Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 That first sentence was supposed to say "I don't think I'm the only woman on this board who deals with this problem." Oxygen deprivation. LOL Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, March 27, 2009 7:09:48 PMSubject: stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 MB. I can hardly wait for this news! ;O) All of my life it's been the kegels.... When I had exams by an ob-gyn I could snap his finger off! :oD MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point. NUFF SAID!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Friday, March 27, 2009 6:09:48 PMSubject: stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Beth, God Bless ya girl! I have worn panty liners almost everyday for the past 2 years. And I'm sure you can imagine what happens if I forget. I look forward to finding out how your PT goes. FL IPF dx 1/06 > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for " pelvic floor physical therapy " . She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what " pelvic floor physical therapy " will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things " kegels by themselves don't work " and " pelvic floor pt does " . I'll let you know! > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Beth, God Bless ya girl! I have worn panty liners almost everyday for the past 2 years. And I'm sure you can imagine what happens if I forget. I look forward to finding out how your PT goes. FL IPF dx 1/06 > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for " pelvic floor physical therapy " . She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what " pelvic floor physical therapy " will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things " kegels by themselves don't work " and " pelvic floor pt does " . I'll let you know! > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Caro, I will definitely keep you posted. My first appointment isn't for a couple of weeks but I'm most curious. The physical therapist is supposedly someone nationally recognized in this area and teaches and trains others. Can't imagine doing this kind of work all day long lol Interestingly enough my gyn said what happened to you is very common. To have the surgery and then have the problem recur. To go through all that and then have it come back would make me want to hurt someone. UGH! Have a good weekend! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, March 27, 2009 7:25:29 PMSubject: Re: stress incontinence Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point. NUFF SAID!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 6:09:48 PMSubject: stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Caro, I will definitely keep you posted. My first appointment isn't for a couple of weeks but I'm most curious. The physical therapist is supposedly someone nationally recognized in this area and teaches and trains others. Can't imagine doing this kind of work all day long lol Interestingly enough my gyn said what happened to you is very common. To have the surgery and then have the problem recur. To go through all that and then have it come back would make me want to hurt someone. UGH! Have a good weekend! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, March 27, 2009 7:25:29 PMSubject: Re: stress incontinence Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point. NUFF SAID!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 6:09:48 PMSubject: stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 , I hear ya....I use the poise pads all the time. It's so frustrating, not to mention expensive! It's just one of those things that alot of the women with this disease cope with but no one talks about. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, March 27, 2009 8:33:28 PMSubject: Re: stress incontinence Beth, God Bless ya girl! I have worn panty liners almost everyday for the past 2 years. And I'm sure you can imagine what happens if I forget. I look forward to finding out how your PT goes. FLIPF dx 1/06>> I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 That was exactly how I felt plus the fact that even though I had insurance, the surgery cost $20000!!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Friday, March 27, 2009 7:37:05 PMSubject: Re: stress incontinence Caro, I will definitely keep you posted. My first appointment isn't for a couple of weeks but I'm most curious. The physical therapist is supposedly someone nationally recognized in this area and teaches and trains others. Can't imagine doing this kind of work all day long lol Interestingly enough my gyn said what happened to you is very common. To have the surgery and then have the problem recur. To go through all that and then have it come back would make me want to hurt someone. UGH! Have a good weekend! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Carolyn Wade <carowade4444@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 7:25:29 PMSubject: Re: stress incontinence Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point. NUFF SAID!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 6:09:48 PMSubject: stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 That was exactly how I felt plus the fact that even though I had insurance, the surgery cost $20000!!