Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

[Guest guest]

It's a great age! Ken R

From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PM

No one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond, VA. Just found this PF site and have questions. Where do I go to buy an oximeter? Also, I read somewhere on the PF Foundation site that the average span of years to live once you are

diagnosed is 4 to 6 years, is this correct? Thanks for any info. you can share with me. Sincerely, Ginny>

[Guest guest]

Ken Baker just turned 67 this month.

Ken Baker UIP/IPF 12/05 New Hampshire

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Overman

Sent: Thursday, February 26, 2009

2:46 PM

To: Breathe-Support

Subject: Re: Re:

New PF woman/age 65/diagnosed 6/2008/What is average life span with this

disease?

ken overman will be 65 in april.

From: Ken

Raphael <kjraphael (AT) yahoo (DOT) com>

To: Breathe-Support

Sent: Wednesday, February 25, 2009

2:48:02 PM

Subject: Re: Re:

New PF woman/age 65/diagnosed 6/2008/What is average life span with this

disease?

Just thought I'd add that I'm 65 too

:-) Ken Raphael (There are several Ken's on this board.)

From: tony

<oilfieldcop@ yahoo.com>

Subject: Re: New PF woman/age 65/diagnosed

6/2008/What is average life span with this disease?

To: Breathe-Support@ yahoogroups. com

Date: Tuesday, February 24, 2009, 2:15 PM

No one knows how

long you got I been fighting it for going on 15 years

so don't let the horror stories get to you to bad. I have both IPF and

COPD and all that means is its hard to breath like we don't all ready

know it huh. Hey just relax your nerves settle down and take it a step

at a time and enjoy yourself as much as you can.Don't think about the

regrets get out and o the things you want to do.Even if you think you

can't do them try anyhow-ggod luck

tony

>

> Hi, Ginny here, from Richmond,

VA. Just found this

PF site and have

questions. Where do I go to buy an oximeter? Also, I read

somewhere on the PF Foundation site that the average span of

years to

live once you are diagnosed is 4 to 6 years, is this

correct? Thanks

for any info. you can share with me. Sincerely, Ginny

>

[Guest guest]

The way I look at it, any day above ground is good...When it's my time, it's my time.  Not a whole heck ofa lot I can do about it except what Mother said: " Pray for the dead and work like hell for the living. "

jon50, sarcoidosis 1/9-- A little nonsense now and then is relished by the wisest men.  

[Guest guest]

"Happy Birthday Ken."How come we didn't know it was your BD..??? Many Many more. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Ken Baker just turned 67 this month. Ken Baker UIP/IPF 12/05 New Hampshire From: Breathe-Support  [mailto:Breathe-Support ] On Behalf Of  OvermanSent: Thursday, February 26, 2009 2:46 PMTo: Breathe-Support Subject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease? ken overman will be 65 in april. From: Ken Raphael <kjraphael (AT) yahoo (DOT) com>To: Breathe-Support Sent: Wednesday, February 25, 2009 2:48:02 PMSubject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?Just thought I'd add that I'm 65 too :-)  Ken Raphael (There are several Ken's on this board.)--- On Wed, 2/25/09, Ginny  <ginnymurphy93@ yahoo.com>wrote:From: Ginny <ginnymurphy93@ yahoo.com>Subject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Wednesday, February 25, 2009, 10:36 PMKen, thank you so much for your reply.  I am a lot like you.  I really believe that God knows when it is our time to go.  I am just lucky that I've already gotten to live 65 years - what a blessing.  I have loving children and a good support system.  So I am not afraid to die.  Thanks again and God bless you and your family.  Ginny--- On Wed, 2/25/09, Ken Raphael <kjraphael (AT) yahoo (DOT) com> wrote:From: Ken Raphael <kjraphael (AT) yahoo (DOT) com>Subject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Wednesday, February 25, 2009, 9:35 PMHi Ginny! I appreciated your questions. I am like you - New to this.  I was recently diagnosed with IPF and didn't have the slightest idea what it was....  For several months I didn't even check it out on the Internet.  I thought, okay, I have some scarring on the lungs - No big deal.  Then I got a notice from the VA referring me to a pulmonary clinic and in that notice there was a word I didn't understand so I looked it up on the Internet and wow, I saw I have 3-6 years to live.  I was so shocked that I started to laugh but no one else was laughing - It seemed totally unreal, and to some degree still does. My IPF was found during an Agent Orange exam on an x-ray.  I didn't go in because of symptoms.  Now, however, I look back and I had symptoms.  I thought I was out of shape or that my heart was having trouble causing me to be short of breath.  I especially feel it at night in bed. Like you, I don't know anything about an oximeter but I am ready for one.  My doctor said I couldn't fly right now until further testing - We already had our tickets.  I am grateful he stepped in when I hear what altitude can do without proper precautions.  I would like to read the value of an oximeter on this board as well. As far as our life expectancy I'm okay on that.  In says in Psalm 139 says, "In Thy book they were all written, the days that were ordained for me when as yet there was not one of them."  If I have 3 or 30 years left I'm okay.  I hope you have understanding family and friends.  I live each day as normally as possible with joy and optimism - I think that is the best medicine!  That certainly doesn't mean I'm in denial about this disease - It's serious.  Relationships are more important to me now - I value everyone - I'm sure you do too! Keep reading this board.  I'm new to it too and mostly just read.  Everyone here is more than understanding and accepting - You'll learn a lot. A friend,Ken Raphael--- On Wed, 2/25/09, Joyce T Rosenberg <pinkrockybeach@ yahoo.com> wrote:From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>Subject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Wednesday, February 25, 2009, 3:26 PMTonyI love to read about the fight going on for 15 years, not about the fight, but that it's 15 years it gives me hope i hope i make sensePink Joyce IPF 3/06  Pennsylvania Donate Life Listed 1/09www.transplantfund. org--- On Tue, 2/24/09, tony <oilfieldcop@ yahoo.com> wrote:From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PMNo one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond, VA.  Just found this PF site and have questions.  Where do I go to buy an oximeter?  Also, I read somewhere on the  PF Foundation site that the average span of years to live once you are diagnosed is 4 to 6 years, is this correct?  Thanks for any info. you can share with me.  Sincerely, Ginny>  

