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Donna,

Don't confuse oxaliplatin and xeloda. The xeloda is

similar to 5FU and is sometimes given in place of it

in regeimes. But it does not have the benefits of

oxaliplatin(which is a much harsher drug, but has

better results stats)

As to the hair, I think that has got to be one of the

worst for women & not much you can do about it. Though

it does grow back when the chemo is done. My only

suggestions are to 1)get a wig that's very like your

own hair or 2)develop a passion for hats or 3)start a

new style trend and have the rest shaved and wear it

with pride!

Most beauty shops are very good about helping to

choose wigs/hair pieces. The ACS also provides them

free. Ask at your infusion center for info.

Good Luck!

H

--- Donna Wilkinson wilkinsondjm@...> wrote:

> Okay girlfriends, help me out here.....ya'll

> said hair would thin. Mine was thinning and this

> weekend it seemed to just fall out. I just

> finished round 6 of 12. Does it just start now?

> Is it going to get worse? I need hair

> extensions to fill in the holes I think!!!

> arrrgggggg!!!!

> I hate this shit, I am so ready to quit chemo. I

> wonder if the doc will let me do xeloda? I

> think this oxy is probably great stuff if you can

> tolerate it, sounds like the xeloda has fewer side

> effects.

>

> hugs and prayers - donna

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Hi Donna,

about the hair, mine is so thin, keeps falling out, have been off chemo

for 5 weeks now and still falling out when i comb or wash it. so i

bought me a wig, ha ha. probely what you should do also. i don't wear

it around the house, but when i run out any where i put it on.

- hanky>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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You should all check with Cancer society, they give you a free wig...

Just saw something on tv about it recently. Good quality wigs too.

Jolene

hanky39 wrote:

> Hi Donna,

> about the hair, mine is so thin, keeps falling out, have been off chemo

> for 5 weeks now and still falling out when i comb or wash it. so i

> bought me a wig, ha ha. probely what you should do also. i don't wear

> it around the house, but when i run out any where i put it on.

> - hanky>

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

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You should all check with Cancer society, they give you a free wig...

Just saw something on tv about it recently. Good quality wigs too.

Jolene

hanky39 wrote:

> Hi Donna,

> about the hair, mine is so thin, keeps falling out, have been off chemo

> for 5 weeks now and still falling out when i comb or wash it. so i

> bought me a wig, ha ha. probely what you should do also. i don't wear

> it around the house, but when i run out any where i put it on.

> - hanky>

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

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Share on other sites

You should all check with Cancer society, they give you a free wig...

Just saw something on tv about it recently. Good quality wigs too.

Jolene

hanky39 wrote:

> Hi Donna,

> about the hair, mine is so thin, keeps falling out, have been off chemo

> for 5 weeks now and still falling out when i comb or wash it. so i

> bought me a wig, ha ha. probely what you should do also. i don't wear

> it around the house, but when i run out any where i put it on.

> - hanky>

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

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OMG. Don't tell me my hair is going to fall out. I am only on chemo number

3 tomorrow. Yikes. I am going to go looking for a wig next week after the

effects of the chemo wear off. I hate Oxaliplatin also. I feel horrible on

it. I know it is the cause of the stomach pain and that raw feeling I was

having (with fever) last week. I also have a form of neuropathy in my jaws -

I have lots of pain when I try to bite down on something no matter how soft

or small it is. It starts before I leave the oncologist's office. Let's all

pray that the Oxy is truly killling those stage 4 chemo cells. I hope it is

worth it.

In a message dated 9/6/2005 7:58:05 PM Pacific Standard Time,

wilkinsondjm@... writes:

thanks girls and ....hate to sound like a baby, I know some of you

have it much worse than I do, guess I am just getting depressed because I am

sick and tired of being sick and tired, am a female GM in a man's corporation

making me more insecure and ya'll have already told me that round 6 thru 12

will be tougher and I just don't want to do it . I'll quit whining. You are

right Ingrid, I was thinking the xeloda would replace the oxy. I remember

now.

I've read some of you have had pain in the abdomen. What about pain more

in the stomach area. Not a bathroom issue - no problem with anything I eat

going thru me!

Mine has been aching for a couple of days. Maybe I'll call the dr tomorrow.

I hope everyone is doing good today! hugs and prayers....

of Yahoo! Groups is subject to the Yahoo! Terms of Service.

---------------------------------

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Click here to donate to the Hurricane Katrina relief effort.

[Non-text portions of this message have been removed]

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OMG. Don't tell me my hair is going to fall out. I am only on chemo number

3 tomorrow. Yikes. I am going to go looking for a wig next week after the

effects of the chemo wear off. I hate Oxaliplatin also. I feel horrible on

it. I know it is the cause of the stomach pain and that raw feeling I was

having (with fever) last week. I also have a form of neuropathy in my jaws -

I have lots of pain when I try to bite down on something no matter how soft

or small it is. It starts before I leave the oncologist's office. Let's all

pray that the Oxy is truly killling those stage 4 chemo cells. I hope it is

worth it.

