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Jack

First, lets all of us start labelling the Picnic posts as I've done

above so they are easier to pick out.

Second, what is the temperature going to be for the picnic. Better be

virtually warm.

>

> Donna, welcome. You are surely among those will understand you

completely. Best of all, it's a place where you can cuss, vent, carry

on, scream, whatever and each of us will understand completely and

sympathize. If you have been reading posts you may know that Sher and I

are hosting a grand virtual picnic Easter Sunday afternoon at Acadia

National Park in Maine. You are welcome to join us. Most of us have

posted our picnic lunch and drinks and some even our clothing. I should

add that since it is a virtual picnic, clothing is optional. We

wouldn't notice anyway.

> Jack

> 79/IPF - UIP/dx06/05 Maine

>

>

>

>

> ________________________________

> From: Donna dunabug@...

> To: Breathe-Support

> Sent: Wednesday, April 8, 2009 11:35:22 PM

> Subject: New To Board

>

>

>

>

>

> Hi All ...

> I'm fairly new to the board .... Have been lurking and getting a feel

for it. You folks seem pretty darn NICE!!!

>

> My name is Donna. Wife to , Sr for 41 years; Mother to ,

Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),

Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) are

the joys in my life, for sure!!

>

> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Was

immediately admitted to the hospital on what I thought would be a

routine visit for bronchitis. I had put off going to the doctor for

about 8 or 9 months because of insurance change and having to find a new

doctor. When on one Saturday afternoon when trying to change bedding on

a twin size bed I became VERY SOB and felt I was about to pass out. I

had had SOB for a year or more but because it came on fast but went away

just as fast I more or less ignored it. That Saturday it was different

.... I didn't like the way my legs went limp and I had to grab onto my

desk til the feeling passed. I called a doctor 'from accepted list' on

Monday, got in to see him on Tuesday and as stated before was admitted

to hospital right then and there. The PCP doc came into my room that

night and told me it appeared I had PH and was bringing in Pulmo to my

case. I called home and asked my son to see what he

> could find on the internet about PH -- I had never heard of it, but

still had no idea it was so serious. My son brought print-offs to me

that night and it scared me -- saying death within 5 years of diagnosis.

OMG ... how could this be happening? Needless to say, I believe I was in

shock. LOL

> The next couple of days in the hospital I was put thru a battery of

tests: echos, CTs, Blood Work, PFT, and others I forget now. Seems I

spent little time in my room.

> After a week in the hospital I was released with oxygen 3lpn 24/7.

That is first time I cried --- just the sound of the concentrator. My

mother and father had both died on a ventilator and the sound was so

'the same' that I just sat down on my bed and let the tears flow.

>

> The doctors were reluctant to put a cause to my PH, but kept referring

to my taking of the diet drug Fen-Phen ....... which I took for maybe at

most 3 months.. I stopped when the doctor who was prescribing to me

mentioned that I had a heart murmur which I NEVER had before even tho I

did have a heart attack in 1989. Still, my cardio docs never mentioned a

murmur, so I said WHOA to myself and stopped the Fen-Phen.

>

> During office visit with Pulmo, I was put on Prednisone. Being naive

-- I had not found forums at that time -- I was just going along with

whatever the doctors said. Heck, they just HAD to know more than me,

cause I knew nothing. Then Pulmo suggested a biopsy. His words being

" Something else is going on with your lungs. We can continue to treat

with Pred and hope for the best or we can do the biopsy and be sure. "

Heck, I wanted 'to be sure' not a hit and a miss treatment. I went into

hospital to have biopsy 2 days before Thanksgiving in 2003. I only spent

one night in hospital. My drainage tube came out on it's own, so I was

sent home on Thanksgiving Eve. That was the BEST and worst Thanksgiving

in opposite pole ways. I had some discomfort, called the surgeon and

went for office visit at their request. The surgeon is the one who gave

me the diagnosis of PF on that visit. Again, I was shocked. I do

remember saying to him " Well, at least it's not cancer "

> The look on his face was not good. I said, " Would cancer be better? "

He just sorta nodded his head -- not a full blown yes, mind you. Again,

the tears flowed.

>

> In an attempt to shorten this novel. LOL ... let me say that the

doctors (and I even went to Vanderbilt for evaluation to be placed in a

study there) ALL said that the PH and PF were independent of one

another.. I to this day do not know how they made that determination.

