Fw:SHER...... JACK AND BRUCE, ET ALL, A LONG ONE!!

[Guest guest]

Subject: Re: How PF has improved my lifeTo: Breathe-Support Date: Friday, March 27, 2009, 2:02 PM

Since I was dx nearly five years ago, I have done a few things.

1. I reached the age of 80. To my surprise, it was a kind of freedom, to be wholely myself without concern for what others may think or do.

2. I learned that family - my children, my grandchildren, my great grandchildren hold me in considerable esteem. To have a four year old call you on the phone and sing happy birthday to you in a sweet voice

is like hearing angels.

3. I learned that my circle of friends was larger and more loving and concerned than I ever imagined, and

that they spanned ages from 6 to 90 .

4. I learned that PF is just another element in my life, a thought that I have incorporated but yet

respect, and that my life goes on very much like it did before, but with the annoyance of a drippy

five year old's nose, and an aggravting cough. No one but me pays these things any attention.

5. I learned that I now live my life with a heightened sensitivty to things I used to take for granted:

a magnificant surnise, a flock of ravens in my yard, a mama deer and her kid in the woods, a moose dancing across the highway before I get too close to cause an accident, the neighbor's cat chasing

a squirrel, only to lose it when it races up a tree trunk.

6. I learned that I love life and that with the right attitude life loves me, even with the PF.

7. I learned that I want to make it to 100, and that I have the will and the means to do so if I coddle the devil in my lungs and work to keep him still.

8. Most of all, I learned to love this great Air Family which has given me more love than I deserve and

taught me more about life than I thought there was to know.

Thank you - all of you - I love you.

Jack79/IPF - UIP/dx06/05 Maine

From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 1:40:20 PMSubject: How PF has improved my life

Ok.....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

[Guest guest]

thank you Bruce.........

Subject: Re: Fw:SHER...... JACK AND BRUCE, ET ALL, A LONG ONE!!To: Breathe-Support Date: Saturday, March 28, 2009, 8:52 AM

JimIt certainly sounds like a tough turn although not sure I'd rule out thepneumonia completely yet. Regardless, you're dealing with a downturnthat the very thought of is alarming. I'm glad you do have such asupportive and loving family. I hope you're relieved of the pain withthe oxygen they are providing you and the morphine. I don't know what isavailable in your area so whether you could get the equivalent at homeor not, but sounds like you're with very caring people where you are.Fully entitled to 1965 brownies if you desire or anything else you want.I think all rules are thrown far out the window with only one left. Thatis to relieve pain, find comfort, enjoy those around you.Thanks for sharing all of this with us. We travel the entire roadtogether, not just parts. Whatever the stages and whatever the emotionswe're here for them all. You've shown us support when needed and

courageespecially in this post. You don't have any idea how much that willmultiply and help many of us over time. Now, you relax and use thedoctors and the meds, hug your family, and have a good day. I wouldn'tsay that to just anyone, but honestly I believe somehow you'll make itgood, on your own terms.>> From: Jack Marshall mrshlljck@.. .> Subject: Re: How PF has improved my life> To: Breathe-Support@ yahoogroups. com> Date: Friday, March 27, 2009, 2:02 PM>>>>>>>>>> Since I was dx nearly five years ago, I have done a few things.>> 1. I reached the age of 80. To my surprise, it was a kind offreedom, to be wholely myself without concern for what others may thinkor do.>> 2. I learned that family - my children, my grandchildren, my greatgrandchildren hold me in considerable esteem. To have a four year oldcall you on the phone and sing happy birthday to you in a sweet voice> is like hearing angels.>> 3. I learned that my circle of friends was

larger and more loving andconcerned than I ever imagined, and> that they spanned ages from 6 to 90 .>> 4. I learned that PF is just another element in my life, a thoughtthat I have incorporated but yet> respect, and that my life goes on very much like it did before, butwith the annoyance of a drippy> five year old's nose, and an aggravting cough. No one but me paysthese things any attention.>> 5. I learned that I now live my life with a heightened sensitivty tothings I used to take for granted:> a magnificant surnise, a flock of ravens in my yard, a mama deer andher kid in the woods, a moose dancing across the highway before I gettoo close to cause an accident, the neighbor's cat chasing> a squirrel, only to lose it when it races up a tree trunk.>> 6. I learned that I love life and that with the right attitude lifeloves me, even with the

