Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Nan.... I remember back when it was called Fibrositis and was thought to be a neuro problem. BJ said she remembers the 'Fibrositis' name too. That would be nice, to hear what your FMS board thinks. Hope you're doing well. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! FMS Neurological? Hi Sher and all,I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings.Hope everyone is having a great breath day!Nan 49, MASS.ILD when? '03?? I thinkPF '08RA '82 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Nan.... I remember back when it was called Fibrositis and was thought to be a neuro problem. BJ said she remembers the 'Fibrositis' name too. That would be nice, to hear what your FMS board thinks. Hope you're doing well. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! FMS Neurological? Hi Sher and all,I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings.Hope everyone is having a great breath day!Nan 49, MASS.ILD when? '03?? I thinkPF '08RA '82 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 I responded to Sher with some citations and the link to the National Fibromyalgia Association. It is defined by a specific number of total pain centers showing pain. This number and location is determined by the American Rheumatology Association's standards. These are a widely disparate number of locations such that other diseases and conditions wouldn't cause the same pain, including the common autoimmune diseases. > > Hi Sher and all, > I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings. > Hope everyone is having a great breath day! > Nan 49, MASS. > ILD when? '03?? I think > PF '08 > RA '82 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 I have been on an FMS group for about 8 years. We are a very small group but after so many years we feel like old friends even though I have never met any of the others. Beverley FMS Neurological? Hi Sher and all,I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings.Hope everyone is having a great breath day!Nan 49, MASS.ILD when? '03?? I thinkPF '08RA '82 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Beverley Well, the sad irony of the condition is that for so many years lots of people, including insurers and doctors, failed to recognize it as a condition and said in perhaps nicer ways " it's all in your head. " Well, even if it is, it's still a physiological condition and not a mental one and even if it was a mental one it would be no less real. The fact is that all the people running around in real pain with Fibromyalgia have been given far less respect and attention than they deserved. When will doctors learn that patients don't just make this stuff up. When you say you hurt, you do. When you say you're having trouble breathing, you are. > > I have been on an FMS group for about 8 years. We are a very small group but after so many years we feel like old friends even though I have never met any of the others. Beverley > > FMS Neurological? > > > > > > Hi Sher and all, > I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings. > Hope everyone is having a great breath day! > Nan 49, MASS. > ILD when? '03?? I think > PF '08 > RA '82 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Beverley Well, the sad irony of the condition is that for so many years lots of people, including insurers and doctors, failed to recognize it as a condition and said in perhaps nicer ways " it's all in your head. " Well, even if it is, it's still a physiological condition and not a mental one and even if it was a mental one it would be no less real. The fact is that all the people running around in real pain with Fibromyalgia have been given far less respect and attention than they deserved. When will doctors learn that patients don't just make this stuff up. When you say you hurt, you do. When you say you're having trouble breathing, you are. > > I have been on an FMS group for about 8 years. We are a very small group but after so many years we feel like old friends even though I have never met any of the others. Beverley > > FMS Neurological? > > > > > > Hi Sher and all, > I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings. > Hope everyone is having a great breath day! > Nan 49, MASS. > ILD when? '03?? I think > PF '08 > RA '82 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 BJ..., are both your groups online? Must be. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! FMS Neurological? Hi Sher and all,I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings.Hope everyone is having a great breath day!Nan 49, MASS.ILD when? '03?? I thinkPF '08RA '82 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 I have never had problems with the doctors not believing that I hurt. I was having problems with my breathing for over a year before I went in with my sats at 74%. Then they put me in the hospital but still didn't send me to a pulmo dr. My cardiologist did that when I went into him for my yearly checkup. I'm not fond of doctors around here. I go back to the pulmo dr on Thursday to see if the meds he put me on are working. I believe that the NAC is helping but I think maybe the side effects of the Prednisone are doing more harm than it is doing good. I will talk to him about that. He asked me if I had questions before and I didn't because I didn't know what to ask. After being on this board for awhile I'll have some this time. Beverley FMS Neurological?>>>>>> Hi Sher and all,> I was just reading some posts and someone said that FMS isneurological. I was dx'd over 10 yrs ago and never heard that. I've beentreated by my rheummy for it. I think I'll need to check into that. Ibelong to a support board very much like this only for FMS. After I getanswers, I'll write and update w/ my findings.> Hope everyone is having a great breath day!> Nan 49, MASS.> ILD when? '03?? I think> PF '08> RA '82> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 My group is online . BJ FMS Neurological? Hi Sher and all,I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings.Hope everyone is having a great breath day!Nan 49, MASS.ILD when? '03?? I thinkPF '08RA '82 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 BJ... what is the site to check in on your chat board for FM? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! FMS Neurological? Hi Sher and all,I was just reading some posts and someone said that FMS is neurological. I was dx'd over 10 yrs ago and never heard that. I've been treated by my rheummy for it. I think I'll need to check into that. I belong to a support board very much like this only for FMS. After I get answers, I'll write and update w/ my findings.Hope everyone is having a great breath day!Nan 49, MASS.ILD when? '03?? I thinkPF '08RA '82 Quote Link to comment Share on other sites More sharing options...
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