Re: How PF has improved my life

[Guest guest]

Ah now.. your Co Tyrone grandparent.... anywhere near Strabane I immediately wonder?????

On musical matters... my 6 year old grand-daughter has just started Violin lessons & I meet her school bus & take her to her lesson every Friday & then she stays overnight. It's become a joyful routine.

She asked me to play some 'Baby Jesus' songs this morning (she means Christmas Carols!).. she goes all gooey & dreamy eyed when she mentions Baby Jesus.... not bad for a kid attending an 'Ananda Marga' School.....it has Neo-Humanist Tradition....very much into the equal value of ALL life-forms... they do short yoga & meditation every morning before they start lessons. (no animal products in HER school lunch box!)

My own, very Catholic, Parents would've had a FIT... but hey the world is a much broader sphere now!

Cheers,

in Oz

> > > >> > > > Me too Jackie boy. I love ya.> > > > MamaSher; 70, IPF 3-06, OR.> > > > Nasturtiums> > > > Don't fret about tomorrow, God is already there!> > > >> > > > How PF has improved my life> > > >> > > >> > > > Ok.....I know to some, especially newcomers, this is an insane> > topic.> > > > But, I know there are many ways in which the diagnosis and> > subsequent> > > > events have actually made my life better. I know things I've gained.> > I'm> > > > going to reserve my list a bit and just want to hear others answer.> > > > While none of us would have chosen to have PF, I think it's> > important to> > > > remind ourselves of the good aspects of our lives and to instill> > among> > > > the newcomers the hope, not of a cure, but of a good life. So, what> > have> > > > you gained or what is better than before or what have you done since> > > > diagnosis that you might not have otherwise?> > > >> > >> >>

[Guest guest]

Jack, Bruce, Jim, and all,

I have been so blessed reading your wonderful responses. What an amazing group of people we are! This could be a place of sorrow and despair but instead it is filled with hope and the joy of living. I am so thankful for all of you-

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Re: How PF has improved my lifeTo: Breathe-Support Date: Friday, March 27, 2009, 3:02 PM

Since I was dx nearly five years ago, I have done a few things.

1. I reached the age of 80. To my surprise, it was a kind of freedom, to be wholely myself without concern for what others may think or do.

2. I learned that family - my children, my grandchildren, my great grandchildren hold me in considerable esteem. To have a four year old call you on the phone and sing happy birthday to you in a sweet voice

is like hearing angels.

3. I learned that my circle of friends was larger and more loving and concerned than I ever imagined, and

that they spanned ages from 6 to 90 .

4. I learned that PF is just another element in my life, a thought that I have incorporated but yet

respect, and that my life goes on very much like it did before, but with the annoyance of a drippy

five year old's nose, and an aggravting cough. No one but me pays these things any attention.

5. I learned that I now live my life with a heightened sensitivty to things I used to take for granted:

a magnificant surnise, a flock of ravens in my yard, a mama deer and her kid in the woods, a moose dancing across the highway before I get too close to cause an accident, the neighbor's cat chasing

a squirrel, only to lose it when it races up a tree trunk.

6. I learned that I love life and that with the right attitude life loves me, even with the PF.

7. I learned that I want to make it to 100, and that I have the will and the means to do so if I coddle the devil in my lungs and work to keep him still.

8. Most of all, I learned to love this great Air Family which has given me more love than I deserve and

taught me more about life than I thought there was to know.

Thank you - all of you - I love you.

Jack79/IPF - UIP/dx06/05 Maine

From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 1:40:20 PMSubject: How PF has improved my life

Ok.....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

[Guest guest]

