Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Peggy/Sher It's just great to see her enjoying these days. I'm sure Earl has to be less stressed too. I certainly look in my future and when I reach her stage want to find as much joy as she is. I'm so happy she got such a great hospice aide as . > > Hi Group, I forgot to post that ML called yesterday and what a joy to > talk to her and hear her spirit just so strong and feisty. > She is weak but her voice was strong yesterday. She is content and > happy. says Hello to all. > > Gotta LOVE that one.. SWEET SWEET. > > > Love & Prayers, Peggy > Florida, IPF/UIP 2004 > > " I believe that friends are quiet angels who lift us to our feet, > when our wings have trouble remembering how to fly. " > > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Peggy/Sher It's just great to see her enjoying these days. I'm sure Earl has to be less stressed too. I certainly look in my future and when I reach her stage want to find as much joy as she is. I'm so happy she got such a great hospice aide as . > > Hi Group, I forgot to post that ML called yesterday and what a joy to > talk to her and hear her spirit just so strong and feisty. > She is weak but her voice was strong yesterday. She is content and > happy. says Hello to all. > > Gotta LOVE that one.. SWEET SWEET. > > > Love & Prayers, Peggy > Florida, IPF/UIP 2004 > > " I believe that friends are quiet angels who lift us to our feet, > when our wings have trouble remembering how to fly. " > > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Sher And Vicky is another one leading us so beautifully down that path. Their beauty and grace in dealing with their situations is quite helpful to me as I think ahead. > > > > Hi Group, I forgot to post that ML called yesterday and what a joy to > > talk to her and hear her spirit just so strong and feisty. > > She is weak but her voice was strong yesterday. She is content and > > happy. says Hello to all. > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > Love & Prayers, Peggy > > Florida, IPF/UIP 2004 > > > > " I believe that friends are quiet angels who lift us to our feet, > > when our wings have trouble remembering how to fly. " > > > > > >  > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Sher But the common factor is they have both used hospice and benefitted from it. They also have both faced the feeling of being at death's door and then found relief from their pain. You're right in that it's difficult to know. Just reading what Lou writes today, you'd never believe it was the same woman so full of despair such a short time ago. She made a decision that has turned her life so much for the better. The one thing I keep in mind and hope everyone here does is that while we can't control the disease, beyond taking every preventive measure of complications, we can maintain control over our lives. Whether it's seeing new doctors or deciding what to do about meds or our living arrangements or hospice, we are very much alive and very capable of still making decisions on how we live. Look how alive Lou is today with the help of a caring provider and morphine. Her spirit still shines through. I, like everyone here, don't like having the disease nor do I like the prognosis. But, I do know how I want to live through each stage of the progression, however fast the stages come or however long each one lasts. I learn from so many here. I learned so much from Gwynne. I sit here seeing Peggy's excitement over all those coming to Orlando and know how much she's going to enjoy it. I talk to you and see you and Rich having a full life. I try to keep up with Beth on traveling, but she's charged ahead for now. I'll get back on the road though. I learn some painful things such as Joyce's Pulmonary Hypertension, but it sure makes me diligent on echocardiograms and on maintaining oxygen levels. I also know about Flolan if I ever face that decision. I do think following others and reading and communicating gives knowledge that is invaluable. To me, knowledge is power. I feel better having the power to decide how I want to face today and the future. > > > > > > Hi Group, I forgot to post that ML called yesterday and what a joy > to > > > talk to her and hear her spirit just so strong and feisty. > > > She is weak but her voice was strong yesterday. She is content and > > > happy. says Hello to all. > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > Love & Prayers, Peggy > > > Florida, IPF/UIP 2004 > > > > > > " I believe that friends are quiet angels who lift us to our feet, > > > when our wings have trouble remembering how to fly. " > > > > > > > > >  > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Sher But the common factor is they have both used hospice and benefitted from it. They also have both faced the feeling of being at death's door and then found relief from their pain. You're right in that it's difficult to know. Just reading what Lou writes today, you'd never believe it was the same woman so full of despair such a short time ago. She made a decision that has turned her life so much for the better. The one thing I keep in mind and hope everyone here does is that while we can't control the disease, beyond taking every preventive measure of complications, we can maintain control over our lives. Whether it's seeing new doctors or deciding what to do about meds or our living arrangements or hospice, we are very much alive and very capable of still making decisions on how we live. Look how alive Lou is today with the help of a caring provider and morphine. Her spirit still shines through. I, like everyone here, don't like having the disease nor do I like the prognosis. But, I do know how I want to live through each stage of the progression, however fast the stages come or however long each one lasts. I learn from so many here. I learned so much from Gwynne. I sit here seeing Peggy's excitement over all those coming to Orlando and know how much she's going to enjoy it. I talk to you and see you and Rich having a full life. I try to keep up with Beth on traveling, but she's charged ahead for now. I'll get back on the road though. I learn some painful things such as Joyce's Pulmonary Hypertension, but it sure makes me diligent on echocardiograms and on maintaining oxygen levels. I also know about