In a message dated 9/6/2005 7:58:05 PM Pacific Standard Time,

wilkinsondjm@... writes:

thanks girls and ....hate to sound like a baby, I know some of you

have it much worse than I do, guess I am just getting depressed because I am

sick and tired of being sick and tired, am a female GM in a man's corporation

making me more insecure and ya'll have already told me that round 6 thru 12

will be tougher and I just don't want to do it . I'll quit whining. You are

right Ingrid, I was thinking the xeloda would replace the oxy. I remember

now.

I've read some of you have had pain in the abdomen. What about pain more

in the stomach area. Not a bathroom issue - no problem with anything I eat

going thru me!

Mine has been aching for a couple of days. Maybe I'll call the dr tomorrow.

I hope everyone is doing good today! hugs and prayers....

of Yahoo! Groups is subject to the Yahoo! Terms of Service.

---------------------------------

---------------------------------

Click here to donate to the Hurricane Katrina relief effort.

[Non-text portions of this message have been removed]

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Donna, My hair started thinning pretty bad about half way through the

chemo too. You will not lose it all. I did'nt. It does come out a

lot. Seemed to slow down the off week between the chemo. It will grow

in when chemo is done. Mine has started growing in real good.

The Xeloda is a pill you take instead of the 5-FU. You will still

need the OXY. I think it is the OXY that causes the hair thinning.

The hair loss should start slowing down shortly. Just take it one day

at a time. This is only temporary. You are fighting for your life

with the chemo. Please just bear with this. Your hair will grow back.

You will not lose all of it. I fully understand your feelings. I too

cried when my hair came out. There is a end to the chemo. You will

get there. You are half way there. six more to go. Now the countdown

will go quicker. Stay strong. I am Praying for you. Ingrid

> Okay girlfriends, help me out here.....ya'll said hair would

thin. Mine was thinning and this weekend it seemed to just fall

out. I just finished round 6 of 12. Does it just start

now? Is it going to get worse? I need hair extensions to

fill in the holes I think!!! arrrgggggg!!!!

> I hate this shit, I am so ready to quit chemo. I wonder if the

doc will let me do xeloda? I think this oxy is probably great

stuff if you can tolerate it, sounds like the xeloda has fewer side

effects.

>

> hugs and prayers - donna

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Donna, My hair started thinning pretty bad about half way through the

chemo too. You will not lose it all. I did'nt. It does come out a

lot. Seemed to slow down the off week between the chemo. It will grow

in when chemo is done. Mine has started growing in real good.

The Xeloda is a pill you take instead of the 5-FU. You will still

need the OXY. I think it is the OXY that causes the hair thinning.

The hair loss should start slowing down shortly. Just take it one day

at a time. This is only temporary. You are fighting for your life

with the chemo. Please just bear with this. Your hair will grow back.

You will not lose all of it. I fully understand your feelings. I too

cried when my hair came out. There is a end to the chemo. You will

get there. You are half way there. six more to go. Now the countdown

will go quicker. Stay strong. I am Praying for you. Ingrid

> Okay girlfriends, help me out here.....ya'll said hair would

thin. Mine was thinning and this weekend it seemed to just fall

out. I just finished round 6 of 12. Does it just start

now? Is it going to get worse? I need hair extensions to

fill in the holes I think!!! arrrgggggg!!!!

> I hate this shit, I am so ready to quit chemo. I wonder if the

doc will let me do xeloda? I think this oxy is probably great

stuff if you can tolerate it, sounds like the xeloda has fewer side

effects.

>

> hugs and prayers - donna

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Share on other sites

I remember reading at some point that the pain or burning in the

stomach area is caused by the intestinal wall sloughing off. I think

it had something to do with the chemo attacking those cells in the

intestine. Those cells are a fast growing cells so chemo attacks

those cells too. I too had a lot of uncomfortable burning in my

stomach area while on chemo.

Yes, I fully understand that feeling of being sick and tired and

being tired of it. Just hang in there.

And I must bring this up to you. Round six to twelve in chemo does

not have to be the hardest. It can and might be just like the other

chemo rounds. All that I noticed that the more into chemo I got the

longer the tingling in hands and feet lasted. Everyone is different.

And every chemo round is different. The later rounds towards the end

of chemo do not have to be the roughest. It may just be like all the

others. What they mean is that your body gets weeker from the chemo

and it takes longer to get over the chemo. When it took maybe two to

three days to feel like yourself again may take a day or two longer.

