Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 I think for a group our size, of people who are sick or healing from a disease that is known to cause emotional disturbances, we get along pretty darn well... this is a truly amazing group of smart caring people, sometimes we don't agree on things and sometimes we get pretty passionate about a topic, and sometimes we are just too close to the subject and it feels so personal when it doesn't have to be...but we are all in this together and I think we do a pretty good job of it. Hugs to everyone, Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 I think for a group our size, of people who are sick or healing from a disease that is known to cause emotional disturbances, we get along pretty darn well... this is a truly amazing group of smart caring people, sometimes we don't agree on things and sometimes we get pretty passionate about a topic, and sometimes we are just too close to the subject and it feels so personal when it doesn't have to be...but we are all in this together and I think we do a pretty good job of it. Hugs to everyone, Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 I think for a group our size, of people who are sick or healing from a disease that is known to cause emotional disturbances, we get along pretty darn well... this is a truly amazing group of smart caring people, sometimes we don't agree on things and sometimes we get pretty passionate about a topic, and sometimes we are just too close to the subject and it feels so personal when it doesn't have to be...but we are all in this together and I think we do a pretty good job of it. Hugs to everyone, Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Holly, Try not to let all this upset you. It use to bother me really bad but I have moved passed it. We cannot continue to hurt each other here or nothing will be gained and all will be lost. I'm just sorry I didn't come to this realization sooner. Everyone else please don't worry about me freaking out because I have learned my lesson once last month " remember " . Alyssa will not do it again. peace Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Holly, Try not to let all this upset you. It use to bother me really bad but I have moved passed it. We cannot continue to hurt each other here or nothing will be gained and all will be lost. I'm just sorry I didn't come to this realization sooner. Everyone else please don't worry about me freaking out because I have learned my lesson once last month " remember " . Alyssa will not do it again. peace Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Jody, I hear what your saying I really do. I know that tries to help me and I know that I don't help people all the time I try to but I'm not good at it yet and well I've only been in this mess for 8 months and I'm trying so hard to get through all this but it doesn't mean I don't care about other people and what they have to say. I just feel I can decide to what is good for me. I might not know but you all can say fine Alyssa I told you so! Then what can I say really that your right. Its all just an experiment to me right now trying to stablize Its really important to me to get better and stablize because I want to have a baby and I'm 36 years old and this is not going to happen unless my TSH is between 1.0 and 2.0 not 5.32 and up! I get frustrated to and I know that we are all human here I just wish that I didn't have this disease it really sucks but I have it and I have to accept it which I have accepted it and I do look to you all for advise believe it or not. Just because I don't do exactly as you say doesn't mean I don't read every line that you type in and try to tell me. I absorb all of it in fact I am printing out the last post you wrote to me to take to the ENDO on Dec 12th! Well Look I might not have made the very best decision going off the meds until Friday but I can't change that right now because I'm not sure if I want to start back up on 50mgs or 75mgs so I'm tossing that around I think maybe the 75mgs for a few weeks then taper down to 50mgs like you all said, would be good. I really don't think this 2 days is going to affect me the way it did the last time. I'm praying I will be ok. I have already made a pact with myself if I am not ok I will NOT post anything so don't worry about me freaking out on the board it won't happen. Well its freezing rain here and I might loose power. It took me 1.5 hours to drive home from work and we might not have work tommorow its not looking to good outside here. Its cold and wet and snowy and icky and I'm glad to be in my house with my slippers on and hubby made spaggetti so I'm going to go eat that. Anyway I do care about everyone as well if it wasn't for the board I would have had RAI as you all know I was practically scheduled for the damn event! I just hope you all don't give up on me because I make my own decision about something my graves disease not anyone elses just mine I'm not saying I'm right and that you all have to do what Alyssa does and I know I have not had an easy time of it but it doesn't mean I'm not getting better I am getting better fast! It seems I am getting well so thats all that matters to me is that I'm headed in the right direction and that is all I can ask for. Thanks Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Jody, I hear what your saying I really do. I know that