Re: I'm pregnant!

[Guest guest]

> And so excited! It's definitely a surprise, but a wonderful

one.

Yay! That's great Tori, I wish you and the best.

Val

[Guest guest]

Thanks to everyone for the good wishes & support.

Jody, do you think I should take it upon myself to cut my PTU? I asked my

endo about safe levels being between 200-300mg/day and he said that would be

a huge cut for me and could risk going too hyper and having a miscarriage.

He is adamant about waiting until my results come in before reducing my dose.

I called his nurse on Friday and she said my labs won't be in until after

Thanksgiving and my current dose is fine. I think I should be on no more

than 450 mg/day, maybe less.

I don't have any more info about PTU's effects on the TSI levels of the baby.

If I find anything else, I'll definitely pass it on.

is pampering me and I'm happily accepting it! I am kinda bummed that

I'll probably have to wait to redo my kitchen now, but I'm sure I'll have fun

with the nursery.

Thanks again,

Tori

In a message dated 11/24/2002 10:26:12 AM Pacific Standard Time,

luckystrike928@... writes:

> CONGRATS TORI!!!

>

> How exciting for you both. You are going to want to talk to the doctor

> very soon though about getting your ptu down to a min. of 300 mg a day, any

> higher puts the baby at risk from what I have read. Your pregnancy may

> help you to be able to accomplish this too! Look for I's post in the

> archives. She had 2 babies while on PTU and all is well with them both!

>

> That makes sense to me about what your doctor said about the ptu addressing

> the TSI antibodies in the baby. Be interested in hearing more when you

> have the time and more info.

>

> Put your feet up, let take care of you and enjoy this time in your

> life! Be happy and exicted and now you can do the nursery instead of

> knocking out other walls ... hehehehehe. I really am happy for you Tori!

>

> Jody

[Guest guest]

Hi Tori,

Congratulations on your pregnancy! PTU is safe in pregnancy if taken in doses

less than 300 mg daily. some sources say less than 200 mg daily. It is better

to be a bit hyperthyroid than be using too much PTU. Take care, Elaine

[Guest guest]

Congratulations Tori and :-)

All the best for your labs. You sound very positive so I hope it is as

good as you expect. We look forward to updates.

Cheers

Caroline

[Guest guest]

Hi Tori-

That's wonderful!!!! Congratulations!!!!!!!!!!

PTU does cross the placenta during pregnancy but they like it better because

not as much crosses as MMI (as well as less of a risk of birth defects).

They prefer it for breastfeeding too because of this reason (when the baby

is no longer at risk for birth defects).

It would be a very big sudden decrease to go down to 300 mg at this point.

Maybe your endo would let you go down to your previous dose before the labs

come in? Then it shouldn't be much longer that you're able to reduce

because of the immunosuppression of pregnancy. Call them tomorrow and ask.

I know that my endo is much more patient with me now that I'm finally

pregnant and I call him frequently doubting what he's doing. Maybe argue

with him that your FT4 was in the normal range. 600 mg is a large dose and

if your FT4 is in the normal range at 450 mg, it wouldn't be unreasonable to

stay there till your tests come in. Your baby is reliant upon you for

thyroid hormone for the 1st 11 weeks.

The good thing is that there is a lag time of a couple of weeks where the

amount of thyroid hormone is being used up so if you do become hypothyroid

on this 600 mg, it won't be for long. So don't panic unless he keeps you

there.

Again, congratulations!!!!!!!!

Take care,

dx & RAI 1987 (at age 24)

And so excited! It's definitely a surprise, but a wonderful one. At first,

[Guest guest]

Hi Tori-

That's wonderful!!!! Congratulations!!!!!!!!!!

PTU does cross the placenta during pregnancy but they like it better because

not as much crosses as MMI (as well as less of a risk of birth defects).

They prefer it for breastfeeding too because of this reason (when the baby

is no longer at risk for birth defects).

It would be a very big sudden decrease to go down to 300 mg at this point.

Maybe your endo would let you go down to your previous dose before the labs

come in? Then it shouldn't be much longer that you're able to reduce

because of the immunosuppression of pregnancy. Call them tomorrow and ask.

I know that my endo is much more patient with me now that I'm finally

pregnant and I call him frequently doubting what he's doing. Maybe argue

with him that your FT4 was in the normal range. 600 mg is a large dose and

if your FT4 is in the normal range at 450 mg, it wouldn't be unreasonable to

stay there till your tests come in. Your baby is reliant upon you for

thyroid hormone for the 1st 11 weeks.

