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Thank you for sharing! Have you applied for VA disability for your IPF? Have you had an Agent Orange exam? - Perhaps there is a connection since you served in Vietnam. Thanks, Ken R. (Vietnam vet '69)

Subject: Re: Veterans BenefitsTo: Breathe-Support Date: Wednesday, March 11, 2009, 6:27 AM

Hi Ken Yes the North Chicago, Illinois VA did the X-ray where they found a growth tumor in my right lung so they then did an HRCT to get a better look at it and found that in addition to emphysema they believed that I had IPF. They set me up with an open lung biopsy at the Milwaukee, Wisconsin VA to have the open lung biopsy and to have the tumor removed from my right lung at the same time. That's when I was diagnosed with IPF for sure. I was put on oxygen in May of 2008. I'm 10% disabled due to Tinnitus and I'm low income so I only pay $8.00 co-pay for my meds. The VA has treated me very well. Any more questions Please Ask. Tom > >> > I have been directed by other veterans to apply for medical benefits.� I was hesitant at first for the VA Hospitals and clinics have come under attack over the years for their less than professional treatment of our veterans.� But I went ahead and applied to see whether I would qualify.� As it turns out, I am entitled to medical coverage (Priority Group 7c)�for my net worth (for the moment) is at a level�high enough to�requires I have co-pays for my doctors visits and medications.� I currently am covered by a Blue Cross/Blue Shield plan which would then become my secondary to the VA.� I am quite skeptical that they would be able to deal with something like IPF but I have been told there have

specialized centers around the country that work closely with major teaching hospitals�to include�even the IPF Net.� I am wondering if any of you on this network currently receive your care through the Veterans Administration?� If you do, could you> relate> > your experiences?> > �> > Mike�> >>

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Hi Ken, I applied for a number of things for disability and was turned down. I

have asked for a judge to hear the case and haven't heard back yet, it's been

now about a year and a half. It takes sometimes two years I'm going to ask for

some more assistance. What have you asked for? Tom

> > >

> > > I have been directed by other veterans to apply for medical benefits.� I

was hesitant at first for the VA Hospitals and clinics have come under attack

over the years for their less than professional treatment of our veterans.�

But I went ahead and applied to see whether I would qualify.� As it turns out,

I am entitled to medical coverage (Priority Group 7c)�for my net worth (for

the moment) is at a level�high enough to�requires I have co-pays for my

doctors visits and medications.� I currently am covered by a Blue Cross/Blue

Shield plan which would then become my secondary to the VA.� I am quite

skeptical that they would be able to deal with something like IPF but I have

been told there have specialized centers around the country that work closely

with major teaching hospitals�to include�even the IPF Net.� I am wondering

if any of you on this network currently receive your care through the

> Veterans Administration?� If you do, could you

> > relate

> > > your experiences?

> > > �

> > > Mike�

> > >

> >

>

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Hi Tom!

So far I haven't asked for anything but I am putting some things together in my mind. I talked with a gentleman who was head of the VA in his area and he told me that you just keep applying and about the third or fourth try you will get disability. I strongly believe there is a connection between ILD and Agent Orange. I have never smoked or, to the best of my memory, been exposed to dangerous toxins. Also, I understand that there is a veterans advocacy organization that goes to bat for us. We should stay in touch and share what we learn. I never want to take advantage of the VA, but if we are ethically qualified for assistance I would be grateful to receive it. I am waiting for all the testing to be completed before I apply. What priority group are you in? I like your handle; one of my sons calls me Pops.

Ken

Subject: Re: Veterans BenefitsTo: Breathe-Support Date: Thursday, March 12, 2009, 1:09 AM

Hi Ken, I applied for a number of things for disability and was turned down. I have asked for a judge to hear the case and haven't heard back yet, it's been now about a year and a half. It takes sometimes two years I'm going to ask for some more assistance. What have you asked for? Tom > > >> > > I have been directed by other veterans to apply for medical benefits.� I was hesitant at first for the VA Hospitals and clinics have come under attack over the years for their less than professional treatment of our veterans.� But I went ahead and applied to see whether I would qualify.� As it turns out, I am entitled to medical coverage (Priority Group 7c)�for my net worth (for the moment) is at a level�high enough to�requires I have co-pays for my doctors visits and medications.� I currently am covered by a Blue Cross/Blue Shield plan which would then become my secondary to the VA.� I am quite skeptical

that they would be able to deal with something like IPF but I have been told there have specialized centers around the country that work closely with major teaching hospitals�to include�even the IPF Net.� I am wondering if any of you on this network currently receive your care through the> Veterans Administration?� If you do, could you> > relate> > > your experiences?> > > �> > > Mike�> > >> >>

