Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 You have the prayers. Take Care Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 You have the prayers. Take Care Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Sitting here beside my sister, watching her sleep, and wishing we could all wake up from this horrible nightmare. She is peacefully sleeping, almost snoring, glad she is comfortable. First I will tell you about the birthday party. Paige, my mom, Jodie and my dad arrived around 4pm. Amy opened some presents and Paige was dressed in her best party dress. She helped Amy open presents. Amy got tired quite quickly so we closed the curtain around the bed and got the cake ready. Paige thought Amy was playing hide and seek. We all cried when Paige kissed Amy and said Happy Birthday Mommy. We all quietly sang to Amy. My mom spent the night but when Jeff was leaving with Paige - she cried and said " I don't want to leave mommy's house " . Heart wrenching........... They inserted the chest tube around 12:30 after another night of vomitting. She said the procedure was quite painful but the pain meds they have given her seem to have taken affect. They will now let the left lung drain for 24 hours and see if the lung inflates again - if it does than tomorrow they will insert the talc (which will hopefully scar to the chest wall so no fluid can come back). If it doesn't they will put a permanent chest tube drain. When the procedure was finishing up Amy's palliative care doctor (pain doc) came in to chat. He told Amy and I that they will be inserting the PIC line in today. They will do a 14 day trial with the nurtrition IV. He stressed that there are many high risks (lifethreatening) that can come along with this IV and that we all should be aware of that considering Amy has had almost every complication possible since surgery. If the IV works after 14 days, then that is great - we can talk about more chemo, going home, etc. If after 14 days there is no improvement, then there is nothing else that can be done. He said that the nutrition IV is the last straw, after that there is no leaf left unturned. So let us all keep praying that this nutrition IV works and that we get to bring Amy home. hugs and tears, Peta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Just letting you know that thoughts, hugs & prayers are with you & Amy. Hugs & Prayers, H --- petakerr2002 petakerr2002@...> wrote: > Sitting here beside my sister, watching her sleep, > and wishing we > could all wake up from this horrible nightmare. She > is peacefully > sleeping, almost snoring, glad she is comfortable. > > First I will tell you about the birthday party. > Paige, my mom, > Jodie and my dad arrived around 4pm. Amy opened > some presents and > Paige was dressed in her best party dress. She > helped Amy open > presents. Amy got tired quite quickly so we closed > the curtain > around the bed and got the cake ready. Paige > thought Amy was > playing hide and seek. We all cried when Paige > kissed Amy and said > Happy Birthday Mommy. We all quietly sang to Amy. > My mom spent the > night but when Jeff was leaving with Paige - she > cried and said " I > don't want to leave mommy's house " . Heart > wrenching........... > > They inserted the chest tube around 12:30 after > another night of > vomitting. She said the procedure was quite painful > but the pain > meds they have given her seem to have taken affect. > They will now > let the left lung drain for 24 hours and see if the > lung inflates > again - if it does than tomorrow they will insert > the talc (which > will hopefully scar to the chest wall so no fluid > can come back). > If it doesn't they will put a permanent chest tube > drain. > When the procedure was finishing up Amy's palliative > care doctor > (pain doc) came in to chat. He told Amy and I that > they will be > inserting the PIC line in today. They will do a 14 > day trial with > the nurtrition IV. He stressed that there are many > high risks > (lifethreatening) that can come along with this IV > and that we all > should be aware of that considering Amy has had > almost every > complication possible since surgery. If the IV > works after 14 days, > then that is great - we can talk about more chemo, > going home, etc. > If after 14 days there is no improvement, then there > is nothing else > that can be done. He said that the nutrition IV is > the last straw, > after that there is no leaf left unturned. > > So let us all keep praying that this nutrition IV > works and that we > get to bring Amy home. > > hugs and tears, > Peta > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Just letting you know that thoughts, hugs & prayers are with you & Amy. Hugs & Prayers, H --- petakerr2002 petakerr2002@...