Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Hi Jane: You will find lots of support here. I also have stage 4 or metastatic colon cancer (liver and lymphs). I had a colon and liver resection in May and took months to recover due to an abscess on the liver following surgery. Because of the abscess, my chemo was delayed and I just began round one last Wednesday. My port a cath was inserted Wednesday morning and I went directly for chemo. I started on oxaliplatin and 5Fu and they intend to add Avastin on the third round (too early now because my liver still needs to heal). I am not familiar with Erbitux (is that Avastin?). How are you doing with your chemo? It sounds like it is going well if the liver mets are gone. I assume you did not have a liver resection. Hang in there. I am trying to do so but it is hard even with only one chemo treatment under my belt. I have been so sick since Friday (day 3). Do you have 12 total chemo treatments? I know it is hard to go through this even with a family but it must be more difficult with only 2 girls. I have 2 boys and a husband and I feel so guilty that I cannot do more with the boys. We are trying to fly to Carmel this Wednesday and I am determined to go so the boys will have been somewhere this summer. Take care. in California Hi, I am Jane, a single mom with two teenage girls. I was diagnosed with colon cancer in 2003 when I was 43yo. I had surgery and was diagnosed with stage IIB - no lymph node involvement. I went thru a round of chemo and scans showed all was clear. Last Oct. my hemoglobin was very low and the dr. thought I had bleeding somewhere so we started testing. The scans showed mets in my liver plus I had a tumor in my duodenum. The dr. says I am stage IV. I am again going thru chemo. I think I have about 6 weeks left. I receive 5FU and Oxaliplatin. I did receive erbitux also for about 4 months. Recent scans show the liver is clear. I will have to have another endoscope done to check on the duodenum tumor. My mom had colon cancer at 56yo. She is still going strong at 87. We think my grandfather may have had duodenal cancer but we are not sure. Chemo is difficult but when I start hearing others stories and their difficulties it makes me feel stronger and that I am not alone. Cancer causes so much more then just health problems. But I take it one day at a time, one step at a time. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 --- brencolinmom@... wrote: > > Hi Jane: > You will find lots of support here. I also have > stage 4 or metastatic colon > cancer (liver and lymphs). I had a colon and liver > resection in May and > took months to recover due to an abscess on the > liver following surgery. > Because of the abscess, my chemo was delayed and I > just began round one last > Wednesday. My port a cath was inserted Wednesday > morning and I went directly for > chemo. I started on oxaliplatin and 5Fu and they > intend to add Avastin on the > third round (too early now because my liver still > needs to heal). I am not > familiar with Erbitux (is that Avastin?). > How are you doing with your chemo? It sounds like > it is going well if the > liver mets are gone. I assume you did not have a > liver resection. Hang in > there. I am trying to do so but it is hard even > with only one chemo treatment > under my belt. I have been so sick since Friday > (day 3). Do you have 12 > total chemo treatments? > I know it is hard to go through this even with a > family but it must be more > difficult with only 2 girls. I have 2 boys and a > husband and I feel so > guilty that I cannot do more with the boys. We are > trying to fly to Carmel this > Wednesday and I am determined to go so the boys will > have been somewhere this > summer. > Take care. > in California > > Hi, I am Jane, a single mom with two teenage girls. > I was diagnosed > with colon cancer in 2003 when I was 43yo. I had > surgery and was > diagnosed with stage IIB - no lymph node > involvement. I went thru a > round of chemo and scans showed all was clear. Last > Oct. my hemoglobin > was very low and the dr. thought I had bleeding > somewhere so we started > testing. The scans showed mets in my liver plus I > had a tumor in my > duodenum. The dr. says I am stage IV. I am again > going thru chemo. I > think I have about 6 weeks left. I receive 5FU and > Oxaliplatin. I did > receive erbitux also for about 4 months. Recent > scans show the liver is > clear. I will have to have another endoscope done > to check on the > duodenum tumor. My mom had colon cancer at 56yo. > She is still going > strong at 87. We think my grandfather may have had > duodenal cancer but > we are not sure. Chemo is difficult but when I start > hearing others > stories and their difficulties it makes me feel > stronger and that I am > not alone. Cancer causes so much more then just > health problems. But I > take it one day at a time, one step at a time. > > Jane > > hello, my name is darren i was diagnosed with cancer 3yrs ago, first in duodonem had surgery had the tumor removed done 6 months of chemo, was going good for a year scans clear and everything. then in dec. of this past year, i had some blood in the stool got checked i had rectal cancer. got operated on, removed the tumer, and now have a colostomy. doc says it is temporary but living with it.i went through 7 weeks of radiation in march and april, got a month break and started chemo again. so far tests are all negative and doing good. i do get sick at times from the chemo 5fu but handling it. i finish up in november and if tests