Because I was unable to give them yes answers to the questions they

asked, it was determined I had IPF and PPH!!

>

> I am not a candidate for transplant because of the PPH and my heart

condition. Soooo, that is where I stand. Presently taking a fistful of

meds daily, one being Tracleer for the PH, but I understand it is now

being considered for the treatment of PF also. I, on that basis, believe

that drug is more than likely what has hald me 'steady' up until

recently.

>

> I have an appt with my Pulmo on May 1st after a year and I feel as tho

we might see some progression. I know I don't feel so good the past 3-4

months, yet not bad enough to schedule an earlier appointment. We shall

see. Could be something else entirely.

> Due to the Pred, I now also have diabetes, neuropathy, cataracts.

Seems it's always something. Either I can't sleep at all or I sleep too

much ---- Can't eat at all or can't get enough to eat. I have to laugh

at myself and the turns my body takes or I would go nutz!

>

> Thanks for hanging with me on this long diatribe .... I promise my

future posts will be shorter. ROFL

>

> God Bless you all ........ you may be new to me but you are all in my

prayers and I hope you will add me to yours. It's a hideous disease. I

hate it!!! (and don't use the word hate much ... taught my kids it was

the 'devil's word' and they should say strongly dislike -- LOL ... so

that shows you exactly how I feel)

>

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How about a nice 73-74 with a warm summer breeze?

sharon p ph asthma 2008

Subject: Re: O/T PicnicTo: Breathe-Support Date: Thursday, April 9, 2009, 8:55 AM

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks

and some even our clothing. I shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and

Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came

into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were

reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2

days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to

give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I

have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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How about a nice 73-74 with a warm summer breeze?

sharon p ph asthma 2008

Subject: Re: O/T PicnicTo: Breathe-Support Date: Thursday, April 9, 2009, 8:55 AM

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks

and some even our clothing. I shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and

Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came

into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were

reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2

days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to

give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I

have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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How about a nice 73-74 with a warm summer breeze?

sharon p ph asthma 2008

Subject: Re: O/T PicnicTo: Breathe-Support Date: Thursday, April 9, 2009, 8:55 AM

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks

and some even our clothing. I shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and

Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came

into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were

reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2

days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to

give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I

have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Sounds like the PeRRRfect temp.  light spring sweet smelling flowers. I think I'll bring my hammock too. I know we'll need a little nap Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  How about a nice 73-74 with a warm summer breeze?sharon p ph asthma 2008--- On Thu, 4/9/09, Bruce Moreland <brucemoreland (AT) gmail (DOT) com>wrote:From: Bruce Moreland <brucemoreland (AT) gmail (DOT) com>Subject: Re: O/T PicnicTo: Breathe-Support Date: Thursday, April 9, 2009, 8:55 AMJackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks and some even our clothing. I shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Thanks for the suggestion, Bruce. I'm so swamped by business that my focus is distracted. The temperature most likely will be in the low fifties. But virtually, I can make it hot enough for those who wish to visit the nude bathing lake, say about 85. No sweat. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Thursday, April 9, 2009 9:55:41 AMSubject: Re: O/T Picnic

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks and some even our clothing. I

shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ....> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in

my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was

bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking

of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in

hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to give them yes answers to the questions theyasked, it was

determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I

would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Thanks for the suggestion, Bruce. I'm so swamped by business that my focus is distracted. The temperature most likely will be in the low fifties. But virtually, I can make it hot enough for those who wish to visit the nude bathing lake, say about 85. No sweat. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Thursday, April 9, 2009 9:55:41 AMSubject: Re: O/T Picnic

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks and some even our clothing. I

shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ....> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in

my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was

bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking

of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in

hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to give them yes answers to the questions theyasked, it was

determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I

would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Thanks for the suggestion, Bruce. I'm so swamped by business that my focus is distracted. The temperature most likely will be in the low fifties. But virtually, I can make it hot enough for those who wish to visit the nude bathing lake, say about 85. No sweat. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Thursday, April 9, 2009 9:55:41 AMSubject: Re: O/T Picnic

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks and some even our clothing. I

shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ....> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in

my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was

bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking

of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in

hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to give them yes answers to the questions theyasked, it was

determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I

would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Sharon, I can do that, if that's what the majority want. Remember we are on a mountain top overlooking the Atlantic ocean and it's cool even in the summer. However, I can adjust as needed because I will have the thermostat in my magic bag. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Thursday, April 9, 2009 11:25:37 AMSubject: Re: Re: O/T Picnic