The good thing is that there is a lag time of a couple of weeks where the

amount of thyroid hormone is being used up so if you do become hypothyroid

on this 600 mg, it won't be for long. So don't panic unless he keeps you

there.

Again, congratulations!!!!!!!!

Take care,

dx & RAI 1987 (at age 24)

And so excited! It's definitely a surprise, but a wonderful one. At first,

[Guest guest]

Hi Tori -

I'm so happy for you! Congratulations and definitely keep us

posted on your progress.

You might find a way to get set up to test your FT4 somewhere that

you could get the results faster. Call around and find out. A local

hospital lab may have FT4 testing on site, and can get the results to

you in a couple of hours, instead of having to wait so long. The

other testing is important also, but I hate to see you have to wait

that long for a simple FT4, which is the basic test to adjust your

meds by. Your doc should understand the importance of not only

frequent testing, but getting results in a timely manner. Just a

suggestion.

Best of luck to you, your family and your new little one!

Chris

[Guest guest]

Hi ,

Thanks for the advice. My endo has been great about asking me how frequently

I want to be monitored--last month, he had copies mailed to me within a week

without my having to ask. He ordered additional tests this time, coupled

with the pre-holiday chaos his office was in, it's taking longer than usual.

I understand that he wants to see the results before lowering my dose, but

I'm really running out of patience. I found out I was pregnant on Friday,

Nov 8 and called his office the following Monday to ask about lowering the

dose and his nurse said I'm fine and should wait until my appt on the 18th.

When I saw him on the 18th, he wanted to wait for the lab results. Now, the

lab results won't be in for another week! I called his office Friday and his

nurse told me again that I shouldn't worry, my current dose is fine. The

waiting is driving me nuts! He's a reasonable person and I doubt he'd have a

problem with lowering my dose now, but I can't ever get past his nurse to

talk to him. I'll either have to lower the dose myself or wait until after

Thanksgiving. Ugh! I've been on 600 mg/day for nearly 6 weeks now and

wasn't really that hyper then. I'd like to decrease it to at most 450mg/day

as soon as possible. I understand 's concern and would normally agree

with her, but think it would do more harm than good to wait another week.

It's sleepy time for me. Tomorrow, I'll post a note to I & see if she

has any suggestions.

Sweet dreams,

Tori (panicking over the idea of one child, I can't begin to imagine having

three!)

In a message dated 11/24/2002 7:48:55 PM Pacific Standard Time,

petri017@... writes:

> Tori --

>

> Congratulations!! You're in a for a whole new ride, being a parent!!

>

> Here's one of my little pregnancy tricks for getting bloodwork: I see my

> end every six weeks and he does a routine thyroid check. But I see my

> ob/gyn and whenever I ask, he'll do one too!

>

> So I never go more than a month without knowing where I am, and quite

> often, much less. I know it could be sort of duplicitous, but if you feel

> that your thyroid is not being checked frequently enough, ask your ob/gyn

> to monitor it, even as your endo is too. Both my docs practice in the same

> buildling and are colleagues/friends, so they're aware that I'm asking for

> pretty frequent bloodwork, but don't care. Some doctors do.

>

> As Elaine said, my endo seems to not be overly concerned with the potential

> for being a little bit hyper. From everything I've read about PTU (and it

> has its problems) I would err on the side of caution and try to get below

> that 300 level as quickly as possible -- but U. is also right: don't

> dramatically drop on your own. Get your endo on board with the plan to

> reduce your medication.

>

> Finally, (more advice I would take up Jody's suggestion and contact

> I. She is very level-headed and incredibly experienced, having gone

> through two pregnancies while on PTU. She could be a big help.

>

> Congratulations!!!!

>

> B (pregnant with baby #3, thyroid disease, and doing well, aside from

> the occasional bouts of 'can I handle three children' panic

>

[Guest guest]

Hi ,

Thanks for the advice. My endo has been great about asking me how frequently

I want to be monitored--last month, he had copies mailed to me within a week

without my having to ask. He ordered additional tests this time, coupled

with the pre-holiday chaos his office was in, it's taking longer than usual.

I understand that he wants to see the results before lowering my dose, but

I'm really running out of patience. I found out I was pregnant on Friday,

Nov 8 and called his office the following Monday to ask about lowering the

dose and his nurse said I'm fine and should wait until my appt on the 18th.