tries to help me and I know that I don't help people all the time I try to but I'm not good at it yet and well I've only been in this mess for 8 months and I'm trying so hard to get through all this but it doesn't mean I don't care about other people and what they have to say. I just feel I can decide to what is good for me. I might not know but you all can say fine Alyssa I told you so! Then what can I say really that your right. Its all just an experiment to me right now trying to stablize Its really important to me to get better and stablize because I want to have a baby and I'm 36 years old and this is not going to happen unless my TSH is between 1.0 and 2.0 not 5.32 and up! I get frustrated to and I know that we are all human here I just wish that I didn't have this disease it really sucks but I have it and I have to accept it which I have accepted it and I do look to you all for advise believe it or not. Just because I don't do exactly as you say doesn't mean I don't read every line that you type in and try to tell me. I absorb all of it in fact I am printing out the last post you wrote to me to take to the ENDO on Dec 12th! Well Look I might not have made the very best decision going off the meds until Friday but I can't change that right now because I'm not sure if I want to start back up on 50mgs or 75mgs so I'm tossing that around I think maybe the 75mgs for a few weeks then taper down to 50mgs like you all said, would be good. I really don't think this 2 days is going to affect me the way it did the last time. I'm praying I will be ok. I have already made a pact with myself if I am not ok I will NOT post anything so don't worry about me freaking out on the board it won't happen. Well its freezing rain here and I might loose power. It took me 1.5 hours to drive home from work and we might not have work tommorow its not looking to good outside here. Its cold and wet and snowy and icky and I'm glad to be in my house with my slippers on and hubby made spaggetti so I'm going to go eat that. Anyway I do care about everyone as well if it wasn't for the board I would have had RAI as you all know I was practically scheduled for the damn event! I just hope you all don't give up on me because I make my own decision about something my graves disease not anyone elses just mine I'm not saying I'm right and that you all have to do what Alyssa does and I know I have not had an easy time of it but it doesn't mean I'm not getting better I am getting better fast! It seems I am getting well so thats all that matters to me is that I'm headed in the right direction and that is all I can ask for. Thanks Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 > I have already made a pact with myself if I am not ok I > will NOT post anything so don't worry about me freaking out on the > board it won't happen. Alyssa, how about a pact with yourself that if you are not doing ok and are freaking out (on the board or at work or by yourself even) that you will call the doc and tell them that you have done what she said but that you are feeling hyper and stuff and you think you should start taking your PTU again asap - and ask them if you should take 50 or 75mg... rather than waiting until your 2 days are up and suffering through it like you did last time? How are you feeling anyway? It's been over 24 hours already since you last had a pill, right? Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 > I have already made a pact with myself if I am not ok I > will NOT post anything so don't worry about me freaking out on the > board it won't happen. Alyssa, how about a pact with yourself that if you are not doing ok and are freaking out (on the board or at work or by yourself even) that you will call the doc and tell them that you have done what she said but that you are feeling hyper and stuff and you think you should start taking your PTU again asap - and ask them if you should take 50 or 75mg... rather than waiting until your 2 days are up and suffering through it like you did last time? How are you feeling anyway? It's been over 24 hours already since you last had a pill, right? Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Thanks Pam, I have already decided to do that but thanks for noting it! Actually I took my last pill last night I had 50mgs yesterday today is the first day without any PTU. I'm feeling pretty good so far no problems but then again it hasn't been that long. I am debating going back on tommorow instead of Friday I will see how I feel in the morning. I'm not going to freak out like the last time after all I have learned my lesson! Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Ok good. I thought I read that you skipped your mid day one yesterday - but apparently not, hu? Well, hang in there, hope you continue to feel fine. Pam B. > Thanks Pam, > > I have already decided to do that but thanks for noting it! > > Actually I took my last pill last night I had 50mgs yesterday today is > the first day without any PTU. I'm feeling pretty good so far no > problems but then again it hasn't been that long. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Hi Alyssa, I just wanted to offer you a little encouragement. My TSH has been 0 in every test I've taken so far and here I am, pregnant (though far from remission). I hope you're not skipping PTU doses just to get your TSH perfect. Even if it works, how will you know what dose to take to maintain that perfect level? The best thing for you and any potential babies would be to slowly increase or decrease your PTU until you feel good and your levels are somewhat normal. Patience is a virtue I don't have, so I know that's easier said than done. Good luck, I hope you get everything on your wishlist. Peace, Tori In a message dated 12/4/2002 4:53:26 PM Pacific Standard Time, blackyseymour@... writes: > Alyssa will be fine and hopefully I will be one of > these miracles I hear so much about going into remission but most of > all getting pregant would be my biggest wishlist! I know I can't do > that unless my TSH is just right it has to be nearly perfect or it > won't happen. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Hi Alyssa, I just wanted to offer you a little encouragement. My TSH has been 0 in every test I've taken so far and here I am, pregnant (though far from remission). I hope you're not skipping PTU doses just to get your TSH perfect. Even if it works, how will you know what dose to take to maintain that perfect level? The best thing for you and any potential babies would be to slowly increase or decrease your PTU until you feel good and your levels are somewhat normal. Patience is a virtue I don't have, so I know that's easier said than done. Good luck, I hope you get everything on your wishlist. Peace, Tori In a message dated 12/4/2002 4:53:26 PM Pacific Standard Time, blackyseymour@... writes: > Alyssa will be fine and hopefully I will be one of > these miracles I hear so much about going into remission but most of > all getting pregant would be my biggest wishlist! I know I can't do > that unless my TSH is just right it has to be nearly perfect or it > won't happen. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Yes Pam, Your correct I did skip my midday dose yesterday the nurse called and said, not to take it anymore but before bed last night I did take the other half of my pill for a total dose of 50mgs yesterday so you would be correct in it being almost 24 hours since my last dose 8pm tonight will be 24 hours exactly! Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Yes Pam, Your correct I did skip my midday dose yesterday the nurse called and said, not to take it anymore but before bed last night I did take the other half of my pill for a total dose of 50mgs yesterday so you would be correct in it being almost 24 hours since my last dose 8pm tonight will be 24 hours exactly! Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Thanks Jody, For all your kind words. I will do that post my story in the Files section in the our story field if I ever get through typing on the boards today but then again with snow there is always tommorow. I will take my PTU tommorow if I feel like crap and I will call the doctor but so far I'm ok but I know its only been 24 hours but really I feel fine no problems so far but tommorow might be rough being cooped up with hubby so who knows haha. Believe me I don't want another episode of last month but I do want my TSH to be in a more normal mode and I don't want to wait another month for my TSH to go down to 1.0-2.0 range I'm sick of waiting I guess I'm just frustrated but at the same time NO I don't want a repeat of last time by no means but this is also less time that I'm off PTU and I plan to hop back on it if I start shaking or any of that or palpitations so far none. I'm on the look out this time I know what to be careful of and I know what I'm doing (ok so I don't) but I think I do I know that if I don't sleep well tonight and I wake up hyper then I will do something about it so don't worry. Alyssa will be fine and hopefully I will be one of these miracles I hear so much about going into remission but most of all getting pregant would be my biggest wishlist! I know I can't do that unless my TSH is just right it has to be nearly perfect or it won't happen. I just don't want to wait until its to late you know. hugs Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 haha Yup I will do that long the journal thing after all its going to take some time because Alyssa has been through the damn ringer! Ok so we all have been through the ringer so to speak. You got that right if I'm cooped up I'm having SEX hahaha you got that right cuz I will be like ovulating soon but I have reservations with this damn graves disease and getting preggy as well but if I wait it may never happen for me if I don't move my ass in the right direction which is under the comforter tommorow heheh SNOWED IN I luv it I luv it I will eat all my PTU crumbs when I go back on hehehe luv the crumbs tasty treats! Ya I get sick and tired of being sick and tired but I try not to let it get me down I try to go on and work a 40 hour a week job and I don't let it Lick my ass like I know it could do if I was to sit around and complain all day about how sick I was and stayed in bed or something gosh did you know back in the 1845's all they had for the graves was bed rest was like the best they could do back then it gives me the creeps! Well I'm off to nite nite soon before I loose power its like 27 degrees here and freezing rain and its going to be freezing rain all night so gotta make sure the kit kats are in the house! Take care (hugs) Alyssa Quote Link to comment Share on other sites More sharing options...
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