How about a nice 73-74 with a warm summer breeze?

sharon p ph asthma 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: O/T PicnicTo: Breathe-Support@ yahoogroups. comDate: Thursday, April 9, 2009, 8:55 AM

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks and some even our clothing. I shouldadd that

since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for

sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was bringing in Pulmo

to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking of the diet drug

Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in hospital. My drainage

tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request.. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to give them yes answers to the questions theyasked, it was determined I had IPF and

PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I would go

nutz!>> Thanks for hanging with me on this long diatribe ..... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Now Peggy is a woman who knows how make the most of a picnic. I'll rock the hammock for you. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Thursday, April 9, 2009 11:57:13 AMSubject: Re: Re: O/T PicnicSounds like the PeRRRfect temp. light spring sweet smelling flowers. I think I'll bring my hammock too. I know we'll need a little nap

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

How about a nice 73-74 with a warm summer breeze?

sharon p ph asthma 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: O/T PicnicTo: Breathe-Support@ yahoogroups. comDate: Thursday, April 9, 2009, 8:55 AM

JackFirst, lets all of us start labelling the Picnic posts as I've doneabove so they are easier to pick out.Second, what is the temperature going to be for the picnic. Better bevirtually warm.>> Donna, welcome. You are surely among those will understand youcompletely. Best of all, it's a place where you can cuss, vent, carryon, scream, whatever and each of us will understand completely andsympathize. If you have been reading posts you may know that Sher and Iare hosting a grand virtual picnic Easter Sunday afternoon at AcadiaNational Park in Maine. You are welcome to join us. Most of us haveposted our picnic lunch and drinks and some even our clothing. I shouldadd that since it is a virtual picnic, clothing is optional. Wewouldn't notice anyway.> Jack> 79/IPF - UIP/dx06/05 Maine>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Wednesday, April 8, 2009 11:35:22 PM> Subject: New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor. When on one Saturday

afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious.. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a

ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found

forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that

determination.Because I was unable to give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some

progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in

myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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OMG.. what a gorgeous place... just as well I thought to toss in my camping gear... we'll rest up here for a few days before heading off again!

SGIO> >> > WOW I am gone for a few days and come home and find the house empty.. > > Did y'all move and not tell me??> > This just ain't right.> > > > I am feeling much much better. Still have the ol' runny nose but that > > is manageable.> > I don't know if I posted to the board or not but one of my grand- > > daughters is now living with us.> > She is just a Blessing for us. We call he handi wipe cause she is > > always cleaning.. LOVE THAT.> > > > Anyhow I do hope to see my Air Family chatting again soon....> > > > > > Love & Prayers, Peggy> > Florida, IPF/UIP 2004> > > > "I believe that friends are quiet angels who lift us to our feet,> > when our wings have trouble remembering how to fly."> > > > > >> > >>

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It is a virtal pot luck and you can eat from my virtal plate and sit on my virtal lap. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Thursday, April 9, 2009 7:43:36 PMSubject: Re: Re: O/T Picnic

That temperature sounds perfect to me. Along with the ambrosia salad that I said that I was bringing when I thought that it was potluck I will be bringing Surf and Turf, melt in your mouth dinner rolls and a special raspberry wine that I can only drink at a virtual picnic. Beverley Joy, 70/IPF/ 1-09 Idaho

New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ;

Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor.. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto

hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious.. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the

tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss

treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they

made that determination.Because I was unable to give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch

---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Oooooh! What would Sher think about that? Beverley 70/IPF/1-09 Idaho

New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor.. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious.. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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Oooooh! What would Sher think about that? Beverley 70/IPF/1-09 Idaho

