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Dyane

will you be 85 or will the temperature be 85

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Low Grade FeversTo: Breathe-Support Date: Friday, February 27, 2009, 2:18 PM

Hi All, I'm not sure why this popped into my head, but I have had low gradefevers at night for years, no one has ever figured out why. Usuallythis happens when I'm more tired than usual. Usually not more than99F although since I'm normally a 96.5F 99 leaves me feeling prettypunky. Have any of you had this as a symptom? Happy Weekendall..will be 85 this weekend in Phoenix:)Dyane Phoenix AZ IPF 02

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oH goodness, no the temp will be 85, its spring in Phoenix!

Dyane

will you be 85 or will the temperature be 85

Pink Joyce IPF 3/06  Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Low Grade Fevers

To: Breathe-Support Date: Friday, February 27, 2009, 2:18 PM

Hi All, I'm not sure why this popped into my head, but I have had low gradefevers at night for years, no one has ever figured out why. Usuallythis happens when I'm more tired than usual. Usually not more than

99F although since I'm normally a 96.5F 99 leaves me feeling prettypunky. Have any of you had this as a symptom? Happy Weekendall..will be 85 this weekend in Phoenix:)Dyane Phoenix AZ IPF 02

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Yes Dyanne, I do too... I think there's quite a few of us on this Board that have them. Makes my life very uncomfortable...I had a break from the Menopausal hot Flushes for a few years & now THIS... it's hard to explain the difference although it is different. The menopausal number was more dramatic & travelled upwards & finished... this is a 'Slow Release' that lasts longer & becomes quite debilitating really! Running HOT is howit seems to me!

in OZ (aka GIO or SGIO when I;m being Scilly!)

IPF: Fibrotic NSIP/ UIP?????

Raynaud's

May 2007

Ro52

May 2008>> Hi All, > I'm not sure why this popped into my head, but I have had low grade> fevers at night for years, no one has ever figured out why. Usually> this happens when I'm more tired than usual. Usually not more than> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> punky. Have any of you had this as a symptom? Happy Weekend> all..will be 85 this weekend in Phoenix:)> > Dyane > Phoenix AZ IPF 02>

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Interesting about the low grade fevers. A lot of the people I know

on the Adult Onset Still's Disease board have low grade fevers and

similar to Dyanne, our usual temps run low.

The bad part about AOSD is one of the typical things we go through as

our disease progresses is the Still's or " Dragon Fevers " . They

typically happen once or twice a day with each one lasting about 2

hours. (I had the 2 cycle) They are like clockwork every day,

sometimes for several months and usually hit 103-104+ F and rarely

less than that. Mine hit around 7PM till 9PM and again at about 2 or

3 AM. The middle of the night ones were the worse as I would wake up

in a pool of my own sweat (really gross). By the way, nothing

usually touches the fevers, not Acetamenphen or Ibuprophen. You just

ride them out. The sufferers who get this symptom before diagnosis

spend frequent time in the ER with the docs just scratching their

heads as it is an uncommon autoinflammatory disease and the symptoms

do not always occur in the same order with everyone. Those visits

usually result in test after test after test and bunches of

antibiotics to no avail until you move to the next set of symptoms.

Tom

> >

> > Hi All,

> > I'm not sure why this popped into my head, but I have had low

grade

> > fevers at night for years, no one has ever figured out why.

Usually

> > this happens when I'm more tired than usual. Usually not more than

> > 99F although since I'm normally a 96.5F 99 leaves me feeling

pretty

> > punky. Have any of you had this as a symptom? Happy Weekend

> > all..will be 85 this weekend in Phoenix:)

> >

> > Dyane

> > Phoenix AZ IPF 02

> >

>

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,  Thanks! Your very right about it being different from Hot Flashes, I was put on Tamoxifen for BC at age 46 and spent 5 MISERABLE years with Hot Flashes.  The LGF actually feels worse somehow.  Like you say HF come and finish but the fevers would not usually break until middle of the night.  Glad to know Im not just crazy!  People look at you funny when you say you are running a fever because your tired. 

Dyane in Phoenix, IPF 02

Yes Dyanne, I do too... I think there's quite a few of us on this Board that have them. Makes my life very uncomfortable...I had a break from the Menopausal hot Flushes for a few years & now THIS... it's hard to explain the difference although it is different. The menopausal number was more dramatic & travelled upwards & finished... this is a 'Slow Release' that lasts longer & becomes quite debilitating really! Running HOT is howit seems to me!

in OZ (aka GIO or SGIO when I;m being Scilly!)

IPF: Fibrotic NSIP/ UIP?????

