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Re: Fibrosis Tempory

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Roxanne,

How did you know that you had sarcoid in the lymph glands? Mine get swollen and very tender sometimes and I have wondered if it means I am getting a sarcoid flareup. Also, what is the plaquenil and MTX for? Last question, how low are you on the prednisone now? I am still trying to come off of it and not sure I will be able to get lower than 5. Thanks Roxanne,

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

From: polenellen (AT) aol (DOT) com <polenellen (AT) aol (DOT) com>Subject: Fibrosis TemporyTo: Breathe-Support@ yahoogroups. comDate: Wednesday, May 13, 2009, 7:53 AM

Is it possible that Fibrosis can be temporary? I wouldn't think so, however, before I answer someone who was told that she may have temporary fibrosis I wanted to be sure. She has heard "Fibrosis shows up, but not sure if it's permanent or temporary." I know the answer, guess I want to hear it from someone else. I am not an expert, just learning from reading responses from you all. I have only known about fibrosis since Jan 0-9, was told both of my lungs are in advanced stages. I was at first diagnosed with sarcoidosis in Sep 08 and have been on Oxy 24/7 since then. It seems like yesterday and 1,000 years ago.

Thanks

ellen

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