PF.>> 7. I learned that I want to make it to 100, and that I have the willand the means to do so if I coddle the devil in my lungs and work tokeep him still.>> 8. Most of all, I learned to love this great Air Family which hasgiven me more love than I deserve and> taught me more about life than I thought there was to know.>> Thank you - all of you - I love you.>>> Jack> 79/IPF - UIP/dx06/05 Maine>>>>>>> From: Bruce Moreland <brucemoreland@ gmail.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, March 27, 2009 1:40:20 PM> Subject: How PF has improved my life>>>> Ok.....I know to some, especially newcomers, this is an insane topic.> But, I know there are many ways in which the diagnosis and subsequent> events have actually

made my life better. I know things I've gained.I'm> going to reserve my list a bit and just want to hear others answer.> While none of us would have chosen to have PF, I think it's importantto> remind ourselves of the good aspects of our lives and to instill among> the newcomers the hope, not of a cure, but of a good life. So, whathave> you gained or what is better than before or what have you done since> diagnosis that you might not have otherwise?>

[Guest guest]

thank you Bruce.........

Subject: Re: Fw:SHER...... JACK AND BRUCE, ET ALL, A LONG ONE!!To: Breathe-Support Date: Saturday, March 28, 2009, 8:52 AM

JimIt certainly sounds like a tough turn although not sure I'd rule out thepneumonia completely yet. Regardless, you're dealing with a downturnthat the very thought of is alarming. I'm glad you do have such asupportive and loving family. I hope you're relieved of the pain withthe oxygen they are providing you and the morphine. I don't know what isavailable in your area so whether you could get the equivalent at homeor not, but sounds like you're with very caring people where you are.Fully entitled to 1965 brownies if you desire or anything else you want.I think all rules are thrown far out the window with only one left. Thatis to relieve pain, find comfort, enjoy those around you.Thanks for sharing all of this with us. We travel the entire roadtogether, not just parts. Whatever the stages and whatever the emotionswe're here for them all. You've shown us support when needed and

courageespecially in this post. You don't have any idea how much that willmultiply and help many of us over time. Now, you relax and use thedoctors and the meds, hug your family, and have a good day. I wouldn'tsay that to just anyone, but honestly I believe somehow you'll make itgood, on your own terms.>> From: Jack Marshall mrshlljck@.. .> Subject: Re: How PF has improved my life> To: Breathe-Support@ yahoogroups. com> Date: Friday, March 27, 2009, 2:02 PM>>>>>>>>>> Since I was dx nearly five years ago, I have done a few things.>> 1. I reached the age of 80. To my surprise, it was a kind offreedom, to be wholely myself without concern for what others may thinkor do.>> 2. I learned that family - my children, my grandchildren, my greatgrandchildren hold me in considerable esteem. To have a four year oldcall you on the phone and sing happy birthday to you in a sweet voice> is like hearing angels.>> 3. I learned that my circle of friends was

larger and more loving andconcerned than I ever imagined, and> that they spanned ages from 6 to 90 .>> 4. I learned that PF is just another element in my life, a thoughtthat I have incorporated but yet> respect, and that my life goes on very much like it did before, butwith the annoyance of a drippy> five year old's nose, and an aggravting cough. No one but me paysthese things any attention.>> 5. I learned that I now live my life with a heightened sensitivty tothings I used to take for granted:> a magnificant surnise, a flock of ravens in my yard, a mama deer andher kid in the woods, a moose dancing across the highway before I gettoo close to cause an accident, the neighbor's cat chasing> a squirrel, only to lose it when it races up a tree trunk.>> 6. I learned that I love life and that with the right attitude lifeloves me, even with the

PF.>> 7. I learned that I want to make it to 100, and that I have the willand the means to do so if I coddle the devil in my lungs and work tokeep him still.>> 8. Most of all, I learned to love this great Air Family which hasgiven me more love than I deserve and> taught me more about life than I thought there was to know.>> Thank you - all of you - I love you.>>> Jack> 79/IPF - UIP/dx06/05 Maine>>>>>>> From: Bruce Moreland <brucemoreland@ gmail.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, March 27, 2009 1:40:20 PM> Subject: How PF has improved my life>>>> Ok.....I know to some, especially newcomers, this is an insane topic.> But, I know there are many ways in which the diagnosis and subsequent> events have actually

made my life better. I know things I've gained.I'm> going to reserve my list a bit and just want to hear others answer.> While none of us would have chosen to have PF, I think it's importantto> remind ourselves of the good aspects of our lives and to instill among> the newcomers the hope, not of a cure, but of a good life. So, whathave> you gained or what is better than before or what have you done since> diagnosis that you might not have otherwise?>