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Re: PTU vs. RAI - To Fay

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Hi Fay and all -

I hope you don't push delete just yet.......

Can you tell me what is the difference between " solid info "

and " random rhetoric " and also, is there something wrong with there

being a strong anti-RAI bias here?

I just get a little confused when some people seem to feel that RAI

deserves equal time here. You DO know that there is no shortage of

websites and message boards out there that are 100 percent pro-RAI,

and anyone is welcome to try those.

Yes, everyone SHOULD listen to Jody, and , and Elaine, and -

and listen GOOD!!!!! At least they still care enough to try to warn

others of the dangers involved.

An endo may spin you a lovely tale of the wonderment of RAI, but how

do you know if you will be one of the lucky ones who do well on it?

ARE there lucky ones, or have they just learned to accept a different

quality of life? How will you feel in 6 weeks, 6 months, 6 years?

If you do experience problems, will your endo be as attentive AFTER

the deed is done, as he is while talking you into it?

Thanks for your time,

Chris

------------

Diagnosed with Graves' May 1979

On tapazole since May 1979

Age 53 - menopause at 46

Currently on 6 mg/da Tap, 30 mg/da inderal

Latest testing:

8/6/02 -- FT4 - 0.99 (0.71 - 1.85), FT3 - 4.4 (2.2 - 4.0)

9/9/02 -- FT4 - 1.1 (0.7 - 2.2 ), FT3 - 5.4 (1.5 - 4.1)

9/30/02 -- FT4 - 1.3 (0.7 - 2.2), FT3 - 4.7 (1.5 - 4.1)

11/12/02--FT4 - 0.9 (0.7 - 2.2), FT3 - 3.6 (1.5 - 4-1)

----------------

> Hi and welcome.

>

> You've come to a great place to get information; I assume that

while yes,

> there is a strong anti-RAI bias here you can discriminate between

the

> solid info and the random rhetoric.

>

>

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Hi Fay and all -

I hope you don't push delete just yet.......

Can you tell me what is the difference between " solid info "

and " random rhetoric " and also, is there something wrong with there

being a strong anti-RAI bias here?

I just get a little confused when some people seem to feel that RAI

deserves equal time here. You DO know that there is no shortage of

websites and message boards out there that are 100 percent pro-RAI,

and anyone is welcome to try those.

Yes, everyone SHOULD listen to Jody, and , and Elaine, and -

and listen GOOD!!!!! At least they still care enough to try to warn

others of the dangers involved.

An endo may spin you a lovely tale of the wonderment of RAI, but how

do you know if you will be one of the lucky ones who do well on it?

ARE there lucky ones, or have they just learned to accept a different

quality of life? How will you feel in 6 weeks, 6 months, 6 years?

If you do experience problems, will your endo be as attentive AFTER

the deed is done, as he is while talking you into it?

Thanks for your time,

Chris

------------

Diagnosed with Graves' May 1979

On tapazole since May 1979

Age 53 - menopause at 46

Currently on 6 mg/da Tap, 30 mg/da inderal

Latest testing:

8/6/02 -- FT4 - 0.99 (0.71 - 1.85), FT3 - 4.4 (2.2 - 4.0)

9/9/02 -- FT4 - 1.1 (0.7 - 2.2 ), FT3 - 5.4 (1.5 - 4.1)

9/30/02 -- FT4 - 1.3 (0.7 - 2.2), FT3 - 4.7 (1.5 - 4.1)

11/12/02--FT4 - 0.9 (0.7 - 2.2), FT3 - 3.6 (1.5 - 4-1)

----------------

> Hi and welcome.

>

> You've come to a great place to get information; I assume that

while yes,

> there is a strong anti-RAI bias here you can discriminate between

the

> solid info and the random rhetoric.

>

>

Link to comment
Share on other sites

Can you tell me what is the difference between " solid info "

> and " random rhetoric " and also, is there something wrong with there

> being a strong anti-RAI bias here?

No, there is nothing wrong with that. I myself take whatever opportunity

I find to let people know what a poor option RAI is. Not having access to

the archives I can't comb them to find examples of what I term random

rhetoric (random, of course, implying that such instances are few and far

between). What I meant to say to newbies, kind of between the lines, is

that if stridency, no matter how much the object of the stridency has

earned it, is a turn-off, realize that you'll get solid info here. I hope

I'm clear here since I'm really tired but did want to address this.

BTW, I didn't mean to imply that RAI under any circumstances (the kind of

pre RAI prep and post RAI monitoring I mentioned) is good. Just that

since so many drs. like RAI chances are we patients may have to work with

them and we should be able to discriminate between competent (albeit

barely in some cases) drs. and the hopeless ones (like any endo who will

do RAI once TED presents itself, even if said dr. claims to employ

techniques that some studies may say will minimize risks like steroids.

