gina - what a wonderful post

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gina

this is a wonderful post.

what a generous offer.

very clever to loan to your nurse.

my, you are resourceful.

may

> >

> > -

> > Yeah, I have the ideopathic down. They have not been able to tell me

> what has caused it. My doctor (GP) said PF. The Pulmonologist said

> Ideopathic Interstitial Lung Disease (yeah, 150 different kinds). And

> the heart specialist got upset with me when I told him that being told

> you have Ideopathic ANYTHING is like saying to someone that yest they

> are sick, but not quite sure what they have. My heart function tests

> came back real good, or at least that is what my GP says. I get so

> frustrated because I am not getting consistent reports. I read the

> results from the heart doctor and took something completely different.

> My right ventrical is slightly enlarged (probably due to the sleep apnea

> that I know I have had most of my adult life, but never been tested

> for). Went for my first sleep apnea test last night... again, have to

> wait for results. I love this site because I get the impression that

> most everyone has been down this here has been down this lonely road.

> And yes, I have been googling my little heart out because NONE of my

> doctors so far have taken any time to explain anything to me. Didn't

> realize the gravity of the diagnoses until I started gooogling. My

> family (husband and two mid-20 children) thinks that the doctors are

> wrong and that it is " something else " . Another good reason to go to this

> support group. Thanks again for the input.

> >

> > Stefani

> >

>