Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Gwynnie.... how nice to hear from you and with such good news too! I'll just do a little happy dance for you. Your b-day bash sounds like such fun and I love doing a high tea. For sure Gwynnie, you keep on keepin' on. Love ya MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Update on Gwynne Hi All,In the past few weeks I've begun getting the tests required formy one-year tx anniversary (Apr. 3). I had a Bronchoscopy thispast Tuesday, and there was no sign of rejection. I hadn't hada bronch in quite a while, so I was relieved and joyful. Othertests have shown my blood clots to be gone. I've had a VQscan, EKG, Echo, and an HRCT - all good. The only thingwe're still working on is figuring out why I get so many UTI's.I do still get short of breath, though NOTHING like before,upon mild to moderate exertion. The doc thinks that, sincemy right native lung has gotten worse, it's dragging me downa bit. But my new left lung looks great and is working fine!My sweet brother and sister-in-law are throwing a "re-birthday"bash for me on Friday, Apr. 3. And some other friends are goingto do a very girly thing and take me to high tea at one of the localhotels. La dee Dah. Sounds like fun!I miss hearing from Judy and Kerry. Jack and Jim, I'm prayingfor you and loving your posts. GIO, Keep playing the piano.I don't play often enough either, but it's so satisfying. Haveyou ever written any music? Peggy and Sher, you two justMUST get better fast. Big hugs to you. To the newbies, abig welcome.Hugs and blessings,Gwynne 57 (barely) Single-lung Transplant on 4-3-08at UTHSC- San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Gwynne Oh you'll be one year old.....the reminder of that day is so incredible just as a friend. I can't imagine how wonderful this birthday will be. Glad all the tests were so good. > > > Hi All, > In the past few weeks I've begun getting the tests required for > my one-year tx anniversary (Apr. 3). I had a Bronchoscopy this > past Tuesday, and there was no sign of rejection. I hadn't had > a bronch in quite a while, so I was relieved and joyful. Other > tests have shown my blood clots to be gone. I've had a VQ > scan, EKG, Echo, and an HRCT - all good. The only thing > we're still working on is figuring out why I get so many UTI's. > I do still get short of breath, though NOTHING like before, > upon mild to moderate exertion. The doc thinks that, since > my right native lung has gotten worse, it's dragging me down > a bit. But my new left lung looks great and is working fine! > > My sweet brother and sister-in-law are throwing a " re-birthday " > bash for me on Friday, Apr. 3. And some other friends are going > to do a very girly thing and take me to high tea at one of the local > hotels. La dee Dah. Sounds like fun! > > I miss hearing from Judy and Kerry. Jack and Jim, I'm praying > for you and loving your posts. GIO, Keep playing the piano. > I don't play often enough either, but it's so satisfying. Have > you ever written any music? Peggy and Sher, you two just > MUST get better fast. Big hugs to you. To the newbies, a > big welcome. > > Hugs and blessings, > Gwynne 57 (barely) Single-lung Transplant on 4-3-08 > at UTHSC- San Fort Worth, TX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Gwynne, A very happy lung birthday to you coming up this week! I'm so happy to hear that everything is going well and you're feeling well. You don't know what an inspiration you are to so many of us! Congratulations on your first year! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: BREATHE-SUPPORT Information <Breathe-Support >Sent: Sunday, March 29, 2009 2:35:48 PMSubject: Update on Gwynne Hi All,In the past few weeks I've begun getting the tests required formy one-year tx anniversary (Apr. 3). I had a Bronchoscopy thispast Tuesday, and there was no sign of rejection. I hadn't hada bronch in quite a while, so I was relieved and joyful. Othertests have shown my blood clots to be gone. I've had a VQscan, EKG, Echo, and an HRCT - all good. The only thingwe're still working on is figuring out why I get so many UTI's.I do still get short of breath, though NOTHING like before,upon mild to moderate exertion. The doc thinks that, sincemy right native lung has gotten worse, it's dragging me downa bit. But my new left lung looks great and is working fine!My sweet brother and sister-in-law are throwing a "re-birthday"bash for me on Friday, Apr. 3. And some other friends are goingto do a very girly thing and take me to high tea at one of the localhotels. La dee Dah. Sounds like fun!I miss hearing from Judy and Kerry. Jack and Jim, I'm prayingfor you and loving your posts. GIO, Keep playing the piano.I don't play often enough either, but it's so satisfying. Haveyou ever written any music? Peggy and Sher, you two justMUST get better fast. Big hugs to you. To the newbies, abig welcome.Hugs and blessings,Gwynne 57 (barely) Single-lung Transplant on 4-3-08at UTHSC- San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Gwynne, A very happy lung birthday to you coming up this week! I'm so happy to hear that everything is going well and you're feeling well. You don't know what an inspiration you are to so many of us! Congratulations on your first year! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: BREATHE-SUPPORT Information <Breathe-Support >Sent: Sunday, March 29, 2009 2:35:48 PMSubject: Update on Gwynne Hi All,In the past few weeks I've begun getting the tests required formy one-year tx anniversary (Apr. 3). I had a Bronchoscopy thispast Tuesday, and there was no sign of rejection. I hadn't hada bronch in quite a while, so I was relieved and joyful. Othertests have shown my blood clots to be gone. I've had a VQscan, EKG, Echo, and an HRCT - all good. The only thingwe're still working on is figuring out why I get so many UTI's.I do still get short of breath, though NOTHING like before,upon mild to moderate exertion. The doc thinks that, sincemy right native lung has gotten worse, it's dragging me downa bit. But my new left lung looks great and is working fine!My sweet brother and sister-in-law are throwing a "re-birthday"bash for me on Friday, Apr. 3. And some other friends are goingto do a very girly thing and take me to high tea at one of the localhotels. La dee Dah. Sounds like fun!I miss hearing from Judy and Kerry. Jack and Jim, I'm prayingfor you and loving your posts. GIO, Keep playing the piano.I don't play often enough either, but it's so satisfying. Haveyou ever written any music? Peggy and Sher, you two justMUST get better fast. Big hugs to you. To the newbies, abig welcome.Hugs and blessings,Gwynne 57 (barely) Single-lung Transplant on 4-3-08at UTHSC- San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Gwynne, One whole year! Congratulations and may you have many many more " birthdays" to come! God bless and keep you- R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Update on GwynneTo: "BREATHE-SUPPORT Information" <Breathe-Support >Date: Sunday, March 29, 2009, 11:35 AM Hi All,In the past few weeks I've begun getting the tests required formy one-year tx anniversary (Apr. 3). I had a Bronchoscopy thispast Tuesday, and there was no sign of rejection. I hadn't hada bronch in quite a while, so I was relieved and joyful. Othertests have shown my blood clots to be gone. I've had a VQscan, EKG, Echo, and an HRCT - all good. The only thingwe're still working on is figuring out why I get so many UTI's.I do still get short of breath, though NOTHING like before,upon mild to moderate exertion. The doc thinks that, sincemy right native lung has gotten worse, it's dragging me downa bit. But my new left lung looks great and is working fine!My sweet brother and sister-in-law are throwing a "re-birthday"bash for me on Friday, Apr. 3. And some other friends are goingto do a very girly thing and take me to high tea at one of the localhotels. La dee Dah. Sounds like fun!I miss hearing from Judy and Kerry. Jack and Jim, I'm prayingfor you and loving your posts. GIO, Keep playing the piano.I don't play often enough either, but it's so satisfying. Haveyou ever written any music? Peggy and Sher, you two justMUST get better fast. Big hugs to you. To the newbies, abig welcome.Hugs and blessings,Gwynne 57 (barely) Single-lung Transplant on 4-3-08at UTHSC- San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 Gwynne It is great to read about your anniversary adventure. As to your father, I don't think many people of any age are as young as he is. I can't imagine what it feels like just to reflect on all thats taken place this past year. I'm sure the visit to the doctors and hospital was equally gratifying for them as stories like yours are what keep them going. Their reward is seeing you and hearing of the last year. Now the rat surgery....v e r y interesting. > > > > > > Hi Everyone. > > My dad and I drove to San and on Tuesday I > > had my one-year follow-up appointment with Dr. Angel. > > I was really excited to see him again. He said I passed > > the first year with flying colors. The new lung is working > > at 92% capacity. Sounds good to me! He said all my > > tests showed that things really couldn't be better (and > > there was a LOT of testing.) > > > > We got to tour the pulmonary research facility where > > the rat lab is. That was fascinating. There are only 5 > > places nationally where they do actual rat lung > > transplants, and it's interesting and important work. > > Now they're doing testing with nanoparticle delivery > > of anti-rejection drugs, which should lead to increased > > survivability of transplant patients during that first > > critical year. I got the biggest charge out of the tiny > > little surgical tools that are used on these microsurgeries. > > > > I went back to my old room and said hello to several of > > my nurses from a year ago. Then we got to go to an annual > > ceremony (talk about good timing!) honoring all those people > > who donated organs the past year. The experience is still > > so raw for the donor families, and it was very moving. I was > > honored to be there as someone who has received the gift > > of life. > > > > My dad and I had a delicious Tex Mex dinner on Monday > > night. Then on Wednesday we stopped in Austin on the > > way home to see my daughter and son-in-law, who > > have just completed the renovation