> wrote: > Sitting here beside my sister, watching her sleep, > and wishing we > could all wake up from this horrible nightmare. She > is peacefully > sleeping, almost snoring, glad she is comfortable. > > First I will tell you about the birthday party. > Paige, my mom, > Jodie and my dad arrived around 4pm. Amy opened > some presents and > Paige was dressed in her best party dress. She > helped Amy open > presents. Amy got tired quite quickly so we closed > the curtain > around the bed and got the cake ready. Paige > thought Amy was > playing hide and seek. We all cried when Paige > kissed Amy and said > Happy Birthday Mommy. We all quietly sang to Amy. > My mom spent the > night but when Jeff was leaving with Paige - she > cried and said " I > don't want to leave mommy's house " . Heart > wrenching........... > > They inserted the chest tube around 12:30 after > another night of > vomitting. She said the procedure was quite painful > but the pain > meds they have given her seem to have taken affect. > They will now > let the left lung drain for 24 hours and see if the > lung inflates > again - if it does than tomorrow they will insert > the talc (which > will hopefully scar to the chest wall so no fluid > can come back). > If it doesn't they will put a permanent chest tube > drain. > When the procedure was finishing up Amy's palliative > care doctor > (pain doc) came in to chat. He told Amy and I that > they will be > inserting the PIC line in today. They will do a 14 > day trial with > the nurtrition IV. He stressed that there are many > high risks > (lifethreatening) that can come along with this IV > and that we all > should be aware of that considering Amy has had > almost every > complication possible since surgery. If the IV > works after 14 days, > then that is great - we can talk about more chemo, > going home, etc. > If after 14 days there is no improvement, then there > is nothing else > that can be done. He said that the nutrition IV is > the last straw, > after that there is no leaf left unturned. > > So let us all keep praying that this nutrition IV > works and that we > get to bring Amy home. > > hugs and tears, > Peta > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Just letting you know that thoughts, hugs & prayers are with you & Amy. Hugs & Prayers, H --- petakerr2002 petakerr2002@...> wrote: > Sitting here beside my sister, watching her sleep, > and wishing we > could all wake up from this horrible nightmare. She > is peacefully > sleeping, almost snoring, glad she is comfortable. > > First I will tell you about the birthday party. > Paige, my mom, > Jodie and my dad arrived around 4pm. Amy opened > some presents and > Paige was dressed in her best party dress. She > helped Amy open > presents. Amy got tired quite quickly so we closed > the curtain > around the bed and got the cake ready. Paige > thought Amy was > playing hide and seek. We all cried when Paige > kissed Amy and said > Happy Birthday Mommy. We all quietly sang to Amy. > My mom spent the > night but when Jeff was leaving with Paige - she > cried and said " I > don't want to leave mommy's house " . Heart > wrenching........... > > They inserted the chest tube around 12:30 after > another night of > vomitting. She said the procedure was quite painful > but the pain > meds they have given her seem to have taken affect. > They will now > let the left lung drain for 24 hours and see if the > lung inflates > again - if it does than tomorrow they will insert > the talc (which > will hopefully scar to the chest wall so no fluid > can come back). > If it doesn't they will put a permanent chest tube > drain. > When the procedure was finishing up Amy's palliative > care doctor > (pain doc) came in to chat. He told Amy and I that > they will be > inserting the PIC line in today. They will do a 14 > day trial with > the nurtrition IV. He stressed that there are many > high risks > (lifethreatening) that can come along with this IV > and that we all > should be aware of that considering Amy has had > almost every > complication possible since surgery. If the IV > works after 14 days, > then that is great - we can talk about more chemo, > going home, etc. > If after 14 days there is no improvement, then there > is nothing else > that can be done. He said that the nutrition IV is > the last straw, > after that there is no leaf left unturned. > > So let us all keep praying that this nutrition IV > works and that we > get to bring Amy home. > > hugs and tears, > Peta > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Peta, I am glad that Amy got to enjoy her birthday party. My heart goes out to her. Sounds like they are doing all that they can think of to help Amy. I am Praying for her!!! And am so thankful that Amy has a sister like you to help her through this ordeal. I am Praying that you can keep up your strength to stay by her side. You are a wonderful sister to her. Ingrid > Sitting here beside my sister, watching her sleep, and