Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 Sunny... I am so relieved (no pun intended, ;o) you are taking pain seriously. The two of us have/had similar problems. If I can help eliminate (teehee) some of the problems, then you have more strength to fight your disease and advocate for what you need. Constant straining can lead to 'roids and then we have two more problems...impactions and 'roids.... That Rx only (for impaction) I sent you, I urge again for you to ask doc about. This stuff works! I had surgery on my rectum in 2000...and began having impactions immediately....I won't go in to all the details. Now on this Rx stuff, for the first time, (9 years!) my bowels are not my constant focus. Now I know this is a bit graphic here but there needs to be enough explanation to make sense... I strongly believe we just begin to spiral more and more downward with each chronic med problem we have. I hope I can be just a little help to you. AHA! Oxygen . Another need taken care of, we hope. You will feel so much better now Sunny. You might mention to Rich that his snoring could be sleep apnea. Just what you want to know, huh... but knowledge is a good thing. Have a great day! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 I live in Blanchard. That's 7 miles on from Spirit Lake. I if you want to know exactly where I live send me another post. Beverley Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 Sher, we had Rich checked for apnea last year because of his snoring. YOU ARE TOO FUNNY GIRLFRIEND! I needed a good laugh as I just posted some serious concerns I have with my GI who I trusted so much. I just told Rich yesterday that we spend more time discussing my bm's or lack thereof, consistency, ect... than anything else. He had to agree. What a way to run a mariage. And I bet I had much the same surgery you did in 2000 except mine was in '07. Yucky! Sunny From: Sher Bauman Sent: Friday, May 01, 2009 10:30 AM To: Breathe-Support Subject: Re: Afraid Sunny... I am so relieved (no pun intended, ;o) you are taking pain seriously. The two of us have/had similar problems. If I can help eliminate (teehee) some of the problems, then you have more strength to fight your disease and advocate for what you need. Constant straining can lead to 'roids and then we have two more problems...impactions and 'roids.... That Rx only (for impaction) I sent you, I urge again for you to ask doc about. This stuff works! I had surgery on my rectum in 2000...and began having impactions immediately....I won't go in to all the details. Now on this Rx stuff, for the first time, (9 years!) my bowels are not my constant focus. Now I know this is a bit graphic here but there needs to be enough explanation to make sense... I strongly believe we just begin to spiral more and more downward with each chronic med problem we have. I hope I can be just a little help to you. AHA! Oxygen . Another need taken care of, we hope. You will feel so much better now Sunny. You might mention to Rich that his snoring could be sleep apnea. Just what you want to know, huh... but knowledge is a good thing. Have a great day! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Afraid I've had Interstitial Pulmonary Fibrosis since March 2005. I've been on oxygen 24/7 for awhile. I haven't been feeling well and find myself doing less and less. I went for extensive blood work last month and haven't heard the results. But, I knew I have another doctor's appointment in a few weeks. I went for Pulmonary Function testing the other day and saw the doctor afterwards. I was nervous as to the results. The doctor told my partner & me that the disease has "progressed significantly". He also said that there was an abnormality in one of the blood tests. I was so upset, that I don't remember what he was saying. I'm scheduled for a CAT scan and a broncoscopy in a few weeks. He also mentioned doing a lung biopsy. I don't know if he meant while doing the broncoscopy, or at a later time. If he meant later, I don't think I'll have it done. I've read postings about what people have gone through.He also said that he may prescribe Prednisone with insulin. Prednisone makes me a diabetic. I don't know if it's worth taking one medication with side effects and having to take another to counter them. I have HIV/AIDS and have been through it before.I'm very depressed at the moment. I feel like I'm unable to tell my partner. I guess I shouldn't feel this way, because I've read how others have it worse than me. The doctor told me, awhile ago, to eat more. I have no appetite, but I try. My partner asked me yesterday, if I'm ready to die.I afraid to die. I guess it's because I don't have faith. I've tried to find something, but I can't. I know we're all going to die at some time. But, I'm so scared.Well, thanks for letting me say what's on my mind. I hope someone can understand. Quote Link to comment Share on other sites More sharing options...
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