Re: Re: Pulmonary Rehab Kitchener Freeport Rehab Program London

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Pravin,Mine came out of nowhere almost a year ago. I am currently on 60 mgs of Prednisone. Twice I had gotten down to 45 mgs of Prednisone but could not breathe. All of my other physical conditions are normal. As the weather gets better it is easier to do things. The cold dry air makes exertion difficult. I am not on any oxygen. Sent on the TELUS Mobility network with BlackBerryFrom: "pbhatt1@..." Date: Fri, 06 Mar 2009 11:17:07 -0000To: <Breathe-Support >Subject: Re: Pulmonary Rehab Kitchener Freeport Rehab Program London > > > > > > Quoting " sunnypickel@ " <rpickel1@>: > > >� > > > > Joyce, I live in a tiny town called Rathdrum Oregon.� My doctors are > > > > in Spokane WA but we are closer to Coeur d' Alene, ID.� How do you > > > > find a teaching hospital and how do you approach them?� Also how much > > > > does an oximeter cost.� We me not working and all the medical bills > > > > we are in very poor financial shape.� I applied for Social Security 3 > > > > years ago and after 2 denials am waiting on a judge.� They say it > > > > might take another 17 months but with this new diagnoses things may > > > > go quicker.� Do I ask my pulmodoc for a referral for a second opinion > > > > or my primary?� I do not want to make my current pulmo guy mad as it > > > > took me sooooooooooo long just to see him the first time.� You are > > > > correc the my pulse ox is okay at rest but moving around changes that > > > > drastically.� I also wonder if in the morning or if lying in certain > > > > positions makes things worse.� I wake up drowning out of breath and > > > > my lungs hurt so bad. It takes quite a while of just sitting up > > > > before I can draw very much breath at all.� It seems like the pain in > > > > my lungs is much worse lying on my right side.� Is this my > > > > imagination do you think? > > > > > > > Sunny, I don't mean to tell you where you live but I live in Blanchard,� > > > Idaho. Not far from Rathdrum, Idaho and near Coeur'd'Alene. You said� > > > that you live in Oregon. My pulmo dr. is in Spokane. His name is� > > > Puruckherr. Who do you go to? I was just diagnosed Jan.6, so I am also� > > > new to this list. As far as I can tell the nearest IPF center is at the� > > > University of Wahington near Seattle. I lived on Port Orchard Wa. for� > > > 40 years. My children, grandchildren and greatgrandchild all live� > > > around there. I am planning on selling my house and moving back there.� > > > This summer I hope. I need to be near my children now. Since we are so� > > > close maybe we can meet sometine. Did you say how old you are? Beverley� > > > Joy > > > > > >

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, just a little heads up.  Prednisone can cause your sugar to go crazy. Keep a check on it. Also cataracts, joint pain all sorts of shaking, appetite goes crazy then you can't keep thoughts straight. Gotta love the ol' "P" Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Pravin,Mine came out of nowhere almost a year ago. I am currently on 60 mgs of Prednisone. Twice I had gotten down to 45 mgs of Prednisone but could not breathe. All of my other physical conditions are normal. As the weather gets better it is easier to do things. The cold dry air makes exertion difficult. I am not on any oxygen. Sent on the TELUS Mobility network with BlackBerryFrom: "pbhatt1 (AT) rogers (DOT) com" Date: Fri, 06 Mar 2009 11:17:07 -0000To: <Breathe-Support >Subject: Re: Pulmonary Rehab Kitchener Freeport Rehab Program London> > >> > > Quoting "sunnypickel@" <rpickel1@>:> > >�> > > > Joyce, I live in a tiny town called Rathdrum Oregon.� My doctors are> > > > in Spokane WA but we are closer to Coeur d' Alene, ID.� How do you> > > > find a teaching hospital and how do you approach them?� Also how much> > > > does an oximeter cost.� We me not working and all the medical bills> > > > we are in very poor financial shape.� I applied for Social Security 3> > > > years ago and after 2 denials am waiting on a judge.� They say it> > > > might take another 17 months but with this new diagnoses things may> > > > go quicker.� Do I ask my pulmodoc for a referral for a second opinion> > > > or my primary?� I do not want to make my current pulmo guy mad as it> > > > took me sooooooooooo long just to see him the first time.� You are> > > > correc the my pulse ox is okay at rest but moving around changes that> > > > drastically.� I also wonder if in the morning or if lying in certain> > > > positions makes things worse.� I wake up drowning out of breath and> > > > my lungs hurt so bad. It takes quite a while of just sitting up> > > > before I can draw very much breath at all.� It seems like the pain in> > > > my lungs is much worse lying on my right side.� Is this my> > > > imagination do you think?> > > >> > > Sunny, I don't mean to tell you where you live but I live in Blanchard,�> > > Idaho. Not far from Rathdrum, Idaho and near Coeur'd'Alene. You said�> > > that you live in Oregon. My pulmo dr. is in Spokane. His name is�> > > Puruckherr. Who do you go to? I was just diagnosed Jan.6, so I am also�> > > new to this list. As far as I can tell the nearest IPF center is at the�> > > University of Wahington near Seattle. I lived on Port Orchard Wa. for�> > > 40 years. My children, grandchildren and greatgrandchild all live�> > > around there. I am planning on selling my house and moving back there.�> > > This summer I hope. I need to be near my children now. Since we are so�> > > close maybe we can meet sometine. Did you say how old you are? Beverley�> > > Joy> > >> >>

[Guest guest]

Peggy,

I have my sugar checked regularly. I am currently towards the high end of the

normal range.