Raynaud's

May 2007

Ro52

May 2008

>> Hi All, > I'm not sure why this popped into my head, but I have had low grade> fevers at night for years, no one has ever figured out why. Usually> this happens when I'm more tired than usual. Usually not more than

> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> punky. Have any of you had this as a symptom? Happy Weekend> all..will be 85 this weekend in Phoenix:)> > Dyane

> Phoenix AZ IPF 02>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Yes mine seem to be on a 'Timer' too Tom..... just like the Menopausal Numbers I just try to ride then out. I do have 2 gel packs in my freezer with a nice soft terry towelling cover (they go wherever the worst of the heat seems to be, between my feet, against my chest or along my side)... also a big gel pack for my pillow that somehow works by convection to keep my face cool while I go to sleep. There's another one stored under my bed wrapped ina towel to give me relief thorugh the night!

My Hubby keeps well away from the Ice Chest!

Fun isn't it!

My 'Infection Control' Nursing mate tells me it goes hand -in-hand with any Inflamatory Disease process!

GIO

> > >> > > Hi All,> > > I'm not sure why this popped into my head, but I have had low > grade> > > fevers at night for years, no one has ever figured out why. > Usually> > > this happens when I'm more tired than usual. Usually not more than> > > 99F although since I'm normally a 96.5F 99 leaves me feeling > pretty> > > punky. Have any of you had this as a symptom? Happy Weekend> > > all..will be 85 this weekend in Phoenix:)> > >> > > Dyane> > > Phoenix AZ IPF 02> > >> >>

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Yes mine seem to be on a 'Timer' too Tom..... just like the Menopausal Numbers I just try to ride then out. I do have 2 gel packs in my freezer with a nice soft terry towelling cover (they go wherever the worst of the heat seems to be, between my feet, against my chest or along my side)... also a big gel pack for my pillow that somehow works by convection to keep my face cool while I go to sleep. There's another one stored under my bed wrapped ina towel to give me relief thorugh the night!

My Hubby keeps well away from the Ice Chest!

Fun isn't it!

My 'Infection Control' Nursing mate tells me it goes hand -in-hand with any Inflamatory Disease process!

GIO

> > >> > > Hi All,> > > I'm not sure why this popped into my head, but I have had low > grade> > > fevers at night for years, no one has ever figured out why. > Usually> > > this happens when I'm more tired than usual. Usually not more than> > > 99F although since I'm normally a 96.5F 99 leaves me feeling > pretty> > > punky. Have any of you had this as a symptom? Happy Weekend> > > all..will be 85 this weekend in Phoenix:)> > >> > > Dyane> > > Phoenix AZ IPF 02> > >> >>

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Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low.  I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF.  We are pretty sure I have Sjogrens and Raynauds too  Hard to tell when every drug I take has dry mouth as a side effect..  I've been tested for RA, Lupus, and everything in between.  My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to joke about it but some days I want to scream.  Up until 7 years ago I just " delt " with it. Now I worry, Not for me, but for my girls and gr kids.  I firmly believe alot is genetic, my mom died of IPF 12 years ago.  Her family " didn't have lung problems " she said but they were all farmers and alot had lung problems (from the dust in the hay you know).  But the more we know, the more probable it was a form of IPF. 

Sorry  Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

Interesting about the low grade fevers. A lot of the people I know

on the Adult Onset Still's Disease board have low grade fevers and

similar to Dyanne, our usual temps run low.

The bad part about AOSD is one of the typical things we go through as

our disease progresses is the Still's or " Dragon Fevers " . They

typically happen once or twice a day with each one lasting about 2

hours. (I had the 2 cycle) They are like clockwork every day,

sometimes for several months and usually hit 103-104+ F and rarely

less than that. Mine hit around 7PM till 9PM and again at about 2 or

3 AM. The middle of the night ones were the worse as I would wake up

in a pool of my own sweat (really gross). By the way, nothing

usually touches the fevers, not Acetamenphen or Ibuprophen. You just

ride them out. The sufferers who get this symptom before diagnosis

spend frequent time in the ER with the docs just scratching their

heads as it is an uncommon autoinflammatory disease and the symptoms

do not always occur in the same order with everyone. Those visits

usually result in test after test after test and bunches of

antibiotics to no avail until you move to the next set of symptoms.

Tom

> >

> > Hi All,

> > I'm not sure why this popped into my head, but I have had low

grade

> > fevers at night for years, no one has ever figured out why.

Usually

> > this happens when I'm more tired than usual. Usually not more than

> > 99F although since I'm normally a 96.5F 99 leaves me feeling

pretty

> > punky. Have any of you had this as a symptom? Happy Weekend

> > all..will be 85 this weekend in Phoenix:)

> >

> > Dyane

> > Phoenix AZ IPF 02

> >

>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low.  I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF.  We are pretty sure I have Sjogrens and Raynauds too  Hard to tell when every drug I take has dry mouth as a side effect..  I've been tested for RA, Lupus, and everything in between.  My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to joke about it but some days I want to scream.  Up until 7 years ago I just " delt " with it. Now I worry, Not for me, but for my girls and gr kids.  I firmly believe alot is genetic, my mom died of IPF 12 years ago.  Her family " didn't have lung problems " she said but they were all farmers and alot had lung problems (from the dust in the hay you know).  But the more we know, the more probable it was a form of IPF. 

