> > > >> > > > Hi Group, I forgot to post that ML called yesterday and what ajoy> > to> > > > talk to her and hear her spirit just so strong and feisty.> > > > She is weak but her voice was strong yesterday. She is contentand> > > > happy. says Hello to all.> > > >> > > > Gotta LOVE that one.. SWEET SWEET.> > > >> > > >> > > > Love & Prayers, Peggy> > > > Florida, IPF/UIP 2004> > > >> > > > "I believe that friends are quiet angels who lift us to ourfeet,> > > > when our wings have trouble remembering how to fly."> > > >> > > >> > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Pink...maybe you are like me. Not sick enough to be down and not well enough to be up. I said I'm in limbo, waiting to get better or worse. BUT. I did see the Dr. so get thee to your Dr sooner than later. We can't judge our symptoms by some else. Go and come back and tell me what I have. LOL. ;oD MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML PinkOk you typed the magic words, "Should really contact the doc", now DOIT. Please......pretty please.> > > >> > > > Hi Group, I forgot to post that ML called yesterday and what ajoy> > to> > > > talk to her and hear her spirit just so strong and feisty.> > > > She is weak but her voice was strong yesterday. She is contentand> > > > happy. says Hello to all.> > > >> > > > Gotta LOVE that one.. SWEET SWEET.> > > >> > > >> > > > Love & Prayers, Peggy> > > > Florida, IPF/UIP 2004> > > >> > > > "I believe that friends are quiet angels who lift us to ourfeet,> > > > when our wings have trouble remembering how to fly."> > > >> > > >> > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Geeta... seems to be several of us with these same symptoms. Yes, I did see the dr and he Rx antibiotics but didn't help much. He guessed a viral infection too. My gosh Geeta, you never whine and if you DID, so what? It's allowed. ;o) I think I'm feeling a bit better today. Cross my fingers! Your Holi sounds like fun. I bet when you were younger you did take part in the fun. Love you MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML> > > > Sher> > But the common factor is they have both used hospice and benefitted from> it. They also have both faced the feeling of being at death's door and> then found relief from their pain. You're right in that it's difficult> to know. Just reading what Lou writes today, you'd never believe it> was the same woman so full of despair such a short time ago. She made a> decision that has turned her life so much for the better.> > The one thing I keep in mind and hope everyone here does is that while> we can't control the disease, beyond taking every preventive measure of> complications, we can maintain control over our lives. Whether it's> seeing new doctors or deciding what to do about meds or our living> arrangements or hospice, we are very much alive and very capable of> still making decisions on how we live. Look how alive Lou is today> with the help of a caring provider and morphine. Her spirit still shines> through.> > I, like everyone here, don't like having the disease nor do I like the> prognosis. But, I do know how I want to live through each stage of the> progression, however fast the stages come or however long each one> lasts. I learn from so many here. I learned so much from Gwynne. I sit> here seeing Peggy's excitement over all those coming to Orlando and know> how much she's going to enjoy it. I talk to you and see you and Rich> having a full life. I try to keep up with Beth on traveling, but> she's charged ahead for now. I'll get back on the road though. I learn> some painful things such as Joyce's Pulmonary Hypertension, but it sure> makes me diligent on echocardiograms and on maintaining oxygen levels. I> also know about Flolan if I ever face that decision. I do think> following others and reading and communicating gives knowledge that is> invaluable. To me, knowledge is power. I feel better having the power to> decide how I want to face today and the future.> > > > > >> > > > Hi Group, I forgot to post that ML called yesterday and what a joy> > to> > > > talk to her and hear her spirit just so strong and feisty.> > > > She is weak but her voice was strong yesterday. She is content and> > > > happy. says Hello to all.> > > >> > > > Gotta LOVE that one.. SWEET SWEET.> > > >> > > >> > > > Love & Prayers, Peggy> > > > Florida, IPF/UIP 2004> > > >> > > > "I believe that friends are quiet angels who lift us to our feet,> > > > when our wings have trouble remembering how to fly."> > > >> > > >> > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Geeta... seems to be several of us with these same symptoms. Yes, I did see the dr and he Rx antibiotics but didn't help much. He guessed a viral infection too. My gosh Geeta, you never whine and if you DID, so what? It's allowed. ;o) I think I'm feeling a bit better today. Cross my fingers! Your Holi sounds like fun. I bet when you were younger you did take part in the fun. Love you MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML> > > > Sher> > But the common factor is they have both used hospice and benefitted from> it. They also have both faced the feeling of being at death's door and> then found relief from their pain. You're right in that it's difficult> to know. Just reading what Lou writes today, you'd never believe it> was the same woman so full of despair such a short time ago. She made a> decision that has turned her life so much for the better.> > The one thing I keep in mind and hope everyone here does is that while> we can't control the disease, beyond taking every preventive measure of> complications, we can maintain control over our lives. Whether it's> seeing new doctors or deciding what to do about meds or our living> arrangements or hospice, we are very much alive and very capable of> still making decisions on how we live. Look how alive Lou is today> with the help of a caring provider and morphine. Her spirit still shines> through.> > I, like everyone here, don't like having the disease nor do I like the> prognosis. But, I do know how I want to live through each stage of the> progression, however fast the stages come or however long each one> lasts. I learn from so many here. I learned so much from Gwynne. I sit> here seeing Peggy's excitement over all those coming to Orlando and know> how much she's going to enjoy it. I talk to you and see you and Rich> having a full life. I try to keep up with Beth on traveling, but> she's charged ahead for now. I'll get back on the road though. I learn> some painful things such as Joyce's Pulmonary Hypertension, but it sure> makes me diligent on echocardiograms and on maintaining oxygen levels. I> also know about Flolan if I ever face that decision. I do think> following others and reading and communicating gives knowledge that is> invaluable. To me, knowledge is power. I feel better having the power to> decide how I want to face today and the future.