When I saw him on the 18th, he wanted to wait for the lab results. Now, the

lab results won't be in for another week! I called his office Friday and his

nurse told me again that I shouldn't worry, my current dose is fine. The

waiting is driving me nuts! He's a reasonable person and I doubt he'd have a

problem with lowering my dose now, but I can't ever get past his nurse to

talk to him. I'll either have to lower the dose myself or wait until after

Thanksgiving. Ugh! I've been on 600 mg/day for nearly 6 weeks now and

wasn't really that hyper then. I'd like to decrease it to at most 450mg/day

as soon as possible. I understand 's concern and would normally agree

with her, but think it would do more harm than good to wait another week.

It's sleepy time for me. Tomorrow, I'll post a note to I & see if she

has any suggestions.

Sweet dreams,

Tori (panicking over the idea of one child, I can't begin to imagine having

three!)

In a message dated 11/24/2002 7:48:55 PM Pacific Standard Time,

petri017@... writes:

> Tori --

>

> Congratulations!! You're in a for a whole new ride, being a parent!!

>

> Here's one of my little pregnancy tricks for getting bloodwork: I see my

> end every six weeks and he does a routine thyroid check. But I see my

> ob/gyn and whenever I ask, he'll do one too!

>

> So I never go more than a month without knowing where I am, and quite

> often, much less. I know it could be sort of duplicitous, but if you feel

> that your thyroid is not being checked frequently enough, ask your ob/gyn

> to monitor it, even as your endo is too. Both my docs practice in the same

> buildling and are colleagues/friends, so they're aware that I'm asking for

> pretty frequent bloodwork, but don't care. Some doctors do.

>

> As Elaine said, my endo seems to not be overly concerned with the potential

> for being a little bit hyper. From everything I've read about PTU (and it

> has its problems) I would err on the side of caution and try to get below

> that 300 level as quickly as possible -- but U. is also right: don't

> dramatically drop on your own. Get your endo on board with the plan to

> reduce your medication.

>

> Finally, (more advice I would take up Jody's suggestion and contact

> I. She is very level-headed and incredibly experienced, having gone

> through two pregnancies while on PTU. She could be a big help.

>

> Congratulations!!!!

>

> B (pregnant with baby #3, thyroid disease, and doing well, aside from

> the occasional bouts of 'can I handle three children' panic

>

[Guest guest]

Hi ,

Thanks for the advice. My endo has been great about asking me how frequently

I want to be monitored--last month, he had copies mailed to me within a week

without my having to ask. He ordered additional tests this time, coupled

with the pre-holiday chaos his office was in, it's taking longer than usual.

I understand that he wants to see the results before lowering my dose, but

I'm really running out of patience. I found out I was pregnant on Friday,

Nov 8 and called his office the following Monday to ask about lowering the

dose and his nurse said I'm fine and should wait until my appt on the 18th.

When I saw him on the 18th, he wanted to wait for the lab results. Now, the

lab results won't be in for another week! I called his office Friday and his

nurse told me again that I shouldn't worry, my current dose is fine. The

waiting is driving me nuts! He's a reasonable person and I doubt he'd have a

problem with lowering my dose now, but I can't ever get past his nurse to

talk to him. I'll either have to lower the dose myself or wait until after

Thanksgiving. Ugh! I've been on 600 mg/day for nearly 6 weeks now and

wasn't really that hyper then. I'd like to decrease it to at most 450mg/day

as soon as possible. I understand 's concern and would normally agree

with her, but think it would do more harm than good to wait another week.

It's sleepy time for me. Tomorrow, I'll post a note to I & see if she

has any suggestions.

Sweet dreams,

Tori (panicking over the idea of one child, I can't begin to imagine having

three!)

In a message dated 11/24/2002 7:48:55 PM Pacific Standard Time,

petri017@... writes:

> Tori --

>

> Congratulations!! You're in a for a whole new ride, being a parent!!

>

> Here's one of my little pregnancy tricks for getting bloodwork: I see my

> end every six weeks and he does a routine thyroid check. But I see my

> ob/gyn and whenever I ask, he'll do one too!

>

> So I never go more than a month without knowing where I am, and quite

> often, much less. I know it could be sort of duplicitous, but if you feel

> that your thyroid is not being checked frequently enough, ask your ob/gyn

> to monitor it, even as your endo is too. Both my docs practice in the same

> buildling and are colleagues/friends, so they're aware that I'm asking for

> pretty frequent bloodwork, but don't care. Some doctors do.

