Re: Thank you so much

April 22, 2009

May Lou - It is wonderful to hear you bright and chipper. I am so glad that the "old you" is back with us. Hope you have a GREAT day!

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, April 22, 2009 12:01:14 PMSubject: Thank you so much

for your responses to my letter to you all yesterday.Today is like a new breath of life being pumped into my veins with oxygen.... the difference is between night and day for communicating and typing too. You were all so sweet (even Bruce) with your responses.I do want to say that head nurse from Hospice was around this morning on one of her twice weekly stops and Earl had asked her about the dentist coming to the homes to do work. She said no, they can't do that. My dentist works about 3 houses down from here, but I am sure the insurance company that insures him and his business would not allow that to happen. Too much risk. Don't need him right now anyhow. I am talking Hospice here now. Hope my teeth behave themselves.Masks are working out pretty well and had a good nights sleep with one mask, no cannulas, and 20 ltrs. When I am in a period of sedation, the 20 ltrs seems to work out ok, but then when talking, then have to

switch to the 30 cannulas.Will write more later.I HOPE YOU ALL ARE FEELING WELL AND FEELING BETTER TODAY. SUN IS SHINNING BRIGHTLY AND MOOD IS MELLOW. LET ME SEE IF I CAN FIND SOME FUNNY STUFF TO SEND YOU LATER, K?I LOVE YOU THIS DAY!MARY LOU RICHMOND VAIPF - 02

April 22, 2009

Lou

It's always so nice to get any message from you. Sounds like today is a

good day. Thats what we live for. For me short term planning is what I'm

eating for lunch. Long term is the rest of the day. If today is bad, I

go to sleep and hope for better tomorrow. If today is good, I hope for

good tomorrow but know if tomorrow is bad, today was still good.

>

> for your responses to my letter to you all yesterday.

>

> Today is like a new breath of life being pumped into my veins with

oxygen.... the difference is between night and day for communicating

and typing too. You were all so sweet (even Bruce) with your responses.

>

> I do want to say that head nurse from Hospice was around this morning

on one of her twice weekly stops and Earl had asked her about the

dentist coming to the homes to do work. She said no, they can't do that.

My dentist works about 3 houses down from here, but I am sure the

insurance company that insures him and his business would not allow that

to happen. Too much risk. Don't need him right now anyhow. I am

talking Hospice here now. Hope my teeth behave themselves.

>

> Masks are working out pretty well and had a good nights sleep with one

mask, no cannulas, and 20 ltrs. When I am in a period of sedation, the

20 ltrs seems to work out ok, but then when talking, then have to switch

to the 30 cannulas.

>

> Will write more later.

>

> I HOPE YOU ALL ARE FEELING WELL AND FEELING BETTER TODAY. SUN IS

SHINNING BRIGHTLY AND MOOD IS MELLOW. LET ME SEE IF I CAN FIND SOME

FUNNY STUFF TO SEND YOU LATER, K?

>

> I LOVE YOU THIS DAY!

> MARY LOU RICHMOND VA

> IPF - 02

>

April 22, 2009

ML...I'm sure you are getting the cards I send and I'm glad to hear you slept well.

I'm feeling stronger and doing more little projects around the apt. I can go about our 15 min rule and then I stop.

Our grdtr Hannah was here last week, back and forth to her job at the zoo. She and Rich cleaned all the cupboards. Sure looks nice.

Keep on keepin' on dear heart.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Thank you so much

for your responses to my letter to you all yesterday.Today is like a new breath of life being pumped into my veins with oxygen.... the difference is between night and day for communicating and typing too. You were all so sweet (even Bruce) with your responses.I do want to say that head nurse from Hospice was around this morning on one of her twice weekly stops and Earl had asked her about the dentist coming to the homes to do work. She said no, they can't do that. My dentist works about 3 houses down from here, but I am sure the insurance company that insures him and his business would not allow that to happen. Too much risk. Don't need him right now anyhow. I am talking Hospice here now. Hope my teeth behave themselves.Masks are working out pretty well and had a good nights sleep with one mask, no cannulas, and 20 ltrs. When I am in a period of sedation, the 20 ltrs seems to work out ok, but then when talking, then have to switch to the 30 cannulas.Will write more later.I HOPE YOU ALL ARE FEELING WELL AND FEELING BETTER TODAY. SUN IS SHINNING BRIGHTLY AND MOOD IS MELLOW. LET ME SEE IF I CAN FIND SOME FUNNY STUFF TO SEND YOU LATER, K?I LOVE YOU THIS DAY!MARY LOU RICHMOND VAIPF - 02

April 22, 2009

--Dear Lou,

So nice to hear you are feeling better!

There is always a huge differencce between how you feel in the day and how you

feel in the night, Sunlight is magical it spells hope!