wishing we > could all wake up from this horrible nightmare. She is peacefully > sleeping, almost snoring, glad she is comfortable. > > First I will tell you about the birthday party. Paige, my mom, > Jodie and my dad arrived around 4pm. Amy opened some presents and > Paige was dressed in her best party dress. She helped Amy open > presents. Amy got tired quite quickly so we closed the curtain > around the bed and got the cake ready. Paige thought Amy was > playing hide and seek. We all cried when Paige kissed Amy and said > Happy Birthday Mommy. We all quietly sang to Amy. My mom spent the > night but when Jeff was leaving with Paige - she cried and said " I > don't want to leave mommy's house " . Heart wrenching........... > > They inserted the chest tube around 12:30 after another night of > vomitting. She said the procedure was quite painful but the pain > meds they have given her seem to have taken affect. They will now > let the left lung drain for 24 hours and see if the lung inflates > again - if it does than tomorrow they will insert the talc (which > will hopefully scar to the chest wall so no fluid can come back). > If it doesn't they will put a permanent chest tube drain. > When the procedure was finishing up Amy's palliative care doctor > (pain doc) came in to chat. He told Amy and I that they will be > inserting the PIC line in today. They will do a 14 day trial with > the nurtrition IV. He stressed that there are many high risks > (lifethreatening) that can come along with this IV and that we all > should be aware of that considering Amy has had almost every > complication possible since surgery. If the IV works after 14 days, > then that is great - we can talk about more chemo, going home, etc. > If after 14 days there is no improvement, then there is nothing else > that can be done. He said that the nutrition IV is the last straw, > after that there is no leaf left unturned. > > So let us all keep praying that this nutrition IV works and that we > get to bring Amy home. > > hugs and tears, > Peta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Peta, I am glad that Amy got to enjoy her birthday party. My heart goes out to her. Sounds like they are doing all that they can think of to help Amy. I am Praying for her!!! And am so thankful that Amy has a sister like you to help her through this ordeal. I am Praying that you can keep up your strength to stay by her side. You are a wonderful sister to her. Ingrid > Sitting here beside my sister, watching her sleep, and wishing we > could all wake up from this horrible nightmare. She is peacefully > sleeping, almost snoring, glad she is comfortable. > > First I will tell you about the birthday party. Paige, my mom, > Jodie and my dad arrived around 4pm. Amy opened some presents and > Paige was dressed in her best party dress. She helped Amy open > presents. Amy got tired quite quickly so we closed the curtain > around the bed and got the cake ready. Paige thought Amy was > playing hide and seek. We all cried when Paige kissed Amy and said > Happy Birthday Mommy. We all quietly sang to Amy. My mom spent the > night but when Jeff was leaving with Paige - she cried and said " I > don't want to leave mommy's house " . Heart wrenching........... > > They inserted the chest tube around 12:30 after another night of > vomitting. She said the procedure was quite painful but the pain > meds they have given her seem to have taken affect. They will now > let the left lung drain for 24 hours and see if the lung inflates > again - if it does than tomorrow they will insert the talc (which > will hopefully scar to the chest wall so no fluid can come back). > If it doesn't they will put a permanent chest tube drain. > When the procedure was finishing up Amy's palliative care doctor > (pain doc) came in to chat. He told Amy and I that they will be > inserting the PIC line in today. They will do a 14 day trial with > the nurtrition IV. He stressed that there are many high risks > (lifethreatening) that can come along with this IV and that we all > should be aware of that considering Amy has had almost every > complication possible since surgery. If the IV works after 14 days, > then that is great - we can talk about more chemo, going home, etc. > If after 14 days there is no improvement, then there is nothing else > that can be done. He said that the nutrition IV is the last straw, > after that there is no leaf left unturned. > > So let us all keep praying that this nutrition IV works and that we > get to bring Amy home. > > hugs and tears, > Peta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Donna, Have you or your Onc consider other chemo regimens beside Oxi? My dad tolerated Avastin/Xeloda very well with minimal side effects -- his CEA slowly decreased and mets decreased. He had a very hard time with Oxi