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Friday, March 27, 2009 7:37:05 PMSubject: Re: stress incontinence Caro, I will definitely keep you posted. My first appointment isn't for a couple of weeks but I'm most curious. The physical therapist is supposedly someone nationally recognized in this area and teaches and trains others. Can't imagine doing this kind of work all day long lol Interestingly enough my gyn said what happened to you is very common. To have the surgery and then have the problem recur. To go through all that and then have it come back would make me want to hurt someone. UGH! Have a good weekend! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Carolyn Wade <carowade4444@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 7:25:29 PMSubject: Re: stress incontinence Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point. NUFF SAID!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 6:09:48 PMSubject: stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 That was exactly how I felt plus the fact that even though I had insurance, the surgery cost $20000!!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Friday, March 27, 2009 7:37:05 PMSubject: Re: stress incontinence Caro, I will definitely keep you posted. My first appointment isn't for a couple of weeks but I'm most curious. The physical therapist is supposedly someone nationally recognized in this area and teaches and trains others. Can't imagine doing this kind of work all day long lol Interestingly enough my gyn said what happened to you is very common. To have the surgery and then have the problem recur. To go through all that and then have it come back would make me want to hurt someone. UGH! Have a good weekend! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Carolyn Wade <carowade4444@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 7:25:29 PMSubject: Re: stress incontinence Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point. NUFF SAID!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 6:09:48 PMSubject: stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Beth, Brady and all, I too suffered from the dreaded incontinence and then a very wise 80 year old told me to drink less. I was making myself drink 8 to 10 glasses of water each day since it is supposed to be good for us. Since then I have found out the water thing is just a myth. I only drink at meals, I have not gained any weight, my skin is fine AND no panty liners! Not sure if it will help anyone else, but for me it has been a blessing. Love you all- R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: stress incontinenceTo: Breathe-Support Date: Friday, March 27, 2009, 5:33 PM Beth, God Bless ya girl! I have worn panty liners almost everyday for the past 2 years. And I'm sure you can imagine what happens if I forget. I look forward to finding out how your PT goes. FLIPF dx 1/06>> I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Beth, Brady and all, I too suffered from the dreaded incontinence and then a very wise 80 year old told me to drink less. I was making myself drink 8 to 10 glasses of water each day since it is supposed to be good for us. Since then I have found out the water thing is just a myth. I only drink at meals, I have not gained any weight, my skin is fine AND no panty liners! Not sure if it will help anyone else, but for me it has been a blessing. Love you all- R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: stress incontinenceTo: Breathe-Support Date: Friday, March 27, 2009, 5:33 PM Beth, God Bless ya girl! I have worn panty liners almost everyday for the past 2 years. And I'm sure you can imagine what happens if I forget. I look forward to finding out how your PT goes. FLIPF dx 1/06>> I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Beth, Brady and all, I too suffered from the dreaded incontinence and then a very wise 80 year old told me to drink less. I was making myself drink 8 to 10 glasses of water each day since it is supposed to be good for us. Since then I have found out the water thing is just a myth. I only drink at meals, I have not gained any weight, my skin is fine AND no panty liners! Not sure if it will help anyone else, but for me it has been a blessing. Love you all- R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: stress incontinenceTo: Breathe-Support Date: Friday, March 27, 2009, 5:33 PM Beth, God Bless ya girl! I have worn panty liners almost everyday for the past 2 years. And I'm sure you can imagine what happens if I forget. I look forward to finding out how your PT goes. FLIPF dx 1/06>> I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 There are doctors saying forced water may not be appropriate. But they aren't yet telling us how to know the right amount. Just to listen to our bodies. If you feel dehydrated, you need more. If not, you likely are having enough. > > > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > > I was talking to my gynecologist the other day and she suggested that she refer me for " pelvic floor physical therapy " . She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what " pelvic floor physical therapy " will entail but if it will help I'm more than willing to put up with a little indignity. > > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things " kegels by themselves don't work " and " pelvic floor pt does " . I'll let you know! > > > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 There are doctors saying forced water may not be appropriate. But they aren't yet telling us how to know the right amount. Just to listen to our bodies. If