Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Joe goes monday for his first post op chemo appt. , we are praying that all stays good news!! He has to go Sept 7th for the nerve study , but I am pretty sure the neuropathy is just caused by the chemo and not the syrinx ( we can hope cant we?) He is feeling pretty good , other than the neuropathy and some twinges in stomach but we are saying HECK its just normal twinges, and not even thinking about anything else ( umm yeah right ) Dani went to the neurosurgeon for her first post op visit today , they have set her up to have another MRI on Sept 10th to see if they can figure out why she is having the headaches, Also gave her a note for school that says she cant carry backpack or gym for at least 3 months ( no not carry gym lol you know what I mean) As for mom she went to the oncologist today first time since her diagnoses ( this time) And we found out that she has squamous cell(Lung) cancer tumor in her mediastinium area, inoperable. They are going to start chemo on Tuesday, the oncologist said that the chemo will not cure it , but will arrest it , hmmm does this mean then mom will have to be on chemo the rest of her life?? The chemo she will be on is Taxol and Carboplatin, she begins Tuesday and then goes every 3 weeks, for she thinks they said 10 treatments?? I have questions , like she was recently diagnosed with Congestive heart failure , how is she to combat becoming dehyrdrated during chemo, since if she drinks to much the CHF kicks in?? Will she definately loose her hair ? And how much do wigs run?? She isnt a vain woman by any means , but she is very upset over the thought of this, mom and dad are on a fixed income and cant afford much extra's , also they have no prescription coverage , I told mom to let the doctor know so maybe they will give her anti nausea samples???????? One of the drugs she is going to be on is platinum based so she will have the cold issues ( not eating /touching cold things ) like oxaplatin . Mom is VERY independent and not one to listen to others lol. I told her she MUST do what the docs say, like drink etc I also told her that ultimately the decision to continue chemo will be HERS and no one , not my father , not my siblings, not myself , can or will force her to do it . My mom and dad have been married for 57yrs , and she is more worried about dad being at the chemo place for 6hours with her than she is for herself I realize that this is the Colon cancer list but I feel more like family here so I hope yall dont mind me ranting here. Me?? I still need to dye my hair , my driving is coming along slowly but surely havent hit anything so thats a GOOD THING!!!!!!!!!! lol still havent left my neighborhood yet , I want to get totally comfortable first lol Thanks for listening Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Deb, Hamilton has a cancer site that lists all the different chemos and what they do to you, its http://www.chemocare.com/ And my sister had chemo that caused her to lose all her hair after the 2nd treatment, the American Cancer Society gave her completely free a really nice quality wig, they had lots for her to choose from, it's very nice, brand new and they do this all over the country she was told, just call them. They also give away large packages of makeup to make cancer victims feel a bit better, all kinds of brand name cosmetics, regular size, it is worth giving them a call. ~Dianna deb vamdembos debbied31@...> wrote:Joe goes monday for his first post op chemo appt. , we are praying that all stays good news!! He has to go Sept 7th for the nerve study , but I am pretty sure the neuropathy is just caused by the chemo and not the syrinx ( we can hope cant we?) He is feeling pretty good , other than the neuropathy and some twinges in stomach but we are saying HECK its just normal twinges, and not even thinking about anything else ( umm yeah right ) Dani went to the neurosurgeon for her first post op visit today , they have set her up to have another MRI on Sept 10th to see if they can figure out why she is having the headaches, Also gave her a note for school that says she cant carry backpack or gym for at least 3 months ( no not carry gym lol you know what I mean) As for mom she went to the oncologist today first time since her diagnoses ( this time) And we found out that she has squamous cell(Lung) cancer tumor in her mediastinium area, inoperable. They are going to start chemo on Tuesday, the oncologist said that the chemo will not cure it , but will arrest it , hmmm does this mean then mom will have to be on chemo the rest of her life?? The chemo she will be on is Taxol and Carboplatin, she begins Tuesday and then goes every 3 weeks, for she thinks they said 10 treatments?? I have questions , like she was recently diagnosed with Congestive heart failure , how is she to combat becoming dehyrdrated during chemo, since if she drinks to much the CHF kicks in?? Will she definately loose her hair ? And how much do wigs run?? She isnt a vain woman by any means , but she is very upset over the thought of this, mom and dad are on a fixed income and cant afford much extra's , also they have no prescription coverage , I told mom to let the doctor know so maybe they will give her anti nausea samples???????? One of the drugs she is going to be on is platinum based so she will have the cold issues ( not eating /touching cold things ) like oxaplatin . Mom is VERY independent and not one to listen to others lol. I told her she MUST do what the docs say, like drink etc I also told her that ultimately the decision to continue chemo will be HERS and no one , not my father , not my siblings, not myself , can or will force her to do it . My mom and dad have been married for 57yrs , and she is more worried about dad being at the chemo place for 6hours with her than she is for herself I realize that this is the Colon cancer list but I feel more like family here so I hope yall dont mind me ranting here. Me?? I still need to dye my hair , my driving is coming along slowly but surely havent hit anything so thats a GOOD THING!!!!!!!!!! lol still havent left my neighborhood yet , I want to get totally comfortable first lol Thanks for listening Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
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