Re: Update and questions regarding my mom

[Guest guest]

Hi hon'

Boy they sure aren't making it easy. They should be doing ALL THE MEDS at

least for now. While giving suppositories really is not hard most people our

parents age won't let their families do it. Tell them that that is how you and

your Mom feel and ask them to wrangle with the insurance if need be. All they

have to do is tell them you are uncomfortable doing it and they will pay.

As for them being there 24-7 that might not happen and yes you may have to

move your Mom. DO NOT agree to this until you have moved your Mom several times

with the nurse present and then only if you feel comfortable.

As for the food that is right. She will eat if she's hungry keep it very

light. For my Dad he drank lots of cranberry juice (he loved it and it DOES help

infection) and regular chocolate milk. I think the only solid food he ate was

an egg salad sandwich that his nurse made him.

As far as I'm concerned Hospice's job is to let you concentrate on being

with your Mom.

If that is not happening talk to her case manager and the doctor.

You need help and if you aren't getting it don't be afraid to yell at them.

Here's a great big cyber <<<<< >>>>>>> Hang in there.

Narice

[Guest guest]

We cared for my mother-in-law in my home with the help of Hospice. We

administered all of her medications, kept charts of her vitals and medicines,

etc. Of course, if the nurse was there when it was time for medicines she would

offer.

They were everything we expected and more. The nurse came daily in the last

week or so. Then twice daily the last two days.

They brought in the medicines and trained and educated us on administering them.

The last couple of weeks, I gave all her medications rectally.

They would have provided a once or twice a week " housekeeper " to straighten the

room, bath her, etc. My mother-in-law did not want that so after one time we

told them not to come back.

They provided everything we needed for her care - diapers, medicines, gowns

(hand me downs), bed pads, bed, oxygen, wheel chair, commode, etc.

In our situation, she was having to pay for skilled care so we convinced my

husband's brothers that we could pay my sister to stay with her during the day

cheaper. AND we would know that she was getting good care.

This may sound crazy, but it was all worth it and we have absolutely no regrets.

In fact, we made some wonderful memories in that time.

MA

>

>

> Date: 2005/08/09 Tue PM 09:40:53 EDT

> To: colon_cancer_support >

> Subject: Re: Update and questions regarding my mom

>

>

[Guest guest]

We cared for my mother-in-law in my home with the help of Hospice. We

administered all of her medications, kept charts of her vitals and medicines,

etc. Of course, if the nurse was there when it was time for medicines she would

offer.

They were everything we expected and more. The nurse came daily in the last

week or so. Then twice daily the last two days.

They brought in the medicines and trained and educated us on administering them.

The last couple of weeks, I gave all her medications rectally.

They would have provided a once or twice a week " housekeeper " to straighten the

room, bath her, etc. My mother-in-law did not want that so after one time we

told them not to come back.

They provided everything we needed for her care - diapers, medicines, gowns

(hand me downs), bed pads, bed, oxygen, wheel chair, commode, etc.

In our situation, she was having to pay for skilled care so we convinced my

husband's brothers that we could pay my sister to stay with her during the day

cheaper. AND we would know that she was getting good care.

This may sound crazy, but it was all worth it and we have absolutely no regrets.

In fact, we made some wonderful memories in that time.

MA

>

>

> Date: 2005/08/09 Tue PM 09:40:53 EDT

> To: colon_cancer_support >

> Subject: Re: Update and questions regarding my mom

>

>

[Guest guest]

25 years ago I was my with my father when he was dying from cancer at

home. A nurse came in and showed me how to do the demerol(sp?)

injections for pain. I was just a teenager at the time. Sometime I

would lay on his bed with him so I could know and feel when he was

uncomfortable and rub his back and do whatever. The last two or three

days I did not get any sleep since he was in constant pain and I was

injecting him every two hours for the pain. But I knew I did all I

could do for him. I was there. And those memories stayed with me. To

know I could do this for my father was the greatest memory of all. I

don't think they had Hospice then. They used to just send the

patients to die at home. My mom and brother were there too. My

brother had a difficult time with this. I still think to this day he

will not go in my mom's bedroom because my dad died there. Some

people cannot deal with the dying pricess. I can understand this and

accept this. Not all can do this. Everyone is different. I am just

glad that I could be there for my father. Ingrid

> We cared for my mother-in-law in my home with the help of Hospice.

We administered all of her medications, kept charts of her vitals and

medicines, etc. Of course, if the nurse was there when it was time

for medicines she would offer.

>

> They were everything we expected and more. The nurse came daily in

the last week or so. Then twice daily the last two days.

>

> They brought in the medicines and trained and educated us on

administering them. The last couple of weeks, I gave all her

medications rectally.

>

> They would have provided a once or twice a week " housekeeper " to

straighten the room, bath her, etc. My mother-in-law did not want

that so after one time we told them not to come back.

>

> They provided everything we needed for her care - diapers,

medicines, gowns (hand me downs), bed pads, bed, oxygen, wheel chair,

commode, etc.

