Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Zena what does imuran have to do with dog food? Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 inactive 4/09 www.transplantfund.org--- Subject: ZENA Re: Women and PFTo: Breathe-Support Date: Saturday, May 2, 2009, 4:21 AM I have times when I beat myself up trying to work out what I've done to cause this, looking for something or someone to blame. But other times (like right now) when I know that it's not worth expending the energy on worrying about it. I have it, even if it's something that could have been prevented then it was something that I wasn't aware of. I've been dealing with my ever increasing conditions for 15 years now, and I will still get told things that I never knew, like for instance as I'm on imuran I shouldn't be dealing with the dog food But I get told like I already know. Love Ze xx>> No, No, No ...... you said nothing to prompt that that reaction from me. Let's just say I read between lines that are not even there. LOL> > Ze ... I was diagnosed with PH before the PF and pulmo docs have assured me they are not related --- totally separate diseases. The PH, they stopped just short of saying it was due to my taking of Phen-Fen (I took it all of 3 months) I've told this story before ... after being told I had a heart murmur after never having one prior even after a heart attack (from which I flat-lined) a full 10 years prior to taking Phen-Fen. Since I could find no rhyme of reason for contacting PF, I waz grasping at straws wondering if maybe the battle of the bulge (in my case) could be the culprit also. Just shooting in the dark. LOL> > I should just let it ride I think ....... things are going along pretty good although I am looking forward to my appt with pulmo doc on the 13th. so see what the numbers possibly say. I have increased my oxygen on my own and feel that maybe the numbers may not be so good ... I pray I am wrong, however. I feel pretty good most days in spite of things.> > Thanks so much for your sweet reply. I love ya for your concern, but all is GOOD!!!> > ~ Donna ~> Yesterday I dared to struggle .....> Today I dare to win!!!> > ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ *> > Hi Donna,> > > > I hope nothing in my reply implied that you'd stepped on anyones toes,> > it certainly wasn't meant to.> > > > I don't think weight has a huge amount to do with PH. Mine's because I> > have PF. The scar tissue causes both the aveoli and the blood vessals> > to stiffen up and the PH is the heart is working harder trying to pump> > the blood through the stiffness. Your arterial blood pressure (the one> > they take with a cuff on your arm) has nothing to do with, and will not> > give any indication of, PH.> > > > I think pred tends to be a default med. I'm on it because of an auto> > immune disease. It's was discovered that it kept the pf at bay by> > accident really. And I started on the pred when I was naive of both my> > condition and steroids. As far as I was concerned the steroid took away> > the horrible symptoms that I had been suffering with and that was good> > enough for me.> > > > Keep posting Donna, we will learn as much from you as you will from us> > > > Love Ze xx> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Zena what does imuran have to do with dog food? Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 inactive 4/09 www.transplantfund.org--- Subject: ZENA Re: Women and PFTo: Breathe-Support Date: Saturday, May 2, 2009, 4:21 AM I have times when I beat myself up trying to work out what I've done to cause this, looking for something or someone to blame. But other times (like right now) when I know that it's not worth expending the energy on worrying about it. I have it, even if it's something that could have been prevented then it was something that I wasn't aware of. I've been dealing with my ever increasing conditions for 15 years now, and I will still get told things that I never knew, like for instance as I'm on imuran I shouldn't be dealing with the dog food But I get told like I already know. Love Ze xx>> No, No, No ...... you said nothing to prompt that that reaction from me. Let's just say I read between lines that are not even there. LOL> > Ze ... I was diagnosed with PH before the PF and pulmo docs have assured me they are not related --- totally separate diseases. The PH, they stopped just short of saying it was due to my taking of Phen-Fen (I took it all of 3 months) I've told this story before ... after being told I had a heart murmur after never having one prior even after a heart attack (from which I flat-lined) a full 10 years prior to taking Phen-Fen. Since I could find no rhyme of reason for contacting PF, I waz grasping at straws wondering if maybe the battle of the bulge (in my case) could be the culprit also. Just shooting in the dark. LOL> > I should just let it ride I think ....... things are going along pretty good although I am looking forward to my appt with pulmo doc on the 13th. so see what the numbers possibly say. I have increased my oxygen on my own and feel that maybe the numbers may not be so good ... I pray I am wrong, however. I feel pretty good most days in spite of things.