>

> As Elaine said, my endo seems to not be overly concerned with the potential

> for being a little bit hyper. From everything I've read about PTU (and it

> has its problems) I would err on the side of caution and try to get below

> that 300 level as quickly as possible -- but U. is also right: don't

> dramatically drop on your own. Get your endo on board with the plan to

> reduce your medication.

>

> Finally, (more advice I would take up Jody's suggestion and contact

> I. She is very level-headed and incredibly experienced, having gone

> through two pregnancies while on PTU. She could be a big help.

>

> Congratulations!!!!

>

> B (pregnant with baby #3, thyroid disease, and doing well, aside from

> the occasional bouts of 'can I handle three children' panic

>

[Guest guest]

Tori --

Congratulations!! You're in a for a whole new ride, being a parent!!

Here's one of my little pregnancy tricks for getting bloodwork: I see my end

every six weeks and he does a routine thyroid check. But I see my ob/gyn and

whenever I ask, he'll do one too!

So I never go more than a month without knowing where I am, and quite often,

much less. I know it could be sort of duplicitous, but if you feel that your

thyroid is not being checked frequently enough, ask your ob/gyn to monitor it,

even as your endo is too. Both my docs practice in the same buildling and are

colleagues/friends, so they're aware that I'm asking for pretty frequent

bloodwork, but don't care. Some doctors do.

As Elaine said, my endo seems to not be overly concerned with the potential for

being a little bit hyper. From everything I've read about PTU (and it has its

problems) I would err on the side of caution and try to get below that 300 level

as quickly as possible -- but U. is also right: don't dramatically drop

on your own. Get your endo on board with the plan to reduce your medication.

Finally, (more advice I would take up Jody's suggestion and contact I.

She is very level-headed and incredibly experienced, having gone through two

pregnancies while on PTU. She could be a big help.

Congratulations!!!!

B (pregnant with baby #3, thyroid disease, and doing well, aside from the

occasional bouts of 'can I handle three children' panic

[Guest guest]

In a message dated 11/25/2002 6:59:08 AM Pacific Standard Time,

cfyoung2@... writes:

> (OK group, I know I shouldn't be doing this because I have no experience

> with PTU or ATDs during pregnancy but I have to say) CONGRATULATIONS! I

> think you'll be really neat parents and my best wishes for smooth

> sailing, Fay

>

>

Thanks, Fay, that's so sweet of you to say. I hope we will be neat parents.

Peace,

Tori

[Guest guest]

Hi ,

Thank you! I'm so happy.

I think I've been at 600mg for too long. It's been nearly 6 weeks and I'm 7

weeks pregnant. I'm worried that lag time has already been used up. I told

the endo my concerns, but didn't push it because I didn't realize how long my

labs would take to come back. Now, I can't get past his nurse who tells me

600mg is okay and I shouldn't worry. I think I'll call her today and tell

her I'm lowering my dose. I know my endo will be okay with it.

Peace to you and little Ellie & Arthur,

Tori

In a message dated 11/24/2002 5:42:41 PM Pacific Standard Time,

jutek@... writes:

> Hi Tori-

>

> That's wonderful!!!! Congratulations!!!!!!!!!!

>

> PTU does cross the placenta during pregnancy but they like it better

> because

> not as much crosses as MMI (as well as less of a risk of birth defects).

> They prefer it for breastfeeding too because of this reason (when the baby

> is no longer at risk for birth defects).

>

> It would be a very big sudden decrease to go down to 300 mg at this point.

> Maybe your endo would let you go down to your previous dose before the labs

> come in? Then it shouldn't be much longer that you're able to reduce

> because of the immunosuppression of pregnancy. Call them tomorrow and ask.

> I know that my endo is much more patient with me now that I'm finally

> pregnant and I call him frequently doubting what he's doing. Maybe argue

> with him that your FT4 was in the normal range. 600 mg is a large dose and

> if your FT4 is in the normal range at 450 mg, it wouldn't be unreasonable

> to

> stay there till your tests come in. Your baby is reliant upon you for

> thyroid hormone for the 1st 11 weeks.

>

> The good thing is that there is a lag time of a couple of weeks where the

> amount of thyroid hormone is being used up so if you do become hypothyroid

> on this 600 mg, it won't be for long. So don't panic unless he keeps you

> there.

>

> Again, congratulations!!!!!!!!