>

> In our situation, she was having to pay for skilled care so we

convinced my husband's brothers that we could pay my sister to stay

with her during the day cheaper. AND we would know that she was

getting good care.

>

> This may sound crazy, but it was all worth it and we have

absolutely no regrets. In fact, we made some wonderful memories in

that time.

>

> MA

> >

> > From: " Barbara Gari "

> > Date: 2005/08/09 Tue PM 09:40:53 EDT

> > To: colon_cancer_support >

> > Subject: Re: Update and questions

regarding my mom

> >

> >

[Guest guest]

Ingrid,

Your comment about your brother not wanting to enter

your mom's bedroom since your dad died there really

struck home. When my husband refused to have a

hospital bed brought in and was adament that he wanted

to die in his(our)own bed, I thought I would never be

able to sleep in that bed again. I didn't say anything

because it meant so much to him but I figured I would

have to buy a new bed after. But it's wierd, but after

his death, my bedroom and that bed, has become my

sanctuary from the world. I crawl into the bed and

surround myself with the pillows, his pillow, and can

sense his arms holding me and I feel very safe and

comforted. So, the thing I thought would bother me the

most has actually become the most comforting! Go

figure!

H

> > We cared for my mother-in-law in my home with the

> help of Hospice.

> We administered all of her medications, kept charts

> of her vitals and

> medicines, etc. Of course, if the nurse was there

> when it was time

> for medicines she would offer.

> >

> > They were everything we expected and more. The

> nurse came daily in

> the last week or so. Then twice daily the last two

> days.

> >

> > They brought in the medicines and trained and

> educated us on

> administering them. The last couple of weeks, I

> gave all her

> medications rectally.

> >

> > They would have provided a once or twice a week

> " housekeeper " to

> straighten the room, bath her, etc. My

> mother-in-law did not want

> that so after one time we told them not to come

> back.

> >

> > They provided everything we needed for her care -

> diapers,

> medicines, gowns (hand me downs), bed pads, bed,

> oxygen, wheel chair,

> commode, etc.

> >

> > In our situation, she was having to pay for

> skilled care so we

> convinced my husband's brothers that we could pay my

> sister to stay

> with her during the day cheaper. AND we would know

> that she was

> getting good care.

> >

> > This may sound crazy, but it was all worth it and

> we have

> absolutely no regrets. In fact, we made some

> wonderful memories in

> that time.

> >

> > MA

> > >

> > > From: " Barbara Gari "

> > > Date: 2005/08/09 Tue PM 09:40:53 EDT

> > > To: colon_cancer_support >

> > > Subject: Re: Update and

> questions

> regarding my mom

> > >

> > >

>

>

>

>

____________________________________________________

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[Guest guest]

, I am so happy that you can find comfort in this. My brother to

this day will not go in my mom's bedroom. Of course when I visit and

stay over night, I sleep in my mom's room in the bed with my mom.

Does not really bother me. I don't think it is the same bed. I think

my mom did get a new bed since the old one was wore out.

Funny how different people feel different things. I am happy that

you feel the comfort of being with something that you and your

husband once shared. Don't understand why my brother feels this way,

but have learned to accept it. Ingrid

> > > We cared for my mother-in-law in my home with the

> > help of Hospice.

> > We administered all of her medications, kept charts

> > of her vitals and

> > medicines, etc. Of course, if the nurse was there

> > when it was time

> > for medicines she would offer.

> > >

> > > They were everything we expected and more. The

> > nurse came daily in

> > the last week or so. Then twice daily the last two

> > days.

> > >

> > > They brought in the medicines and trained and

> > educated us on

> > administering them. The last couple of weeks, I

> > gave all her

> > medications rectally.

> > >

> > > They would have provided a once or twice a week

> > " housekeeper " to

> > straighten the room, bath her, etc. My

> > mother-in-law did not want

> > that so after one time we told them not to come

> > back.

> > >

> > > They provided everything we needed for her care -

> > diapers,

> > medicines, gowns (hand me downs), bed pads, bed,

> > oxygen, wheel chair,

> > commode, etc.

> > >

> > > In our situation, she was having to pay for

> > skilled care so we

> > convinced my husband's brothers that we could pay my

> > sister to stay

> > with her during the day cheaper. AND we would know

> > that she was

> > getting good care.

> > >

> > > This may sound crazy, but it was all worth it and

> > we have

> > absolutely no regrets. In fact, we made some

> > wonderful memories in

> > that time.

> > >

> > > MA

> > > >

> > > > From: " Barbara Gari "

> > > > Date: 2005/08/09 Tue PM 09:40:53 EDT

> > > > To: colon_cancer_support >

> > > > Subject: Re: Update and

> > questions

> > regarding my mom

> > > >

> > > >

> >

> >

> >

> >

>

>

>

>

> ____________________________________________________

> Start your day with Yahoo! - make it your home page

> http://www.yahoo.com/r/hs