Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Dear Fay, What a great uplifting message. You should lurk a little less and respond a little more:). I have 5 sons and it is inspiring to know you have been fighting this and doing well for 11 years. God bless you- R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: (unknown)To: Breathe-Support Date: Friday, March 27, 2009, 5:15 PM Hi! I have been a lurker for more than a year. Somehow that makes me feel guilty, but I really didn't have much to say. Now I must tell Jack what a nice message he posted and how nice were the follow up messages. I have Jack beat by a few months--I turned 80 in August. I was diagnosed about 11 years ago by my family doctor who looked at a routine xray and knew what it was --- he sent me to a pulmo who had the CT stuff done and seemed okay, but promptly put me on huge doses of prednisone and all kinds of inhalants. When my family doctor heard that, he actually said "What the hell is he doing stuffing you with all that stuff? " So, to the Mayo clinic in sdale (I live in Mesa AZ) more tests, no meds at all except when I got my yearly cold in January. Then either a short course of pred or an antibiotic. The point I'm making is that little change for about nine years. Then increasing short of breath and have been on oxygen for about 2 years now andinceasing doses every few months. Now 3 or 4 to walk or to sleep and 2 or 3 to sit around. I feel decent most of the time but I have finally decreased my bridge playing, water aerobics and volunteer work at the library. Now I read, do crosswwords, jigsaw puzzles, . The reason I am finally getting around to writing is to mention that like most of you I had never heard of PF--stopped at the library on my way home from the doc. It was a wow experience. My mother was especially devastated, but so was my husband, four sons and their families. I slowly got used to the idea that I had a rotten disease, but since not too much happened for most of the years since I didn't think about it much. I do now because of the rotten oxygen hoses that are always catching on things. but just think! Most of do not have the horrid pain that so many people my age go through. I still feel lucky and I support what Jack and Brusce and so many others have said. Life is stillGOOD.By the way, I have an extra battery for a Sequel Eclipse, I would be glad to mail to any of you who use that machine and would like an extra battery--first to ask gets it. I loved it and we found it great for trips and full time use at home. I was really sorry to have to give it up. My name is Fay. I do read the entries and I really apppreciate what I havelearned from you all. Keep up you sage advice and good cheer. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 >Fay, I have the4 Sequel Eclipse and would love to have the battery.............you can e mailo me privately and we can talk if you like..it would keep me going longer....are you sure you cannot use it?...........Glad you are here, but sorry for the reason you are. Take care, Kathy......fl Pf.....4/07 Wtg for lung tx call > Hi Fay...welcome to our group! > Sounds like you've done really well in those 11 years. I turned 70 Aug 4. > I was dx (diagnosed) 3-06 and have been fairly stable until lately. I too am on O2...exertion and at night. > I read and do crosswords and jumbles and a lot of handwork. > Glad to have you with us Fay. > Keep on keepin' on > MamaSher; 70, IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > (unknown) > > > > Hi! I have been a lurker for more than a year. Somehow that makes me feel guilty, but I really didn't have much to say. Now I must tell Jack what a nice message he posted and how nice were the follow up messages. I have Jack beat by a few months--I turned 80 in August. I was diagnosed about 11 years ago by my family doctor who looked at a routine xray and knew what it was --- he sent me to a pulmo who had the CT stuff done and seemed okay, but promptly put me on huge doses of prednisone and all kinds of inhalants. When my family doctor heard that, he actually said " What the hell is he doing stuffing you with all that stuff? " So, to the Mayo clinic in sdale (I live in Mesa AZ) more tests, no meds at all except when I got my yearly cold in January. Then either a short course of pred or an antibiotic. The point I'm making is that little change for about nine years. Then increasing short of breath and have been on oxygen for about 2 years now and > inceasing doses every few months. Now 3 or 4 to walk or to sleep and 2 or 3 to sit around. I feel decent most of the time but I have finally decreased my bridge playing, water aerobics and volunteer work at the library. Now I read, do crosswwords, jigsaw puzzles, . The reason I am finally getting around to writing is to mention that like most of you I had never heard of PF--stopped at the library on my way home from the doc. It was a wow experience. My mother was especially devastated, but so was my husband, four sons and their families. I slowly got used to the idea that I had a rotten disease, but since not too much happened for most of the years since I didn't think about it much. I do now because of the rotten oxygen hoses that are always catching on things. but just think! Most of do not have the horrid pain that so many people my age go through. I still feel lucky and I support what Jack and Brusce and so many others have said. Life is still > GOOD. > > By the way, I have an extra battery for a Sequel Eclipse, I would be glad to mail to any of you who use that machine and would like an extra battery--first to ask gets it. I loved it and we found it great for trips and full time use at home. I was really sorry to have to give it up. > > My name is Fay. I do read the entries and I really apppreciate what I have > learned from you all. Keep up you sage advice and good cheer. Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 > >Fay, I have the4 Sequel Eclipse and would love to have the battery.............you can e mailo me privately and we can talk if you like..it would keep me going longer....are you sure you cannot use it?...........Glad you are here, but sorry for the reason you are. > > Take care, > Kathy......fl > Pf.....4/07 > Wtg for lung tx call > > Hi Fay...welcome to our group! > > Sounds like you've done really well in those 11 years. I turned 70 Aug 4. > > I was dx (diagnosed) 3-06 and have been fairly stable until lately. I too am on O2...exertion and at night. > > I read and do crosswords and jumbles and a lot of handwork. > > Glad to have you with us Fay. > > Keep on keepin' on > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > (unknown) > > > > > > > > Hi! I have been a lurker for more than a year. Somehow that makes me feel guilty, but I really didn't have much to say. Now I must tell Jack what a nice message he posted and how nice were the follow up messages. I have Jack beat by a few months--I turned 80 in August. I was diagnosed about 11 years ago by my family doctor who looked at a routine xray and knew what it was --- he sent me to a pulmo who had the CT stuff done and seemed okay, but promptly put me on huge doses of prednisone and all kinds of inhalants. When my family doctor heard that, he actually said " What the hell is he doing stuffing you with all that stuff? " So, to the Mayo clinic in sdale (I live in Mesa AZ) more tests, no meds at all except when I got my yearly cold in January. Then either a short course of pred or an antibiotic. The point I'm making is that little change for about nine years. Then increasing short of breath and have been on oxygen for about 2 years now and > > inceasing doses every few months. Now 3 or 4 to walk or to sleep and 2 or 3 to sit around. I feel decent most of the time but I have finally decreased my bridge playing, water aerobics and volunteer work at the library. Now I read, do crosswwords, jigsaw puzzles, . The reason I am finally getting around to writing is to mention that like most of you I had never heard of PF--stopped at the library on my way home from the doc. It was a wow experience. My mother was especially devastated, but so was my husband, four sons and their families. I slowly got used to the idea that I had a rotten disease, but since not too much happened for most of the years since I didn't think about it much. I do now because of the rotten oxygen hoses that are always catching on things. but just think! Most of do not have the horrid pain that so many people my age go through. I still feel lucky and I support what Jack and Brusce and so many others have said. Life is still > > GOOD. > > > > By the way, I have an extra battery for a Sequel Eclipse, I would be glad to mail to any of you who use that machine and would like an extra battery--first to ask gets it. I loved it and we found it great for trips and full time use at home. I was really sorry to have to give it up. > > > > My name is Fay. I do read the entries and I really apppreciate what I have > > learned from you all. Keep up you sage advice and good cheer. Thanks > > > Quote Link to comment Share on other sites More sharing options...
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