That kind of a dr. is so incompetent I wouldn't even want him/her to

manage me on ATD's.) But again, I would never present RAI as the most

attractive option, or even in the running.

Take care, Fay

P.S. Not being able to send this right away, an analogy occured to me.

80% of endos recommend RAI. I can't believe that none of them have the

patients' best interests at heart, misguided though they may be. Now,

personally, when it comes to RAI for GD, I believe in total abstinence.

Once all the info is out, avoiding RAI is only logical, even if

precautions are taken before and after. But at least, if it has to be

done, I hope the endos " practice safe RAI. "

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

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Can you tell me what is the difference between " solid info "

> and " random rhetoric " and also, is there something wrong with there

> being a strong anti-RAI bias here?

No, there is nothing wrong with that. I myself take whatever opportunity

I find to let people know what a poor option RAI is. Not having access to

the archives I can't comb them to find examples of what I term random

rhetoric (random, of course, implying that such instances are few and far

between). What I meant to say to newbies, kind of between the lines, is

that if stridency, no matter how much the object of the stridency has

earned it, is a turn-off, realize that you'll get solid info here. I hope

I'm clear here since I'm really tired but did want to address this.

BTW, I didn't mean to imply that RAI under any circumstances (the kind of

pre RAI prep and post RAI monitoring I mentioned) is good. Just that

since so many drs. like RAI chances are we patients may have to work with

them and we should be able to discriminate between competent (albeit

barely in some cases) drs. and the hopeless ones (like any endo who will

do RAI once TED presents itself, even if said dr. claims to employ

techniques that some studies may say will minimize risks like steroids.

That kind of a dr. is so incompetent I wouldn't even want him/her to

manage me on ATD's.) But again, I would never present RAI as the most

attractive option, or even in the running.

Take care, Fay

P.S. Not being able to send this right away, an analogy occured to me.

80% of endos recommend RAI. I can't believe that none of them have the

patients' best interests at heart, misguided though they may be. Now,

personally, when it comes to RAI for GD, I believe in total abstinence.

Once all the info is out, avoiding RAI is only logical, even if

precautions are taken before and after. But at least, if it has to be

done, I hope the endos " practice safe RAI. "

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

Link to comment
Share on other sites

Can you tell me what is the difference between " solid info "

> and " random rhetoric " and also, is there something wrong with there

> being a strong anti-RAI bias here?

No, there is nothing wrong with that. I myself take whatever opportunity

I find to let people know what a poor option RAI is. Not having access to

the archives I can't comb them to find examples of what I term random

rhetoric (random, of course, implying that such instances are few and far

between). What I meant to say to newbies, kind of between the lines, is

that if stridency, no matter how much the object of the stridency has

earned it, is a turn-off, realize that you'll get solid info here. I hope

I'm clear here since I'm really tired but did want to address this.

BTW, I didn't mean to imply that RAI under any circumstances (the kind of

pre RAI prep and post RAI monitoring I mentioned) is good. Just that

since so many drs. like RAI chances are we patients may have to work with

them and we should be able to discriminate between competent (albeit

barely in some cases) drs. and the hopeless ones (like any endo who will

do RAI once TED presents itself, even if said dr. claims to employ

techniques that some studies may say will minimize risks like steroids.

That kind of a dr. is so incompetent I wouldn't even want him/her to

manage me on ATD's.) But again, I would never present RAI as the most

attractive option, or even in the running.

Take care, Fay

P.S. Not being able to send this right away, an analogy occured to me.

80% of endos recommend RAI. I can't believe that none of them have the

patients' best interests at heart, misguided though they may be. Now,

personally, when it comes to RAI for GD, I believe in total abstinence.

Once all the info is out, avoiding RAI is only logical, even if

precautions are taken before and after. But at least, if it has to be

done, I hope the endos " practice safe RAI. "

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

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Sorry Fay for misunderstanding what you meant by random rhetoric.

This brings up a chance to point something out though. Almost all

scientific studies are designed based on anecdotal evidence. Scientists

notice a pattern anecdotally, then they try to design a study controlling

all the variables except the subject that they are trying to test. While

anecdotal evidence should never be considered meaningless, there can be a

tendency to attribute things to one circumstance when the result might be

because of something often associated with that circumstance and not because

of the circumstance at all. That's why it's so important to try to control

all variables except the one being tested.

That said, the RAI studies aren't much better than anecdotal evidence, in my

opinion, because it's impossible for them to adequately control other

variables. They are worse, in fact, because since RAI has been " studied " it

gives an air of legitimacy to a study which is flawed.

Sorry again for misunderstanding Fay.

Take care,

dx & RAI 1987 (at age 24)

> rhetoric (random, of course, implying that such instances are few and far

> between).

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