[Guest guest]

A perfect age - We've come a long ways! Do you think our common name has something to do with this? :-)

From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PM

No one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond , VA. Just found this PF site and have questions. Where do I go to buy an oximeter? Also, I read somewhere on the PF

Foundation site that the average span of years to live once you are diagnosed is 4 to 6 years, is this correct? Thanks for any info. you can share with me. Sincerely, Ginny>

[Guest guest]

you bet'em red rider!

To: Breathe-Support Sent: Thursday, February 26, 2009 6:58:59 PMSubject: RE: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

A perfect age - We've come a long ways! Do you think our common name has something to do with this? :-) From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PM

No one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond , VA. Just found this PF site and have questions. Where do I go to buy an oximeter?

Also, I read somewhere on the PF Foundation site that the average span of years to live once you are diagnosed is 4 to 6 years, is this correct? Thanks for any info. you can share with me. Sincerely, Ginny>

[Guest guest]

you bet'em red rider!

To: Breathe-Support Sent: Thursday, February 26, 2009 6:58:59 PMSubject: RE: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

A perfect age - We've come a long ways! Do you think our common name has something to do with this? :-) From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PM

No one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond , VA. Just found this PF site and have questions. Where do I go to buy an oximeter?

Also, I read somewhere on the PF Foundation site that the average span of years to live once you are diagnosed is 4 to 6 years, is this correct? Thanks for any info. you can share with me. Sincerely, Ginny>

[Guest guest]

happy belated birthday ken.

To: Breathe-Support Sent: Thursday, February 26, 2009 4:21:11 PMSubject: RE: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

Ken Baker just turned 67 this month.

Ken Baker UIP/IPF 12/05 New Hampshire

From: Breathe-Support@ yahoogroups. com [mailto: Breathe-Support@ yahoogroups. com ] On Behalf Of OvermanSent: Thursday, February 26, 2009 2:46 PMTo: Breathe-Support@ yahoogroups. comSubject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

ken overman will be 65 in april.

From: Ken Raphael <kjraphael (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, February 25, 2009 2:48:02 PMSubject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

Just thought I'd add that I'm 65 too :-) Ken Raphael (There are several Ken's on this board.)

From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PM

No one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond , VA. Just found this PF site and have questions. Where do I go to buy an oximeter?

Also, I read somewhere on the PF Foundation site that the average span of years to live once you are diagnosed is 4 to 6 years, is this correct? Thanks for any info. you can share with me. Sincerely, Ginny>

[Guest guest]

the memories are priceless

To: Breathe-Support Sent: Thursday, February 26, 2009 2:20:18 PMSubject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

It's a great age! Ken R

From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PM

No one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond, VA. Just found this PF site and have questions. Where do I go to buy an oximeter? Also, I read somewhere on the PF Foundation site that the average span

of years to live once you are diagnosed is 4 to 6 years, is this correct? Thanks for any info. you can share with me. Sincerely, Ginny>

[Guest guest]

the memories are priceless

To: Breathe-Support Sent: Thursday, February 26, 2009 2:20:18 PMSubject: Re: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?

It's a great age! Ken R

From: tony <oilfieldcop@ yahoo.com>Subject: Re: New PF woman/age 65/diagnosed 6/2008/What is average life span with this disease?To: Breathe-Support@ yahoogroups. comDate: Tuesday, February 24, 2009, 2:15 PM

No one knows how long you got I been fighting it for going on 15 years so don't let the horror stories get to you to bad. I have both IPF and COPD and all that means is its hard to breath like we don't all ready know it huh. Hey just relax your nerves settle down and take it a step at a time and enjoy yourself as much as you can.Don't think about the regrets get out and o the things you want to do.Even if you think you can't do them try anyhow-ggod lucktony>> Hi, Ginny here, from Richmond, VA. Just found this PF site and have questions. Where do I go to buy an oximeter? Also, I read somewhere on the PF Foundation site that the average span

of years to live once you are diagnosed is 4 to 6 years, is this correct? Thanks for any info. you can share with me. Sincerely, Ginny>