Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 She hasn't posted since January and I know how busy she was trying to take care of herself. Just wondering if anyone has talked or communicated with her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Judy Thanks so much for the update. I knew that had been detected and was hoping the rejection treatments were working, but hadn't heard from her so was worried. > > > > > > She hasn't posted since January and I know how busy she was trying to > > take care of herself. Just wondering if anyone has talked or > > communicated with her. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Judy Thanks so much for the update. I knew that had been detected and was hoping the rejection treatments were working, but hadn't heard from her so was worried. > > > > > > She hasn't posted since January and I know how busy she was trying to > > take care of herself. Just wondering if anyone has talked or > > communicated with her. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Speaking of updates, has anyone heard from Terri P? It's been many months now since she posted... and Tammy and Teri and Jon? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Has anyone heard from or talked to Kerry recently? JudyThanks so much for the update. I knew that had been detected and washoping the rejection treatments were working, but hadn't heard from herso was worried.> >> >> > She hasn't posted since January and I know how busy she was tryingto> > take care of herself. Just wondering if anyone has talked or> > communicated with her.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Sher I have wondered about them too. I don't remember the last time Terry P posted. I hope she is doing ok.We heard from Kerry in Feb. and I know she is so busy trying to keep up with herself. i am so proud to know her.There was a fellow Larry and his wife in Orlando. He had a transplant at Shands 10 months ago and is the picture of health.He gave a wonderful insightful talk. His wife also gave a talk. It was really a good time. The funny thing is and I had talked to them in the PFT dept. at Shands.. small world. Take care. I am probably not going to be here a whole lot because I am just to tired to make my brain work..lol true.Just don't think I am gone.. Love ya lots. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Speaking of updates, has anyone heard from Terri P? It's been many months now since she posted... and Tammy and Teri and Jon?MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Has anyone heard from or talked to Kerry recently?JudyThanks so much for the update. I knew that had been detected and washoping the rejection treatments were working, but hadn't heard from herso was worried.> >> >> > She hasn't posted since January and I know how busy she was tryingto> > take care of herself. Just wondering if anyone has talked or> > communicated with her.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Speaking of updates, has anyone heard from Terri P? It's been many months now since she posted... and Tammy and Teri and Jon?Which jon/Jon? (I don't capitalize mine...)This one is doing good. Had lots doc appts, none now for a while.My sarc is stable, but may be in my eyes, too. I am 50/50 on days with the old sarc zonc or brain fog. I fell today, in thegarage, and decided I better go back to bed...and now I feelreally good. Lots of neuropathy despite gabapentin, andsome days I just ache. On the other hand, my fibrosis is stable. My breathingfeels great and I love pulm rehab. Using an IS to at least2000, so I'm doing good. Pulmodude is slowly decreasingmy pred...15mg/d until May, then hopefully down to 10... Peace,jon-- Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, " I will try again tomorrow.” Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009  Peggy... I miss you on the board. Just check in once in awhile or I'll put my worry hat on. Love ya too... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: Has anyone heard from or talked to Kerry recently? JudyThanks so much for the update. I knew that had been detected and washoping the rejection treatments were working, but hadn't heard from herso was worried.> >> >> > She hasn't posted since January and I know how busy she was tryingto> > take care of herself. Just wondering if anyone has talked or> > communicated with her.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 jon ..... good to hear from you too! Teri /Jon are a couple, Jon is the ill one, very ill but I haven't heard anything about him lately. These people are back before you joined the board.... Keep on keepin' on. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Re: Has anyone heard from or talked to Kerry recently? On Wed, Mar 18, 2009 at 15:16, Sher Bauman <bofus (AT) wbcable (DOT) net> wrote: Speaking of updates, has anyone heard from Terri P? It's been many months now since she posted... and Tammy and Teri and Jon? Which jon/Jon? (I don't capitalize mine...)This one is doing good. Had lots doc appts, none now for a while.My sarc is stable, but may be in my eyes, too. I am 50/50 ondays with the old sarc zonc or brain fog. I fell today, in thegarage, and decided I better go back to bed...and now I feelreally good. Lots of neuropathy despite gabapentin, andsome days I just ache.On the other hand, my fibrosis is stable. My breathingfeels great and I love pulm rehab. Using an IS to at least2000, so I'm doing good. Pulmodude is slowly decreasingmy pred...15mg/d until May, then hopefully down to 10...Peace,jon-- Courage doesn't always roar. Sometimes courageis the quiet voice at the end of the day saying, "I will try again tomorrow.” Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Sher, Jon and Teri are hanging in there. Some weeks his bloodwork is a little better and some weeks it's worse. He was getting some blood today...hopefully it will help. They're taking it one day at a time. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Wednesday, March 18, 2009 7:41:40 PMSubject: Re: Re: Has anyone heard from or talked to Kerry recently? jon ..... good to hear from you too! Teri /Jon are a couple, Jon is the ill one, very ill but I haven't heard anything about him lately. These people are back before you joined the board.... Keep on keepin' on. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Re: Has anyone heard from or talked to Kerry recently? On Wed, Mar 18, 2009 at 15:16, Sher Bauman <bofus (AT) wbcable (DOT) net> wrote: Speaking of updates, has anyone heard from Terri P? It's been many months now since she posted... and Tammy and Teri and Jon? Which jon/Jon? (I don't capitalize mine...)This one is doing good. Had lots doc appts, none now for a while.My sarc is stable, but may be in my eyes, too. I am 50/50 ondays with the old sarc zonc or brain fog. I fell today, in thegarage, and decided I better go back to bed...and now I feelreally good. Lots of neuropathy despite gabapentin, andsome days I just ache.On the other hand, my fibrosis is stable. My breathingfeels great and I love pulm rehab. Using an IS to at least2000, so I'm doing good. Pulmodude is slowly decreasingmy pred...15mg/ d until May, then hopefully down to 10...Peace,jon-- Courage doesn't always roar. Sometimes courageis the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
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