Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 /MB My reservoir in my van weighs 94 pounds full. It holds 50 pounds of oxygen. > > > > Bill, > > First of all I always leave a couple of windows cracked when I leave spare tanks in my car. I don't know that it's necessary but I do it all the same. Your tanks won't explode, oxygen is not an explosive gas so you can put that worry out of your head. > > > > I've been on oxygen 24/7 for almost 3 years and I travel by car frequently. I use a concentrator at home and compressed O2 tanks when I'm out and about. Overnight I must have the concentrator. As you said, the tanks don't last long enough to get through the night. So I take a concentrator with me and roll it, lug it, push it, shove it wherever it needs to be. I ask for help. This is the key and it's been the hardest thing for me to learn. > > If I'm visiting family, someone brings the concentrator in the house for me. If I'm at a hotel so far I've been able to manage by myself. My concentrator weighs about 40 pounds and I'm able to manueuver it in and out of the back seat of my car. After that I can roll it where it needs to be. I have asked for help on occasion and someone is always willing. I've even been approached in the parking lot by folks asking me if I need help. I never say no anymore. > > > > I've never attempted to get my machine up a flight of stairs. That is a task for one of my brothers or brothers in law. It's not that we can't travel. It's that we have to travel differently than we have in the past. Life is not over, it's just different! > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > Beth, > I was looking over the website and I found the pictures. I noticed that you were in some pictures. I thought you were on liquid. Your oxygen tank looks like my Helios. I have a small one and a large one. I use them both depending on where I go. As for over nights I have to carry my reservoir with me. I have been told that it weights 165 lbs. I have a mini van and my husband is strong man. It is difficult but it can be done. We load it and go. I don't really have a point I was just commenting. Take care, > > ,42 > IPF 03, Bronchiectsis 03 > > > > > > > > ____________ _________ _________ __ > > From: " Paradis3@ . " Paradis3@ .> > > To: Breathe-Support@ yahoogroups. com > > Sent: Tuesday, April 28, 2009 8:59:07 AM > > Subject: Question: oxygen tanks and hot weather > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! > > I wasn't on oxygen last summer so a lot of this is new to me. I'm out and about a lot and I've been leaving a spare filled tank in the car, along with the larger, roll-around size in case I'm going to be staying someplace for awhile. The temperature here in northeast PA has been in the mid-90s this week. If I leave those tanks in the locked and closed car, is there a chance of one exploding? Another question: If you're visiting someplace overnight and on " nocturnal oxygen " , what's the easiest way? The big tanks run out and the concentrator is pretty heavy to lug up and down my stairs, especially up. Thanks. > > > > Bill IPF 10-08 > > N.E. PA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 I strongly suggest to you and to others to talk to the manager of the oxygen provider office. In person is even better. But while customer service and drivers can't do certain things, the manager has a lot of leeway. Approach it by educating them as to your situation and needs and that you're seeking their assistance in figuring out the right solution. Then suggest what you have in mind. They are a lot more flexible when a real live person with a horrible disease is sitting across from them than when its an anonymous person on the other end of the phone. Even on the phone, personalize it. Let them understand you. Let them like you and want to help you. Then instead of saying " sure does want a lot " they might say " sure is impressive wanting to remain active. I applaud her and want to help her. " > > > > > > Bill, > > > First of all I always leave a couple of windows cracked when I leave spare tanks in my car. I don't know that it's necessary but I do it all the same. Your tanks won't explode, oxygen is not an explosive gas so you can put that worry out of your head. > > > > > > I've been on oxygen 24/7 for almost 3 years and I travel by car frequently. I use a concentrator at home and compressed O2 tanks when I'm out and about. Overnight I must have the concentrator. As you said, the tanks don't last long enough to get through the night. So I take a concentrator with me and roll it, lug it, push it, shove it wherever it needs to be. I ask for help. This is the key and it's been the hardest thing for me to learn. > > > If I'm visiting family, someone brings the concentrator in the house for me. If I'm at a hotel so far I've been able to manage by myself. My concentrator weighs about 40 pounds and I'm able to manueuver it in and out of the back seat of my car. After that I can roll it where it needs to be. I have asked for help on occasion and someone is always willing. I've even been approached in the parking lot by folks asking me if I need help. I never say no anymore. > > > > > > I've never attempted to get my machine up a flight of stairs. That is a task for one of my brothers or brothers in law. It's not that we can't travel. It's that we have to travel differently than we have in the past. Life is not over, it's just different! > > > Beth > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > Beth, > > I was looking over the website and I found the pictures. I noticed that you were in some pictures. I thought you were on liquid. Your oxygen tank looks like my Helios. I have a small one and a large one. I use them both depending on where I go. As for over nights I have to carry my reservoir with me. I have been told that it weights 165 lbs. I have a mini van and my husband is strong man. It is difficult but it can be done. We load it and go. I don't really have a point I was just commenting. Take care, > > > > ,42 > > IPF 03, Bronchiectsis 03 > > > > > > > > > > > > ____________ _________ _________ __ > > > From: " Paradis3@ . " > > > To: Breathe-Support@ yahoogroups. com > > > Sent: Tuesday, April 