Re: delayed treatment - was Xeloda

[Guest guest]

I have been anxiously reading replies and spent hours on the net researching

Xeloda. I finally found the clinical trials for PRE-surgery use and feel

much better now about Bill choosing the pill. At first all I could find was

about using it AFTER surgery. Right now my frustration level is high

because Bill was supposed to start rad/chemo three days ago and when we got

there, the plans were changed. Now he is waiting for a TRUS and they didn't

get an appointment time made so we are sitting here over a very long weekend

chewing our fingernails.

The doctors assure us that this cancer grows so slowly that a couple of more

weeks won't matter, but he was diagnosed in early July and told by the

surgeon that he absolutely could not delay surgery even for two weeks so he

could attend his car show. Now it's been over two months. We are at their

mercy:-(

I am also amazed at how many people don't have a clue what they are taking.

In the 'old days' when I was still working, patients would come in to the

hospital or outpatient clinics and when ask about meds, they would say

things like " it's a little bitty red pill about this big " as they held up

their fingers to show size:-)

> taking , what stage they were or even where their cancer is. That

environment

> doedsnot exist on this board.

>

>

[Guest guest]

I am glad that you finally found something about taking Xeloda post

surgery. I do not blame you for being concerned with the delays on

the surgery, I have been told too that this cancer is slow going. But

when i had it the first time they rushed me into surgey since I was

close to obstruction. It is difficult to know which doctor to

believe.

Is Bill in any pain at all? Have they said anything at all about

how long the radiation will be delayed? I know you are waiting for a

Trus but have they given you any other appointment for the radiation?

Hopefully things will start moving quickly after this weekend. Try to

relax and enjoy the time together. I am Praying for both of you.

Ingrid

> I have been anxiously reading replies and spent hours on the net

researching

> Xeloda. I finally found the clinical trials for PRE-surgery use

and feel

> much better now about Bill choosing the pill. At first all I could

find was

> about using it AFTER surgery. Right now my frustration level is

high

> because Bill was supposed to start rad/chemo three days ago and

when we got

> there, the plans were changed. Now he is waiting for a TRUS and

they didn't

> get an appointment time made so we are sitting here over a very

long weekend

> chewing our fingernails.

> The doctors assure us that this cancer grows so slowly that a

couple of more

> weeks won't matter, but he was diagnosed in early July and told by

the

> surgeon that he absolutely could not delay surgery even for two

weeks so he

> could attend his car show. Now it's been over two months. We are

at their

> mercy:-(

>

> I am also amazed at how many people don't have a clue what they are

taking.

> In the 'old days' when I was still working, patients would come in

to the

> hospital or outpatient clinics and when ask about meds, they would

say

> things like " it's a little bitty red pill about this big " as they

held up

> their fingers to show size:-)

>

> > taking , what stage they were or even where their cancer is. That

> environment

> > doedsnot exist on this board.

> >

> >

[Guest guest]

I am glad that you finally found something about taking Xeloda post

surgery. I do not blame you for being concerned with the delays on

the surgery, I have been told too that this cancer is slow going. But

when i had it the first time they rushed me into surgey since I was

close to obstruction. It is difficult to know which doctor to

believe.

Is Bill in any pain at all? Have they said anything at all about

how long the radiation will be delayed? I know you are waiting for a

Trus but have they given you any other appointment for the radiation?

Hopefully things will start moving quickly after this weekend. Try to

relax and enjoy the time together. I am Praying for both of you.

Ingrid

> I have been anxiously reading replies and spent hours on the net

researching

> Xeloda. I finally found the clinical trials for PRE-surgery use

and feel

> much better now about Bill choosing the pill. At first all I could

find was

> about using it AFTER surgery. Right now my frustration level is

high

> because Bill was supposed to start rad/chemo three days ago and

when we got

> there, the plans were changed. Now he is waiting for a TRUS and

they didn't

> get an appointment time made so we are sitting here over a very

long weekend

> chewing our fingernails.

> The doctors assure us that this cancer grows so slowly that a

couple of more

> weeks won't matter, but he was diagnosed in early July and told by

the

> surgeon that he absolutely could not delay surgery even for two

weeks so he

> could attend his car show. Now it's been over two months. We are

at their

> mercy:-(

>

> I am also amazed at how many people don't have a clue what they are

taking.

> In the 'old days' when I was still working, patients would come in

to the

> hospital or outpatient clinics and when ask about meds, they would

say

> things like " it's a little bitty red pill about this big " as they

held up

> their fingers to show size:-)

>

> > taking , what stage they were or even where their cancer is. That

> environment

> > doedsnot exist on this board.

> >

> >