Sending you all my love and prayers,

Geeta

- In Breathe-Support , " Lou "

wrote:

>

> for your responses to my letter to you all yesterday.

>

> Today is like a new breath of life being pumped into my veins with oxygen....

the difference is between night and day for communicating and typing too. You

were all so sweet (even Bruce) with your responses.

>

> I do want to say that head nurse from Hospice was around this morning on one

of her twice weekly stops and Earl had asked her about the dentist coming to the

homes to do work. She said no, they can't do that. My dentist works about 3

houses down from here, but I am sure the insurance company that insures him and

his business would not allow that to happen. Too much risk. Don't need him

right now anyhow. I am talking Hospice here now. Hope my teeth behave

themselves.

>

> Masks are working out pretty well and had a good nights sleep with one mask,

no cannulas, and 20 ltrs. When I am in a period of sedation, the 20 ltrs seems

to work out ok, but then when talking, then have to switch to the 30 cannulas.

>

> Will write more later.

>

> I HOPE YOU ALL ARE FEELING WELL AND FEELING BETTER TODAY. SUN IS SHINNING

BRIGHTLY AND MOOD IS MELLOW. LET ME SEE IF I CAN FIND SOME FUNNY STUFF TO SEND

YOU LATER, K?

>

> I LOVE YOU THIS DAY!

> MARY LOU RICHMOND VA

> IPF - 02

>

April 24, 2009

Dear Ginny:

Thank you for your nice letter. Beth, Peggy and May and a few others have

responded to your question about my 20 ltrs. and they know so much more about it

than I do. When I first went on Hospice Jan 29, (3 mons) ago, my oxygen needs

seemed to be increased pretty rapidly which meant I needed a higher flow. Right

now I have a cannula (10 ltr) in the nose, and a face mask too (24/7), 10 each,

so that is 30 ltrs. altogether. We have tried to go down on the liters at night

and I really feel much better on the 30 total, and right now feel pretty good

with that. If it keeps rising, I don'tknow what I will do. PERSISTENT FIGHTER

is my nick name in here and it is a good one. Some days I feel more tired than

others and I adjust to that by listening very carefully to what my body wants

and needs. I have found that also eating lighter meals, smaller meals and more

often meals that I feel better. My morphine is now regulated to 2.5 mil every 4

hours and xanax also. I was on too high a dose of morphine, and you really have

to be extra careful with that stuff.

I would love to see you. I am on Hospice so I can not go outside ever again,

but I would be tickled pink if I could meet you and you could come over for

lunch or coffee or play scrabble. (still can't beat my nurse, ). We

played for 3 hours yesterday and she beat me by 30 points. I just can not beat

her. haahaha

Can you get out? ...............................

I have someone with me 24/7, because things happen so so fast with me that I

pretty much have to be monitored. I am not in any pain, can I am now just

trying to help all of you loved ones on here in this group as my occupation

since I can't go out to work in the community, I can work in this community,

right? I would love to meet you if it is at all possible. I have never met

another person with IPF yet and it would be so wonderful to have a local friend

so we can compare.

I LOVE YOU THIS DAY

MARY LOU - RICHMOND VA

IPF - 02

Thanks guys for your input to Ginny for me, you can probably explain it better.

love and kisses to you all this day.

PERSISTENT FIGHTER is on the warpath against BIG BAD PF.

> > >

> > > for your responses to my letter to you all yesterday.

> > >

> > > Today is like a new breath of life being pumped into my veins with

oxygen.... the difference is between night and day for communicating and typing

too. You were all so sweet (even Bruce) with your responses.

> > >

> > > I do want to say that head nurse from Hospice was around this morning on

one of her twice weekly stops and Earl had asked her about the dentist coming to

the homes to do work. She said no, they can't do that. My dentist works about 3

houses down from here, but I am sure the insurance company that insures him and

his business would not allow that to happen. Too much risk. Don't need him

right now anyhow. I am talking Hospice here now. Hope my teeth behave

themselves.

> > >

> > > Masks are working out pretty well and had a good nights sleep with one

mask, no cannulas, and 20 ltrs. When I am in a period of sedation, the 20 ltrs

seems to work out ok, but then when talking, then have to switch to the 30

cannulas.

> > >

> > > Will write more later.

> > >

> > > I HOPE YOU ALL ARE FEELING WELL AND FEELING BETTER TODAY. SUN IS SHINNING

BRIGHTLY AND MOOD IS MELLOW. LET ME SEE IF I CAN FIND SOME FUNNY STUFF TO SEND

YOU LATER, K?

> > >

> > > I LOVE YOU THIS DAY!

> > > MARY LOU RICHMOND VA

> > > IPF - 02

> > >

> >

>

April 24, 2009