> > > > > >> > > > Hi Group, I forgot to post that ML called yesterday and what a joy> > to> > > > talk to her and hear her spirit just so strong and feisty.> > > > She is weak but her voice was strong yesterday. She is content and> > > > happy. says Hello to all.> > > >> > > > Gotta LOVE that one.. SWEET SWEET.> > > >> > > >> > > > Love & Prayers, Peggy> > > > Florida, IPF/UIP 2004> > > >> > > > "I believe that friends are quiet angels who lift us to our feet,> > > > when our wings have trouble remembering how to fly."> > > >> > > >> > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Hope you are feeling better today, Sher. Get yourself well, ya hear? Love ya lots!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Tuesday, March 10, 2009 11:04:50 AMSubject: Re: Re: ML  Peggy... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus.... Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that! Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever... The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well. Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago... I'm in limbo...waiting to get better or worse. Thanks for caring. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Well, I did just get off the phone with my doc at UAB and he called by gynecoligist and got my gynecology/oncology visit moved up, I just don't know the date yet. He said for me to give them a couple of days to call me. At least it will be in and that is a lot closer than Birmingham to my family in case I have to surgery to remove the ovaries. I really like Dr. deAndrade a lot. He is the best. CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Wednesday, March 11, 2009 12:14:01 PMSubject: Re: Re: ML  Caro... I think I'm feeling a bit better this morning. You are sure in my thoughts too. I hope today brings you some relief in what you deal with. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Caro, I'm so relieved they called you and are going to see you more quickly. You and your whole family are in my thoughts and prayers. I wish there was something I could do to lift all these burdens from you. All I have is this long distance friendship. Consider yourself hugged! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Wednesday, March 11, 2009 6:12:55 PMSubject: Re: Re: ML Well, I did just get off the phone with my doc at UAB and he called by gynecoligist and got my gynecology/oncology visit moved up, I just don't know the date yet. He said for me to give them a couple of days to call me. At least it will be in and that is a lot closer than Birmingham to my family in case I have to surgery to remove the ovaries. I really like Dr. deAndrade a lot. He is the best. CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 12:14:01 PMSubject: Re: Re: ML  Caro... I think I'm feeling a bit better this morning. You are sure in my thoughts too. I hope today brings you some relief in what you deal with. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009  Caro... I'm so glad you have a dr you like. It can make all the difference in the world can't it. Keep us posted. Hugs to you MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 I think it makes ALL the difference -- He spent nearly 45 minutes with me on my visit just sitting there going over my numbers and explaining everything to me and answering any questions I had. I have so many times been to doctors where they are like rush you in and rush you out and he is definitely one of the good ones!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Wednesday, March 11, 2009 6:46:18 PMSubject: Re: Re: ML  Caro... I'm so glad you have a dr you like. It can make all the difference in the world can't it. Keep us posted. Hugs to you MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 I think it makes ALL the difference -- He spent nearly 45 minutes with me on my visit just sitting there going over my numbers and explaining everything to me and answering any questions I had. I have so many times been to doctors where they are like rush you in and rush you out and he is definitely one of the good ones!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Wednesday, March 11, 2009 6:46:18 PMSubject: Re: Re: ML  Caro... I'm so glad you have a dr you like. It can make all the difference in the world can't it. Keep us posted. Hugs to you MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 I think it makes ALL the difference -- He spent nearly 45 minutes with me on my visit just sitting there going over my numbers and explaining everything to me and answering any questions I had. I have so many times been to doctors where they are like rush you in and rush you out and he is definitely one of the good ones!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Wednesday, March 11, 2009 6:46:18 PMSubject: Re: Re: ML  Caro... I'm so glad you have a dr you like. It can make all the difference in the world can't it. Keep us posted. Hugs to you MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Thanks so much for the hug, MB!! I totally need it!! How have you been? I hope you are okay. CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Wednesday, March 11, 2009 5:32:29 PMSubject: Re: Re: ML Caro, I'm so relieved they called you and are going to see you more quickly. You and your whole family are in my thoughts and prayers. I wish there was something I could do to lift all these burdens from you. All I have is this long distance friendship. Consider yourself hugged! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Carolyn Wade <carowade4444@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 6:12:55 PMSubject: Re: Re: ML Well, I did just get off the phone with my doc at UAB and he called by gynecoligist and got my gynecology/oncology visit moved up, I just don't know the date yet. He said for me to give them a couple of days to call me. At least it will be in and that is a lot closer than Birmingham to my family in case I have to surgery to remove the ovaries. I really like Dr. deAndrade a lot. He is the best. CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Wednesday, March 11, 2009 12:14:01 PMSubject: Re: Re: ML  Caro... I think I'm feeling a bit better this morning. You are sure in my thoughts too. I hope today brings you some relief in what you deal with. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.