28, 2009 8:59:07 AM > > > Subject: Question: oxygen tanks and hot weather > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! > > > I wasn't on oxygen last summer so a lot of this is new to me. I'm out and about a lot and I've been leaving a spare filled tank in the car, along with the larger, roll-around size in case I'm going to be staying someplace for awhile. The temperature here in northeast PA has been in the mid-90s this week. If I leave those tanks in the locked and closed car, is there a chance of one exploding? Another question: If you're visiting someplace overnight and on " nocturnal oxygen " , what's the easiest way? The big tanks run out and the concentrator is pretty heavy to lug up and down my stairs, especially up. Thanks. > > > > > > Bill IPF 10-08 > > > N.E. PA > > > > > > Beth, 50 lbs sounds a lot better than 165. My husband thanks you. My O2 carrier used to be Dependicare but I switched to Lincare. They have been great. I was told from Dependicare that I could not have more than one tank unless I was traveling and then it would be delivered to me. I could not keep it at my house. I will have to check with Lincare. The pictures are the ones in the photo files. You look great. As soon as I can figure this out I will post some of my own pics. How come all of my reply's are at the bottom of the message and everyone else s are on top? Have I told you that I don't know much about computers...lol. Any help will be appreciated. > > 42, > IPF 03, Bronchiectsis 03. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 I strongly suggest to you and to others to talk to the manager of the oxygen provider office. In person is even better. But while customer service and drivers can't do certain things, the manager has a lot of leeway. Approach it by educating them as to your situation and needs and that you're seeking their assistance in figuring out the right solution. Then suggest what you have in mind. They are a lot more flexible when a real live person with a horrible disease is sitting across from them than when its an anonymous person on the other end of the phone. Even on the phone, personalize it. Let them understand you. Let them like you and want to help you. Then instead of saying " sure does want a lot " they might say " sure is impressive wanting to remain active. I applaud her and want to help her. " > > > > > > Bill, > > > First of all I always leave a couple of windows cracked when I leave spare tanks in my car. I don't know that it's necessary but I do it all the same. Your tanks won't explode, oxygen is not an explosive gas so you can put that worry out of your head. > > > > > > I've been on oxygen 24/7 for almost 3 years and I travel by car frequently. I use a concentrator at home and compressed O2 tanks when I'm out and about. Overnight I must have the concentrator. As you said, the tanks don't last long enough to get through the night. So I take a concentrator with me and roll it, lug it, push it, shove it wherever it needs to be. I ask for help. This is the key and it's been the hardest thing for me to learn. > > > If I'm visiting family, someone brings the concentrator in the house for me. If I'm at a hotel so far I've been able to manage by myself. My concentrator weighs about 40 pounds and I'm able to manueuver it in and out of the back seat of my car. After that I can roll it where it needs to be. I have asked for help on occasion and someone is always willing. I've even been approached in the parking lot by folks asking me if I need help. I never say no anymore. > > > > > > I've never attempted to get my machine up a flight of stairs. That is a task for one of my brothers or brothers in law. It's not that we can't travel. It's that we have to travel differently than we have in the past. Life is not over, it's just different! > > > Beth > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > Beth, > > I was looking over the website and I found the pictures. I noticed that you were in some pictures. I thought you were on liquid. Your oxygen tank looks like my Helios. I have a small one and a large one. I use them both depending on where I go. As for over nights I have to carry my reservoir with me. I have been told that it weights 165 lbs. I have a mini van and my husband is strong man. It is difficult but it can be done. We load it and go. I don't really have a point I was just commenting. Take care, > > > > ,42 > > IPF 03, Bronchiectsis 03 > > > > > > > > > > > > ____________ _________ _________ __ > > > From: " Paradis3@ . " > > > To: Breathe-Support@ yahoogroups. com > > > Sent: Tuesday, April 28, 2009 8:59:07 AM > > > Subject: Question: oxygen tanks and hot weather > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! > > > I wasn't on oxygen last summer so a lot of this is new to me. I'm out and about a lot and I've been leaving a spare filled tank in the car, along with the larger, roll-around size in case I'm going to be staying someplace for awhile. The temperature here in northeast PA has been in the mid-90s this week. If I leave those tanks in the locked and closed car, is there a chance of one exploding? Another question: If you're visiting someplace overnight and on " nocturnal oxygen " , what's the easiest way? The big tanks run out and the concentrator is pretty heavy to lug up and down my stairs, especially up. Thanks. > > > > > > Bill IPF 10-08 > > > N.E. PA > > > > > > Beth, 50 lbs sounds a lot better than 165. My husband thanks you. My O2 carrier used to be Dependicare but I switched to Lincare. They have been great. I was told from Dependicare that I could not have more than one tank unless I was traveling and then it would be delivered to me. I could not keep it at my house. I will have to check with Lincare. The pictures are the ones in the photo files. You look great. As soon as I can figure this out I will post some of my own pics. How come all of my reply's are at the bottom of the message and everyone else s are on top? Have I told you that I don't know much about computers...lol. Any help will be appreciated. > > 42, > IPF 03, Bronchiectsis 03. > Quote Link to comment Share on other sites More sharing options...
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