>

> Take care,

>

>

> dx &RAI 1987 (at age 24)

[Guest guest]

(OK group, I know I shouldn't be doing this because I have no experience

with PTU or ATDs during pregnancy but I have to say) CONGRATULATIONS! I

think you'll be really neat parents and my best wishes for smooth

sailing, Fay

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

[Guest guest]

(OK group, I know I shouldn't be doing this because I have no experience

with PTU or ATDs during pregnancy but I have to say) CONGRATULATIONS! I

think you'll be really neat parents and my best wishes for smooth

sailing, Fay

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

[Guest guest]

Hi ,

You actually were quite comforting. If I snapped, it's out of frustration

with the endo's nurse, not you or anyone else on this board. It's hard to

convey the urgency I feel about the situation to the nurse, who's very

pleasant and promptly returns calls, but always says not to worry,

everything's ok. I feel like I'm talking to June Cleaver when she calls.

I tend to not deal well with anxiety. The panic attacks are becoming less

frequent and the nightmares are lessening, but I'm still on edge. Do you

have any suggestions? I think I'll make some chamomile tea and see if that

helps.

I'm going to try to call her once again and see what happens. Wish me luck!

-Tori

In a message dated 11/25/2002 12:06:18 PM Pacific Standard Time,

jutek@... writes:

> Hi Tori-

>

> It's very frustrating trying to get past the staff when you need to talk to

> the doctor.

>

> I was trying to be comforting but I don't think I phrased it the right way.

> More than anything, I just wanted you to know that if you're not having any

> seriously hypo symptoms yet, the baby should be OK so far because he/she is

> completely reliant on you for thyroid hormone until around 11 weeks. So if

> your thyroid levels are still normal, the baby's should be too. Most of

> the

> lasting damage at this stage is from very hypothyroid mothers.

>

> A real danger later if you're on such a large dose of PTU is that your

> circulating antibody level drops, the baby is euthyroid (by now making

> his/her own thyroid hormone) and is exposed to a large dose of PTU making

> him/her seriously hypothyroid. As long as your levels are still within

> normal limits up until 11 weeks, I don't think any lasting damage has

> occurred yet.

>

> Didn't want you to frantically worry because worry is especially bad for

> mom's-to-be with autoimmune disease. But you do need to get ahold of a

> real

> live doctor before the holidays.

>

> Make sure to tell us if you were successful talking to the endo using this

> med-lowering strategy. He seems like a reasonable guy but they do get busy

> and you need to make sure that he's aware of everything you're doing. The

> receptionists and nursing staff often run interference for the endos

> because

> they do have so many patients. But this is a time that you need his direct

> input.

>

> Take care,

>

>

> dx &RAI 1987 (at age 24)

>

>

[Guest guest]

Tori!!!

CONGRATULATIONS!!! That is wonderful and I wish all the best and happiness

you deserve!

in MA, USA

Diagnosed w/Graves, March 1997

So far refusing RAI Treatment and Surgery!!!

Off Meds Since June 2000

Surpressed TSH with somehwat normal thyroid levels

Waiting on labs taken 10/21/02.

[Guest guest]

Hi Tori-

The reduction to 450 mg/day isn't as great. I was thinking you wanted to

reduce to 300 mg/day without the endo's input.

One trick that works for me is that I threaten to change my dose unless the

endo tells me what he's thinking himself. The nurse is not able to answer

my questions and does like yours is doing. Try thinking up specific

questions only the doctor will be able to answer.

For example, I called last time and wanted to know why he was keeping my FT4

so low when all the literature says that it should be kept in the upper

normal range if anything. I told the nurse that I had no intention of

changing my thyroid meds radically and that the endo needed to tell me why

he didn't want to increase my meds such a small amount. The endo

exasperatedly called me the last time and what he told me seemed reasonable

so I didn't change it that time.

The one difference between us is that I have a physician at home to run

things by before I do anything. Plus, I tend to increase my meds more

conservatively than my endo does.

You also might do as suggested and call your OB because he/she will

also be concerned about your high PTU dose during pregnancy. OBs also tend

to be better about getting back to their patients faster. If you call

either doctor (or both), do it today. Don't wait till after the holidays.

I was worried that you were going to decrease to 300 mg without consulting

the endo or waiting for your labs. What worries me about that sudden of a

change is the risk for miscarriage. You're already at a risk for

miscarriage because of the thyroid hormone imbalance and autoimmune disease.