Well, here's just a small part of my list:Focus on life and what is important far beyond any time before in my life. Wonderful friends including so many from here.Learning to set boundaries and live within my physical, emotional and financial limits. Surrounding myself with those who are healthy for me and avoiding those harmful to me.Taking better care of myself in every way.Recognizing the reality of morbidity shared by all mankind and living life to its fullest.Visiting family and reconnecting in ways that I would have continued to put off had it not been for this. Next year was always a convenient out until you realize next year isn't guaranteed.Not letting things that would have stress or annoy me as before realizing how unimportant they are. 's advice (Peggy's husband) not to waste our limited supply of energy on anger and other things.Allowing myself to accept just doing what I can do and not expecting more than I'm capable of or getting down on myself because of what I don't get accomplished.Learning to ask for help and receive it graciously.> > Subject: Re: How PF has improved my life> To: Breathe-Support > Date: Friday, March 27, 2009, 3:02 PM> > > > > > > > > > Since I was dx nearly five years ago, I have done a few things.> > 1. I reached the age of 80. To my surprise, it was a kind of freedom, to be wholely myself without concern for what others may think or do.> > 2. I learned that family - my children, my grandchildren, my great grandchildren hold me in considerable esteem. To have a four year old call you on the phone and sing happy birthday to you in a sweet voice> is like hearing angels.> > 3. I learned that my circle of friends was larger and more loving and concerned than I ever imagined, and > that they spanned ages from 6 to 90 .> > 4. I learned that PF is just another element in my life, a thought that I have incorporated but yet > respect, and that my life goes on very much like it did before, but with the annoyance of a drippy> five year old's nose, and an aggravting cough. No one but me pays these things any attention.> > 5. I learned that I now live my life with a heightened sensitivty to things I used to take for granted:> a magnificant surnise, a flock of ravens in my yard, a mama deer and her kid in the woods, a moose dancing across the highway before I get too close to cause an accident, the neighbor's cat chasing > a squirrel, only to lose it when it races up a tree trunk.> > 6. I learned that I love life and that with the right attitude life loves me, even with the PF.> > 7. I learned that I want to make it to 100, and that I have the will and the means to do so if I coddle the devil in my lungs and work to keep him still.> > 8. Most of all, I learned to love this great Air Family which has given me more love than I deserve and> taught me more about life than I thought there was to know.> > Thank you - all of you - I love you.> > > Jack> 79/IPF - UIP/dx06/05 Maine > > > > > > > From: Bruce Moreland <brucemoreland@ gmail.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, March 27, 2009 1:40:20 PM> Subject: How PF has improved my life> > > > Ok.....I know to some, especially newcomers, this is an insane topic.> But, I know there are many ways in which the diagnosis and subsequent> events have actually made my life better. I know things I've gained. I'm> going to reserve my list a bit and just want to hear others answer.> While none of us would have chosen to have PF, I think it's important to> remind ourselves of the good aspects of our lives and to instill among> the newcomers the hope, not of a cure, but of a good life. So, what have> you gained or what is better than before or what have you done since> diagnosis that you might not have otherwise?>

[Guest guest]

That's a lovely story Jane & very inspiring.... thanks for the sharing!

WOW, haven't you come such a long way from that time when you were so ill!

lotsa,

GIO

> > > > >> > > > > Me too Jackie boy. I love ya.> > > > > MamaSher; 70, IPF 3-06, OR.> > > > > Nasturtiums> > > > > Don't fret about tomorrow, God is already there!> > > > >> > > > > How PF has improved my life> > > > >> > > > >> > > > > Ok.....I know to some, especially newcomers, this is an insane> > > topic.> > > > > But, I know there are many ways in which the diagnosis and> > > subsequent> > > > > events have actually made my life better. I know things I've> gained.> > > I'm> > > > > going to reserve my list a bit and just want to hear others> answer.> > > > > While none of us would have chosen to have PF, I think it's> > > important to> > > > > remind ourselves of the good aspects of our lives and to instill> > > among> > > > > the newcomers the hope, not of a cure, but of a good life. So,> what> > > have> > > > > you gained or what is better than before or what have you done> since> > > > > diagnosis that you might not have otherwise?> > > > >> > > >> > >> >>

[Guest guest]

That's a lovely story Jane & very inspiring.... thanks for the sharing!

WOW, haven't you come such a long way from that time when you were so ill!

lotsa,

GIO

> > > > >> > > > > Me too Jackie boy. I love ya.> > > > > MamaSher; 70, IPF 3-06, OR.> > > > > Nasturtiums> > > > > Don't fret about tomorrow, God is already there!> > > > >> > > > > How PF has improved my life> > > > >> > > > >> > > > > Ok.....I know to some, especially newcomers, this is an insane> > > topic.> > > > > But, I know there are many ways in which the diagnosis and> > > subsequent> > > > > events have actually made my life better. I know things I've> gained.> > > I'm> > > > > going to reserve my list a bit and just want to hear others> answer.> > > > > While none of us would have chosen to have PF, I think it's> > > important to> > > > > remind ourselves of the good aspects of our lives and to instill> > > among> > > > > the newcomers the hope, not of a cure, but of a good life. So,> what> > > have> > > > > you gained or what is better than before or what have you done> since> > > > > diagnosis that you might not have otherwise?> > > > >> > > >> > >> >>