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Hi Ken, I smoked for over 50 years although I was exposed to agent orange I

believe my pulmonary Dr has said he thinks I got this IPF from smoking. Since I

have been put on 10% disability I no longer have to fill out a means test so I

don't know what category I'm in now. I used to be I think a 7 or 8. I'm not sure

I've been in the system for 16 years and don't remember. I've always just paid

copay on my meds as I'm low income. I get treated in order when I get there in

line. I'm happy with what I do receive as the only insurance I have is Medicare

A and B. I'm a recovering alcoholic and my friends frequently call me pops so,

my name on yahoo is pops.1944 as I was born in 1944. Have a Great Thursday. I

have to go to the Cardiologist as this IPF has caused me some heart problems. I

have to get up early and have to get to bed, Good Night. Tom

> > > >

> > > > I have been directed by other veterans to apply for medical benefits.�

I was hesitant at first for the VA Hospitals and clinics have come under attack

over the years for their less than professional treatment of our veterans.�

But I went ahead and applied to see whether I would qualify.� As it turns out,

I am entitled to medical coverage (Priority Group 7c)�for my net worth (for

the moment) is at a level�high enough to�requires I have co-pays for my

doctors visits and medications.� I currently am covered by a Blue Cross/Blue

Shield plan which would then become my secondary to the VA.� I am quite

skeptical that they would be able to deal with something like IPF but I have

been told there have specialized centers around the country that work closely

with major teaching hospitals�to include�even the IPF Net.� I am wondering

if any of you on this network currently receive your care through the

> > Veterans Administration?� If you do, could you

> > > relate

> > > > your experiences?

> > > > �

> > > > Mike�

> > > >

> > >

> >

>

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Hi Ken, I smoked for over 50 years although I was exposed to agent orange I

believe my pulmonary Dr has said he thinks I got this IPF from smoking. Since I

have been put on 10% disability I no longer have to fill out a means test so I

don't know what category I'm in now. I used to be I think a 7 or 8. I'm not sure

I've been in the system for 16 years and don't remember. I've always just paid

copay on my meds as I'm low income. I get treated in order when I get there in

line. I'm happy with what I do receive as the only insurance I have is Medicare

A and B. I'm a recovering alcoholic and my friends frequently call me pops so,

my name on yahoo is pops.1944 as I was born in 1944. Have a Great Thursday. I

have to go to the Cardiologist as this IPF has caused me some heart problems. I

have to get up early and have to get to bed, Good Night. Tom

> > > >

> > > > I have been directed by other veterans to apply for medical benefits.�

I was hesitant at first for the VA Hospitals and clinics have come under attack

over the years for their less than professional treatment of our veterans.�

But I went ahead and applied to see whether I would qualify.� As it turns out,

I am entitled to medical coverage (Priority Group 7c)�for my net worth (for

the moment) is at a level�high enough to�requires I have co-pays for my

doctors visits and medications.� I currently am covered by a Blue Cross/Blue

Shield plan which would then become my secondary to the VA.� I am quite

skeptical that they would be able to deal with something like IPF but I have

been told there have specialized centers around the country that work closely

with major teaching hospitals�to include�even the IPF Net.� I am wondering

if any of you on this network currently receive your care through the

> > Veterans Administration?� If you do, could you

> > > relate

> > > > your experiences?

> > > > �

> > > > Mike�

> > > >

> > >

> >

>

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Thanks, Tom! I really appreciate your sharing. Though I'm far from an expert I know that most people who smoke don't get IPF. I would pursue the Agent Orange avenue.. I'm 65 so we are close in age, born 1943. VA is my only health care too. I do have Medicare Part A because there is no charge for it. I decided not to take part B because there is a cost to that and the VA covers all my medical. As you, I have received excellent care - Better than the private sector. I also pay $8.00 for meds. In addition I pay, at this point,$15.00 for a Dr. appt. and $50.00 for a specialist. If I am able to get disability I will pay nothing. I have had heart problems too. I am seeing a cardiologist. He is actually the one that is sending me for pulmonary testing. I think

we share many things but the cancer. Were they able to get all the lung cancer in your open lung surgery - I HOPE SO! Again, lets stay in touch and share what we learn regarding the VA and our condition. Ken