I just didn't want your risk to increase because of any sudden changes.

Take care,

dx & RAI 1987 (at age 24)

" I'd like to decrease it to at most 450mg/day

> as soon as possible. I understand 's concern and would normally

agree

> with her, but think it would do more harm than good to wait another week. "

[Guest guest]

Hi Tori-

It's very frustrating trying to get past the staff when you need to talk to

the doctor.

I was trying to be comforting but I don't think I phrased it the right way.

More than anything, I just wanted you to know that if you're not having any

seriously hypo symptoms yet, the baby should be OK so far because he/she is

completely reliant on you for thyroid hormone until around 11 weeks. So if

your thyroid levels are still normal, the baby's should be too. Most of the

lasting damage at this stage is from very hypothyroid mothers.

A real danger later if you're on such a large dose of PTU is that your

circulating antibody level drops, the baby is euthyroid (by now making

his/her own thyroid hormone) and is exposed to a large dose of PTU making

him/her seriously hypothyroid. As long as your levels are still within

normal limits up until 11 weeks, I don't think any lasting damage has

occurred yet.

Didn't want you to frantically worry because worry is especially bad for

mom's-to-be with autoimmune disease. But you do need to get ahold of a real

live doctor before the holidays.

Make sure to tell us if you were successful talking to the endo using this

med-lowering strategy. He seems like a reasonable guy but they do get busy

and you need to make sure that he's aware of everything you're doing. The

receptionists and nursing staff often run interference for the endos because

they do have so many patients. But this is a time that you need his direct

input.

Take care,

dx & RAI 1987 (at age 24)

> Hi ,

>

> Thank you! I'm so happy.

>

> I think I've been at 600mg for too long. It's been nearly 6 weeks and I'm

7

> weeks pregnant. I'm worried that lag time has already been used up. I

told

> the endo my concerns, but didn't push it because I didn't realize how long

my

> labs would take to come back. Now, I can't get past his nurse who tells

me

> 600mg is okay and I shouldn't worry. I think I'll call her today and tell

> her I'm lowering my dose. I know my endo will be okay with it.

>

> Peace to you and little Ellie & Arthur,

> Tori

[Guest guest]

Hi Tori-

I've been having occasional panic attacks because my sleep apnea is acting

up (the endo is keeping me hypo because of my BP problem). I'll stop

breathing for a while and wake up sputtering and terrified. The only times

in my life when I've had sleep apnea is when I'm hypo and my husband listens

to it at night and is pretty worried. He does not want this to go on too

long.

What I generally do is run outside when I panic (even when it's freezing)

and take some deep breaths and listen to the night noises. It's beautiful

here at night so that calms me down. Then I go back to bed with a good book

and read til I'm sleepy. I don't try to go back to sleep before then

because I'll just lay there all night if I do.

Nightmares!!!! I haven't had them frequently but had a doosey last night.

I dreamt that both of my babies died in utero because they were allowed to

stay in this malfunctioning body of mine. It was so real. Thankfully, it

was 5:30 am and almost time to get up anyways.

I wasn't thinking you were snapping at me. I know only too well the

frustration that goes along with not being right physically and pregnant.

And getting blown off to boot. It's not the treating physician or their

staff who has to live with the consequences of any mistakes they might make

during pregnancy.

Take care,

dx & RAI 1987 (at age 24)

> I tend to not deal well with anxiety. The panic attacks are becoming less

> frequent and the nightmares are lessening, but I'm still on edge. Do you

> have any suggestions? I think I'll make some chamomile tea and see if

that

> helps.

[Guest guest]

Hi ,

Sleep apea sounds terrifying, especially while you're pregnant. Isn't there

anything your doctor can suggest to help?

I like your idea of running outside during a panic attack. Everything is

peaceful here at night, we don't even have streetlights.

From the day I found out I was pregnant until I saw my endo and he reassured

me that pregnancy didn't equal disaster, I had nightmares every night.

Horrible nightmares about everything imagineable being wrong with the baby.

Since seeing my endo, the nightmares have become less frequent, but are still

horrible when they do come. Luckily, I usually forget my dreams or those

visions would plague me throughout the day as well. Also, he increased my

dose of Atenolol to 100mg/day and that has helped quite a bit.

