Re: water retention problems

[Guest guest]

Patti, I even had difficulty with

socks and shoes not fitting correctly!

My slacks and bras would fit one day and not the next...my face would

puff

up like crazy and my hands too! All of this is much better right

now..we'll just have to see what happens next.

I'm going to see a nutritionist next week to talk about the low

carb..or gylcemic index diet!

Supposedly..the bad carbs not only cause regular weight problems but

can make inflammation and water retention issues too.

I'll keep you posted.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

mtjvst wrote:

-I was told "that sometimes it is more of a cosmetic issue".. LOL

my breathing changes and my weight changes before i even think to look

at my feet..also, it shows up in my abdomen.. so i am not getting it..

i know with me what it isnt and it is even what is called dependent

edema when your feet are down all day.. i am sleeping and wake up with

it and it just increases... Also, watching sodium intake and processed

food.. shame i just love food for the old taste i remember and the fact

it is comfort at times.. lol..Guess we stuck... patti

-- In Breathe-Support ,

Zion wrote:

>

> *Patti*, I can't take Lasix...too much sulfa in that drug for me!!!

> They have ruled out heart and kidney function..so now what?

>

>

> Z 65, fibriotic NSIP/05/PA

>

>

> And “mild†PH/10/07 and Reynaud’s too!!

>

> No, NSIP was not self-inflicted…I never smoked!

>

> Potter, reader,carousel lover and MomMom to Darah and Sara

>

> “*I’m gonna be iron like a lion in Zion†Bob Marley*

>

> *Vinca Minor-periwinkle is my flower*

>

>

>

>

>

>

>

>

>

> Patti Friend wrote:

> >

> >

> > Hi , the edema started when i first went to Florida last

May.

> > very severe. In Feb. occurred where i gained 10 pounds

overnight,

> > wheezing,shortness of breath increased and both feet quite

swollen..

> > they admitted me do major work up thinking they were going to

have to

> > put me on active list; they thought Pulm. HTN worsened, had

increased

> > jugular vein distention. No clots, etc. So increased lasix to

80mg

> > daily. then my Primary doc saw me as temple thought Norvasc

was

> > causing issue so stopped that. so my primary increased me to

80 in am

> > and 40 in afternoon. Now this started on Monday. NO wheezing

but

> > productive cough.. Cardiologist says heart good it is my

lung.. No one

> > has a clear understanding why this is happened. Back on

Norvasc

> > (didn't change anything when stopped) and still with 120mg

lasix

> > daily. probably going to need to do bumex or zaroxyln in

between. See

> > temple docs today.. Me i think humidity just goes into my

feet and

> > actually i get abdominal swelling also.. so . i do watch

sodium

> > intake, stay away from processed food as much as possible.

sorry for

> > being so long winded.. Good to hear from you will be happy

when we

> > get together.. my computer at home won't let me send all the

time

> > laptop.. need to get my reg. PC running..

> >

> > Funny i was going to throw this out to anyone who can tell me

about

> > what can be otherwise causing the water gain. even happens

just when

> > sleeping... Patti, ipf7/06,raynauds '91, scleroderma, Pulm

HTN 2'07

> >

> >

> >>>>>>

> >>>>>>

> >>>>>> From: Adrienne Bishop

<eggie5909 (AT) yahoo (DOT) com>

> >>>>>> Subject: Support Groups

> >>>>>> at Penn or Temple Lung Center

> >>>>>> To: Breathe-Support@ yahoogroups. . com

> >>>>>> Date: Sunday, May 31, 2009, 2:47 PM

> >>>>>>

> >>>>>> I was curious if anyone knows if Penn or

> >>>>>> Temple has any support groups that meet

> >>>>>> on any type of regular basis (i.e.

> >>>>>> Monthly, Quarterly)? And if so is there

> >>>>>> a contact person?

> >>>>>> Thank you

> >>>>>>

> >>>>>>

> >>>>>>

> >>>>>>

> >>>>>

> >>>

> >>

> >

> >

>

[Guest guest]

Thanks, boy do i hear you and ditto all.. LOL.. Saw my nutritionist and we

talked about lo carbs doesn't want me to do anything too drastic with diet

change.. wants me as we all hear lifestyle changes. so will continue to

research.. patti

> > > >>>>>>

> > > >>>>>>

> > > >>>>>> From: Adrienne Bishop

> > > >>>>>> Subject: Support Groups

> > > >>>>>> at Penn or Temple Lung Center

> > > >>>>>> To: Breathe-Support@ yahoogroups. . com

> > > >>>>>> Date: Sunday, May 31, 2009, 2:47 PM

> > > >>>>>>

> > > >>>>>> I was curious if anyone knows if Penn or

> > > >>>>>> Temple has any support groups that meet

> > > >>>>>> on any type of regular basis (i.e.

> > > >>>>>> Monthly, Quarterly)? And if so is there

> > > >>>>>> a contact person?

> > > >>>>>> Thank you

> > > >>>>>>

> > > >>>>>>

> > > >>>>>>

> > > >>>>>>

> > > >>>>>

> > > >>>

> > > >>

> > > >

> > > >

> > >

> >

> >

>