Sorry  Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

Interesting about the low grade fevers. A lot of the people I know

on the Adult Onset Still's Disease board have low grade fevers and

similar to Dyanne, our usual temps run low.

The bad part about AOSD is one of the typical things we go through as

our disease progresses is the Still's or " Dragon Fevers " . They

typically happen once or twice a day with each one lasting about 2

hours. (I had the 2 cycle) They are like clockwork every day,

sometimes for several months and usually hit 103-104+ F and rarely

less than that. Mine hit around 7PM till 9PM and again at about 2 or

3 AM. The middle of the night ones were the worse as I would wake up

in a pool of my own sweat (really gross). By the way, nothing

usually touches the fevers, not Acetamenphen or Ibuprophen. You just

ride them out. The sufferers who get this symptom before diagnosis

spend frequent time in the ER with the docs just scratching their

heads as it is an uncommon autoinflammatory disease and the symptoms

do not always occur in the same order with everyone. Those visits

usually result in test after test after test and bunches of

antibiotics to no avail until you move to the next set of symptoms.

Tom

> >

> > Hi All,

> > I'm not sure why this popped into my head, but I have had low

grade

> > fevers at night for years, no one has ever figured out why.

Usually

> > this happens when I'm more tired than usual. Usually not more than

> > 99F although since I'm normally a 96.5F 99 leaves me feeling

pretty

> > punky. Have any of you had this as a symptom? Happy Weekend

> > all..will be 85 this weekend in Phoenix:)

> >

> > Dyane

> > Phoenix AZ IPF 02

> >

>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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I have low grade fevers also. Mine usually happen when I am at my

weakest after a long day or haven't had much sleep. I try to keep a

log of all my numbers so when they change along with other symtoms so

when i contact or go to the doc feeling sick we are on the same page.

I have found when I get low grade fevers at abnomal times I also

start having other syptoms that usually signal an infection coming on.

33 FL

IPF dx 1/06

>

> From: dyanebillings

> Subject: Low Grade Fevers

> To: Breathe-Support

> Date: Friday, February 27, 2009, 2:18 PM

>

>

>

>

>

>

> Hi All,

> I'm not sure why this popped into my head, but I have had low grade

> fevers at night for years, no one has ever figured out why. Usually

> this happens when I'm more tired than usual. Usually not more than

> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty

> punky. Have any of you had this as a symptom? Happy Weekend

> all..will be 85 this weekend in Phoenix:)

>

> Dyane

> Phoenix AZ IPF 02

>

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Share on other sites

I have low grade fevers also. Mine usually happen when I am at my

weakest after a long day or haven't had much sleep. I try to keep a

log of all my numbers so when they change along with other symtoms so

when i contact or go to the doc feeling sick we are on the same page.

I have found when I get low grade fevers at abnomal times I also

start having other syptoms that usually signal an infection coming on.

33 FL

IPF dx 1/06

>

> From: dyanebillings

> Subject: Low Grade Fevers

> To: Breathe-Support

> Date: Friday, February 27, 2009, 2:18 PM

>

>

>

>

>

>

> Hi All,

> I'm not sure why this popped into my head, but I have had low grade

> fevers at night for years, no one has ever figured out why. Usually

> this happens when I'm more tired than usual. Usually not more than

> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty

> punky. Have any of you had this as a symptom? Happy Weekend

> all..will be 85 this weekend in Phoenix:)

>

> Dyane

> Phoenix AZ IPF 02

>

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Share on other sites

Your right, it usually is when I'm most tired, end of the week type thing.

I have low grade fevers also. Mine usually happen when I am at my

weakest after a long day or haven't had much sleep. I try to keep a

log of all my numbers so when they change along with other symtoms so

when i contact or go to the doc feeling sick we are on the same page.

I have found when I get low grade fevers at abnomal times I also

start having other syptoms that usually signal an infection coming on.

33 FL

IPF dx 1/06

>

>

> Subject: Low Grade Fevers

> To: Breathe-Support

> Date: Friday, February 27, 2009, 2:18 PM

>

>

>

>

>

>

> Hi All,

> I'm not sure why this popped into my head, but I have had low grade

> fevers at night for years, no one has ever figured out why. Usually

> this happens when I'm more tired than usual. Usually not more than

> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty

> punky. Have any of you had this as a symptom? Happy Weekend

> all..will be 85 this weekend in Phoenix:)

>

> Dyane

> Phoenix AZ IPF 02

>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Share on other sites

Your right, it usually is when I'm most tired, end of the week type thing.

I have low grade fevers also. Mine usually happen when I am at my

weakest after a long day or haven't had much sleep. I try to keep a

log of all my numbers so when they change along with other symtoms so

when i contact or go to the doc feeling sick we are on the same page.

I have found when I get low grade fevers at abnomal times I also

start having other syptoms that usually signal an infection coming on.