you feel dehydrated, you need more. If not, you likely are having enough. > > > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > > I was talking to my gynecologist the other day and she suggested that she refer me for " pelvic floor physical therapy " . She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what " pelvic floor physical therapy " will entail but if it will help I'm more than willing to put up with a little indignity. > > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things " kegels by themselves don't work " and " pelvic floor pt does " . I'll let you know! > > > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 OMG what a bust Board this is....this is one of my 'Maintenance' Issues.... not the Stress varity but 'URGE' type... Loo BEFORE turning on ANY Tap (or getting in the shower, or even THINKING about water..... forget walking past FOUNTAINS for gosh sakes)...works for me but heck I have to keep visiting the little room a heck of a lot in every day SOOOOOOO..... off to 'fess up about this long hidden problem of mine (I'm sure it satrted after a difficult hysterectomy in 1999) I was sent up to Brisbane for 'Uro-Dynamic' Assessment & I'll get the results next week... I'll keep you gals posted.... About the Testing process... lets just say I needed SERIOUS Shopping Therapy to recover from the various indignities I was subjected to! A WHOLE WEEKEND of Shopping plus a stay in a NICE hotel..... I already know I'm going to need some 'reconstructive' surgery as a post-hysterectomy deal... oh gosh, isn't life FUN! BTW.. my sister-in-law had the sling surgery lasy year & she's still in the 'thrilled' stage... lets hope it stays that way fro her.... GIO >> Caro,> I will definitely keep you posted. My first appointment isn't for a couple of weeks but I'm most curious. The physical therapist is supposedly someone nationally recognized in this area and teaches and trains others. Can't imagine doing this kind of work all day long lol> Interestingly enough my gyn said what happened to you is very common. To have the surgery and then have the problem recur. To go through all that and then have it come back would make me want to hurt someone. UGH!> Have a good weekend!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > ________________________________> To: Breathe-Support > Sent: Friday, March 27, 2009 7:25:29 PM> Subject: Re: stress incontinence> > > Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point.> > NUFF SAID!! > Caro> ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09> Mississippi > > > > > ________________________________> From: Beth mbmurtha (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, March 27, 2009 6:09:48 PM> Subject: stress incontinence> > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 OMG what a bust Board this is....this is one of my 'Maintenance' Issues.... not the Stress varity but 'URGE' type... Loo BEFORE turning on ANY Tap (or getting in the shower, or even THINKING about water..... forget walking past FOUNTAINS for gosh sakes)...works for me but heck I have to keep visiting the little room a heck of a lot in every day SOOOOOOO..... off to 'fess up about this long hidden problem of mine (I'm sure it satrted after a difficult hysterectomy in 1999) I was sent up to Brisbane for 'Uro-Dynamic' Assessment & I'll get the results next week... I'll keep you gals posted.... About the Testing process... lets just say I needed SERIOUS Shopping Therapy to recover from the various indignities I was subjected to! A WHOLE WEEKEND of Shopping plus a stay in a NICE hotel..... I already know I'm going to need some 'reconstructive' surgery as a post-hysterectomy deal... oh gosh, isn't life FUN! BTW.. my sister-in-law had the sling surgery lasy year & she's still in the 'thrilled' stage... lets hope it stays that way fro her.... GIO >> Caro,> I will definitely keep you posted. My first appointment isn't for a couple of weeks but I'm most curious. The physical therapist is supposedly someone nationally recognized in this area and teaches and trains others. Can't imagine doing this kind of work all day long lol> Interestingly enough my gyn said what happened to you is very common. To have the surgery and then have the problem recur. To go through all that and then have it come back would make me want to hurt someone. UGH!> Have a good weekend!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > ________________________________> To: Breathe-Support > Sent: Friday, March 27, 2009 7:25:29 PM> Subject: Re: stress incontinence> > > Hi MB!! I would be really interested in finding out how this turns out. I have had the same problem since I was about 28 years old. Finally had the sling procedure done in 2005. OMG!! I thought I had won the lottery!! I could actually run and stay dry, which I hadn't been able to do for nearly 15 years or so. Well, long story short, 2 months later, same as before the surgery. I have been offered to try it again, but it was really a painful recovery time (6 weeks for definite and no lifting over 25 pounds the rest of your life). Well, I probably didn't help the situation by not turning down my grandbabies when they wanted me to pick them up, as I was babysitting them everyday at the time. I don't think I will go through that again, though. Just deal with it. Figure I will probably croak anyway from all these other dreaded diseases before I get to the Depends point.