Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Hi , If you can get your PT paid for by your med ins., it's a great thing. It's not inexpensive! But I found that it was infinitely helpful, for me. I went after being in a car accident (I was rear-ended at a stop-sign, as I had my neck twisted around left to look at oncoming traffic) and even though I was referred because of the neck damage I sustained, the entire exercise routine we developed together has helped me immensely with my physical problems beyond that one thing. Identifying problem areas and working to strengthen them, I have developed much more physical resilience, strength and ability to maintain good posture. As I work in a very physical environment (I'm a caterer and cooking teacher) and am often on my feet for 12 straight hours or more, and have to lift fairly heavy loads, I've learned how to do these things properly and also to strengthen the muscle groups involved so I don't hurt myself. I have to say I was constantly hurting myself before PT, I suspect because of the muscle weakness caused by GD. I found the other part of the therapy, having my body manipulated by the therapist, immediately helpful with my spasms, but in the long run not nearly as great as the exercise routine. However, that said, it does require the self-discipline to keep at the exercises. I've been working at it for about 4 years now, and still do my hour of exercises at least three evenings a week, more when my schedule permits. Bottom line, the exercises make me feel good, and strengthening helps me avoid injury. Hope this helps! Terry > From: graduate56@... > Reply-To: graves_support > Date: Sun, 13 Apr 2003 10:50:05 -0600 > To: graves_support > Subject: a question > > Hi all, > Its melissa again. > My primary doctor has recommended physical therapy for me. > Has anyone here on this list done this? > Did it help with the joint pain and back pains associated with graves? > Just curious. > r. green > > ________________________________________________________________ > Sign Up for Juno Platinum Internet Access Today > Only $9.95 per month! > Visit www.juno.com > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 I can't remember any women in the group having a bona fide recurrence. >>>>> Penny, I am in the female tx group who hasn't had a bona fide recurrence. In Sept. my hep told me I had rPSC after a liver bx which showed fibrosis. At my 1 year post tx appt in Dec. I asked him outright if I had PSC because I didn't believe a dx could be made from a single bx. He finally admitted that he didn't think I had rPSC. I wish he wouldn't have said it in the first place but I think he was just trying to discover why my liver enzymes were coming down so slowly (slowly according to him) after my rejection episode in late April. I feel that the fibrosis was caused by the rejection episode and according to my local GI my numbers were coming down as quickly as they should be. OK, that's more than you asked for but I get this feeling that maybe others have been dx with rPSC rather quickly after tx when in reality the doctor doesn't know for sure. To be fair, there are some who legitimately do have rPSC but some docs are just a little too trigger happy with the dx. If the topic of rPSC after tx has been discussed before I don't remember and am claiming brain fog too. :)Blessings, Barby UC - 1965, ileostomy - 1972, BCIR (continent pouch) 1994, PSC - 1995, arthritis 2007, tx 11.29.07married 29 years , 5 sons, 2 daughters in law, 1 granddaughter, 1 grandson , granddaughter due 3/09 and 1 golden retriever Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 I can't remember any women in the group having a bona fide recurrence. >>>>> Penny, I am in the female tx group who hasn't had a bona fide recurrence. In Sept. my hep told me I had rPSC after a liver bx which showed fibrosis. At my 1 year post tx appt in Dec. I asked him outright if I had PSC because I didn't believe a dx could be made from a single bx. He finally admitted that he didn't think I had rPSC. I wish he wouldn't have said it in the first place but I think he was just trying to discover why my liver enzymes were coming down so slowly (slowly according to him) after my rejection episode in late April. I feel that the fibrosis was caused by the rejection episode and according to my local GI my numbers were coming down as quickly as they should be. OK, that's more than you asked for but I get this feeling that maybe others have been dx with rPSC rather quickly after tx when in reality the doctor doesn't know for sure. To be fair, there are some who legitimately do have rPSC but some docs are just a little too trigger happy with the dx. If the topic of rPSC after tx has been discussed before I don't remember and am claiming brain fog too. :)Blessings, Barby UC - 1965, ileostomy - 1972, BCIR (continent pouch) 1994, PSC - 1995, arthritis 2007, tx 11.29.07married 29 years , 5 sons, 2 daughters in law, 1 granddaughter, 1 grandson , granddaughter due 3/09 and 1 golden retriever Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Ijust had my first 6 min. walk or rather a stroll as I didn't know before I went that I would be walking and wore flipflops. My o2 dropped to 78 and I was wondering if that was good as I am not on o2. Hughena. NS Canada, dx Feb. 09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Hughena: Anything below 90 is not good. I would think that you should be on oxygen immediately. Diane IPF June 07New Brunswick, Canada To: Breathe-Support Sent: Friday, May 29, 2009 8:17:52 PMSubject: a question Ijust had my first 6 min. walk or rather a stroll as I didn't know before I went that I would be walking and wore flipflops. My o2 dropped to 78 and I was wondering if that was good as I am not on o2. Hughena. NS Canada, dx Feb. 09 Yahoo! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Hughena: Anything below 90 is not good. I would think that you should be on oxygen immediately. Diane IPF June 07New Brunswick, Canada To: Breathe-Support Sent: Friday, May 29, 2009 8:17:52 PMSubject: a question Ijust had my first 6 min. walk or rather a stroll as I didn't know before I went that I would be walking and wore flipflops. My o2 dropped to 78 and I was wondering if that was good as I am not on o2. Hughena. NS Canada, dx Feb. 09 Yahoo! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 If you left that doctor's office without a prescription for oxygen then its terrible. Not only are you damaging your body and organs, you cannot possibly believe how much better you'd feel on oxygen. I certainly hope your doctor has followup planned. I ask as did Beth, what did he say? > > 78 is definitely NOT good. It's quite low especially considering you were just strolling and not doing anything too terribly strenuous. That's precisely what my sats would do if I went for a stroll without oxygen. > Under pretty much any standard I can think of that result would warrant an immediate prescription for oxygen. What has your doctor said? > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: shughena shughena@... > To: Breathe-Support > Sent: Friday, May 29, 2009 7:17:52 PM > Subject: a question > > > > > > Ijust had my first 6 min. walk or rather a stroll as I didn't know before I went that I would be walking and wore flipflops. My o2 dropped to 78 and I was wondering if that was good as I am not on o2. Hughena. NS Canada, dx Feb. 09 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 If you left that doctor's office without a prescription for oxygen then its terrible. Not only are you damaging your body and organs, you cannot possibly believe how much better you'd feel on oxygen. I certainly hope your doctor has followup planned. I ask as did Beth, what did he say? > > 78 is definitely NOT good. It's quite low especially considering you were just strolling and not doing anything too terribly strenuous. That's precisely what my sats would do if I went for a stroll without oxygen. > Under pretty much any standard I can think of that result would warrant an immediate prescription for oxygen. What has your doctor said? > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: shughena shughena@... > To: Breathe-Support > Sent: Friday, May 29, 2009 7:17:52 PM > Subject: a question > > > > > > Ijust had my first 6 min. walk or rather a stroll as I didn't know before I went that I would be walking and wore flipflops. My o2 dropped to 78 and I was wondering if that was good as I am not on o2. Hughena. NS Canada, dx Feb. 09 > Quote Link to comment Share on other sites More sharing options...
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