33 FL

IPF dx 1/06

>

>

> Subject: Low Grade Fevers

> To: Breathe-Support

> Date: Friday, February 27, 2009, 2:18 PM

>

>

>

>

>

>

> Hi All,

> I'm not sure why this popped into my head, but I have had low grade

> fevers at night for years, no one has ever figured out why. Usually

> this happens when I'm more tired than usual. Usually not more than

> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty

> punky. Have any of you had this as a symptom? Happy Weekend

> all..will be 85 this weekend in Phoenix:)

>

> Dyane

> Phoenix AZ IPF 02

>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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when i first met Jerry, he seemed to have a low grade fever much of the time

his body was usually warm, good for snuggleing on a cool night lol

at any rate, after the resection, the low grade fever was gone, probably because the inflamation/infection was gone

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Low Grade FeversTo: Breathe-Support Date: Friday, February 27, 2009, 8:24 PM

, Thanks! Your very right about it being different from Hot Flashes, I was put on Tamoxifen for BC at age 46 and spent 5 MISERABLE years with Hot Flashes. The LGF actually feels worse somehow. Like you say HF come and finish but the fevers would not usually break until middle of the night. Glad to know Im not just crazy! People look at you funny when you say you are running a fever because your tired. Dyane in Phoenix, IPF 02

On Fri, Feb 27, 2009 at 5:26 PM, <gina.francis@ bigpond.com> wrote:

Yes Dyanne, I do too... I think there's quite a few of us on this Board that have them. Makes my life very uncomfortable. ..I had a break from the Menopausal hot Flushes for a few years & now THIS... it's hard to explain the difference although it is different. The menopausal number was more dramatic & travelled upwards & finished... this is a 'Slow Release' that lasts longer & becomes quite debilitating really! Running HOT is howit seems to me!

in OZ (aka GIO or SGIO when I;m being Scilly!)

IPF: Fibrotic NSIP/ UIP?????

Raynaud's

May 2007

Ro52

May 2008>> Hi All, > I'm not sure why this popped into my head, but I have had low grade> fevers at night for years, no one has ever figured out why. Usually> this happens when I'm more tired than usual. Usually not more than> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> punky. Have any of you had this as a symptom? Happy Weekend> all..will be 85 this weekend in Phoenix:)> > Dyane > Phoenix AZ IPF 02>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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when i first met Jerry, he seemed to have a low grade fever much of the time

his body was usually warm, good for snuggleing on a cool night lol

at any rate, after the resection, the low grade fever was gone, probably because the inflamation/infection was gone

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Low Grade FeversTo: Breathe-Support Date: Friday, February 27, 2009, 8:24 PM

, Thanks! Your very right about it being different from Hot Flashes, I was put on Tamoxifen for BC at age 46 and spent 5 MISERABLE years with Hot Flashes. The LGF actually feels worse somehow. Like you say HF come and finish but the fevers would not usually break until middle of the night. Glad to know Im not just crazy! People look at you funny when you say you are running a fever because your tired. Dyane in Phoenix, IPF 02

On Fri, Feb 27, 2009 at 5:26 PM, <gina.francis@ bigpond.com> wrote:

Yes Dyanne, I do too... I think there's quite a few of us on this Board that have them. Makes my life very uncomfortable. ..I had a break from the Menopausal hot Flushes for a few years & now THIS... it's hard to explain the difference although it is different. The menopausal number was more dramatic & travelled upwards & finished... this is a 'Slow Release' that lasts longer & becomes quite debilitating really! Running HOT is howit seems to me!

in OZ (aka GIO or SGIO when I;m being Scilly!)

IPF: Fibrotic NSIP/ UIP?????

Raynaud's

May 2007

Ro52

May 2008>> Hi All, > I'm not sure why this popped into my head, but I have had low grade> fevers at night for years, no one has ever figured out why. Usually> this happens when I'm more tired than usual. Usually not more than> 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> punky. Have any of you had this as a symptom? Happy Weekend> all..will be 85 this weekend in Phoenix:)> > Dyane > Phoenix AZ IPF 02>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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I think i do remember on the original questionaire a Penn, farm related questions

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Low Grade FeversTo: Breathe-Support Date: Friday, February 27, 2009, 8:58 PM

Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low. I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF. We are pretty sure I have Sjogrens and Raynauds too Hard to tell when every drug I take has dry mouth as a side effect.. I've been tested for RA, Lupus, and everything in between. My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to

joke about it but some days I want to scream. Up until 7 years ago I just "delt" with it. Now I worry, Not for me, but for my girls and gr kids. I firmly believe alot is genetic, my mom died of IPF 12 years ago. Her family "didn't have lung problems" she said but they were all farmers and alot had lung problems (from the dust in the hay you know). But the more we know, the more probable it was a form of IPF. Sorry Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

On Fri, Feb 27, 2009 at 5:56 PM, Tom <uncle_fuzzy@ verizon.net> wrote:

Interesting about the low grade fevers. A lot of the people I know on the Adult Onset Still's Disease board have low grade fevers and similar to Dyanne, our usual temps run low.The bad part about AOSD is one of the typical things we go through as our disease progresses is the Still's or "Dragon Fevers". They typically happen once or twice a day with each one lasting about 2 hours. (I had the 2 cycle) They are like clockwork every day, sometimes for several months and usually hit 103-104+ F and rarely less than that. Mine hit around 7PM till 9PM and again at about 2 or 3 AM. The middle of the night ones were the worse as I would wake up in a pool of my own sweat (really gross). By the way, nothing usually touches the fevers, not Acetamenphen or Ibuprophen. You just ride them out. The sufferers who get this symptom before diagnosis spend frequent time in the ER with the docs just scratching their

heads as it is an uncommon autoinflammatory disease and the symptoms do not always occur in the same order with everyone. Those visits usually result in test after test after test and bunches of antibiotics to no avail until you move to the next set of symptoms.Tom> >> > Hi All,> > I'm not sure why this popped into my head, but I have had low grade> > fevers at night for years, no one has ever figured out why. Usually> > this happens when I'm more tired than usual. Usually not more than> > 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> > punky. Have any of you had this as a symptom? Happy Weekend> > all..will be 85 this weekend in Phoenix:)> >> > Dyane> > Phoenix AZ IPF 02> >>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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indicating a relationship between farming and IPF

but since it didn't affect me, (farming), i didn't pursue it

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Low Grade FeversTo: Breathe-Support Date: Friday, February 27, 2009, 8:58 PM

Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low. I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF. We are pretty sure I have Sjogrens and Raynauds too Hard to tell when every drug I take has dry mouth as a side effect.. I've been tested for RA, Lupus, and everything in between. My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to

joke about it but some days I want to scream. Up until 7 years ago I just "delt" with it. Now I worry, Not for me, but for my girls and gr kids. I firmly believe alot is genetic, my mom died of IPF 12 years ago. Her family "didn't have lung problems" she said but they were all farmers and alot had lung problems (from the dust in the hay you know). But the more we know, the more probable it was a form of IPF. Sorry Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

On Fri, Feb 27, 2009 at 5:56 PM, Tom <uncle_fuzzy@ verizon.net> wrote:

Interesting about the low grade fevers. A lot of the people I know on the Adult Onset Still's Disease board have low grade fevers and similar to Dyanne, our usual temps run low.The bad part about AOSD is one of the typical things we go through as our disease progresses is the Still's or "Dragon Fevers". They typically happen once or twice a day with each one lasting about 2 hours. (I had the 2 cycle) They are like clockwork every day, sometimes for several months and usually hit 103-104+ F and rarely less than that. Mine hit around 7PM till 9PM and again at about 2 or 3 AM. The middle of the night ones were the worse as I would wake up in a pool of my own sweat (really gross). By the way, nothing usually touches the fevers, not Acetamenphen or Ibuprophen. You just ride them out. The sufferers who get this symptom before diagnosis spend frequent time in the ER with the docs just scratching their

heads as it is an uncommon autoinflammatory disease and the symptoms do not always occur in the same order with everyone. Those visits usually result in test after test after test and bunches of antibiotics to no avail until you move to the next set of symptoms.Tom> >> > Hi All,> > I'm not sure why this popped into my head, but I have had low grade> > fevers at night for years, no one has ever figured out why. Usually> > this happens when I'm more tired than usual. Usually not more than> > 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> > punky. Have any of you had this as a symptom? Happy Weekend> > all..will be 85 this weekend in Phoenix:)> >> > Dyane> > Phoenix AZ IPF 02> >>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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indicating a relationship between farming and IPF

but since it didn't affect me, (farming), i didn't pursue it

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Low Grade FeversTo: Breathe-Support Date: Friday, February 27, 2009, 8:58 PM

Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low. I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF. We are pretty sure I have Sjogrens and Raynauds too Hard to tell when every drug I take has dry mouth as a side effect.. I've been tested for RA, Lupus, and everything in between. My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to

joke about it but some days I want to scream. Up until 7 years ago I just "delt" with it. Now I worry, Not for me, but for my girls and gr kids. I firmly believe alot is genetic, my mom died of IPF 12 years ago. Her family "didn't have lung problems" she said but they were all farmers and alot had lung problems (from the dust in the hay you know). But the more we know, the more probable it was a form of IPF. Sorry Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

On Fri, Feb 27, 2009 at 5:56 PM, Tom <uncle_fuzzy@ verizon.net> wrote:

Interesting about the low grade fevers. A lot of the people I know on the Adult Onset Still's Disease board have low grade fevers and similar to Dyanne, our usual temps run low.The bad part about AOSD is one of the typical things we go through as our disease progresses is the Still's or "Dragon Fevers". They typically happen once or twice a day with each one lasting about 2 hours. (I had the 2 cycle) They are like clockwork every day, sometimes for several months and usually hit 103-104+ F and rarely less than that. Mine hit around 7PM till 9PM and again at about 2 or 3 AM. The middle of the night ones were the worse as I would wake up in a pool of my own sweat (really gross). By the way, nothing usually touches the fevers, not Acetamenphen or Ibuprophen. You just ride them out. The sufferers who get this symptom before diagnosis spend frequent time in the ER with the docs just scratching their

heads as it is an uncommon autoinflammatory disease and the symptoms do not always occur in the same order with everyone. Those visits usually result in test after test after test and bunches of antibiotics to no avail until you move to the next set of symptoms.Tom> >> > Hi All,> > I'm not sure why this popped into my head, but I have had low grade> > fevers at night for years, no one has ever figured out why. Usually> > this happens when I'm more tired than usual. Usually not more than> > 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> > punky. Have any of you had this as a symptom? Happy Weekend> > all..will be 85 this weekend in Phoenix:)> >> > Dyane> > Phoenix AZ IPF 02> >>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Dyane...I hope you were able to get some rest/sleep last night.