Flolan if I ever face that decision. I do think following others and reading and communicating gives knowledge that is invaluable. To me, knowledge is power. I feel better having the power to decide how I want to face today and the future. > > > > > > Hi Group, I forgot to post that ML called yesterday and what a joy > to > > > talk to her and hear her spirit just so strong and feisty. > > > She is weak but her voice was strong yesterday. She is content and > > > happy. says Hello to all. > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > Love & Prayers, Peggy > > > Florida, IPF/UIP 2004 > > > > > > " I believe that friends are quiet angels who lift us to our feet, > > > when our wings have trouble remembering how to fly. " > > > > > > > > >  > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Sher Hug Rosebud. > > > > > > > > Hi Group, I forgot to post that ML called yesterday and what a joy > > to > > > > talk to her and hear her spirit just so strong and feisty. > > > > She is weak but her voice was strong yesterday. She is content and > > > > happy. says Hello to all. > > > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > > > > Love & Prayers, Peggy > > > > Florida, IPF/UIP 2004 > > > > > > > > " I believe that friends are quiet angels who lift us to our feet, > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > > >  > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Sher Hug Rosebud. > > > > > > > > Hi Group, I forgot to post that ML called yesterday and what a joy > > to > > > > talk to her and hear her spirit just so strong and feisty. > > > > She is weak but her voice was strong yesterday. She is content and > > > > happy. says Hello to all. > > > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > > > > Love & Prayers, Peggy > > > > Florida, IPF/UIP 2004 > > > > > > > > " I believe that friends are quiet angels who lift us to our feet, > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > > >  > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Hi Lou, Just a hug and a hello to let you know your in my thoughts and prayers today. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Pink Ok you typed the magic words, " Should really contact the doc " , now DO IT. Please......pretty please. > > > > > > > > Hi Group, I forgot to post that ML called yesterday and what a joy > > to > > > > talk to her and hear her spirit just so strong and feisty. > > > > She is weak but her voice was strong yesterday. She is content and > > > > happy. says Hello to all. > > > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > > > > Love & Prayers, Peggy > > > > Florida, IPF/UIP 2004 > > > > > > > > " I believe that friends are quiet angels who lift us to our feet, > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > > >  > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Sher, This is exactly what is happening to me since fortnight, normally I am ok in a week or so, not so this time, i inreased Prednisone to 15mg and took antibiotics for 10 days , i am wonering what to do, the doctor says(on the phone) it is probably a viral infection a lot of is going around here. Sorry to whine when you are sick, hsve you visited the doctor yourself? Please take care. Love Geeta In Breathe-Support , " Sher Bauman " wrote: > > Peggy... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus.... > Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that! > Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever... > The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well. > Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago... > I'm in limbo...waiting to get better or worse. > Thanks for caring. > > > > > MamaSher; 70, IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > � Re: ML > > > > Sher > > But the common factor is they have both used hospice and benefitted from > it. They also have both faced the feeling of being at death's door and > then found relief from their pain. You're right in that it's difficult > to know. Just reading what Lou writes today, you'd never believe it > was the same woman so full of despair such a short time ago. She made a > decision that has turned her life so much for the better. > > The one thing I keep in mind and hope everyone here does is that while > we can't control the disease, beyond taking every preventive measure of > complications, we can maintain control over our lives. Whether it's > seeing new doctors or deciding what to do about meds or our living > arrangements or hospice, we are very much alive and very capable of > still making decisions on how we live. Look how alive Lou is today > with the help of a caring provider and morphine. Her spirit still shines > through. > > I, like everyone here, don't like having the disease nor do I like the > prognosis. But, I do know how I want to live through each stage of the > progression, however fast the stages come or however long each one > lasts. I learn from so many here. I learned so much from Gwynne. I sit > here seeing Peggy's excitement over all those coming to Orlando and know > how much she's going to enjoy it. I talk to you and see you and Rich > having a full life. I try to keep up with Beth on traveling, but > she's charged ahead for now. I'll get back on the road though. I learn > some painful things such as Joyce's Pulmonary Hypertension, but it sure > makes me diligent on echocardiograms and on maintaining oxygen levels. I > also know about Flolan if I ever face that decision. I do think > following others and reading and communicating gives knowledge that is > invaluable. To me, knowledge is power. I feel better having the power to > decide how I want to face today and the future. > > > > > > > > > > Hi Group, I forgot to post that ML called yesterday and what a joy > > to > > > > talk to her and hear her spirit just so strong and feisty. > > > > She is weak but her voice was strong yesterday. She is content and > > > > happy. says Hello to all. > > > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > > > > Love & Prayers, Peggy > > > > Florida, IPF/UIP 2004 > > > > > > > > " I believe that friends are quiet angels who lift us to our feet, > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > > >  > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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