> > NUFF SAID!! > Caro> ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/ DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09> Mississippi > > > > > ________________________________> From: Beth mbmurtha (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, March 27, 2009 6:09:48 PM> Subject: stress incontinence> > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 I have had the pelvic floor physical therapy. It wasn't for my bladder though. I had surgery for a bowel rupture and to lift up everything that had fallen from my hysterectomy. I don't know what he did but I am no longer able to strain. The PFPT didn't help me. I was also something that I didn't enjoy but you may not have the same thing because mine was for the bowel. Good luck. I hope that it works for you. Beverley Joy stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Beth, I think that it will help you. I had the surgery about 3 years ago. I think that he snipped a nerve or something that he shouldn't have. He says that he didn't. I also have the stress incontinence but it isn't bad. At night I wake up with such a full bladder that I can barely make it to the bathroom. This just started recently. Is that a part of this problem or is it just me? Beverley stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Beth, I think that it will help you. I had the surgery about 3 years ago. I think that he snipped a nerve or something that he shouldn't have. He says that he didn't. I also have the stress incontinence but it isn't bad. At night I wake up with such a full bladder that I can barely make it to the bathroom. This just started recently. Is that a part of this problem or is it just me? Beverley stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 I thought that it was funny too but I read it late last night and I was so exhausted that I didn't post an answer. Beverley stress incontinence> > > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 I thought that it was funny too but I read it late last night and I was so exhausted that I didn't post an answer. Beverley stress incontinence> > > > I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. > I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. > I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Bev, I don't know. I don't have the typical bladder issues like frequency or urgency...like the 'gotta go, gotta go, gotta go right now' commercials on tv. I just have a problem where I tend to "leak" when I have that very hard cough. My gyn tells me it's "pure stress incontinence" which is almost always helped by the physical therapy. Keeping my fingers crossed! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sunday, March 29, 2009 1:02:09 PMSubject: Re: stress incontinence Beth, I think that it will help you. I had the surgery about 3 years ago. I think that he snipped a nerve or something that he shouldn't have. He says that he didn't. I also have the stress incontinence but it isn't bad. At night I wake up with such a full bladder that I can barely make it to the bathroom. This just started recently. Is that a part of this problem or is it just me? Beverley stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Bev, I don't know. I don't have the typical bladder issues like frequency or urgency...like the 'gotta go, gotta go, gotta go right now' commercials on tv. I just have a problem where I tend to "leak" when I have that very hard cough. My gyn tells me it's "pure stress incontinence" which is almost always helped by the physical therapy. Keeping my fingers crossed! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sunday, March 29, 2009 1:02:09 PMSubject: Re: stress incontinence Beth, I think that it will help you. I had the surgery about 3 years ago. I think that he snipped a nerve or something that he shouldn't have. He says that he didn't. I also have the stress incontinence but it isn't bad. At night I wake up with such a full bladder that I can barely make it to the bathroom. This just started recently. Is that a part of this problem or is it just me? Beverley stress incontinence I don't think I'm the woman on this board who deals with this problem. It started for me prior to my diagnosis. Back then it was awful and it was very difficult to keep myself dry. The pressure on my pelvic floor muscles from coughing caused my bladder to leak and that's putting it mildly. Since my diagnosis and getting on oxygen and minimizing the cough it's better but the stress incontinence is still very much with me and I hate it. I was talking to my gynecologist the other day and she suggested that she refer me for "pelvic floor physical therapy". She feels strongly that we can get rid of 75-90% of the stress incontinence. Well that was news to me but it got my attention. She also told me that Medicare would definitely pay for it. So to make a long story short, in about 3 weeks I have an appointment with a physical therapist to begin working on this. I can only imagine what "pelvic floor physical therapy" will entail but if it will help I'm more than willing to put up with a little indignity. I'm hopeful it will help and I'll keep you all posted but will spare you the details. LOL I honestly thought the only solution was surgical and I knew that wasn't an option. My gyn however was adamant about two things "kegels by themselves don't work" and "pelvic floor pt does". I'll let you know! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
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