New To Board>>>>>> Hi All ...> I'm fairly new to the board .... Have been lurking and getting a feelfor it. You folks seem pretty darn NICE!!!>> My name is Donna. Wife to , Sr for 41 years; Mother to ,Jr(40yo), Aimee(39yo) and Charlie(33yo) ; Grandmother to Silas(7yo),Abigail(4yo) , and Pippa & Jasper(2yo). THEY (all of the previous) arethe joys in my life, for sure!!>> I was first diagnosed with Pulmonary Hypertension in Sept 2003. Wasimmediately admitted to the hospital on what I thought would be aroutine visit for bronchitis. I had put off going to the doctor forabout 8 or 9 months because of insurance change and having to find a newdoctor.. When on one Saturday afternoon when trying to change bedding ona twin size bed I became VERY SOB and felt I was about to pass out. Ihad had SOB for a year or more but because it came on fast but went awayjust as fast I more or less ignored it. That Saturday it was different... I didn't like the way my legs went limp and I had to grab onto mydesk til the feeling passed. I called a doctor 'from accepted list' onMonday, got in to see him on Tuesday and as stated before was admittedto hospital right then and there. The PCP doc came into my room thatnight and told me it appeared I had PH and was bringing in Pulmo to mycase. I called home and asked my son to see what he> could find on the internet about PH -- I had never heard of it, butstill had no idea it was so serious.. My son brought print-offs to methat night and it scared me -- saying death within 5 years of diagnosis.OMG ... how could this be happening? Needless to say, I believe I was inshock. LOL> The next couple of days in the hospital I was put thru a battery oftests: echos, CTs, Blood Work, PFT, and others I forget now. Seems Ispent little time in my room.> After a week in the hospital I was released with oxygen 3lpn 24/7.That is first time I cried --- just the sound of the concentrator. Mymother and father had both died on a ventilator and the sound was so'the same' that I just sat down on my bed and let the tears flow.>> The doctors were reluctant to put a cause to my PH, but kept referringto my taking of the diet drug Fen-Phen ....... which I took for maybe atmost 3 months.. I stopped when the doctor who was prescribing to mementioned that I had a heart murmur which I NEVER had before even tho Idid have a heart attack in 1989. Still, my cardio docs never mentioned amurmur, so I said WHOA to myself and stopped the Fen-Phen.>> During office visit with Pulmo, I was put on Prednisone. Being naive-- I had not found forums at that time -- I was just going along withwhatever the doctors said. Heck, they just HAD to know more than me,cause I knew nothing. Then Pulmo suggested a biopsy. His words being"Something else is going on with your lungs. We can continue to treatwith Pred and hope for the best or we can do the biopsy and be sure."Heck, I wanted 'to be sure' not a hit and a miss treatment. I went intohospital to have biopsy 2 days before Thanksgiving in 2003. I only spentone night in hospital. My drainage tube came out on it's own, so I wassent home on Thanksgiving Eve. That was the BEST and worst Thanksgivingin opposite pole ways. I had some discomfort, called the surgeon andwent for office visit at their request. The surgeon is the one who gaveme the diagnosis of PF on that visit. Again, I was shocked. I doremember saying to him "Well, at least it's not cancer"> The look on his face was not good. I said, "Would cancer be better?"He just sorta nodded his head -- not a full blown yes, mind you. Again,the tears flowed.>> In an attempt to shorten this novel. LOL ... let me say that thedoctors (and I even went to Vanderbilt for evaluation to be placed in astudy there) ALL said that the PH and PF were independent of oneanother.. I to this day do not know how they made that determination.Because I was unable to give them yes answers to the questions theyasked, it was determined I had IPF and PPH!!>> I am not a candidate for transplant because of the PPH and my heartcondition. Soooo, that is where I stand. Presently taking a fistful ofmeds daily, one being Tracleer for the PH, but I understand it is nowbeing considered for the treatment of PF also. I, on that basis, believethat drug is more than likely what has hald me 'steady' up untilrecently.>> I have an appt with my Pulmo on May 1st after a year and I feel as thowe might see some progression. I know I don't feel so good the past 3-4months, yet not bad enough to schedule an earlier appointment. We shallsee. Could be something else entirely.> Due to the Pred, I now also have diabetes, neuropathy, cataracts.Seems it's always something. Either I can't sleep at all or I sleep toomuch ---- Can't eat at all or can't get enough to eat. I have to laughat myself and the turns my body takes or I would go nutz!>> Thanks for hanging with me on this long diatribe .... I promise myfuture posts will be shorter. ROFL>> God Bless you all ........ you may be new to me but you are all in myprayers and I hope you will add me to yours. It's a hideous disease. Ihate it!!! (and don't use the word hate much ... taught my kids it wasthe 'devil's word' and they should say strongly dislike -- LOL ... sothat shows you exactly how I feel)>

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