Thanks for understanding,

Tori

In a message dated 11/25/2002 4:51:19 PM Pacific Standard Time,

jutek@... writes:

> Hi Tori-

>

> I've been having occasional panic attacks because my sleep apnea is acting

> up (the endo is keeping me hypo because of my BP problem). I'll stop

> breathing for a while and wake up sputtering and terrified. The only times

> in my life when I've had sleep apnea is when I'm hypo and my husband

> listens

> to it at night and is pretty worried. He does not want this to go on too

> long.

>

> What I generally do is run outside when I panic (even when it's freezing)

> and take some deep breaths and listen to the night noises. It's beautiful

> here at night so that calms me down. Then I go back to bed with a good

> book

> and read til I'm sleepy. I don't try to go back to sleep before then

> because I'll just lay there all night if I do.

>

> Nightmares!!!! I haven't had them frequently but had a doosey last night.

> I dreamt that both of my babies died in utero because they were allowed to

> stay in this malfunctioning body of mine. It was so real. Thankfully, it

> was 5:30 am and almost time to get up anyways.

>

> I wasn't thinking you were snapping at me. I know only too well the

> frustration that goes along with not being right physically and pregnant.

> And getting blown off to boot. It's not the treating physician or their

> staff who has to live with the consequences of any mistakes they might make

> during pregnancy.

>

> Take care,

>

>

[Guest guest]

Hi Tori-

HOORAY!!!! I'm so glad your endo got ahold of you and is lowering your dose

before the holidays!!!!!!!!!!! That you're only 5 weeks is even better than

7 weeks.

I've been hunting for 's vaccination schedule and can't remember if she

posted it here or to me personally. I'm thinking that it's on the list

somewhere because I can't find it in my files. I was desperately trying to

get pregnant when she posted and was depressed around that time so I don't

think I saved it (that was when it seemed everyone was getting pregnant

except me).

I'm going to pester her to post it again because there are several of us

that would like it. I feel bad that I didn't save it because I know she's

so busy.

Ugh! The sleep apnea. That idea Jody had was a good one. I'll have to

look into it.

Take care

dx & RAI 1987 (at age 24)

> Hi ,

>

> Sleep apea sounds terrifying, especially while you're pregnant. Isn't

there

> anything your doctor can suggest to help?

>

> I like your idea of running outside during a panic attack. Everything is

> peaceful here at night, we don't even have streetlights.

>

> From the day I found out I was pregnant until I saw my endo and he

reassured

> me that pregnancy didn't equal disaster, I had nightmares every night.

> Horrible nightmares about everything imagineable being wrong with the

baby.

> Since seeing my endo, the nightmares have become less frequent, but are

still

> horrible when they do come. Luckily, I usually forget my dreams or those

> visions would plague me throughout the day as well. Also, he increased my

> dose of Atenolol to 100mg/day and that has helped quite a bit.

>

> Thanks for understanding,

> Tori

[Guest guest]

Awesome this is great news.

Alyssa

[Guest guest]

Awesome this is great news.

Alyssa

[Guest guest]

Congrats Tori - this is wonderful news!! Hugs to you and hubby! You two must

be ecstatic!

I'm back home and wading through my mail and your message jumped out at me,

so I just had to reply!

Hope you're feeling OK so far! Take advantage of 's babying you while

you can

I'm pregnant!

And so excited! It's definitely a surprise, but a wonderful one. At first,

and I were really scared that the baby was in danger since my

thyroid

levels are still not quite normal, but my endo says everything should be

fine. He tested me for TSI and T3 in addition to the usual FT4 and TSH

without my having to ask for it and left orders at the lab so I can come in

for testing whenever I feel the need. It's so refreshing to finally have a

good doctor!

I am concerned that my dose of PTU is too high. My endo wants to wait for

the lab results before lowering the dose, but that will be another week,

maybe longer with the Thanksgiving holiday. My labs from Oct 24 showed a

FT4

level in the normal range with TSH still 0. At that point, he increased my

PTU from 450mg/day to 600mg/day. Should I lower the dose myself? I'm

really

scared of going hypo.

Doc told me some interesting facts about ATD's and pregancy that I thought

I'd share. It turns out PTU does cross the placenta after all, as does TSI.

The small amount of PTU that the baby receives actually treats the

antibodies

that cross. The reason PTU is preferred in pregnancy rather than MMI is MMI

is associated with a birth defect (can't remember the name of it) that PTU

is

not. This info is also in Dr. Arem's The Thyroid Solution if you want more

details.

Peace,

Tori <7 weeks pregnant and glowing with joy>