on their little fixer > > upper house. It's darling and they're so proud and happy. > > We got to go to lunch with them before we headed out. > > > > My dad and I had some great conversations in the car > > during our three days together. All in all it was a > > wonderful trip. It's too bad all 84-year-olds can't be > > as young as my father. > > > > Hugs and blessings, > > Gwynne 58 Single-lung transplant on 4-3-08 > > at UTHSC - San Fort Worth, TX > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 Gwynne It is great to read about your anniversary adventure. As to your father, I don't think many people of any age are as young as he is. I can't imagine what it feels like just to reflect on all thats taken place this past year. I'm sure the visit to the doctors and hospital was equally gratifying for them as stories like yours are what keep them going. Their reward is seeing you and hearing of the last year. Now the rat surgery....v e r y interesting. > > > > > > Hi Everyone. > > My dad and I drove to San and on Tuesday I > > had my one-year follow-up appointment with Dr. Angel. > > I was really excited to see him again. He said I passed > > the first year with flying colors. The new lung is working > > at 92% capacity. Sounds good to me! He said all my > > tests showed that things really couldn't be better (and > > there was a LOT of testing.) > > > > We got to tour the pulmonary research facility where > > the rat lab is. That was fascinating. There are only 5 > > places nationally where they do actual rat lung > > transplants, and it's interesting and important work. > > Now they're doing testing with nanoparticle delivery > > of anti-rejection drugs, which should lead to increased > > survivability of transplant patients during that first > > critical year. I got the biggest charge out of the tiny > > little surgical tools that are used on these microsurgeries. > > > > I went back to my old room and said hello to several of > > my nurses from a year ago. Then we got to go to an annual > > ceremony (talk about good timing!) honoring all those people > > who donated organs the past year. The experience is still > > so raw for the donor families, and it was very moving. I was > > honored to be there as someone who has received the gift > > of life. > > > > My dad and I had a delicious Tex Mex dinner on Monday > > night. Then on Wednesday we stopped in Austin on the > > way home to see my daughter and son-in-law, who > > have just completed the renovation on their little fixer > > upper house. It's darling and they're so proud and happy. > > We got to go to lunch with them before we headed out. > > > > My dad and I had some great conversations in the car > > during our three days together. All in all it was a > > wonderful trip. It's too bad all 84-year-olds can't be > > as young as my father. > > > > Hugs and blessings, > > Gwynne 58 Single-lung transplant on 4-3-08 > > at UTHSC - San Fort Worth, TX > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 There are a few of us around, Qwynne. I'm only 80, but that's close enough to 84 for comparison. My kids, grandkids and great grandkids think I am a kid. And I'm happy to be one. Jack79/IPF - UIP/dx06/05 Maine To: BREATHE-SUPPORT Information <Breathe-Support >Sent: Friday, April 24, 2009 1:41:16 PMSubject: Update on Gwynne Hi Everyone.My dad and I drove to San and on Tuesday Ihad my one-year follow-up appointment with Dr. Angel.I was really excited to see him again. He said I passedthe first year with flying colors. The new lung is workingat 92% capacity. Sounds good to me! He said all mytests showed that things really couldn't be better (andthere was a LOT of testing.)We got to tour the pulmonary research facility wherethe rat lab is. That was fascinating. There are only 5places nationally where they do actual rat lungtransplants, and it's interesting and important work.Now they're doing testing with nanoparticle deliveryof anti-rejection drugs, which should lead to increasedsurvivability of transplant patients during that firstcritical year. I got the biggest charge out of the tinylittle surgical tools that are used on these microsurgeries.I went back to my old room and said hello to several ofmy nurses from a year ago. Then we got to go to an annualceremony (talk about good timing!) honoring all those peoplewho donated organs the past year. The experience is stillso raw for the donor families, and it was very moving. I washonored to be there as someone who has received the giftof life.My dad and I had a delicious Tex Mex dinner on Mondaynight. Then on Wednesday we stopped in Austin on theway home to see my daughter and son-in-law, whohave just completed the renovation on their little fixerupper house. It's darling and they're so proud and happy.We got to go to lunch with them before we headed out.My dad and I had some great conversations in the carduring our three days together. All in all it was awonderful trip. It's too bad all 84-year-olds can't beas young as my father.Hugs and blessings,Gwynne 58 Single-lung transplant on 4-3-08at UTHSC - San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
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