> > Thanks so much for your sweet reply. I love ya for your concern, but all is GOOD!!!> > ~ Donna ~> Yesterday I dared to struggle .....> Today I dare to win!!!> > ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ *> > Hi Donna,> > > > I hope nothing in my reply implied that you'd stepped on anyones toes,> > it certainly wasn't meant to.> > > > I don't think weight has a huge amount to do with PH. Mine's because I> > have PF. The scar tissue causes both the aveoli and the blood vessals> > to stiffen up and the PH is the heart is working harder trying to pump> > the blood through the stiffness. Your arterial blood pressure (the one> > they take with a cuff on your arm) has nothing to do with, and will not> > give any indication of, PH.> > > > I think pred tends to be a default med. I'm on it because of an auto> > immune disease. It's was discovered that it kept the pf at bay by> > accident really. And I started on the pred when I was naive of both my> > condition and steroids. As far as I was concerned the steroid took away> > the horrible symptoms that I had been suffering with and that was good> > enough for me.> > > > Keep posting Donna, we will learn as much from you as you will from us> > > > Love Ze xx> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Zena, I talked to my Pulmo Dudett (whom I love unlike some others with bad luck) and she said if I get sick just head straight for the Big House, do not pass Go, do not collect $200. So I will but I've been pretty lucky this year KNOCK KNOCK -- Must be all the dog saliva!!! LOL I just feel bad that of course I can't go help. This is my Babys only Baby. I must get a group picture to post, I have 8 grandkids and they are my pride and joys (and their moms and dads too) What is it about Grandkids. You love your children with such a special love and then grandkids get loved even more! Helps me smile even on bad days. Dyane Phoenix IPF 02 > > > > > > > > > > No, No, No ...... you said nothing to prompt that that reaction > > from > > > me. Let's just say I read between lines that are not even there. LOL > > > > > > > > > > Ze ... I was diagnosed with PH before the PF and pulmo docs have > > > assured me they are not related --- totally separate diseases. The > > PH, > > > they stopped just short of saying it was due to my taking of > Phen-Fen > > (I > > > took it all of 3 months) I've told this story before ... after being > > > told I had a heart murmur after never having one prior even after a > > > heart attack (from which I flat-lined) a full 10 years prior to > taking > > > Phen-Fen. Since I could find no rhyme of reason for contacting PF, I > > > waz grasping at straws wondering if maybe the battle of the bulge > (in > > my > > > case) could be the culprit also. Just shooting in the dark. LOL > > > > > > > > > > I should just let it ride I think ....... things are going along > > > pretty good although I am looking forward to my appt with pulmo doc > on > > > the 13th. so see what the numbers possibly say. I have increased my > > > oxygen on my own and feel that maybe the numbers may not be so good > > ... > > > I pray I am wrong, however. I feel pretty good most days in spite of > > > things. > > > > > > > > > > Thanks so much for your sweet reply. I love ya for your concern, > > > but all is GOOD!!! > > > > > > > > > > ~ Donna ~ > > > > > Yesterday I dared to struggle ..... > > > > > Today I dare to win!!! > > > > > > > > > > ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * > ~ > > * > > > ~ * > > > > > > > > > > Hi Donna, > > > > > > > > > > > > > > > > > > > > I hope nothing in my reply implied that you'd stepped on anyones > > > toes, > > > > > > > > > > it certainly wasn't meant to. > > > > > > > > > > > > > > > > > > > > I don't think weight has a huge amount to do with PH. Mine's > > because > > > I > > > > > > > > > > have PF. The scar tissue causes both the aveoli and the blood > > > vessals > > > > > > > > > > to stiffen up and the PH is the heart is working harder trying > to > > > pump > > > > > > > > > > the blood through the stiffness. Your arterial blood pressure > (the > > > one > > > > > > > > > > they take with a cuff on your arm) has nothing to do with, and > > will > > > not > > > > > > > > > > give any indication of, PH. > > > > > > > > > > > > > > > > > > > > I think pred tends to be a default med. I'm on it because of an > > auto > > > > > > > > > > immune disease. It's was discovered that it kept the pf at bay > by > > > > > > > > > > accident really. And I started on the pred when I was naive of > > both > > > my > > > > > > > > > > condition and steroids. As far as I was concerned the steroid > took > > > away > > > > > > > > > > the horrible symptoms that I had been suffering with and that > was > > > good > > > > > > > > > > enough for me. > > > > > > > > > > > > > > > > > > > > Keep posting Donna, we will learn as much from you as you will > > from > > > us > > > > > > > > > > > > > > > > > > > > Love Ze xx > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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