Windsor, Ontario Canada

Dx 03/08 IPF

Sent on the TELUS Mobility network with BlackBerry

Re: Pulmonary Rehab Kitchener Freeport

Rehab Program London

> > >

> > > Quoting " sunnypickel@ " :

> > >�

> > > > Joyce, I live in a tiny town called Rathdrum Oregon.� My

doctors are

> > > > in Spokane WA but we are closer to Coeur d' Alene, ID.�

How do you

> > > > find a teaching hospital and how do you approach them?�

Also how much

> > > > does an oximeter cost.� We me not working and all the

medical bills

> > > > we are in very poor financial shape.� I applied for

Social Security 3

> > > > years ago and after 2 denials am waiting on a judge.�

They say it

> > > > might take another 17 months but with this new diagnoses

things may

> > > > go quicker.� Do I ask my pulmodoc for a referral for a

second opinion

> > > > or my primary?� I do not want to make my current pulmo

guy mad as it

> > > > took me sooooooooooo long just to see him the first

time.� You are

> > > > correc the my pulse ox is okay at rest but moving around

changes that

> > > > drastically.� I also wonder if in the morning or if

lying in certain

> > > > positions makes things worse.� I wake up drowning out of

breath and

> > > > my lungs hurt so bad. It takes quite a while of just sitting up

> > > > before I can draw very much breath at all.� It seems

like the pain in

> > > > my lungs is much worse lying on my right side.� Is this my

> > > > imagination do you think?

> > > >

> > > Sunny, I don't mean to tell you where you live but I live in

Blanchard,�

> > > Idaho. Not far from Rathdrum, Idaho and near Coeur'd'Alene.

You said�

> > > that you live in Oregon. My pulmo dr. is in Spokane. His name

is�

> > > Puruckherr. Who do you go to? I was just diagnosed Jan.6, so I

am also�

> > > new to this list. As far as I can tell the nearest IPF center

is at the�

> > > University of Wahington near Seattle. I lived on Port Orchard

Wa. for�

> > > 40 years. My children, grandchildren and greatgrandchild all

live�

> > > around there. I am planning on selling my house and moving

back there.�

> > > This summer I hope. I need to be near my children now. Since

we are so�

> > > close maybe we can meet sometine. Did you say how old you are?

Beverley�

> > > Joy

> > >

> >

>

[Guest guest]

Pravin,Thank-you very much for the information. I have been unemployed since July of last year when the company ceased operations. I have been able to lose a few pounds of weight from before I started on the Prednisone. Windsor, Ontario CanadaDx 03/08 IPFSent on the TELUS Mobility network with BlackBerryFrom: "pbhatt1@..." Date: Fri, 06 Mar 2009 18:31:50 -0000To: <Breathe-Support >Subject: Re: Pulmonary Rehab Kitchener Freeport Rehab Program London > > > > > > > > Quoting " sunnypickel@ " <rpickel1@>: > > > >� > > > > > Joyce, I live in a tiny town called Rathdrum Oregon.� My > doctors are > > > > > in Spokane WA but we are closer to Coeur d' Alene, ID.� > How do you > > > > > find a teaching hospital and how do you approach them?� > Also how much > > > > > does an oximeter cost.� We me not working and all the > medical bills > > > > > we are in very poor financial shape.� I applied for > Social Security 3 > > > > > years ago and after 2 denials am waiting on a judge.� > They say it > > > > > might take another 17 months but with this new diagnoses > things may > > > > > go quicker.� Do I ask my pulmodoc for a referral for a > second opinion > > > > > or my primary?� I do not want to make my current pulmo > guy mad as it > > > > > took me sooooooooooo long just to see him the first > time.� You are > > > > > correc the my pulse ox is okay at rest but moving around > changes that > > > > > drastically.� I also wonder if in the morning or if > lying in certain > > > > > positions makes things worse.� I wake up drowning out of > breath and > > > > > my lungs hurt so bad. It takes quite a while of just sitting up > > > > > before I can draw very much breath at all.� It seems > like the pain in > > > > > my lungs is much worse lying on my right side.� Is this my > > > > > imagination do you think? > > > > > > > > > Sunny, I don't mean to tell you where you live but I live in > Blanchard,� > > > > Idaho. Not far from Rathdrum, Idaho and near Coeur'd'Alene. > You said� > > > > that you live in Oregon. My pulmo dr. is in Spokane. His name > is� > > > > Puruckherr. Who do you go to? I was just diagnosed Jan.6, so I > am also� > > > > new to this list. As far as I can tell the nearest IPF center > is at the� > > > > University of Wahington near Seattle. I lived on Port Orchard > Wa. for� > > > > 40 years. My children, grandchildren and greatgrandchild all > live� > > > > around there. I am planning on selling my house and moving > back there.� > > > > This summer I hope. I need to be near my children now. Since > we are so� > > > > close maybe we can meet sometine. Did you say how old you are? > Beverley� > > > > Joy > > > > > > > > > >