Subject: Re: Veterans BenefitsTo: Breathe-Support Date: Thursday, March 12, 2009, 4:58 AM

Hi Ken, I smoked for over 50 years although I was exposed to agent orange I believe my pulmonary Dr has said he thinks I got this IPF from smoking. Since I have been put on 10% disability I no longer have to fill out a means test so I don't know what category I'm in now. I used to be I think a 7 or 8. I'm not sure I've been in the system for 16 years and don't remember. I've always just paid copay on my meds as I'm low income. I get treated in order when I get there in line. I'm happy with what I do receive as the only insurance I have is Medicare A and B. I'm a recovering alcoholic and my friends frequently call me pops so, my name on yahoo is pops.1944 as I was born in 1944. Have a Great Thursday. I have to go to the Cardiologist as this IPF has caused me some heart problems. I have to get up early and have to get to bed, Good Night. Tom > > > >> > > > I have been directed by other veterans to apply for medical benefits.� I was hesitant at first for the VA Hospitals and clinics have come under attack over the years

for their less than professional treatment of our veterans.� But I went ahead and applied to see whether I would qualify.� As it turns out, I am entitled to medical coverage (Priority Group 7c)�for my net worth (for the moment) is at a level�high enough to�requires I have co-pays for my doctors visits and medications.� I currently am covered by a Blue Cross/Blue Shield plan which would then become my secondary to the VA.� I am quite skeptical that they would be able to deal with something like IPF but I have been told there have specialized centers around the country that work closely with major teaching hospitals�to include�even the IPF Net.� I am wondering if any of you on this network currently receive your care through the> > Veterans Administration?� If you do, could you> > > relate> > > > your experiences?> > > > �> > >

> Mike�> > > >> > >> >>

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Pink... Come to think of it, I guess military and vets are different benefits. My cobra card was military....

Death is a hard topic to talk about but once in awhile the subject comes up and most join in....after being on this board for so long there is nothing 'hard' to talk about anymore.

I refer to death as 'transition'. It's just a softer word for me.

Have a good one.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Veterans BenefitsTo: Breathe-Support@ yahoogroups. comDate: Sunday, March 8, 2009, 6:20 PM

I have been directed by other veterans to apply for medical benefits. I was hesitant at first for the VA Hospitals and clinics have come under attack over the years for their less than professional treatment of our veterans. But I went ahead and applied to see whether I would qualify. As it turns out, I am entitled to medical coverage (Priority Group 7c) for my net worth (for the moment) is at a level high enough to requires I have co-pays for my doctors visits and medications. I currently am covered by a Blue Cross/Blue Shield plan which would then become my secondary to the VA. I am quite skeptical that they would be able to deal with something like IPF but I have been told there have specialized centers around the country that work closely with major teaching hospitals to include even the IPF Net. I am wondering if any of you on this network currently receive your care through the Veterans Administration? If you do, could you relate your experiences?

Mike

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Pink... Come to think of it, I guess military and vets are different benefits. My cobra card was military....

Death is a hard topic to talk about but once in awhile the subject comes up and most join in....after being on this board for so long there is nothing 'hard' to talk about anymore.

I refer to death as 'transition'. It's just a softer word for me.

Have a good one.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Veterans BenefitsTo: Breathe-Support@ yahoogroups. comDate: Sunday, March 8, 2009, 6:20 PM

I have been directed by other veterans to apply for medical benefits. I was hesitant at first for the VA Hospitals and clinics have come under attack over the years for their less than professional treatment of our veterans. But I went ahead and applied to see whether I would qualify. As it turns out, I am entitled to medical coverage (Priority Group 7c) for my net worth (for the moment) is at a level high enough to requires I have co-pays for my doctors visits and medications. I currently am covered by a Blue Cross/Blue Shield plan which would then become my secondary to the VA. I am quite skeptical that they would be able to deal with something like IPF but I have been told there have specialized centers around the country that work closely with major teaching hospitals to include even the IPF Net. I am wondering if any of you on this network currently receive your care through the Veterans Administration? If you do, could you relate your experiences?

Mike

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Sher

the first time i read your word "transition" i thought it was an interesting way to put it

i have a tendency to be factual rather than flowery with my words, but i do like your terminology, ie Transition

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Veterans BenefitsTo: Breathe-Support Date: Thursday, March 12, 2009, 5:11 PM

Pink... Come to think of it, I guess military and vets are different benefits. My cobra card was military....

Death is a hard topic to talk about but once in awhile the subject comes up and most join in....after being on this board for so long there is nothing 'hard' to talk about anymore.