I can relate to what you wrote here...seems like I've been so called sick with something all my life too.

It wears you out after awhile doesn't it.

We sure 'get it' here on the board.

I hope this day is good for you... :o)

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Re: Low Grade Fevers

Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low. I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF. We are pretty sure I have Sjogrens and Raynauds too Hard to tell when every drug I take has dry mouth as a side effect.. I've been tested for RA, Lupus, and everything in between. My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to joke about it but some days I want to scream. Up until 7 years ago I just "delt" with it. Now I worry, Not for me, but for my girls and gr kids. I firmly believe alot is genetic, my mom died of IPF 12 years ago. Her family "didn't have lung problems" she said but they were all farmers and alot had lung problems (from the dust in the hay you know). But the more we know, the more probable it was a form of IPF. Sorry Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

On Fri, Feb 27, 2009 at 5:56 PM, Tom <uncle_fuzzy (AT) verizon (DOT) net> wrote:

Interesting about the low grade fevers. A lot of the people I know on the Adult Onset Still's Disease board have low grade fevers and similar to Dyanne, our usual temps run low.The bad part about AOSD is one of the typical things we go through as our disease progresses is the Still's or "Dragon Fevers". They typically happen once or twice a day with each one lasting about 2 hours. (I had the 2 cycle) They are like clockwork every day, sometimes for several months and usually hit 103-104+ F and rarely less than that. Mine hit around 7PM till 9PM and again at about 2 or 3 AM. The middle of the night ones were the worse as I would wake up in a pool of my own sweat (really gross). By the way, nothing usually touches the fevers, not Acetamenphen or Ibuprophen. You just ride them out. The sufferers who get this symptom before diagnosis spend frequent time in the ER with the docs just scratching their heads as it is an uncommon autoinflammatory disease and the symptoms do not always occur in the same order with everyone. Those visits usually result in test after test after test and bunches of antibiotics to no avail until you move to the next set of symptoms.Tom> >> > Hi All,> > I'm not sure why this popped into my head, but I have had low grade> > fevers at night for years, no one has ever figured out why. Usually> > this happens when I'm more tired than usual. Usually not more than> > 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> > punky. Have any of you had this as a symptom? Happy Weekend> > all..will be 85 this weekend in Phoenix:)> >> > Dyane> > Phoenix AZ IPF 02> >>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Dyane...I hope you were able to get some rest/sleep last night.

I can relate to what you wrote here...seems like I've been so called sick with something all my life too.

It wears you out after awhile doesn't it.

We sure 'get it' here on the board.

I hope this day is good for you... :o)

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Re: Low Grade Fevers

Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low. I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF. We are pretty sure I have Sjogrens and Raynauds too Hard to tell when every drug I take has dry mouth as a side effect.. I've been tested for RA, Lupus, and everything in between. My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to joke about it but some days I want to scream. Up until 7 years ago I just "delt" with it. Now I worry, Not for me, but for my girls and gr kids. I firmly believe alot is genetic, my mom died of IPF 12 years ago. Her family "didn't have lung problems" she said but they were all farmers and alot had lung problems (from the dust in the hay you know). But the more we know, the more probable it was a form of IPF. Sorry Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

On Fri, Feb 27, 2009 at 5:56 PM, Tom <uncle_fuzzy (AT) verizon (DOT) net> wrote:

Interesting about the low grade fevers. A lot of the people I know on the Adult Onset Still's Disease board have low grade fevers and similar to Dyanne, our usual temps run low.The bad part about AOSD is one of the typical things we go through as our disease progresses is the Still's or "Dragon Fevers". They typically happen once or twice a day with each one lasting about 2 hours. (I had the 2 cycle) They are like clockwork every day, sometimes for several months and usually hit 103-104+ F and rarely less than that. Mine hit around 7PM till 9PM and again at about 2 or 3 AM. The middle of the night ones were the worse as I would wake up in a pool of my own sweat (really gross). By the way, nothing usually touches the fevers, not Acetamenphen or Ibuprophen. You just ride them out. The sufferers who get this symptom before diagnosis spend frequent time in the ER with the docs just scratching their heads as it is an uncommon autoinflammatory disease and the symptoms do not always occur in the same order with everyone. Those visits usually result in test after test after test and bunches of antibiotics to no avail until you move to the next set of symptoms.Tom> >> > Hi All,> > I'm not sure why this popped into my head, but I have had low grade> > fevers at night for years, no one has ever figured out why. Usually> > this happens when I'm more tired than usual. Usually not more than> > 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> > punky. Have any of you had this as a symptom? Happy Weekend> > all..will be 85 this weekend in Phoenix:)> >> > Dyane> > Phoenix AZ IPF 02> >>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Thank you MamaSher, I am better today, slept in and then went to babysit some grandkids for awhile. Since I still work 40 hours a week by Friday Im really bushed.  And people just dont understand how being exhausted can be sick.....