too. Best, Nickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Donna, Have you or your Onc consider other chemo regimens beside Oxi? My dad tolerated Avastin/Xeloda very well with minimal side effects -- his CEA slowly decreased and mets decreased. He had a very hard time with Oxi too. Best, Nickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 My heart goes out to you as I know how awful it is for you. Prayers for you and Amy. Sharon > Sitting here beside my sister, watching her sleep, and wishing we > could all wake up from this horrible nightmare. She is peacefully > sleeping, almost snoring, glad she is comfortable. > > First I will tell you about the birthday party. Paige, my mom, > Jodie and my dad arrived around 4pm. Amy opened some presents and > Paige was dressed in her best party dress. She helped Amy open > presents. Amy got tired quite quickly so we closed the curtain > around the bed and got the cake ready. Paige thought Amy was > playing hide and seek. We all cried when Paige kissed Amy and said > Happy Birthday Mommy. We all quietly sang to Amy. My mom spent the > night but when Jeff was leaving with Paige - she cried and said " I > don't want to leave mommy's house " . Heart wrenching........... > > They inserted the chest tube around 12:30 after another night of > vomitting. She said the procedure was quite painful but the pain > meds they have given her seem to have taken affect. They will now > let the left lung drain for 24 hours and see if the lung inflates > again - if it does than tomorrow they will insert the talc (which > will hopefully scar to the chest wall so no fluid can come back). > If it doesn't they will put a permanent chest tube drain. > When the procedure was finishing up Amy's palliative care doctor > (pain doc) came in to chat. He told Amy and I that they will be > inserting the PIC line in today. They will do a 14 day trial with > the nurtrition IV. He stressed that there are many high risks > (lifethreatening) that can come along with this IV and that we all > should be aware of that considering Amy has had almost every > complication possible since surgery. If the IV works after 14 days, > then that is great - we can talk about more chemo, going home, etc. > If after 14 days there is no improvement, then there is nothing else > that can be done. He said that the nutrition IV is the last straw, > after that there is no leaf left unturned. > > So let us all keep praying that this nutrition IV works and that we > get to bring Amy home. > > hugs and tears, > Peta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 My heart goes out to you as I know how awful it is for you. Prayers for you and Amy. Sharon > Sitting here beside my sister, watching her sleep, and wishing we > could all wake up from this horrible nightmare. She is peacefully > sleeping, almost snoring, glad she is comfortable. > > First I will tell you about the birthday party. Paige, my mom, > Jodie and my dad arrived around 4pm. Amy opened some presents and > Paige was dressed in her best party dress. She helped Amy open > presents. Amy got tired quite quickly so we closed the curtain > around the bed and got the cake ready. Paige thought Amy was > playing hide and seek. We all cried when Paige kissed Amy and said > Happy Birthday Mommy. We all quietly sang to Amy. My mom spent the > night but when Jeff was leaving with Paige - she cried and said " I > don't want to leave mommy's house " . Heart wrenching........... > > They inserted the chest tube around 12:30 after another night of > vomitting. She said the procedure was quite painful but the pain > meds they have given her seem to have taken affect. They will now > let the left lung drain for 24 hours and see if the lung inflates > again - if it does than tomorrow they will insert the talc (which > will hopefully scar to the chest wall so no fluid can come back). > If it doesn't they will put a permanent chest tube drain. > When the procedure was finishing up Amy's palliative care doctor > (pain doc) came in to chat. He told Amy and I that they will be > inserting the PIC line in today. They will do a 14 day trial with > the nurtrition IV. He stressed that there are many high risks > (lifethreatening) that can come along with this IV and that we all > should be aware of that considering Amy has had almost every > complication possible since surgery. If the IV works after 14 days, > then that is great - we can talk about more chemo, going home, etc. > If after 14 days there is no improvement, then there is nothing else > that can be done. He said that the nutrition IV is the last straw, > after that there is no leaf left unturned. > > So let us all keep praying that this nutrition IV works and that we > get to bring Amy home. > > hugs and tears, > Peta Quote Link to comment Share on other sites More sharing options...
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