ZENA Re: Women and PF

[Guest guest]

Zena,

I talked to my Pulmo Dudett (whom I love unlike some others with bad

luck) and she said if I get sick just head straight for the Big House,

do not pass Go, do not collect $200. So I will but I've been pretty

lucky this year KNOCK KNOCK -- Must be all the dog saliva!!! LOL I just

feel bad that of course I can't go help. This is my Babys only Baby. I

must get a group picture to post, I have 8 grandkids and they are my

pride and joys (and their moms and dads too) What is it about

Grandkids. You love your children with such a special love and then

grandkids get loved even more! Helps me smile even on bad days.

Dyane Phoenix IPF 02

> > > > >

> > > > > No, No, No ...... you said nothing to prompt that that

reaction

> > from

> > > me. Let's just say I read between lines that are not even there.

LOL

> > > > >

> > > > > Ze ... I was diagnosed with PH before the PF and pulmo docs

have

> > > assured me they are not related --- totally separate diseases. The

> > PH,

> > > they stopped just short of saying it was due to my taking of

> Phen-Fen

> > (I

> > > took it all of 3 months) I've told this story before ... after

being

> > > told I had a heart murmur after never having one prior even after

a

> > > heart attack (from which I flat-lined) a full 10 years prior to

> taking

> > > Phen-Fen. Since I could find no rhyme of reason for contacting PF,

I

> > > waz grasping at straws wondering if maybe the battle of the bulge

> (in

> > my

> > > case) could be the culprit also. Just shooting in the dark. LOL

> > > > >

> > > > > I should just let it ride I think ....... things are going

along

> > > pretty good although I am looking forward to my appt with pulmo

doc

> on

> > > the 13th. so see what the numbers possibly say. I have increased

my

> > > oxygen on my own and feel that maybe the numbers may not be so

good

> > ...

> > > I pray I am wrong, however. I feel pretty good most days in spite

of

> > > things.

> > > > >

> > > > > Thanks so much for your sweet reply. I love ya for your

concern,

> > > but all is GOOD!!!

> > > > >

> > > > > ~ Donna ~

> > > > > Yesterday I dared to struggle .....

> > > > > Today I dare to win!!!

> > > > >

> > > > > ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~

*

> ~

> > *

> > > ~ *

> > > > >

> > > > > Hi Donna,

> > > > >

> > > > >

> > > > >

> > > > > I hope nothing in my reply implied that you'd stepped on

anyones

> > > toes,

> > > > >

> > > > > it certainly wasn't meant to.

> > > > >

> > > > >

> > > > >

> > > > > I don't think weight has a huge amount to do with PH. Mine's

> > because

> > > I

> > > > >

> > > > > have PF. The scar tissue causes both the aveoli and the blood

> > > vessals

> > > > >

> > > > > to stiffen up and the PH is the heart is working harder trying

> to

> > > pump

> > > > >

> > > > > the blood through the stiffness. Your arterial blood pressure

> (the

> > > one

> > > > >

> > > > > they take with a cuff on your arm) has nothing to do with, and

> > will

> > > not

> > > > >

> > > > > give any indication of, PH.

> > > > >

> > > > >

> > > > >

> > > > > I think pred tends to be a default med. I'm on it because of

an

> > auto

> > > > >

> > > > > immune disease. It's was discovered that it kept the pf at bay

> by

> > > > >

> > > > > accident really. And I started on the pred when I was naive of

> > both

> > > my

> > > > >

> > > > > condition and steroids. As far as I was concerned the steroid

> took

> > > away

> > > > >

> > > > > the horrible symptoms that I had been suffering with and that

> was

> > > good

> > > > >

> > > > > enough for me.

> > > > >

> > > > >

> > > > >

> > > > > Keep posting Donna, we will learn as much from you as you will

> > from

> > > us

> > > > >

> > > > >

> > > > >

> > > > > Love Ze xx

> > > > >

> > > >

> > >

> >

>