Dyane...I  hope you were able to get some rest/sleep last night.

I can relate to what you wrote here...seems like I've been so called sick with something all my life too.

It wears you out after awhile doesn't it.

We sure 'get it' here on the board.

I hope this day is good for you...  :o)

MamaSher; 70,  IPF 3-06, OR.   NasturtiumsDon't fret about tomorrow, God is already there!

Re: Re: Low Grade Fevers

Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low.  I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF.  We are pretty sure I have Sjogrens and Raynauds too  Hard to tell when every drug I take has dry mouth as a side effect..  I've been tested for RA, Lupus, and everything in between.  My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to joke about it but some days I want to scream.  Up until 7 years ago I just " delt " with it. Now I worry, Not for me, but for my girls and gr kids.  I firmly believe alot is genetic, my mom died of IPF 12 years ago.  Her family " didn't have lung problems " she said but they were all farmers and alot had lung problems (from the dust in the hay you know).  But the more we know, the more probable it was a form of IPF.  Sorry  Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

Interesting about the low grade fevers. A lot of the people I know on the Adult Onset Still's Disease board have low grade fevers and similar to Dyanne, our usual temps run low.The bad part about AOSD is one of the typical things we go through as our disease progresses is the Still's or " Dragon Fevers " . They typically happen once or twice a day with each one lasting about 2 hours. (I had the 2 cycle) They are like clockwork every day, sometimes for several months and usually hit 103-104+ F and rarely less than that. Mine hit around 7PM till 9PM and again at about 2 or 3 AM. The middle of the night ones were the worse as I would wake up in a pool of my own sweat (really gross). By the way, nothing usually touches the fevers, not Acetamenphen or Ibuprophen. You just ride them out. The sufferers who get this symptom before diagnosis spend frequent time in the ER with the docs just scratching their heads as it is an uncommon autoinflammatory disease and the symptoms do not always occur in the same order with everyone. Those visits usually result in test after test after test and bunches of antibiotics to no avail until you move to the next set of symptoms.Tom> >> > Hi All,> > I'm not sure why this popped into my head, but I have had low grade> > fevers at night for years, no one has ever figured out why. Usually> > this happens when I'm more tired than usual. Usually not more than> > 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> > punky. Have any of you had this as a symptom? Happy Weekend> > all..will be 85 this weekend in Phoenix:)> >> > Dyane> > Phoenix AZ IPF 02> >>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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Guest guest

Dyane, hi. i hear you about the lo grade temps. every time a nurse

takes my temp and says its good at 98.8 i just chuckle and thats

after something cold i drank. At 102 i become so delerious. An

infectious doc at Penn was curious about the source of my lo grade

temps as they are always around. I may go through a short period of

a normal 96, but have to admit was shocked to see a 95.7. lol

Infec doc had several thoughts an underlining infection, connective

collagen disease and then it is a known fact i have sjogrens. But

she thought there was more to it. Patti NJ, ipf 7'06, raynauds,

scleroderma, PH 2'07

> > >

> > > Hi All,

> > > I'm not sure why this popped into my head, but I have had low

> grade

> > > fevers at night for years, no one has ever figured out why.

> Usually

> > > this happens when I'm more tired than usual. Usually not more

than

> > > 99F although since I'm normally a 96.5F 99 leaves me feeling

> pretty

> > > punky. Have any of you had this as a symptom? Happy Weekend

> > > all..will be 85 this weekend in Phoenix:)

> > >

> > > Dyane

> > > Phoenix AZ IPF 02

> > >

> >

>

>

>

>

>

> --

> Dyane L. Billings

> Senior Staff Accountant

> Ball & McGraw P.C.

>

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Share on other sites

Guest guest

Dyane, hi. i hear you about the lo grade temps. every time a nurse

takes my temp and says its good at 98.8 i just chuckle and thats

after something cold i drank. At 102 i become so delerious. An

infectious doc at Penn was curious about the source of my lo grade

temps as they are always around. I may go through a short period of

a normal 96, but have to admit was shocked to see a 95.7. lol

Infec doc had several thoughts an underlining infection, connective

collagen disease and then it is a known fact i have sjogrens. But

she thought there was more to it. Patti NJ, ipf 7'06, raynauds,

scleroderma, PH 2'07

> > >

> > > Hi All,

> > > I'm not sure why this popped into my head, but I have had low

> grade

> > > fevers at night for years, no one has ever figured out why.