I refer to death as 'transition' . It's just a softer word for me.

Have a good one.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Veterans BenefitsTo: Breathe-Support@ yahoogroups. comDate: Sunday, March 8, 2009, 6:20 PM

I have been directed by other veterans to apply for medical benefits. I was hesitant at first for the VA Hospitals and clinics have come under attack over the years for their less than professional treatment of our veterans. But I went ahead and applied to see whether I would qualify. As it turns out, I am entitled to medical coverage (Priority Group 7c) for my net worth (for the moment) is at a level high enough to requires I have co-pays for my doctors visits and medications. I currently am covered by a Blue Cross/Blue Shield plan which would then become my secondary to the VA. I am quite skeptical that they would be able to deal with something like IPF but I have been told there have specialized centers around the country that work closely with major teaching hospitals to include even the IPF Net. I am wondering if any of you on this network currently receive your care

through the Veterans Administration? If you do, could you relate your experiences?

Mike

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Sher

the first time i read your word "transition" i thought it was an interesting way to put it

i have a tendency to be factual rather than flowery with my words, but i do like your terminology, ie Transition

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Veterans BenefitsTo: Breathe-Support Date: Thursday, March 12, 2009, 5:11 PM

Pink... Come to think of it, I guess military and vets are different benefits. My cobra card was military....

Death is a hard topic to talk about but once in awhile the subject comes up and most join in....after being on this board for so long there is nothing 'hard' to talk about anymore.

I refer to death as 'transition' . It's just a softer word for me.

Have a good one.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Veterans BenefitsTo: Breathe-Support@ yahoogroups. comDate: Sunday, March 8, 2009, 6:20 PM

I have been directed by other veterans to apply for medical benefits. I was hesitant at first for the VA Hospitals and clinics have come under attack over the years for their less than professional treatment of our veterans. But I went ahead and applied to see whether I would qualify. As it turns out, I am entitled to medical coverage (Priority Group 7c) for my net worth (for the moment) is at a level high enough to requires I have co-pays for my doctors visits and medications. I currently am covered by a Blue Cross/Blue Shield plan which would then become my secondary to the VA. I am quite skeptical that they would be able to deal with something like IPF but I have been told there have specialized centers around the country that work closely with major teaching hospitals to include even the IPF Net. I am wondering if any of you on this network currently receive your care

through the Veterans Administration? If you do, could you relate your experiences?

Mike

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Hi Ken, Good to hear from you. I went to the Cardiologist today and what they

found in my Echo was that I have a leak in my left ventricle. The Dr is just

going to watch it with annual Echos as he said my heart still seems to be pretty

strong. He doesn't know why my blood pressure is so low tho. Today it was 100/57

and I was kind of light headed. It has been as low as 87/48 when I've been there

and it was recorded. I have to take some blood tests and see him in 5 months.

Yes they got all the tumor and I have only some other nodules in my breasts that

they don't seem to be worried about right now they say it's not cancer now, they

check it with blood tests and ultra sounds. As far as the IPF is concerned I was

exposed to jet fuel for 17 years when I worked for American Airlines before

going on disability. Also other aircraft chemicals. So, they know that and I

think it would be hard for me to claim against agent orange. I could still try

if what I have in the works doesn't go through. I took the Medicare because I

wasn't sure at the time that I was going to stay with the V.A. and SSA said if I

didn't take it when it was offered then it would be more at a later date if I

decided to take it like maybe $300.00 or more a month. So, they scared me into

taking it. Have a Great Day, Tom

> > > > >

> > > > > I have been directed by other veterans to apply for medical

benefits.� I was hesitant at first for the VA Hospitals and clinics have come

under attack over the years for their less than professional treatment of our

veterans.� But I went ahead and applied to see whether I would qualify.� As

it turns out, I am entitled to medical coverage (Priority Group 7c)�for my net

worth (for the moment) is at a level�high enough to�requires I have co-pays

for my doctors visits and medications.� I currently am covered by a Blue

Cross/Blue Shield plan which would then become my secondary to the VA.� I am

quite skeptical that they would be able to deal with something like IPF but I

have been told there have specialized centers around the country that work

closely with major teaching hospitals�to include�even the IPF Net.� I am

wondering if any of you on this network currently receive your care through the

> > > Veterans Administration?� If you do, could you

> > > > relate

> > > > > your experiences?

> > > > > �

> > > > > Mike�

> > > > >

> > > >

> > >

> >

>

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