Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Have you let the doc know you are continuing to have this same pain??? I'm used to impactions too but doc finally got me on Miralax. Not OTC but Rx only. It's Polyethylene Glycol. ASK DOC ABOUT THIS. Since I've been on this, NO impactions. You may be seeing more clearly why doc in ER wanted to admit you...sounds like you needed and still need the immediate care that is available there. I know, I know, money. But YOU are more important than the money right now Sunny. You can still go back to ER for immediate care and possible admit. Worry about money afterward. $10/$20 a month may have to be the best you can do...I know there ARE solutions. Pain is inevitable but suffering is optional.... Who is "they" that called inquiring about your O2 carrier? Call the hospital and inquire who the O2 carriers are in your area....Maybe Lincare...good. But you still will need a Rx from Dr for O2....call his/her office and get their help with a carrier... One step at a time, one day at a time but don't suffer Sunny. Not one more day! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Sunny...with the severe bowel problems...I've been there done that...it is likely you have hemorrhoids. I had no idea they were present until I was told after an exam. Check it out. There are creams OTC that can help.... If it's not that then you will still want to stay close to doc care. Check it out if pain persists but don't ignore it or wait for it to get better, ok? Try giving yourself a date....if you are not better say, in two days go back to the ER. Or whatever time you choose. This has been going on too long...stay with it, get the care you need or you could be dealing with something more as a consequence. You must be worn out Sunny. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Oooh Sher is physic or she has a camera in my toilet. Now that would be gross! You are absolutely right, I do suffer from the roids but have mucho medicines that help keep it under control. Seriously I am going to be watching myself like a hawk after a mouse. If my body tells me "hey I am in a lot of pain here" I am going to get the help I need immediately. It makes no sense to wait. Money be * & ^%$#! Now that things are moving again the pain should go away but I am still going to keep track of everything including when things move and where the pain is. AHA!!!! Oxygen at last. Lincare delivered at 6:15 pm tonight. I was shocked as I had decided the doctor didn't think I was important enough to get immediate help. Anyway now I have my machine and oxygen bottles along with lots of other tubes ect... I am sure glad Rich snores so I am used to ear plugs at night. I am looking forward to a good nights sleep and waking up tomorrow not feeling so fatigued. Of course it is just my imagination but ever since I joined this chat group things have been looking up in almost every way OR is it my imagination. Love and hugs and prayers for you all. Good night! Sunny, PF "09, Lupus/Sjogrens/Arthritis '04/IBS forever, Diabetes '05, Thyroid disease '07, Osteoporosis "06, Reflux "03, CAN '09, Idaho From: Sher Bauman Sent: Thursday, April 30, 2009 6:19 PM To: Breathe-Support Subject: Re: Afraid Sunny...with the severe bowel problems...I've been there done that...it is likely you have hemorrhoids. I had no idea they were present until I was told after an exam. Check it out. There are creams OTC that can help.... If it's not that then you will still want to stay close to doc care. Check it out if pain persists but don't ignore it or wait for it to get better, ok? Try giving yourself a date....if you are not better say, in two days go back to the ER. Or whatever time you choose. This has been going on too long...stay with it, get the care you need or you could be dealing with something more as a consequence. You must be worn out Sunny. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Oooh Sher is physic or she has a camera in my toilet. Now that would be gross! You are absolutely right, I do suffer from the roids but have mucho medicines that help keep it under control. Seriously I am going to be watching myself like a hawk after a mouse. If my body tells me "hey I am in a lot of pain here" I am going to get the help I need immediately. It makes no sense to wait. Money be * & ^%$#! Now that things are moving again the pain should go away but I am still going to keep track of everything including when things move and where the pain is. AHA!!!! Oxygen at last. Lincare delivered at 6:15 pm tonight. I was shocked as I had decided the doctor didn't think I was important enough to get immediate help. Anyway now I have my machine and oxygen bottles along with lots of other tubes ect... I am sure glad Rich snores so I am used to ear plugs at night. I am looking forward to a good nights sleep and waking up tomorrow not feeling so fatigued. Of course it is just my imagination but ever since I joined this chat group things have been looking up in almost every way OR is it my imagination. Love and hugs and prayers for you all. Good night! Sunny, PF "09, Lupus/Sjogrens/Arthritis '04/IBS forever, Diabetes '05, Thyroid disease '07, Osteoporosis "06, Reflux "03, CAN '09, Idaho From: Sher Bauman Sent: Thursday, April 30, 2009 6:19 PM To: Breathe-Support Subject: Re: Afraid Sunny...with the severe bowel problems...I've been there done that...it is likely you have hemorrhoids. I had no idea they were present until I was told after an exam. Check it out. There are creams OTC that can help.... If it's not that then you will still want to stay close to doc care. Check it out if pain persists but don't ignore it or wait for it to get better, ok? Try giving yourself a date....if you are not better say, in two days go back to the ER. Or whatever time you choose. This has been going on too long...stay with it, get the care you need or you could be dealing with something more as a consequence. You must be worn out Sunny. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Beverley, I got up to 220 because of the steroids but have lost down to 170 in the last 13 weeks because of my bowel problems. Yes the Lincare guy that came out was from CDA. He told me they have offices everywhere including Spokane, CDA and Sandpoint. Don't worry about your weight gain. You know why and it's not your fault. Hopefully the prednisone will not be long term and then the pounds will just drop off. Don't you live in Spirit Lake or am I imagining things again? We go there once a week just to go to 's grocery and get beef jerky. It is sooooooooooooo good. It only last a day and is $17 a pound but worth it. We have to get together soon for lunch. Call anytime. I enjoy your emails too. Sunny From: Beverley Joy Sent: Thursday, April 30, 2009 10:28 PM To: Breathe-Support Subject: Re: Afraid Sunny, I live in Bonner County and you live in Kootnei but I use Lincare and I like them. Mine are out of Sandpoint but I'll bet they have an office in CDA. I have gained 28 ponds in the last few months. That is Prednisone for you. Beverley Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
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