all good in the future can get my colostomy reversed. but doing good so far. i wish everyone all the luck in the world i have learned it is not the end of the world cause i had or have cancer. i have learned to live with it, even though it isnt the easiest thing in the world. but handling it. darren > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Hi , I was unable to have a liver resection because i had tumors throughout my liver plus I had the tumor in the duodenum. I started on 5FU, oxaliplatin and erbitux in Feb. I am not receiving the erbitux anymore. It is a new drug that seems to have worked some for me. I think I have 3 more treatments left. I also get very sick about 3 days after treatment. It takes several days for me to start feeling better. I get knocked off my feet and just rest for about 4 days. I do have some numbness and nausea. The worst thing has been the effect on my sense of taste. My taste would get bad for a few days but now it is bad all the time. It is very hard to go and let them poison you knowing that you will get sick. It is hard when you have children. It effects everyone. My dr. told me to take a trip because we do not know what the future holds. We were given a trip to NYC by a dream granting organization and it was wonderfully relaxing. Hang in there and stay strong. Jane > > Hi Jane: > You will find lots of support here. I also have stage 4 or metastatic colon > cancer (liver and lymphs). I had a colon and liver resection in May and > took months to recover due to an abscess on the liver following surgery. > Because of the abscess, my chemo was delayed and I just began round one last > Wednesday. My port a cath was inserted Wednesday morning and I went directly for > chemo. I started on oxaliplatin and 5Fu and they intend to add Avastin on the > third round (too early now because my liver still needs to heal). I am not > familiar with Erbitux (is that Avastin?). > How are you doing with your chemo? It sounds like it is going well if the > liver mets are gone. I assume you did not have a liver resection. Hang in > there. I am trying to do so but it is hard even with only one chemo treatment > under my belt. I have been so sick since Friday (day 3). Do you have 12 > total chemo treatments? > I know it is hard to go through this even with a family but it must be more > difficult with only 2 girls. I have 2 boys and a husband and I feel so > guilty that I cannot do more with the boys. We are trying to fly to Carmel this > Wednesday and I am determined to go so the boys will have been somewhere this > summer. > Take care. > in California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Hi Darren, Did you have the whipple procedure done on your duodenum? If so, how was the recuperation from it? I know it is a major procedure and I am hoping the dr can do it for me after my chemo is over. Thanks for sharing. Jane > > > > hello, > > my name is darren i was diagnosed with cancer 3yrs > ago, first in duodonem had surgery had the tumor > removed done 6 months of chemo, was going good for a > year scans clear and everything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Hi Darren, Did you have the whipple procedure done on your duodenum? If so, how was the recuperation from it? I know it is a major procedure and I am hoping the dr can do it for me after my chemo is over. Thanks for sharing. Jane > > > > hello, > > my name is darren i was diagnosed with cancer 3yrs > ago, first in duodonem had surgery had the tumor > removed done 6 months of chemo, was going good for a > year scans clear and everything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Hi Jane, Welcome to our group. Sorry you had to join us because of being ill. But you will find that the people here are a great group. Willing to answer any questions, give support and just be there for each other. You sound like you have a good outlook on life. I am happy that the recent scans have showed that the chemo has gotten the cancer in your liver. That is wonderful. There are a lot of stage 4 on this group that have also beaten this monster. You sound like a real fighter. I will send an extra Prayer up for you!!!! Keep up the great fight. You are an inspraration to us. Thank You for sharing your story. Please post often and let us know how you are doing. Ingrid > Hi, I am Jane, a single mom with two teenage girls. I was diagnosed > with colon cancer in 2003 when I was 43yo. I had surgery and was > diagnosed with stage IIB - no lymph node involvement. I went thru a > round of chemo and scans showed all was clear. Last Oct. my hemoglobin > was very low and the dr. thought I had bleeding somewhere so we started > testing. The scans showed mets in my liver plus I had a tumor in my > duodenum. The dr. says I am stage IV. I am again going thru chemo. I > think I have about 6 weeks left. I receive 5FU and Oxaliplatin. I did > receive erbitux also for about 4 months. Recent scans show the liver is > clear. I will have to have another endoscope done to check on the > duodenum tumor. My mom had colon cancer at 56yo. She is still going > strong at 87. We think my grandfather may have had duodenal cancer but > we are not sure. Chemo is difficult but when I start hearing others > stories and their difficulties it makes me feel stronger and that I am > not alone. Cancer causes so much more then just health problems. But I > take it one day at a time, one step at a time. > > Jane Quote Link to comment Share on other sites More sharing options...
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