> Usually

> > > this happens when I'm more tired than usual. Usually not more

than

> > > 99F although since I'm normally a 96.5F 99 leaves me feeling

> pretty

> > > punky. Have any of you had this as a symptom? Happy Weekend

> > > all..will be 85 this weekend in Phoenix:)

> > >

> > > Dyane

> > > Phoenix AZ IPF 02

> > >

> >

>

>

>

>

>

> --

> Dyane L. Billings

> Senior Staff Accountant

> Ball & McGraw P.C.

>

Link to comment
Share on other sites

Guest guest

Dyane, hi. i hear you about the lo grade temps. every time a nurse

takes my temp and says its good at 98.8 i just chuckle and thats

after something cold i drank. At 102 i become so delerious. An

infectious doc at Penn was curious about the source of my lo grade

temps as they are always around. I may go through a short period of

a normal 96, but have to admit was shocked to see a 95.7. lol

Infec doc had several thoughts an underlining infection, connective

collagen disease and then it is a known fact i have sjogrens. But

she thought there was more to it. Patti NJ, ipf 7'06, raynauds,

scleroderma, PH 2'07

> > >

> > > Hi All,

> > > I'm not sure why this popped into my head, but I have had low

> grade

> > > fevers at night for years, no one has ever figured out why.

> Usually

> > > this happens when I'm more tired than usual. Usually not more

than

> > > 99F although since I'm normally a 96.5F 99 leaves me feeling

> pretty

> > > punky. Have any of you had this as a symptom? Happy Weekend

> > > all..will be 85 this weekend in Phoenix:)

> > >

> > > Dyane

> > > Phoenix AZ IPF 02

> > >

> >

>

>

>

>

>

> --

> Dyane L. Billings

> Senior Staff Accountant

> Ball & McGraw P.C.

>

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Share on other sites

Guest guest

Dyane...I can only imagine what adding a full time job to your days must be. I couldn't do it but then I'm older...

At least try and get lots of rest.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Re: Low Grade Fevers

Tom, I just looked up AOSD.....Fevers like that sure sound miserable..My whole life I have had Sore Joints, Sore Muscles, Lousy Lungs (Pneu at age 10, chronic bronchitis since age 12), Chronic Strep Throat (finally quit in my mid 30's) Fevers, Allergies, you name it I get it. People dont believe at 99 degree fever can make you feel so bad until I try and explain its the same as if they had 102 degrees since I run so low. I've been diagnosed with Psorisis, Fibromyalgia, Diabetes, Breast Cancer and IPF. We are pretty sure I have Sjogrens and Raynauds too Hard to tell when every drug I take has dry mouth as a side effect.. I've been tested for RA, Lupus, and everything in between. My family joke is that I got Every bad genetic combo possible between my mom and dad.since I have two brothers and one sister who are PERFECTLY Healthy and can eat anything they want and not gain weight. I really really try to joke about it but some days I want to scream. Up until 7 years ago I just "delt" with it. Now I worry, Not for me, but for my girls and gr kids. I firmly believe alot is genetic, my mom died of IPF 12 years ago. Her family "didn't have lung problems" she said but they were all farmers and alot had lung problems (from the dust in the hay you know). But the more we know, the more probable it was a form of IPF. Sorry Im tired tonight and that always makes it worse. I guess I just need to vent to someone who actually understands what I'm talking about.Thanks for listening

On Fri, Feb 27, 2009 at 5:56 PM, Tom <uncle_fuzzy (AT) verizon (DOT) net> wrote:

Interesting about the low grade fevers. A lot of the people I know on the Adult Onset Still's Disease board have low grade fevers and similar to Dyanne, our usual temps run low.The bad part about AOSD is one of the typical things we go through as our disease progresses is the Still's or "Dragon Fevers". They typically happen once or twice a day with each one lasting about 2 hours. (I had the 2 cycle) They are like clockwork every day, sometimes for several months and usually hit 103-104+ F and rarely less than that. Mine hit around 7PM till 9PM and again at about 2 or 3 AM. The middle of the night ones were the worse as I would wake up in a pool of my own sweat (really gross). By the way, nothing usually touches the fevers, not Acetamenphen or Ibuprophen. You just ride them out. The sufferers who get this symptom before diagnosis spend frequent time in the ER with the docs just scratching their heads as it is an uncommon autoinflammatory disease and the symptoms do not always occur in the same order with everyone. Those visits usually result in test after test after test and bunches of antibiotics to no avail until you move to the next set of symptoms.Tom> >> > Hi All,> > I'm not sure why this popped into my head, but I have had low grade> > fevers at night for years, no one has ever figured out why. Usually> > this happens when I'm more tired than usual. Usually not more than> > 99F although since I'm normally a 96.5F 99 leaves me feeling pretty> > punky. Have any of you had this as a symptom? Happy Weekend> > all..will be 85 this weekend in Phoenix:)> >> > Dyane> > Phoenix AZ IPF 02> >>

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

-- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C.

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