Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi, The American Association of Blood Banks hasn't vetoed us yet, but most local blood banks will not accept donors who have an autoimmune disease. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi, The American Association of Blood Banks hasn't vetoed us yet, but most local blood banks will not accept donors who have an autoimmune disease. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi, The American Association of Blood Banks hasn't vetoed us yet, but most local blood banks will not accept donors who have an autoimmune disease. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Thank's Jody, that only makes sense. So we can when we are in remission and have no antibodies? But how are we going to know that we don't have any once we reach remission - I mean a year or two into remission, are we still getting antibodies tested? Probably not. So maybe giving blood is just not in the future at all? Thanks, Pam -- Re: can we give blood? Hi Pam, When 9/11 happened I called the Red Cross and was told we can not give blood if we have antibodies for graves in our system. That is the ruling from the Red Cross WNY headquarters in Buffalo. Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Thank's Jody, that only makes sense. So we can when we are in remission and have no antibodies? But how are we going to know that we don't have any once we reach remission - I mean a year or two into remission, are we still getting antibodies tested? Probably not. So maybe giving blood is just not in the future at all? Thanks, Pam -- Re: can we give blood? Hi Pam, When 9/11 happened I called the Red Cross and was told we can not give blood if we have antibodies for graves in our system. That is the ruling from the Red Cross WNY headquarters in Buffalo. Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi All, I worried on this one for a long time, and one day realized the REAL answer. If you were laying in a hospital, and so bad off you needed blood...and they came up with a pint...but said " this blood came from a person with Graves' disease, but it is perfectly SAFE because...yada, yada, yada.... " ( what ever the reason ) Would YOU want that blood inside of YOU ??? I will NEVER for the rest of my life ever take a chance giving this to someone else. -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi All, I worried on this one for a long time, and one day realized the REAL answer. If you were laying in a hospital, and so bad off you needed blood...and they came up with a pint...but said " this blood came from a person with Graves' disease, but it is perfectly SAFE because...yada, yada, yada.... " ( what ever the reason ) Would YOU want that blood inside of YOU ??? I will NEVER for the rest of my life ever take a chance giving this to someone else. -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 That is an _excellent_ point Pam! Well put. I admit I never thought of it that way before, thanks for the perspective! Re: can we give blood? > Hi All, > > I worried on this one for a long time, and one day realized the REAL answer. > > If you were laying in a hospital, and so bad off you needed blood...and they > came up with a pint...but said " this blood came from a person with Graves' > disease, but it is perfectly SAFE because...yada, yada, yada.... " ( what > ever the reason ) > > Would YOU want that blood inside of YOU ??? > > I will NEVER for the rest of my life ever take a chance giving this to > someone else. > > -Pam L- > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi Pam, you are so right - it gave me a sick to my stomach feeling reading what you wrote. Just think of all the people out there who don't know they have an autoimmune disease but donate blood. I guess it's a good thing I was not able to donate except that one time due to the anemia and slight fever. Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Pam B and , Can you tell I put a lot of thought into that one. Another sure sign of a thyroid geek. :-) -Pam L - who is still getting in a LOT of walking...it's good for me, right ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Wake me when it's over wrote: > > I worried on this one for a long time, and one day realized the REAL answer. > > If you were laying in a hospital, and so bad off you needed blood...and they > came up with a pint...but said " this blood came from a person with Graves' > disease, but it is perfectly SAFE because...yada, yada, yada.... " ( what > ever the reason ) > > Would YOU want that blood inside of YOU ??? Sure most of the time you need blood any compatible blood is better than the alternative. Fortunately the act of giving is less pressured. Is it still bought in the US? As it has always been donated here, at one point it was even being donated and sold abroad, but I guess since mad cow disease demand will have dropped for british blood. Presumably if Graves' is viral in nature it might be spread, but if it genuinely is autoimmune then the blood would be as safe as anyone elses (apart from the Proprylthiouracil in mine, which won't last long in any case). Since antibodies for autoimmune thyroid disease are prevelant in 10% of women, and quite a few undiagnosed hyper must be donors, presumably any significant risk would show up as high rates of autoimmune disorders in recipients of blood transfusions? They must have looked at the epidemiology of recipients - it must be a rich vein of medical information on what is contagious! Of course " blood " donations are pretty complex things these days, so the various treatments, and extraction of components, and the recipients existing condition, must all complicate the figures.... Meantime, I don't think they will want mine, but they are welcome to it in a tight squeeze. Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Wake me when it's over wrote: > > I worried on this one for a long time, and one day realized the REAL answer. > > If you were laying in a hospital, and so bad off you needed blood...and they > came up with a pint...but said " this blood came from a person with Graves' > disease, but it is perfectly SAFE because...yada, yada, yada.... " ( what > ever the reason ) > > Would YOU want that blood inside of YOU ??? Sure most of the time you need blood any compatible blood is better than the alternative. Fortunately the act of giving is less pressured. Is it still bought in the US? As it has always been donated here, at one point it was even being donated and sold abroad, but I guess since mad cow disease demand will have dropped for british blood. Presumably if Graves' is viral in nature it might be spread, but if it genuinely is autoimmune then the blood would be as safe as anyone elses (apart from the Proprylthiouracil in mine, which won't last long in any case). Since antibodies for autoimmune thyroid disease are prevelant in 10% of women, and quite a few undiagnosed hyper must be donors, presumably any significant risk would show up as high rates of autoimmune disorders in recipients of blood transfusions? They must have looked at the epidemiology of recipients - it must be a rich vein of medical information on what is contagious! Of course " blood " donations are pretty complex things these days, so the various treatments, and extraction of components, and the recipients existing condition, must all complicate the figures.... Meantime, I don't think they will want mine, but they are welcome to it in a tight squeeze. Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Wake me when it's over wrote: > > I worried on this one for a long time, and one day realized the REAL answer. > > If you were laying in a hospital, and so bad off you needed blood...and they > came up with a pint...but said " this blood came from a person with Graves' > disease, but it is perfectly SAFE because...yada, yada, yada.... " ( what > ever the reason ) > > Would YOU want that blood inside of YOU ??? Sure most of the time you need blood any compatible blood is better than the alternative. Fortunately the act of giving is less pressured. Is it still bought in the US? As it has always been donated here, at one point it was even being donated and sold abroad, but I guess since mad cow disease demand will have dropped for british blood. Presumably if Graves' is viral in nature it might be spread, but if it genuinely is autoimmune then the blood would be as safe as anyone elses (apart from the Proprylthiouracil in mine, which won't last long in any case). Since antibodies for autoimmune thyroid disease are prevelant in 10% of women, and quite a few undiagnosed hyper must be donors, presumably any significant risk would show up as high rates of autoimmune disorders in recipients of blood transfusions? They must have looked at the epidemiology of recipients - it must be a rich vein of medical information on what is contagious! Of course " blood " donations are pretty complex things these days, so the various treatments, and extraction of components, and the recipients existing condition, must all complicate the figures.... Meantime, I don't think they will want mine, but they are welcome to it in a tight squeeze. Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 LOL Pam! I'll fess up to joining the thyroid geek club! Got a whole stack of articles I just printed off MD Consult. I'm brining them for reading when I'm at my MIL's for Thanksgiving. Gotta have something to do while I'm ignoring them all fighting Yes, my doc keeps telling me how good the walking is for me, too. Especially my bones. Haven't done it lately, though. I'm hoping housecleaning is at least making up fo some of that lost walking! Re: can we give blood? > Pam B and , > > Can you tell I put a lot of thought into that one. Another sure sign of a > thyroid geek. :-) > > -Pam L - who is still getting in a LOT of walking...it's good for me, right > ? > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 LOL Pam! I'll fess up to joining the thyroid geek club! Got a whole stack of articles I just printed off MD Consult. I'm brining them for reading when I'm at my MIL's for Thanksgiving. Gotta have something to do while I'm ignoring them all fighting Yes, my doc keeps telling me how good the walking is for me, too. Especially my bones. Haven't done it lately, though. I'm hoping housecleaning is at least making up fo some of that lost walking! Re: can we give blood? > Pam B and , > > Can you tell I put a lot of thought into that one. Another sure sign of a > thyroid geek. :-) > > -Pam L - who is still getting in a LOT of walking...it's good for me, right > ? > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 HI, I do donate blood. My endorinolgist said ok, and the blood bank always has to validate that it is ok, as long as my thyroid levels are normal through med's it is ok to donate, HOWEVER, donating can really leave you tired and worn out, so don't do it unless your really feeling well. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I had RAI, april 2001, never heard anything about antibodies till this board, I haven't had a chance to ask my newer endo about this, but the blood bank that I go to says I can give blood. Jen Quote Link to comment Share on other sites More sharing options...
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