Just relax. It may not be that bad for you. My last few chemo's were

just harder for me to get over the side effects. You will make it

through this. You have too!!! Stay strong and just realx and get the

rest you need. Stop trying to push yourself. Just baby yourself and

take care of yourself. Ingrid

> > Okay girlfriends, help me out here.....ya'll said hair would

> thin. Mine was thinning and this weekend it seemed to just fall

> out. I just finished round 6 of 12. Does it just start

> now? Is it going to get worse? I need hair extensions

to

> fill in the holes I think!!! arrrgggggg!!!!

> > I hate this shit, I am so ready to quit chemo. I wonder if the

> doc will let me do xeloda? I think this oxy is probably great

> stuff if you can tolerate it, sounds like the xeloda has fewer side

> effects.

> >

> > hugs and prayers - donna

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

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Share on other sites

Mom's hair got real thin, no oxy, she was on 5Fu/Leu then. ~~Dianna

Ingrid Lowe lowenco@...> wrote:Donna, My hair started thinning pretty

bad about half way through the

chemo too. You will not lose it all. I did'nt. It does come out a

lot. Seemed to slow down the off week between the chemo. It will grow

in when chemo is done. Mine has started growing in real good.

The Xeloda is a pill you take instead of the 5-FU. You will still

need the OXY. I think it is the OXY that causes the hair thinning.

The hair loss should start slowing down shortly. Just take it one day

at a time. This is only temporary. You are fighting for your life

with the chemo. Please just bear with this. Your hair will grow back.

You will not lose all of it. I fully understand your feelings. I too

cried when my hair came out. There is a end to the chemo. You will

get there. You are half way there. six more to go. Now the countdown

will go quicker. Stay strong. I am Praying for you. Ingrid

> Okay girlfriends, help me out here.....ya'll said hair would

thin. Mine was thinning and this weekend it seemed to just fall

out. I just finished round 6 of 12. Does it just start

now? Is it going to get worse? I need hair extensions to

fill in the holes I think!!! arrrgggggg!!!!

> I hate this shit, I am so ready to quit chemo. I wonder if the

doc will let me do xeloda? I think this oxy is probably great

stuff if you can tolerate it, sounds like the xeloda has fewer side

effects.

>

> hugs and prayers - donna

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

Link to comment
Share on other sites

Mom's hair got real thin, no oxy, she was on 5Fu/Leu then. ~~Dianna

Ingrid Lowe lowenco@...> wrote:Donna, My hair started thinning pretty

bad about half way through the

chemo too. You will not lose it all. I did'nt. It does come out a

lot. Seemed to slow down the off week between the chemo. It will grow

in when chemo is done. Mine has started growing in real good.

The Xeloda is a pill you take instead of the 5-FU. You will still

need the OXY. I think it is the OXY that causes the hair thinning.

The hair loss should start slowing down shortly. Just take it one day

at a time. This is only temporary. You are fighting for your life

with the chemo. Please just bear with this. Your hair will grow back.

You will not lose all of it. I fully understand your feelings. I too

cried when my hair came out. There is a end to the chemo. You will

get there. You are half way there. six more to go. Now the countdown

will go quicker. Stay strong. I am Praying for you. Ingrid

> Okay girlfriends, help me out here.....ya'll said hair would

thin. Mine was thinning and this weekend it seemed to just fall

out. I just finished round 6 of 12. Does it just start

now? Is it going to get worse? I need hair extensions to

fill in the holes I think!!! arrrgggggg!!!!

> I hate this shit, I am so ready to quit chemo. I wonder if the

doc will let me do xeloda? I think this oxy is probably great

stuff if you can tolerate it, sounds like the xeloda has fewer side

effects.

>

> hugs and prayers - donna

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Share on other sites

There were days I wished that I was by myself during the chemo. Then

I would of been able to get more rest. I was always too worried about

this or that for my husband and son. My husband was NOT to happy

about me taking the chemo. He did not support me through it. When I

would get real sick he would keep saying quit the chemo. I am glad I

stuck through it. But it was the ones here on the board that helped

me get through it. Just take it one day at a time. I know, that is

easier said then done. I am Praying for you to have the strength to

get through this. What ever you decide about the chemo is your

decision and all here will abide by your decisions. Ingrid

> > > Okay girlfriends, help me out here.....ya'll said hair

would

> > thin. Mine was thinning and this weekend it seemed to just fall

> > out. I just finished round 6 of 12. Does it just start

> > now? Is it going to get worse? I need hair extensions

> to

> > fill in the holes I think!!! arrrgggggg!!!!

> > > I hate this shit, I am so ready to quit chemo. I wonder if

the

> > doc will let me do xeloda? I think this oxy is probably

great

> > stuff if you can tolerate it, sounds like the xeloda has fewer

side

> > effects.

> > >

> > > hugs and prayers - donna

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > __________________________________________________

> > >

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