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Re: Think I'm hyper again

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Lorna,

The easy weight loss of hyper may be tempting, but you lose more muscle

than anything else when you lose that way, and that is really

unhealthy! I could really tell when I was that hyper. I was trying to

work out three times a week to minimize the muscle wasting, and I was

losing about a pound a day, even when I ate a full meal every two

hours! But I was constantly dropping the weight I could lift too. I

started at about 1/3 to 1/2 what I could do when I was healthy, and

dropped to less than half of that! It was really, really pathetic.

Given the heart problems it courts, and the possibility of bone loss, it

just isn't worth it.

Sorry... :(

-- in Fla.

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Lorna Schmidt wrote:

>

> I really don't want to start all over again and the thought of losing some

> of the weight I put on during the treatment if very tempting. My heart rate

> is between 100-120, will I be damaging it by putting off going to the doc?

Just a me too..

I agree with the other two, with a resting heart rate of 100-120

go to the doctor, or call him for a betablocker prescription.

Anything under 100 when resting is probably attributable to

general unfitness, but many docs use 100 as the trigger for

checking stuff out (although the arbitary nature of the limit is

probably more to do with ease of memorising it that well

researched medicine ;)

This is a " me too " in another way as well, as I think I'm hyper

again (on the same dose of PTU), but my pulse is NO WHERE NEAR

100 yet. I'm losing weight despite eating more, I thought it

might be this cold, or maybe the diarrhea was something else,

but I'm beginning to doubt it.

I can sympathise with the disappointment, I was really p'ed off

when I relapsed after surgery (even if it was 6 years later), I

thought this was something I'd put behind me. My advice, you

obviously respond to the drugs quite well, I'm sure in three or

four weeks you can be down to a minimal maintenance dose. Don't

be tempted to leap at easy fixes, just because you are hacked

off.

Che sera sera

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Hi Lorna,

I see you already have replies, but I still always need to add something.

:-)

If you gained weight while you were on your ATD , it is most likely because

you were not monitored and you dose adjusted in a timely fashion. I was kept

too hypo for a long time and had the same thing happen , until I joined

groups like this and learned I could get paper copies of each lab result and

learn where my own individual 'set point' is.

Once I got this figured out and was on the right dose for ME, the extra

weight slipped away.

I do understand your thinking at this point, but unfortunately the weight

you are loosing right now is all muscle, and fat is sticking to you. You

will get weak and flabby, then it will be even harder to get back in shape

after you get back on your ATD.

It is so sad that you have not had proper dosing and have been put through

the wringer by not having your TSI tested before being taken off the ATD.

Returning to hyper IS the expected result with this horrid treatment.

Get in and get you beta blockers and ATD, and stick with us. You WILL learn

how to do it right this time. The sooner you start the easier it will be,

with less damage done and less bad antibodies building up.

-Pam L-

3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction of

PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG

picture !

Pills alone only fix symptoms. We must help our bodies to heal.

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Hi Lorna,

I see you already have replies, but I still always need to add something.

:-)

If you gained weight while you were on your ATD , it is most likely because

you were not monitored and you dose adjusted in a timely fashion. I was kept

too hypo for a long time and had the same thing happen , until I joined

groups like this and learned I could get paper copies of each lab result and

learn where my own individual 'set point' is.

Once I got this figured out and was on the right dose for ME, the extra

weight slipped away.

I do understand your thinking at this point, but unfortunately the weight

you are loosing right now is all muscle, and fat is sticking to you. You

will get weak and flabby, then it will be even harder to get back in shape

after you get back on your ATD.

It is so sad that you have not had proper dosing and have been put through

the wringer by not having your TSI tested before being taken off the ATD.

Returning to hyper IS the expected result with this horrid treatment.

Get in and get you beta blockers and ATD, and stick with us. You WILL learn

how to do it right this time. The sooner you start the easier it will be,

with less damage done and less bad antibodies building up.

-Pam L-

3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction of

PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG

picture !

Pills alone only fix symptoms. We must help our bodies to heal.

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Thanks for your responses.

I was 't taken off cold turkey it was a long and protracted exercise.

My GP was treating me and I had a test about two months ago which was normal

but he said he thought my next one (due in December) would be hyper again,

he said if that was the case he wouldn't handle me anymore and send me

elsewhere (not sure where, probably an endo.

I hear what you are saying about the weight loss , Jody, I thought that

myself this evening , I'd probably lose the weight and then go straight up

again.

My husband has threatened that he'll phone the doc on Monday if I don't,

he's sick of me not being able to go to sleep because of being itchy all the

time.

By the way, one of the symptoms I seem to have this time which I don't

recall last time is extreme breast tenderness, is this a normal symptom or

am I just adding to my catalogue of symptoms that I already have?

Lorna

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Thanks for your responses.

I was 't taken off cold turkey it was a long and protracted exercise.

My GP was treating me and I had a test about two months ago which was normal

but he said he thought my next one (due in December) would be hyper again,

he said if that was the case he wouldn't handle me anymore and send me

elsewhere (not sure where, probably an endo.

I hear what you are saying about the weight loss , Jody, I thought that

myself this evening , I'd probably lose the weight and then go straight up

again.

My husband has threatened that he'll phone the doc on Monday if I don't,

he's sick of me not being able to go to sleep because of being itchy all the

time.

By the way, one of the symptoms I seem to have this time which I don't

recall last time is extreme breast tenderness, is this a normal symptom or

am I just adding to my catalogue of symptoms that I already have?

Lorna

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